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BETTER
TOGETHER
Why pharma companies and
patient organizations need to
collaborate differently to deliver
better patient e...
2
ABOUTTHE
RESEARCH
Online survey of 4,000 patients across 4
countries and 3 disease states to understand
how patients use...
3
Who patients prefer to use services from
among pharma companies, healthcare
professionals, pharmacies, payers and
patien...
4
• They engage early (pre-treatment)
and often with patient organizations
and intend to increase their
engagement with th...
5
Patients prefer to use
services from patient
organizations.
Patients rank pharma the
lowest in understanding
them amongs...
6
US patients were the most willing to share their data with patient organizations (64%) while patients
in Germany were th...
7
What is the emotional
and financial impact of
your condition per day?
Base: Total Respondents (4000) USA (1000) UK (1000...
8
This gap is even greater in the
US where 61% say they will
increase their engagement with
patient organizations versus j...
9
How do you engage with the services offered by a patient organization?
Base: Total Respondents (4000) USA (1000) UK (100...
10
Gain a better understanding
of patient needs—earlier
and more often.
of patients said pharma
companies would better
und...
34%
30%
29%
16%
14%
13%
29%
28%
25%
20%
22%
12%
39%
32%
28%
22%
18%
15%
TOP3PATIENTORGANIZATIONS:US
Chronic Migraine Patie...
74%
40%
63%
27%
36%
33%
25%
19%
23%
15%
60%
42%
24%
43%
31%
12%
TOP3PATIENTORGANIZATIONS:UK
Chronic Migraine Patients CLL ...
53%
33%
33%
40%
25%
23%
38%
26%
26%
23%
15%
14%
48%
43%
33%
36%
30%
22%
TOP3PATIENTORGANIZATIONS:FRANCE
Chronic Migraine P...
66%
39%
57%
28%
44%
37%
27%
29%
27%
18%
57%
53%
46%
47%
TOP3PATIENTORGANIZATIONS:GERMANY
Chronic Migraine Patients CLL Pat...
15
CONTACT US
linkedin.com/company/
accenture_life_sciences
@AccentureLifeSci
www.accenture.com
/lifesciencesblog
Keena Pa...
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Better Together: 2019 Patient Services Survey - Country Results

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Accenture Life Sciences survey of 4,000 patients across four countries and three conditions reveals how patients use and value services from patient organizations. Explo​​re the unique differences by country.​ Visit https://accntu.re/2Y9CGqw to learn more.

Publicada em: Tecnologia
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Better Together: 2019 Patient Services Survey - Country Results

  1. 1. BETTER TOGETHER Why pharma companies and patient organizations need to collaborate differently to deliver better patient experiences. A survey of 4,000 patients in France, Germany, the UK and the US. Patient Inspired. Outcomes Driven. COUNTRY RESULTS Copyright © 2019 Accenture. All rights reserved.
  2. 2. 2 ABOUTTHE RESEARCH Online survey of 4,000 patients across 4 countries and 3 disease states to understand how patients use and value services from patient organizations compared to those of pharma companies and whether integration of those services would improve the patient experience. THREEDISEASESTATES Rheumatoid Arthritis Migraine Leukemia N=1000 N=1000 N=1000 N=1000 Copyright © 2019 Accenture. All rights reserved.
  3. 3. 3 Who patients prefer to use services from among pharma companies, healthcare professionals, pharmacies, payers and patient organizations for six key areas. The degree to which patients use and value services from patient organization, and why they use services from patient organizations. Their level of engagement with patient organizations now and in the future in comparison to other healthcare players. Which patient organizations are most prominent and why. If and how the patient experience could improve with better coordination between pharma and patient organizations. WHATWESOUGHTTOUNDERSTAND PREFERENCE PROMINENCE VALUE ENGAGEMENT IMPROVEMENT Copyright © 2019 Accenture. All rights reserved.
