Empowerment with Sex Workers for HIV Prevention in India
1. Opening Slide (change photo)
GlobalHealth
Institute
Dallas Swendeman, Ph.D., M.P.H.
Co-Director, Center of Expertise on Women’s Health,
Gender & Empowerment, University of California
Global Health Institute (UCGHI)
Associate Professor, Department of Psychiatry and
Biobehavioral Sciences, David Geffen School of
Medicine at UCLA
Affiliated Faculty, Department of Epidemiology, UCLA
Fielding School of Public Health
2.
3. 6/3/19 3
Women’s Health, Gender and
Empowerment COE
Establishing UCGHI as global health thought leaders
COE Leadership Team
Co-Directors:
Ndoal Prata, UCB
Dallas Swendeman, UCLA
Directors of Programs:
Melissa Smith, UCSB, Education & Training
Ushma Upadhyay, UCSF, Research & Dissemination
Jennifer Wagman, UCSD, Community Engagement & Signature Project
4. Durbar - A Community-led
Structural Intervention
5. Dr. Jana, an occupational health
doctor, negotiated a contract
with political parties & police to
support sex workers to use
condoms, advocate for their
rights and support their families
High status advocate
Removed structural barriers
Changed social group relations
Built skills & competencies
6. Durbar - The Sonagachi Project
• W.H.O. Model Program
• Model for Project Avahan
• Gates Foundation funded scale-up of HIV
prevention in India
7. Kolkata’s Sonagachi
“red light area” - 2001
Timeline of Research
& Training Activities
1998-2003: Replication Trial
2005-2007: Mixed-methods Rx
- In-depth interviews
- Random Household Survey
2007: AIIS Fellowship
- Participant-observation of social
movement aspects of Durbar
- Statistical analyses for dissertation
2007: Internship program
- UPENN Social Work Service-
Learning summer course
2010: Indo-US Bilateral R21
- ICMR & NIH collab., funded 2012
- Pilot RCT on Mobile Tech. for ART
adherence
2017: PrEP Demonstration
8. Durbar Intervention Evolution
W.H.O. Risk Appraisal - 1991
• Community mapping
• Stakeholder analysis
• Advocacy to implement
• Risk behavior survey
• Identify community leaders
9. Durbar - Intervention Evolution
STD/HIV Intervention
Project (SHIP) – 1992
•STI clinics for diagnosis,
treatment & follow-up
•Peer health educators
•Social marketing
•Stakeholder advocacy
W.H.O. Risk Appraisal - 1991
• Community mapping
• Stakeholder analysis
• Advocacy to implement
• Risk behavior survey
• Identify community leaders
10. SHIP Did not address structural
barriers or community priorities
Contexts of
Disempowerment
Poverty
Low status/value
of girls & women
Lack of economic
opportunities
Coercion,
including in other
work (domestic)
Loss of male
breadwinner
11. Durbar - Intervention Evolution
STD/HIV Intervention
Project (SHIP) – 1992
•STI clinics for diagnosis,
treatment & follow-up
•Peer health educators
•Social marketing
•Stakeholder advocacy
Durbar Mahila Samanwaya
Committee (DMSC / Durbar) -
Sex Worker SHG – 1995
• Voice of Community
• Organize & mobilize
• Local chapters
• Elected officers
• Raise consciousness
• Build community
• Advocacy with SHIP
W.H.O. Risk Appraisal - 1991
• Community mapping
• Stakeholder analysis
• Advocacy to implement
• Risk behavior survey
• Identify community leaders
12. Durbar - Intervention Evolution
W.H.O. Risk Appraisal - 1991
• Community mapping
• Stakeholder analysis
• Advocacy to implement
• Risk behavior survey
• Identify community leaders
STD/HIV Intervention
Project (SHIP) – 1992
•STI clinics for diagnosis,
treatment & follow-up
•Peer health educators
•Social marketing
•Stakeholder advocacy
Durbar Mahila Samanwaya
Committee (DMSC / Durbar) -
Sex Worker SHG – 1995
• Voice of Community
• Organize & mobilize
• Local chapters
• Elected officers
• Raise consciousness
• Build community
• Advocacy with SHIP
USHA Multi-Purpose
Micro-Finance Cooperative
• Secure savings & lending
• Reduce theft & extortion
• Peer field “tellers”
• Micro–enterprise loans
• Profits fund community
priority projects
17. Empowerment from Development
Investment Perspective
Agency
-individual
-collective
Resources
-economic
-social
-health
Achieve-
ments
-outcomes
* N. Kabeer (1999). Resources, Agency,
Achievements: Reflections on the
Measurement of Women's Empowerment.
Development and Change, 30: 435- 464.
18.
19. Kar- Common Strategies of
Women’s Empowerment Programs
•Empowerment training & leadership dev.
