“Decolonization” of Fundamental Assumptions
Propelling Conception of Relationship Between
Mass Communication and Cultural Domination
Humphrey A. Regis
One critical turn in the history of paradigms that guide the study of the relationships between
(mass) communication and development involved the juxtaposition of an existing conception of
development that sprang from interpretations of history from the more powerful societies with
another conception that sprang from interpretations of history from the less powerful societies.
One critical turn in paradigms for the study of the relationships between (mass) communication
and cultural domination may involve the juxtaposition of the current conception of the cultural
domination that has sprung from interpretations of history from the more powerful societies
with a conception that springs from interpretations of history from the less powerful societies.
The “more-powerful-societies-centered” paradigm conceives of the domination as the outcome
of a process or condition that involves the role of (mass) communication in the importation into
the less powerful and/or exportation from the more powerful of the output of the culture of the
more powerful. The less-powerful-societies-centered paradigm conceives of the domination as
the outcome of the role of (mass) communication in the re-importation by the less powerful or
re-exportation by the more powerful of modifications the more powerful make in the output of
the culture of the less powerful. This second paradigm spawns a bountiful arena for the study of
the relationships between the (mass) communication and the domination – especially between
the (mass) communication and what some call the reggae music “revolution” of the late 1900s.
For the elaboration of each shift, the root is the definition of its core concepts, the elaboration of
the associated human conditions and/or processes, and the further elaboration of the role and
significance of (mass) communication as correlate of, transmitter of, and promoter of change in,
human systems. Thus this manuscript includes a conception of such critical ideas as culture and
cultural change, as well as the criteria for consideration in the characterization of the change. It
applies the conception of cultural change in the older conception of development and the older
conception of cultural domination, and states relationships between mass communication and
conditions and processes that spring from the conceptions. It applies the conception of cultural
change in the later conception of development and proposed conception of cultural domination,
and describes relationships between mass communication and processes that spring from the
conceptions. It applies its ideas in the study of the relationships between mass communication
and the “cultural change" that was the “reggae revolution” of the latter half of the last century,
and argues that between the old and the new co ...
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Decolonizing Paradigms of Mass Communication and Cultural Domination
1. “Decolonization” of Fundamental Assumptions
Propelling Conception of Relationship Between
Mass Communication and Cultural Domination
Humphrey A. Regis
One critical turn in the history of paradigms that
guide the study of the relationships
between
(mass) communication and development involved the
juxtaposition of an existing conception of
development that sprang from interpretations of history
from the more powerful societies with
another conception that sprang from interpretations of
history from the less powerful societies.
One critical turn in paradigms for the study of
the relationships between (mass) communication
and cultural domination may involve the
juxtaposition of the current conception of
the cultural
domination that has sprung from interpretations of
history from the more powerful societies
with a conception that springs from interpretations of
history from the less powerful societies.
The “more-powerful-societies-centered” paradigm conceives of
the domination as the outcome
of a process or condition that involves the role of
(mass) communication in the importation into
the less powerful and/or exportation from the more
2. powerful of the output of the culture of
the
more powerful. The less-powerful-societies-centered
paradigm conceives of the domination as
the outcome of the role of (mass) communication in
the re-importation by the less powerful or
re-exportation by the more powerful of modifications
the more powerful make in the output of
the culture of the less powerful. This second
paradigm spawns a bountiful arena for the
study of
the relationships between the (mass) communication
and the domination – especially between
the (mass) communication and what some call the reggae
music “revolution” of the late 1900s.
For the elaboration of each shift, the root is
the definition of its core concepts, the elaboration
of
the associated human conditions and/or processes,
and the further elaboration of the role and
significance of (mass) communication as correlate of,
transmitter of, and promoter of change in,
human systems. Thus this manuscript includes a
conception of such critical ideasas culture
and
cultural change, as well as the criteria for
consideration in the characterization of the
change. It
applies the conception of cultural change in
the olderconception of development and the
older
conception of cultural domination, and states
relationships between mass communication and
conditions and processes that spring from the
conceptions. It applies the conception of
3. cultural
change in the later conception of development
and proposed conception of cultural domination,
and describes relationships between mass communication
and processes that spring from the
conceptions. It applies its ideasin the study of
the relationships between mass communication
and the “cultural change" that was the “reggae
revolution” of the latter half of the last
century,
and argues that between the old and the new
conceptions of development or between the
old
and the new conceptions of cultural domination
we find contestation and complementarity.
Culture and Cultural Change
One way to view culture may be to conceive of it
as a phenomenon one “understands” through
the observation of its exhibitors. This observation
may take place in domains in the lives of
the
exhibitors – aspects of the existence, knowledge,
behavior or values of them. Domains include
the institutions of society, conventions in society
or life, and patterns human entities display.
In each domain, subjects may be at points or
locations on lines or scales called dimensions.
4. At
one end of each dimension is the extreme of one
characteristic, and at the other is the extreme
of a contrasting characteristic. For example, one
may borrow from Diop (1978) and view these
contrasts as patriarchal vs, matriarchal or
individualistic vs. collectivistic or collaborative
vs.
competitive; may borrow from McGuire (1974) and
view them as active vs. passive, cognitive
vs. affective, preservation oriented vs. growth
oriented, or internally oriented vs. externally
oriented; or may borrow from Weaver (1998) and
view them as many other continuums with
contrasting ends. And, a dimension may have at
one end the absence, and at the other end the
extremely strong presence, of a characteristic, such as
the belief in original sin (Diop, 1978).