  4. 4. 4 • They engage early (pre-treatment) and often with patient organizations and intend to increase their engagement with them over the next two years—more so than they intend to do so with pharma. • The vast majority of patients believe that pharma companies should be working with patient organizations to create a more seamless patient experience. • Patients highly value services from patient organizations – and use them as the primary go-to provider for emotional support and patient communities/support. • Across the board, they prefer to use services from patient organizations over those from pharmaceutical companies. WHATDOPATIENTSTHINK about services from patient organizations? Copyright © 2019 Accenture. All rights reserved.
  5. 5. 5 Patients prefer to use services from patient organizations. Patients rank pharma the lowest in understanding them amongst healthcare players. Patient organizations are winning in patient engagement. For all six services questioned, including: information on therapies and clinical trials, managing their condition, emotional support, community and patient support groups, technology to support them, and financial support. 47% of patients said pharma companies understood their emotional, financial and other needs related to their condition. 52% of patients are already engaging more with patient organizations on a monthly basis compared to pharma companies (35%). 54% of patients said they are going to engage with patient organizations more in the future vs. 35% with pharma companies. 58% felt that patient organizations understood their needs.Over half of patients have greater trust in and better experiences with patient organizations, finding it easy to engage with them. KEYFINDINGSSUMMARY Copyright © 2019 Accenture. All rights reserved.
  6. 6. 6 US patients were the most willing to share their data with patient organizations (64%) while patients in Germany were the least likely to share their data with pharma companies (38%). How willing would you be to share detailed information about the daily impact of your condition with each of the following organizations, if it helped you receive better care? Base: Total Respondents (4000) USA (1000) UK (1000) France (1000) Germany (1000) Patientsarewillingtosharetheirdatatogetbettercare. Patients are more willing to share detailed information about the daily impact of their condition with patient organizations (56%) than they are pharma (49%). KEY FINDING #1 Copyright © 2019 Accenture. All rights reserved.
  7. 7. 7 What is the emotional and financial impact of your condition per day? Base: Total Respondents (4000) USA (1000) UK (1000) France (1000) Germany (1000) Don’t underestimate the emotional impact. Over half (54%) of patients said they feel an emotional impact as a result of their condition every day. This rose to 72% in the US. Are pharma companies accounting for this intensive emotional impact on a daily basis in the services they offer to patients? KEY FINDING #2 Copyright © 2019 Accenture. All rights reserved.
  8. 8. 8 This gap is even greater in the US where 61% say they will increase their engagement with patient organizations versus just 27% saying they will do so with pharma companies. How do you think your engagement with the following organizations will change over the next 2 years? Base: Total Respondents (4000) USA (1000) UK (1000) France (1000) Germany (1000) 54% of patients said they are going to engage with patient organizations more in the future. Compared to 35% for pharma companies. KEY FINDING #3 Copyright © 2019 Accenture. All rights reserved.
  9. 9. 9 How do you engage with the services offered by a patient organization? Base: Total Respondents (4000) USA (1000) UK (1000) France (1000) Germany (1000) The new facetime. While patients in the US are engaging the most with patient organizations by digital means (online + email), over 60% of patients in France and Germany are attending events hosted by patient organizations and calling to talk to a representative over 70% of the time. KEY FINDING #3 Copyright © 2019 Accenture. All rights reserved.
  10. 10. 10 Gain a better understanding of patient needs—earlier and more often. of patients said pharma companies would better understand my needs… By collaborating with patient organizations, pharma can: of all patients use services from patient organizations before treatment begins. Provide a more seamless patient experience. of patients believe pharma companies should be working with patient organizations… of patients said pharma companies would better understand my needs. Find new value for patients. How can partnering with patient organization create the potential to build entirely new patient experiences? <1/3 50% 84% 61% SOWHATDOESTHISMEAN FORPHARMA? Copyright © 2019 Accenture. All rights reserved.
