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Caregiving Styles




Mary A Corcoran PhD, OT/L
Professor and Associate Dean
George Washington University
Why Study
   Caregiving
    Styles?



 “If you’ve seen one
caregiver, you’ve seen
    one caregiver”
The Caregiving Style Studies

Spouses (68)
 5 years
 National Institute on Aging
Adult children (33)
 1 year
 Virginia Commonwealth,
  ARDRAF
Mixed Methods Design

• QUAL-quant
  • Grounded theory


Focusing on qualitative
 analysis today
Data

• Qualitative
  • Long interview (250+ total
    hours)
  • Videotapes (33+ total hours)
• Quantitative
  • Sociodemographics
  • Measures of well-being
Qualitative Analytic Approach

Three iterative tasks
 Coding Describe what is going on
 Categories Identify larger “parts”
 Theme Develop a theory of
 caregiving style
Getting from Codes to Categories

Coding – unlinked descriptions
 of data
Categories – arrange codes as
 hierarchies


      Hierarchies of what?
Beliefs
Meanings




           Actions




      Style
Categories: Elements of Style
Beliefs
   What is …?
Meanings
   The role signifies …?
Actions
   Caregiving gets done by …?
Action: Taking Care of Self
Looking at data as a whole, caregivers
 take care of self by
 Reducing demands of role
 Doing something important
 Getting healthy
 Staying connected
Taking Care of Self
                         No
  Has strategies
                     strategies

          Does not   Does not
 Meets
           meet       meet
 needs
           needs      needs
Three groups

Compare and contrast through
axial coding
 Causes
 Consequences
 Context
 Conditions
Example: Exercise and
Conditions

                           No exercise
                  CR not
           Help    OK
                  alone


              CR OK
Exercise
              alone
Example: Exercise and
Consequences
Four Caregiving Styles




Facilitating   Directing   Balancing   Advocating
Caregiver Priorities

        Facilitating
                       Directing
        Emotional
                        Physical
          health,
                        health of
        identity of
                          CR
            CR


        Balancing      Advocating
       Maintaining      Managing
       the status       others to
          quo          support CR
Caregiver Strategies

        Facilitating
                         Directing
       Anything that
                          Verbal
       involves self




         Balancing
       Environmental    Advocating
          controls,
                       Vigilance and
        supervision,
                         advocacy
         repetitive
         activities
Caregiver Interactions

                       Directing
       Facilitating
                      Limited or
       Cooperative
                        none




                      Advocating
        Balancing     Range with
         Parallel     purpose of
                      assessment
Caregiver Needs
      Facilitating
                      Directing
      Recognizes
                     Recognizes
         but
                        needs
       doesn’t        limited to
       address           work
      own needs

       Balancing     Advocating
       Has help       Has help
      and meets      and meets
      own needs      own needs
Caregiver Emotions

       Facilitating
                       Directing
         Worries
                      Frustrated
      about ability
                          and
       to provide
                       stressed
        best care


       Balancing      Advocating
       Generally      Generally
       satisfied      satisfied
       with care      with care
       provision      provision
Conclusion
• Caregivers may
   - demonstrate a mix of styles
   - change over time; circumstances

• Understanding priorities of caregiver
  regarding self and care recipient is key
Caveats
• Styles are a guide, not a prescription
• Theory - Requires further testing
Reference


Corcoran, M.A. (2011). Caregiving Styles: A
Cognitive and Behavioral Typology Associated
With Dementia Family Caregiving. The
Gerontologist 51, 4, 463-472.
doi:10.1093/geront/gnr002

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Four styles for ot audience cotton 2

  • 1. Caregiving Styles Mary A Corcoran PhD, OT/L Professor and Associate Dean George Washington University
  • 2. Why Study Caregiving Styles? “If you’ve seen one caregiver, you’ve seen one caregiver”
  • 3. The Caregiving Style Studies Spouses (68) 5 years National Institute on Aging Adult children (33) 1 year Virginia Commonwealth, ARDRAF
  • 4. Mixed Methods Design • QUAL-quant • Grounded theory Focusing on qualitative analysis today
  • 5. Data • Qualitative • Long interview (250+ total hours) • Videotapes (33+ total hours) • Quantitative • Sociodemographics • Measures of well-being
  • 6. Qualitative Analytic Approach Three iterative tasks  Coding Describe what is going on  Categories Identify larger “parts”  Theme Develop a theory of caregiving style
  • 7. Getting from Codes to Categories Coding – unlinked descriptions of data Categories – arrange codes as hierarchies Hierarchies of what?
  • 8. Beliefs Meanings Actions Style
  • 9. Categories: Elements of Style Beliefs  What is …? Meanings  The role signifies …? Actions  Caregiving gets done by …?
  • 10.
  • 11. Action: Taking Care of Self Looking at data as a whole, caregivers take care of self by  Reducing demands of role  Doing something important  Getting healthy  Staying connected
  • 12. Taking Care of Self No Has strategies strategies Does not Does not Meets meet meet needs needs needs
  • 13. Three groups Compare and contrast through axial coding Causes Consequences Context Conditions
  • 14. Example: Exercise and Conditions No exercise CR not Help OK alone CR OK Exercise alone
  • 16. Four Caregiving Styles Facilitating Directing Balancing Advocating
  • 17. Caregiver Priorities Facilitating Directing Emotional Physical health, health of identity of CR CR Balancing Advocating Maintaining Managing the status others to quo support CR
  • 18. Caregiver Strategies Facilitating Directing Anything that Verbal involves self Balancing Environmental Advocating controls, Vigilance and supervision, advocacy repetitive activities
  • 19. Caregiver Interactions Directing Facilitating Limited or Cooperative none Advocating Balancing Range with Parallel purpose of assessment
  • 20. Caregiver Needs Facilitating Directing Recognizes Recognizes but needs doesn’t limited to address work own needs Balancing Advocating Has help Has help and meets and meets own needs own needs
  • 21. Caregiver Emotions Facilitating Directing Worries Frustrated about ability and to provide stressed best care Balancing Advocating Generally Generally satisfied satisfied with care with care provision provision
  • 22. Conclusion • Caregivers may - demonstrate a mix of styles - change over time; circumstances • Understanding priorities of caregiver regarding self and care recipient is key
  • 23. Caveats • Styles are a guide, not a prescription • Theory - Requires further testing
  • 24. Reference Corcoran, M.A. (2011). Caregiving Styles: A Cognitive and Behavioral Typology Associated With Dementia Family Caregiving. The Gerontologist 51, 4, 463-472. doi:10.1093/geront/gnr002

Notas do Editor

  1. Using an inductive reasoning process, I wanted to develop a theory about caregiving style that was grounded in the data
  2. End goal is theory of style. What is a style? What are the essential ingredients for something to be a style? Pattern over time, but what else? Used the literature to define style = essential elements. Used these elements as a hierarchy for codes.
  3. If I looked at my participants as individuals (rather than clumping the data together as a whole) I saw there were three possible conditions. BTW, looking at things individually rather than as a block of data is part of what researchers mean when they say they are considering the context (contextualizing, placing in context).How did the cg talk about taking care of themselves? I asked specifically what they did to recharge their batteries and some had strategies and some didn’t …BTW, if I had not asked the batteries question, what would have been the effect on the trustworthiness of my analysis?
  4. Facilitative - Seeks to maintain identity of CR (i.e., clothing, former roles)Self-image tied to “good caregiving”Directive-Priority is physical health of CRElaborate regimes of medication, nutrition, or use of supplementsAppearances important (keeps house clean, worries about being embarrassed)
  5. Facilitating- also tries to keep care recipient active