Observation of a subject may lead to the
placement of the subject at a certain point or
location
on a dimension. The location may be extremely at
one end, more toward that end than toward
the other, “balanced” between that end and the
other, more toward the other end than toward
the first, or extremely at the other. For
example, from one of the dimensions that Diop
(1978)
proposed for the analysis of societies, the possible
points or locations – attributes – include
“extremely matriarchal,” “more matriarchal than
patriarchal,” “balanced between matriarchal
and patriarchal,” “more patriarchal than
matriarchal,” and “extremely patriarchal.”
5. Whether a subject is an individual, a group,
an organization, an institution or a society,
one may
conceive of an aggregate of the attributes in the
aggregate of the dimensions in the aggregate of
domains in which we may observe and understand
the subject. At the level of the single human
being or individual, that aggregate is the
personality. And at the level of the
collective of human
beings, such as the group, organization, institution or
society, that aggregate is the culture. The
relationship between personality and culture appears
to be captured in the idea from Benedict
(1934) that we may conceive of culture as
personality writ large – we may view the culture
of a
society is the personality of its members when
we consider these members as a collective.
The ideasof domain, dimension and attribute are useful
in the conception of cultural change.
We may determine for a subject a domain of
interest (for example, the conception of the
basic
unit in the Universe), the dimension of interest
(for example, the individual vs. the collective),
and the attribute (for example, extremely individual
centered). We also could define cultural
change as movement in or by the subject from
one “location” to another, from exhibiting one
attribute to exhibiting another, on the dimension.
One example may be from being “extremely
6. individual centered” to being “more individual
centered than collective centered.”
The forces that drivethe change may have different
natures or origins. In the intersection of
genetics and evolution, one of the drivers of change
is the environment. In cultural evolution,
one of the drivers is collaboration in the
meeting of such needs as food and water
and shelter.
We focus here on change that seems to be
the result of interactions or relationships
within or
between subjects. We may place the change in
the categories of internally induced (a result of
drivers within the subject) or externally induced (a
result of drivers outside the subject), but
we
focus on the latter. Here, we also may place
the change in categories on the basis of
whether the
interaction that produces it is symmetrical
(involving a certain balance between the
flows of
influence between subjects) or asymmetrical (involving
the greater flow of influence from one
subject to the other than in the other direction).
We also may place the change in categories on
the basis of whether it is incidental (not the result
of any program or programs by one subject
or the other) or cultivated (the result of such a
7. program or programs). And, we may place
the
change in categories on the basis of the trajectories
of the cultural elements at the center of it:
one trajectory leadsto the concept of change by
exportation and/or importation (exportation
by an originating subject and/or importation by
the receiving other) of the elements; the other
leadsto the concept of change by re-importation
and/or re-exportation (re-importation by an
originating subject and/or re-exportation by a
receiving other). The application of these labels
yields perspectives that utilize the ideasof the
less powerful societies, and that both challenge
and complement current perspectives on
“development” and on “cultural domination.”
Mass Communication and Development:
Perspectives From “Contrasting” Worlds
One of the hallmarks of the thinking and research on
“development” seems to be the degree to
which the forces that first drove the thinking
and research were in the more powerful societies,
and seemed to have three fundamental assumptions
about the keys to the “development” of the
peoples of the less powerful societies: (1) the
cultivation within the peoples of a
modernization
ethic (Lerner, 1958) that has at its center the
idea that with hard work one may propel oneself
to high(er) stations in life; (2) the importation
and utilization by them of new technologies and
8. techniques that are useful in the propulsion
(Rogers, 1976); and (3) the replication both in
their
persons and in their societies of the history of
western Europe since the Industrial Revolution
(Rogers, 1976). Of course, the exhibitor of the
“ethic,” holder of the technology and
techniques,
and subjects of the history worthy of replication,
were all more powerful societies in western
Europe; and so, development was the process of
following or replicating these societies.
This perspective had major implications for the
explication of the relationship between (mass)
communication and development. The thinkers and
researchers saw the communication as a
“magic multiplier” of a “modernization ethic”
(Lerner, 1958, p. 116), provider of
information on
the importation of technologies and utilization of
the techniques (Rogers, 1976), and provider
of connections to conditions and processes and
histories in Europe that may be inspirations or
models (Rogers, 1976). The explication saw the
(mass) communication in the role of changing
people in ways that the change agent, and not
the subject, would have deemed imperative.
The response to these ideasappeared to have received
impetus from sources and forces in the
less powerful societies, as well as colleagues in
the more powerful societies, and to counter the
fundamental assumptions of those from the more
9. powerful societies (see Rogers, 1976). One
response was that the people of the less powerful
societies indeed had “ethics” that propelled
them toward individual and societal heights.
Another was that the key to their attainment of
their objectives was changing national and international
conditions to facilitate the realization
of these objectives, rather than the importation of
inappropriate technologies and techniques.
And the third was that for inspiration, they have
histories marked by aspiration and planning
and execution and achievement – in societies in
the Nile, Indus and Euphrates river valleys.
The perspective had major implications for the
explication of the relationship between (mass)
communication and development. One was the importance,
as uses and gratifications theory
(see Blumler and Katz, 1974) suggests, of
understanding the factors within participants in
the
communication arena in the process of developing
messages that go to them. Another was the
importance, as third-variable theory (see Comstock,
Chaffee, Katzman, McCombs, and Roberts,
1978) suggests, of understanding factors in the
circumstances or environments of subjects in
the communication arena in the process of
developing these messages. And yet another
was
the recognition of the powerful place of history
10. and heritage and culture in the shaping of
the
contingent contextual conditions (see Comstock,
Chaffee, Katzman, McCombs, and Roberts,
1978) that ideally would shape the
communication and definitely determine its outcomes.