  11. 11. 34% 30% 29% 16% 14% 13% 29% 28% 25% 20% 22% 12% 39% 32% 28% 22% 18% 15% TOP3PATIENTORGANIZATIONS:US Chronic Migraine Patients CLL Patients Rheumatoid Arthritis Patients American Migraine Foundation (AMF) Migraine Support (Facebook Site) Migraine Research Foundation Association of Cancer Online Resources (ACOR) Association of Community Cancer Centers (ACCC) American Society of Clinical Oncology (ASCO) Arthritis Foundation Rheumatoid Arthritis Support Group (Facebook Site) Rheumatoid Arthritis Support Network Engaged with over the past 2 years Interacted with the most Base: Total Respondents (4000) USA (1000) UK (1000) France (1000) Germany (1000)Copyright © 2019 Accenture. All rights reserved.
  12. 12. 74% 40% 63% 27% 36% 33% 25% 19% 23% 15% 60% 42% 24% 43% 31% 12% TOP3PATIENTORGANIZATIONS:UK Chronic Migraine Patients CLL Patients Rheumatoid Arthritis Patients The Migraine Trust, U.K. Leukaemia CARE (includes lymphoma) Arthritis Care Migraine Action Association (MAA) Macmillan Cancer Support CLL Support Association (CLLSA) National Rheumatoid Arthritis Society Arthritis Action Engaged with over the past 2 years Interacted with the most Base: Total Respondents (4000) USA (1000) UK (1000) France (1000) Germany (1000)Copyright © 2019 Accenture. All rights reserved.
  13. 13. 53% 33% 33% 40% 25% 23% 38% 26% 26% 23% 15% 14% 48% 43% 33% 36% 30% 22% TOP3PATIENTORGANIZATIONS:FRANCE Chronic Migraine Patients CLL Patients Rheumatoid Arthritis Patients Association France Migraine L’Association de Soutien et d’Information à la Leucémie Lymphoïde Chronique et la maladie de Waldenström (SILLC) Association Française des Polyarthritiques et des rhumatismes inflammatoires chroniques (AFPric) Club Migraine et Céphalées Société Française d'Etudes des Migraines et Céphalées Association Laurette Fugain France federation Leucemie espoir Association Française de Lutte Anti- Rhumatismale (A.F.L.A.R.) Association Nationale de Défense contre l' Arthrite Rhumatoïde (ANDAR) Engaged with over the past 2 years Interacted with the most Base: Total Respondents (4000) USA (1000) UK (1000) France (1000) Germany (1000)Copyright © 2019 Accenture. All rights reserved.
  14. 14. 66% 39% 57% 28% 44% 37% 27% 29% 27% 18% 57% 53% 46% 47% TOP3PATIENTORGANIZATIONS:GERMANY Chronic Migraine Patients CLL Patients Rheumatoid Arthritis Patients Die Deutsche Migräne- und Kopfschmerzg esellschaft e.V. (DMKG) Deutsche Leukämie- und Lymphomhilfe e.V. Deutsche Rheuma-Liga Bundesverband e.V. MigräneLiga Deutsche Deutsche Krebshilfe Deutsche Gesellschaft für Rheumatologie (DGRh) Engaged with over the past 2 years Interacted with the most Base: Total Respondents (4000) USA (1000) UK (1000) France (1000) Germany (1000)Copyright © 2019 Accenture. All rights reserved.
  15. 15. 15 CONTACT US linkedin.com/company/ accenture_life_sciences @AccentureLifeSci www.accenture.com /lifesciencesblog Keena Patel Accenture Life Sciences, Managing Director, Intelligent Patient Services keena.b.patel@accenture.com Eva Wiedenhöeft Accenture Life Sciences, Managing Director, European Lead—Intelligent Patient Services eva.wiedenhoeft@accenture.com FOR MORE INFORMATION, PLEASE VISIT: www.accenture.com/patientservicessurvey Copyright © 2019 Accenture. All rights reserved. Accenture and its logo are trademarks of Accenture.

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