•Media use, support & advocacy
•Public-education & participation
•Organizing partnership: associations,
cooperatives & coalitions
•Work/job training & micro-finance - Econ
•Enabling services & assistance
•Rights protection & social action/reform
Kar, S.B., Pascual, C.A., & Chickering, K.L. (1999). Empowerment of women for health promotion: A meta-analysis. Social Science & Medicine, 49, 1431-1460.
20. Sex Workers show solidarity after 9/11
Durbar - a Social Movement of Sex Workers
21. 21
Social Movement, Identity & Behaviors
The Durbar “Master Frame”
§ “Sex work is valid work”
§ “Sex workers are human beings”
§ “Sex workers deserve to protect
themselves”
Designed to shift self-perceptions:
§ from “prostitute,” “fallen woman,”
“victim”
§ to “worker,” “human being,” “sister”
22. “Only rights can stop the wrongs”
Employs rights-based frames:
Human Rights
• “Three R’s: Respect, (self) Reliance, Recognition”
Worker’s Rights
§ HIV/STIs as occupational health & safety hazards
• “Sex work is work, we demand worker’s rights”
Women’s (& girls) Rights
§ empowerment
• gender & class-based economic & social exclusion
24. 24
Social Movement, Identity & Behavior
“Sex Worker” identity
§ Linked to constellation of behavioral
expectations:
• Negotiate condom use to protect self
• Visit clinics & adhere to treatment
• Solidarity with “sisters”
• Self-reliance & Self-respect
§ Re-frames decision-making
• Sex workers
• Clients
• Power Brokers (madams, police, political parties)
25. 25
UCLA Replication Study - Rationale
High HIV prevalence among sex
workers in Mumbai, Delhi, &
Chennai
§ 50%-90%
§ ~ 10% in Calcutta
May reflect the impact of the
“Sonagachi Project.”
§ Condom use by sex workers rose from
3% to > 80% since established in 1992.
26. 26
Replication Study Rationale &
Objective
Little evidence under controlled
conditions that Sonagachi Project is
responsible for:
§ increased condom use
§ low HIV prevalence
§ community empowerment
Sonagachi Project and UCLA
collaborated on a replication study
27. Collaborative Replication Trial
Brothel-based sex workers in “red light areas”
Control
(n=110)
•STD Clinic
Standard
Care
Site
Assessments
Baseline
5-month follow
up
10-month follow
up
Interventio
n (n=110)
•STD Clinic
Plus CLSI
15-month follow
up
Site Site Site
31. 31
Demographics
Mean age 26 (range - 18 to 50)
§ 25% <=20 years, 25% >=30 years
§ Most working in sex work >7 years
3/4 self-employed
§ < 5 “Adhiya” (50/50 split)
§ 25% “Chukri” (Bonded)
1/2 partnered & have children
§ 1/3 married
§ 1/2 steady partner/boyfriend
• 1/2 lived with husband or partner
Low Literacy and Education
§ 11% primary education (only 2 secondary)
§ 74% illiterate
Low substance use
§ 1/3 used alcohol, < 3% injected drugs
32. 32
HIV/STI Risk
Almost all risk from vaginal sex
§ < 25% reported oral or anal sex
Low substance use
§ 1/3 used alcohol
§ < 3% injected drugs
High lifetime STI exposure
§ 60% exposed to Syphilis (VDRL test)
§ 40% sought treatment in past
Low baseline STI prevalence
§ < 10%
1/2 reported some condom use
§ 40% every time (at baseline)
33. Figure 2. Percentage of condom use by intervention condition
* Indicates a statistically significant intervention effect (p<0.05) based on the compariosn of slopes of the two groups over time.
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Baseline Wave 1 Wave 2 Wave 3
Time points
Percentageofcondomuse
Intervention group
Standard care group
*
34. Indicators of “Empowerment”
Knowledge & Attitudes
-Know STD symptom
-Condoms Prevent STDs
-Condoms Prevent AIDS
-At risk for STDs
SEX BEHAVIOR SELF-EFFICACY
-Most important condom decision maker
-Can refuse a client
-Ever refused a client
WORKPlACE AUTONOMY
-Can change contract
ECONOMIC EMPOWERMENT
-Save money
-Other income
MOBILITY & SOCIALIZING
-Go with sex workers outside of work
-Participate in social functions
SEX WORKER 'CONSCIOUSNESS'
-Sex work is valid work
-Help other sex workers
-Want more education/training
-Disclosed profession
35. Summary Empowerment Index for HIV/STD Prevention
0
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
Baseline Wave 1 Wave 2 Wave 3
Time points
EmpowermentMeasure
Intervention group
Standard care group
*
39. Predictors of Empowerment & Intervention Effect
• Who benefited more from the intervention?
• Lower education, not self-employed, and older women.
• Educated and self-employed women had higher
baseline empowerment
• Less room to improve (“ceiling effects”)
• Older women have lower baseline empowerment
• Income decreases with age and is associated with
higher baseline empowerment
• Implications for negotiating power & alternative work
• Male partners (“Babus”) associated with higher
empowerment
• Security, power, and negotiation