Thus the original fundamental assumption about
development that came from the peoples of
the more powerful societies was that it essentially
involved the changing of people so that they
become replications of oneself, and the associated
fundamental assumption about the role of
(mass) communication in development was that it
essentially involved the utilization of the
communication in the moving of people toward
the same end – a “missionary” role. The later
fundamental assumption about development that
came from the peoples of the less powerful
societies was that it essentially involved the
facilitation of their realization of their
objectives,
and the associated fundamental assumption about
the role of (mass) communication in the
development was that it essentially involved the
use of the communication in such realization
by bearing in mind the characteristics of both the
beneficiaries of the development and their
contingent contextual conditions – what we
may call a “responsiveness” role.
In the analysis and valuation of these fundamental
assumptions or paradigms and the related
roles for communication, one may apply criteria
proposed above for the description of change.
11. The domain is development, and one may apply
the “internally-oriented vs. externally oriented”
dimension (see McGuire, 1974) of the personality of
the individual to the culture of the society.
One may argue that the earlier guiding fundamental
assumption or paradigm, which came from
the more powerful societies, cultivates the external
orientation of beneficiaries of development
(their orientation toward outsiders), but the
later paradigm that came from the less powerful
societies cultivates their internal orientation (their
orientation toward the local milieux).
One also may apply the criteria proposed above
for the categorization of instances of change.
The former paradigm views development as
externally induced, but the latter paradigm sees it
as internally induced. The former sees the relationship
between the more powerful and the less
powerful as asymmetrical and the more powerful as
the driver of the relationship, but the latter
sees the relationship more as symmetrical, and perhaps
as asymmetrical and the less powerful
as the driver of the relationship. The former
views the relationship between the more
powerful
and the less powerful as cultivated by the more
powerful rather than incidental, but the latter
12. sees that relationship as perhaps cultivated by the
less powerful, but quite possibly, incidental.
The former views the relationship as
characterized by exportation from the more
powerful and
importation by the less powerful, but the latter
sees the relationship as characterized to some
degree by the exportation of the specification of
need by the less powerful and to some degree
by the exportation of the external responses to
the specification of need by the more powerful
and the corresponding or complementing importation of
these responses by the less powerful.
In the analysis of the relationship between (mass)
communication and the transition form a
more internal orientation to a more external
orientation proposed above, there would seem to
be three perspectives worthy of application.
The correlation perspective of the relationship
between (mass) communication and society proposes
that the communication is a reflector or
correlate of the cultural attribute of the society.
Thus one question would be how the greater
internal orientation of the less powerful society
before a development initiative is reflected in
the communication the society originates, and how in
comparison the assumed greater external
orientation after the initiative is reflected in that
communication. The transmission perspective
holds that the communication carries the attribute of
the culture of an originating society from
13. that society to another or others. Thus one
question would be how and how much is
the belief
in the more powerful society that the less powerful
society should be oriented toward the more
powerful one embedded in and transmitted via the
communication that flows from the former
to the latter. The promoter perspective holds
that the communication could help produce the
development or continuation or change of the
attribute of a society. Thus one question would
be whether and how and how much the
communication from the more powerful society helps
the change in the less powerful society toward
(greater) orientation to the more powerful one.
Mass Communication and Domination:
Perspectives From Contrasting Worlds
One may define cultural domination by invoking
the concepts of symmetry and asymmetry. As
the cultures of societies influence each other, that
influence may be symmetrical in that the flow
of influence in one direction is equivalent to
that in the other, or asymmetrical in that
the flow
in one direction is greater or less than that in
the other. But the asymmetry may be
incidental in
that it may be unplanned and not the outcome of
any program, or it may be cultivated in that it
may be planned and so the outcome of a
14. program. Cultural domination is the condition in
which
there is a greater influence from the culture of
one society to that of another society than in
the
other direction, with the difference cultivated by at least
one of the societies, or even another.
Early in the life of scholarship on the
relationship between mass communication and cultural
domination, one illustration of the domination
went as follows: “A few years ago,
Ethiopian
radioimported dramatic programs from the United States.
Around the time of the Christmas
sea- son, these programs promoted the European and
American tradition of Christmas trees
and gift giving. Ethiopia is a Coptic Christian
country, where Christmas was strictly a
religious
holiday. However, the American programming led to a
demand for Christmas trees and gift
giving. . . . The trees had to be shipped in
from the U.S.!” (Dennis, 1984).
One may analyse this example of domination thus:
the domain is the observance of Christmas;
the dimension is extremely religious vs. extremely
materialistic; the United States is far more
materialistic than religious; the United States
embedded that attribute in its communication
15. (correlation perspective); the United States
exported that communication to Ethiopia, and/or
Ethiopia imported the communication from the United
States (transmission perspective); then,
under the influence of the communication,
Ethiopia moved from the strictly religious
attribute
to the more religious than materialistic attribute
(promotion perspective), in the observance of
Christmas; this incidence of the influence of the
United States on Ethiopia does not have any
parallel in the influence of Ethiopia on the United
States (we have asymmetry); and the United
States conceived and planned and executed the
exportation of the communication because it
anticipated that its business sector would reap
benefits from the sale of products associated
with the communication (we have cultivated asymmetry).
This episode illustrates the idea of
cultural domination by importation by the less
powerful or exportation by the more powerful.
There is another, and a perhaps a more
profound, analysis of the episode – one that
recognizes
that this illustration of cultural domination comes
from a representative of one more powerful
society. The relating of the episode asks the
reader to start with the consideration of
Christmas
in the United States, or, perhaps, in the “West.”
