Introduction to the EUPATI Toolbox

1. IPPOSI presents the European Patients’ Academy
(EUPATI) Toolbox on Medicines Research & Development

2. Webinar on the EUPATI Toolbox
www.eupati.eu
 Presentation: Introduction to the vision for the EUPATI Toolbox
Derick Mitchell, IPPOSI, Chief Executive
 Presentation: Discover! Adapt! and Share! the EUPATI Toolbox
John Lenehan, Hibernia College, EUPATI IT Manager
 Panel discussion: The EUPATI Toolbox & patient involvement in
Irish medicines R&D
• Katie Murphy, EUPATI, Patient Expert Training Course student
• Anne Cody, HRB, Head of Research Capabilities
• Sinead Tuite, MSD, Patient Programmes Manager

3. The EUPATI Toolbox www.eupati.eu
IPPOSI & EUPATI
• Founding consortium member
• Leader of the Task Force to
create 12 EUPATI National
Platforms
The Toolbox is our flagship
“product”
• Based on the EUPATI Patient
Expert Training Course
• 3000 pieces of content
• DISCOVER! ADAPT! SHARE!
self-learning, community
learning, public information

4. The Toolbox in action – join the learning!
 Discover tools, adapt & share with
your patient communities
• DISCOVER! Log on & find information
about how clinical trials work, about
pharmacovigilance, or personalised
medicines?
• ADAPT! Identify topics which are
important for your community & adapt the
information [delete information which is not
relevant, add information relevant to
Ireland or to the specific patient
community]
• SHARE! Link to EUPATI on your website,
include us in your next members’
newsletter.
• Use an image or a
diagram for your
public information
material
• Use a slide in your
next training or
presentation
• Use a factsheet &
add information
specific to your
community
• Use the
information &
create a quiz or
poll for your
members

5. Let’s discover www.eupati.eu

6. The EUPATI Toolbox – 6 languages

7. The EUPATI Toolbox – accessibility

8. Medicines development
Personalised medicine
Drug safety, risk/benefit
Clinical trials
Patient roles & responsibilities
The EUPATI Toolbox – word search

9. EUPATI Toolbox – Content available
Infographics
Articles
Fact sheets
PowerPoints
Videos

10. EUPATI Toolbox – Glossary

11.  What are National Platforms?
‘IPPOSI-like structures’ created
by EUPATI in over 12 countries
across Europe: UK, France,
Spain, Italy, Germany, Austria
etc
EUPATI Toolbox – Country pages

12.  What we produce is free for unlimited use by the public
 You may:
• Share tools: copy & redistribute in any medium/format
• Adapt tools: remix, transform, & build upon the material
 You must:
• Give appropriate credit
• Provide a link to the license
• Indicate modifications
• Distribute adapted content under creative commons license
 You may not:
• Use the licensed material for commercial purposes
The EUPATI Toolbox - Creative Commons
Creative Commons Attribution-NonCommercial-
ShareAlike 4.0 International (CC BY-NC-SA 4.0)
license

13. Analytics (1)
 Overview since launch
• 6081 unique users
• 30,254 page views
• 120 countries
 Country
1. United Kingdom 1,113 13.28%
2. Switzerland 912 10.88%
3. Italy 884 10.55%
4. Spain 830 9.91%
5. United States 804 9.60%
6. Germany 567 6.77%
7. Ireland 446 5.32%
8. Belgium 304 3.63%
9. France 260 3.10%
10. Denmark 228 2.72%

14. Analytics (2)
 Top 5 categories
1. https://www.eupati.eu/category/basics-of-medicine/
2. https://www.eupati.eu/category/clinical-development-and-trials/
3. https://www.eupati.eu/category/drug-discovery/
4. https://www.eupati.eu/category/pharmaceutical-development/
5. https://www.eupati.eu/category/types-of-medicine/
 Top 5 articles
1. https://www.eupati.eu/an-introduction-to-clinical-research/
2. https://www.eupati.eu/best-practices-for-patient-involvement-in-hta-processes/
3. https://www.eupati.eu/marketing-authorisation/
4. https://www.eupati.eu/clinical-trial-designs/
5. https://www.eupati.eu/evidence-based-medicine/
 Top 5 downloads
1. Presentation-Making-a-medicine-Basics
2. Presentation-Clinical-Trial-Designs
3. Presentation-Non-Clinical-Development
4. Presentation-Marketing-authorisation
5. Fact-sheet-Medicine-Discovery

15. #EUPATItoolbox #patientsinvolved

16. Thank you! Come visit us today & if you
want to link, contact eupati@ipposi.ie