The relating also asks the reader to
understand
cultural domination as a process or condition or
16. phenomenon that includes the origination of
an attribute of culture in the United States,
the “West,” or the more powerful; the embedding
of
the attributes in the communication the originators
produce; the exportation of the attribute
within the communication to the less powerful; and
the adoption of the attribute by the less
powerful. It also asks the reader to submit to
the idea of the more powerful as originator,
and
the less powerful as receiver and adopter, of
elements and attributes of culture. And, it asks
the
reader to call the process of influence cultural
domination by exportation (from the
perspective
of the more powerful) or cultural domination by
importation (from that of the less powerful).
But there is another perspective that starts with an
understanding of the history of the world in
general, and religion in particular, not over the
last 100 or 500 or even 2,00 years, but over
the
last 10,000 years. Asante (1981) asks us to
conceive of religion as the deification of
heritage: to
think of the religion a people develop as the
result of their attempts to explain their
existence
(their history and heritage and culture) by
connecting that existence to the Creator. Massey
(see
17. 1883, 1970, 1992) concludes that the people do
that connecting via myths that Finch (1991)
calls “unbelievable and fantastic” elements in their
religion. Jackson (1985) specifies one of the
myths by reporting that a people of Central
Africa he says we collectively call the
Pygmies hold
that the Creator and a mortal Mother gave birth to
a Child, who lived the exemplary life, died as
sacrifice for the sins of humanity, rose from death
for the redemption of humanity, went to the
Father in Heaven, and will return to form perfect
world government – all in their belief
system
that wove that drama of a “holy family”
and related phenomena into their history and
heritage
and culture and so deified their history and
heritage and culture. Finch (1991) says Massey
(see
1883, 1970, 1992), in “36 years of mind-
bending labor,” traced the existence of the myth of
the
Child as the Saviour of humanity back to 10,000
years ago in Central Africa.
After African peoples went north up the Nile
River to establish Ta Seti in Nubia and
then Kemet
farther to the north, those in Kemet at
least 6,000 years ago (Finch, 1991) named
18. the Father
Asar (we know him as Osiris), the Mother Aset
(we know her as Isis), and the Child Heru
(we
know him as Horus) – and wove the drama
and the related phenomena into their history
and
heritage and culture, and thus deified their history
and heritage and culture. For example, their
leaders assumed names that indicate that they
believed that they displayed attributes of Heru.
Millennia later, importers in Palestine renamed the
figures God the Father, Virgin Mother, and
God the Son – and again, wove the drama
and the related phenomena into their history
and
heritage and culture, and thus deified their history
and heritage and culture. The belief system
further went to Greeks, then to Romans, and then to
western Europeans, who also have woven
that drama and the related phenomena into their
history and heritage and culture, and in this
way deified their history and heritage and culture.
Thus, the “Christianity” millions “inherited”
from Palestinians, Greeks, Romans, and western
Europeans is a result of re-interpretation,
re-
localization and re-exportation by what Kuhn (1944)
calls “later generations,” and it has at its
center ideasthat deify the histories and heritages and
cultures of these “generations” but that
originally deified the histories and heritages and
cultures of African peoples. And according to
Finch (1991), after the re-exportation from Palestine,
the people of Ethiopia were among the
19. first to embrace the “new” religion because they
saw it as a continuation of their old
religion.
This provides another basis for the analysis of the
influence of the United States programming
in Ethiopia – one that uses the dimension of internal
orientation vs. external orientation from
McGuire (1974). The original creation of the
Pygmies and the Kemetu sees the African history
and heritage and culture and way of life as deified
by virtue of their connection to the
Creator.
But the religions that the African peoples voluntarily
and/or involuntarily adopt from Palestine
or Greece or Rome or western Europe views
the histories and heritages and cultures of these
non-African centers of these religions as deified by
virtue of their connection to the Creator.
So,
in the lives of People of the African Continent
who follow the re-exportations that “outsiders”
call their religions, there will be a critical cultural
change in religion and perhaps in other areas
of life: the replacement of a millennia-old internal
orientation by a recent external orientation.
It seems reasonable to add this change to
the outcomes of the consumption of the
programs.
There is yet another, and perhaps even more
profound, analysis of the episode that recognizes
that this illustration of cultural domination comes
20. from a representative of a more powerful
society. The relating of the episode asks the
reader to start with a discussion of
Christmas in
the United States, or, perhaps, in the “West.”
But the relating of the millennia-old history of
“Christianity” asks the reader to understand that
this history includes the origination of the
fundamentals of the faith in Africa and its related
deification of the history and heritage and
culture of African peoples (origination), the
transmission of the fundamentals to other peoples
(exportation), the use of them in the deification of
the histories and heritages and cultures of
these other peoples (modification), the transmission of
the modifications by the others to (via
re-exportation), and/or transmission of the
modifications by (via re-importation), the African
peoples, and the internalization of the modifications
(adoption) by the African peoples.
This is an illustration of the stages that make
up cultural influence by re-importation (from
the
perspective of the less powerful) or re-exportation
(from the perspective of the more powerful)
process or framework. Of course, if the
illustration shows cultivated asymmetry, we
may call it
cultural domination by re-importation or re-
21. exportation. While the importation/exportation
framework, illustrated by the quoted “representative”
of the more powerful societies, presents
these societies as originators and the less powerful
societies as receivers or even dependents,
the re-importation/re-exportation framework, illustrated by
such examples as Christianity in
less powerful societies like Ethiopia in particular and
Africa in general, presents these societies
as originators, and presents the more powerful
societies as the receivers and modifiers of their
output, with the less powerful then adopting the results
of these modifications.
The cultural domination by re-importation or re-
exportation framework presents a number of
opportunities for the study of relationships
involving (mass) communication in the framework:
through the application of the perspectives of
the relationship between (mass) communication
and culture (correlation, transmission and/or
promotion), and in each stage of the process of
cultural domination by re-importation or re-
exportation (origination, exportation, modification,
re-importation or re-exportation, and adoption). One
area is the study of the communication as
a reflector (correlation perspective) of the original
internal orientation of the African peoples in
religion (the origination stage). One is the
study of the utilization of the communication in
the
sending of the original religion (transmission
perspective) and its African internal orientation
22. to such locations as Palestine and Greece and Rome
and western Europe (exportation stage).
One is the study of the communication as a
reflector (correlation perspective) of the
changes
that turned the religion into deifications of the
histories and heritages and cultures of each of
the receiving societies (modification stage). One is
the study of the use of the communication in
the sending of the modifications (transmission
perspective) to Ethiopia in particular and Africa
in general (re-importation and/or re-exportation stage).
And one is the study of the application
of communication in the internalization by receiving
Ethiopians and other Africans (promotion
perspective) of the modifications from the other
societies (adoption stage). This application of
the cultural domination by re-importation or re-
exportation framework will come to life in
the
study of the reggae “revolution” of the latter
part of the last century.
Of course, cultural influence or cultural domination
by re-importation or re-exportation does
not necessarily unfold only over millennia – it
may unfold over centuries, decades, or years. In
the case of centuries, Liverpool (2013) reports that
People of the African Continent developed
expressions and conventions in music, they took
the expressions and conventions with them to
the Caribbean in the period of their enslavement
23. there over a few centuries, their descendants
applied many of the expressions and conventions
in the development of both kaiso music
and
the steel band, and in recent decades the
descendants have been re-exporting the kaiso
and the
steel band to Africa – where the kaiso was
instrumental in the development of highlife
music in
Ghana and in Nigeria. Also in the case of
centuries, Orleans (2002) reports that the People
of the
African Continent also took their music to Cuba,
they combined that music with elements from
the Spanish to develop the rhumba, and their
descendants have been re-exporting the rhumba
to Central Africa – where it has contributed
to the development of soukous music. In
decades, in
culinary culture, Lowenthal (1972) reports that
Trinidadians at first did not accord substantial
valuation to the roti, they “exported” it within
their island to forces from the United States
who
attached higher valuation to it, they received word of
the higher valuation that the United States
forces had accorded the roti, and after that the
Trinidadians also attached higher valuation to it.
In these and other series of developments, one may
apply the perspectives of the relationship
24. between (mass) communication and culture (correlation,
transmission and/or promotion), and
the perspectives of the relationship between (mass)
communication and each stage of cultural
domination by re-importation or re-exportation (that is,
origination, exportation, modification,
re-importation or re-exportation, and adoption) in the
analysis of the cultural change, whether
one regards it as incidental or cultivated in the
relationships between the relevant societies.
Mass Communication and Domination:
the “Sanctioned” Reggae “Revolution”
To many observers of culture, cultural processes,
cultural relations and cultural change, one of
the most arresting developments in the latter half of
the last century was the meteoric rise of
reggae music from the status of just another
sector in the music culture of Jamaica to
the status
of crown jewel of the music of the island,
the Caribbean, the World African Community,
and the
world in general. To these observers, the explanation
for that rise lies in the ideational, lyrical,
structural and expressional attributes of the music,
and the authenticity and persuasiveness
and compelling attractiveness of the presentations of
it by the most well known performers of
it. Yet, after bearing in mind not only these
characterizations but also other considerations, one
observer who has been a professional, administrator
and professor in (mass) communication
deemed the change in the status of reggae a
25. “sanctioned” revolution. At the foundation
of this
departure from the conventional “wisdom” is the
conclusion that the music has been a willing
instrument and/or the beneficiary of cultural
domination by re-importation or re-exportation,
and one related view is that (mass) communication
has been one resource in this domination.
The elaboration of this departure from the conventional
“wisdom” involves the use of several
key concepts earlier parts of this exposition have
employed – the ideasof domain, dimension,
attribute, cultural change, cultural domination, and
cultural domination by re-importation or
re-exportation. It also involves the application of
the perspectives of the relationship between
(mass) communication and culture (that is, correlation,
transmission and/or promotion), and
the perspectives of the relationship between (mass)
communication and each stage of cultural
domination by re-importation or re-exportation (that is,
origination, exportation, modification,
re-importation or re-exportation, and adoption). That
elaboration includes many conclusions
at which the writer arrived by observation
and conversation and experience, especially when
the writer was the news director for a Caribbean-
oriented public affairs radioprogram.
Throughout the history of the music, as is
26. the case with human expression, there have been
two
ideational issues or domains. The first is the
conception of the units that make up the
Universe:
one view sees these units as individual entities; one
dichotomizes the Universe into opposing
camps. The second issue is the ultimate state among
the units: the first view sees that state as
the coming together of the units in what one of
the musicians often calls an African “oneness;”
the second sees that state as one in which one
camp triumphs over another and then imposes
its way – sufferer over system, righteous over
heathen, good over bad, and, yes, us over them.
The view of the ultimate state as “oneness” is in
one of the most popular songs in Jamaica
and
the Caribbean very early in the history of reggae,
Wonderful World, Beautiful People: “Instead
of fussing and fighting, cheating, backbiting,
scandalizing, hating / We could have a
Wonderful
World (of) Beautiful People….” The view of the
ultimate state as the triumph of one camp
and
the imposition of its will seems to be
captured in one of the most popular songs in
Jamaica and
the Caribbean a few years later: “Let's get
together to fight this Holy Armagiddyon / So
when
the Man comes there will be no, no doom /
Have pity on those whose chances grows
t'inner /
There ain't no hiding place from the Father of
27. Creation. One Love!” The conception of the
ideal
condition in the Universe moved from “oneness” to
“imposition,” and the view of the basicunit
in the Universe more than before stressed the
dichotomization of it into opposing camps.
During the development of the ska grandparent of
reggae, during the development of the rock
steady parent of reggae, and early in the history
of reggae, the feature aficionados highlighted
in
the definition of reggae was the rhythm, the
structure, the beat. This is in this
characterization
of reggae from Weber and Skinner (2001 p.
151): “It is characterized by the
foregrounding of
syncopated bass and drum rhythms, an emphasis on
the down beat (beats 1 and 3) rather
than
the backbeat (beats 2 and 4)… An important
difference between reggae and Euro-American pop
music is the significance in reggae of drum-
and-bass patterns or “riddims.’ In reggae, the riddim
rather than the lyric is considered to be the
essence of the song.” Later in the history
of reggae,
aficionados redefined reggae by proposing an essence
that emphasized a certain ideational and
lyrical content: reggae is the music of the
oppressed; reggae is the music that speaks
against the
oppressor; reggae is the music that speaks
against oppression; reggae is the music of
28. Ras Tafari;
reggae is the music of revolution; reggae is
the music of Jah (the Creator). The culture
of reggae
music moved from the emphasis-on-rhythm end, and
toward the emphasis-on-ideas-and-lyrics
end, in the associated dimension in the characterization
of the definitive attribute of reggae.
One of the hallmarks of the cultures of members of
the World African Community, and People of
African Descent in Jamaica and the Caribbean,
has been the lesser emphasis on the individual
and greater emphasis on the collective or the
relationship as the essential unit in human
affairs.
This seems to be revealed in the very high
presence in their music genres and cultures of
such
structural conventions as call and response, and such
performance conventions as syncopation,
dialogue among voices, and diversity within unity.
It also seems to be revealed in the
emphasis
on not the individual but the collective: in the
kaiso and cadence and compass direct
cultures,
and the early years of reggae culture, the
acclaimed musician was “one of the fallas,” “one of
the
boys,” or “one of us.” But later in the history of
reggae, in the identification of the essential
unit
within the culture, the emphasis changed – from
the collective to the individual. Perhaps a
29. very
good example of this is the changing of the name
of one of the groups from The Wailers to
Bob
Marley and the Wailers, and of the status of
the person of Marley from member or
musician or
music player to leader, prophet, visionary, and
even “messiah.” Reggae culture moved from
the
musician-as-member end, toward the musician-as-idol
end, of the member vs. idol dimension.
Each of these changes in reggae culture took place
after the music seems to have seen a rise in
its popularity among Indo-European peoples in western
Europe and North America in the mid-
1970s. In that period, many in these societies
emphasized the dichotomization of humanity
into
opposing sectors, as was the case in their 1960s
counterculture movements. Many of them also
idealized the idea of the triumph of their sectors
over others, as was the case in the movements.
In addition, many continued to use ideasor labels
through which they characterized those they
opposed, as was the case in the movements. And as
Diop (1978) has emphasized, the millennia-
old histories of Indo-European peoples indicate that
they tend to be more individualistic than
collectivistic, an attribute that may explain the
30. elevation by them of singular performances – in
such areasas sports and music. Thus it would
appear that the changes in reggae culture in
the
mid-1970s made it less consistent than before
with the attributes of the members of the World
African Community who developed it, and more
consistent than before with the traditional and
contemporary attributes of Indo-European peoples in
western Europe and North America. Two
critiques that capture these attributes of the reggae
culture of the Indo-European peoples were
one review of the Bob Marley and the Wailers
album Rastaman Vibration (Bangs, 1978) and
the
implicit and explicit elaboration of the attributes of
reggae (Frost, 1990). One critique from the
Caribbean calls the works that embody the changes,
and in particular those from Marley that do
so, “alien” and “inauthentic” (Alleyne, 1994, p.
83) representations of reggae.
One may describe the changes through the use of
the cultural domination by re-importation or
re-exportation framework. Jamaican and Caribbean People
of African Descent developed their
reggae culture that reflected their attributes
(origination). They transmitted expressions that
captured that culture to Indo-European peoples in
Europe and North America (exportation).
The destinations changed the culture to make it
consistent with their attributes (modification).
These destinations transmitted the modifications to
the creators of reggae (re-exportation), or
31. the creators secured the modifications (re-importation).
Then these creators incorporated the
modifications in the ideas, lyrics, structure, and
emphases of their culture (adoption).
One especially may describe the process that the
framework spells out, and the changing of
the
characteristics of the music, through the use of
the correlation, transmission and promotion
perspectives of the relationship between (mass)
communication and culture. These uses of the
perspectives especially would yield questions and
hypotheses and agendas for the study of
the
relationship between the communication and the
domination – whether these relationships be
inside or outside the context of the history of
Jamaican and Caribbean reggae.
One issue in the study of the reggae culture
within the cultural domination by re-
importation or
re-exportation framework is that the culture
underwent change, in that in three dimensions
the
attribute in the early 1970s was different from that in
the late 1970s. Here, one major criterion
for establishing that the change took place or
the difference exists is the result of a
comparison
along each dimension of the attribute in the early
1970s and that in the late 1970s. For all
32. three
of the dimensions, the correlation perspective
spawns at least one important hypothesis:
A1: in Jamaican and Caribbean mass media, the
presence given the proposition that the
incorporation of the idea of the dichotomization of
humanity into opposing camps is a
criterion one may apply in evaluations of reggae
songs was relatively low in the early
1970s and relatively high in the late 1970s;
A2: in Jamaican and Caribbean mass media, the
presence given the proposition that the
emphasis given the rhythm is a criterion one
may apply in evaluations of reggae songs
was relatively high in the early 1970s and relatively
low in the late 1970s;
in Jamaican and Caribbean mass media, the presence
given the proposition that the
emphasis given the ideasis a criterion one may
apply in evaluations of reggae songs
was
relatively low in the early 1970s and relatively high in
the late 1970s;
A3: in Jamaican and Caribbean mass media, in
descriptions of musicians, the presence given
33. musician-as-member labels was relatively high in the
early 1970s and relatively low in
the late 1970s;
in Jamaican and Caribbean mass media, in descriptions
of musicians, the presence given
musician-as-idol labels was relatively low in the
early 1970s and relatively high in the
late 1970s.
In the study of the exportation stage of the
process or condition of domination under
study, the
transmission perspective of the relationship
between (mass) communication and culture would
seem appropriate, but it would be wise to
incorporate ideasfrom the correlation perspective.
Hence, these three questions on the communication used in
the exportation:
B1. What media did the exporters in Jamaica
and the Caribbean, and/or the importers in
Europe and North America, use for their parts in
the transmission process;
B2: In the milieu-of-the-less-powerful vs. milieu-of-
the-more-powerful dimension, at what
point did the exporters in Jamaica and the Caribbean,
and/or importers in Europe and
34. North America, lie (this would help anticipate the
answer to the next question);
B3: How strongly did the attributes of the content
of the exports of each of the sources seem
to correspond with the attributes of the Jamaican
and Caribbean reggae culture or those
of the European and North American reggae culture.
The modification stage seems similar to the
origination stage, as it recommends a
focus on the
correlation between the cultural attributes of the
receiver and the characteristics of the (mass)
communication of the receiver about reggae, as
well as on the comparison of the attributes
and
characteristics of the receiver with those of the
originator. Hence, for each of the dimensions,
these hypotheses:
C1: in European and North American mass media,
the presence given the proposition that
the incorporation of the idea of the dichotomization
of humanity into opposing camps as
one criterion one may apply in evaluations of
reggae songs was higher in the middle
35. and
late 1970s than it was in the Jamaican and
Caribbean mass media in the early 1970s;
C2: in European and North American mass media,
the presence given the proposition that
the emphasis given the rhythm is one criterion
one may apply in evaluations of reggae
songs was lower in the middle and late 1970s
than it was in the Jamaican and Caribbean
mass media in the early 1970s;
in European and North American mass media, the
presence given the proposition that
the emphasis given ideasis one criterion one may
apply in evaluations of reggae songs
was higher in the middle and late 1970s than it
was in the Jamaican and Caribbean mass
media in the early 1970s;
C3: in European and North American mass media,
in reports on musicians, the presence
given musician-as-member labels was lower in
the middle and late 1970s than it was in
the Jamaican and Caribbean mass media in the early
1970s;
in European and North American mass media, in
reports on musicians, the presence
given musician-as-idol labels was higher in
36. the middle and late 1970s than it was in
Jamaican and Caribbean mass media in the early 1970s.
In the study of the re-importation or re-
exportation stage of the process under study
here, the
transmission perspective of the relationship
between (mass) communication and culture also
would seem appropriate, but it also would be
wise to incorporate ideasfrom the correlation
perspective. Hence, too, three sets of questions on
the communication used in the exportation:
D1. What media did the re-importers in
Jamaica and the Caribbean and/or re-exporters in
Europe and North America use for their parts in
this transmission process;
D2: In the milieu-of-the-less-powerful vs. milieu-of-
the-more-powerful dimension, at what
point did the re-importers in Jamaica and the
Caribbean and/or re-exporters in Europe
and North America lie (this would help anticipate
the answer to the next question);
D3: How strongly did the attributes of the content
of the transmissions of each source seem
to correspond with the attributes of the Jamaican
and Caribbean reggae culture or those
37. of the European and North American reggae culture.
The adoption stage especially provides opportunities to
apply theories and methods of (mass)
communication effects in the study of cultural
domination by re-importation or re-exportation.
Here, on the basis of the assumption that the
central issue is the adoption by the less
powerful
originators for their own music of attributes that
are different from native attributes, the key
issue is the establishment of the existence of change
that one may attribute to the influence of
forces in the more powerful societies. Hence this
combining of selected the hypotheses above:
E1: in Jamaican and Caribbean mass media, the
presence given the proposition that the
incorporation of the idea of the dichotomization of
humanity into opposing camps is a
criterion one may apply in evaluations of reggae
songs was relatively low in the early
1970s and relatively high in the late 1970s, and
that change moved the presence of the
proposition in the Jamaican and Caribbean mass media
in the late 1970s closer than the
presence in these media in the in the early 1970s
to the presence in European and North
American mass media in the middle and late
38. 1970s;
E2: in Jamaican and Caribbean mass media, the
presence given the proposition that the
emphasis given the rhythm is a criterion one
may apply in evaluations of reggae songs
was relatively high in the early 1970s and relatively
low in the late 1970s, and that
change moved the presence of the proposition in
the Jamaican and Caribbean mass
media in the late 1970s closer than the
presence in these media in the early 1970s to
the
presence in European and North American mass media
in the middle and late 1970s;
in Jamaican and Caribbean mass media, the presence
given the proposition that the
emphasis given the ideasis a criterion one may
apply in evaluations of reggae songs
was
relatively low in the early 1970s and relatively high in
the late 1970s, and that change
moved the presence of the proposition in the
Jamaican and Caribbean mass media in the
late 1970s closer than the presence in these media
in the early 1970s to the presence in
European and North American mass media in
the middle and late 1970s;
E3: in Jamaican and Caribbean mass media in
39. the 1970s, in descriptions of musicians,
the
presence given musician-as-member labels was
relatively high in the early 1970s and
relatively low in the late 1970s, and that change
moved the presence of the labels in the
Jamaican and Caribbean mass media in the late 1970s
closer than the presence in these
media in the early 1970s to the presence in
European and North American mass media
in the middle and late 1970s;
in Jamaican and Caribbean mass media in the 1970s,
in descriptions of musicians, the
presence given musician-as-idol labels was
relatively low in the early 1970s and
relatively high in the late 1970s, and that change
moved the presence given the labels in
the Jamaican and Caribbean mass media in the late
1970s closer than the presence in
these media in the early 1970s to the presence in
European and North American mass
media in the middle and late 1970s;
All inquiries in Group A, Group C, and Group
E, and most of those in Group B and
Group D, have
as their bases the correlation perspective –
the idea that individual or collective attributes have
reflections in (mass) communication attributes.
40. This is consistent with the premise at the root
of content analysis – the determination of the
attributes of a subject through the analysis of
the
(mass) communication in which the subject
engages as originator, transmitter, or
“consumer.”
At the foundation of the cultural domination by
re-importation or re-exportation framework is
the proposition that the members of an originating
society may adopt in their culture attributes
that are different from those their culture may have
exhibited for years, decades, centuries, or
even millennia. While the framework describes
the sequence of activities that culminate in the
adoption, one issue that still remains is the answer to
the question of what impels them toward
the adoption. The promotion perspective of the
relationship between (mass) communication
and cultural domination suggests that the uses and
gratifications theory and the third variable
theory of (mass) communication effects may explain
the inclination toward the adoption.
Uses and gratifications theory starts with the view
that from states that may be internal and/or
internal to their persons human beings or
collectives develop needs, and the provision to
them
of resources and conditions and opportunities, and
the meeting of these needs through the use
of these resources and conditions and opportunities,
produces gratification in them (Blumler
and Katz, 1974). Thus one imperative is to
determine what are the needs within individuals
41. and
collectives in the less powerful societies and the
more powerful societies that impel them in the
direction of their roles in the cultural domination by
re-importation or re-exportation process.
For example, from the seminal work of Diop (1978), it
seems that in the less powerful societies
in general, and among members of the World
African Community (that is, People of the
African
Continent and People of African descent, including
Jamaicans and other Caricommoners), these
include the tendencies toward xenophilia and
collectivism and cosmopolitanism, but among
members of the World European Community
(including People of the European Continent and
People of European Descent), they include xenophobia
and individualism and particularism. In
addition, borrowing from the ideasof McGuire (1974),
one may add the tendency in the less
powerful societies toward an (external) orientation
toward their colonial dominators and the
tendency in these dominators toward the cultivation
of that orientation (and benefits of it).
Third variable theory (Comstock, Chaffee,
Katzman, McCombs, and Roberts, 1978) argues
that
the ability of (mass) communication (first variable) to
engender some effect (second variable)
depends upon on the presence of another factor
that helps the communication have the effect
(third variable). One factor is an event that
takes place before the communication (antecedent
condition); one is an event that takes place
42. after the communication (intervening condition);
one is a continual or continuous, and enabling or
facilitating, aspect of the social/psychological
environment (contingent contextual condition).
Within the context of cultural domination by
re-importation and/or re-exportation, there may be such
antecedent conditions as the winning
of awards from the more powerful societies; there may be
such intervening conditions as the
winning of contracts from the more powerful societies; or,
there may be contingent contextual
conditions such as the securing of revenue from
the patronage of the more powerful societies,
or the reliance on them for the production of
the works in ways that maximize or optimize
the
likelihood that the works will appeal to their markets
(see Alleyne, 1994 for indications of the
role of this reliance in the explanation of
changes in the works of Bob Marley and
the Wailers).
Around the world, in the World African
Community in general, and in the world of
Jamaican and
Caribbean reggae in particular, one contingent
contextual condition is a major consequence
of
the colonial experience. It is the tendency in
the subjects of the colonies to replace their
internal
orientation (toward their selves and societies and
43. histories and heritages and cultures) with an
external orientation (toward their colonial dominators,
their neo-colonial dominators, and the
reasonable facsimiles of these dominators). Among
People of African Descent in Jamaica and
the
Caribbean, this external orientation sits on a
fundamental assumption that says that members
of the World African Community are inferior to
members of the World European Community,
and related priorities include: (1) Corrective
Automatic Reactions to Membership in the
World
African Community (CARMWAC), which include
the minimization of proximity (MiniProx) to
the members of it and the maximization of
compensation (MaxiCom) for membership in it;
(2)
MASSAHIANISM, the philosophy and practice that
perceives of the Universe as a hierarchy that
includes the Creator at the top, the colonial
dominator and the neo-colonial dominator and the
reasonable facsimiles of them as intermediaries, and
members of the World African Community
at the bottom; and (3) PSYCHOLOGICAL
DISARMING, which proposes that given the
CARMWAC
and the MASSAHIANISM, it is imperative to
comply with, and not normal to depart from,
the
understandings and attitudes and behaviors and directives
and examples that come from the
colonial dominator and the neo-colonial dominator and
the reasonable facsimiles of them (the
elaboration of the first two of these priorities appears
in Regis, 2020).
44. At least two experts who are both Caricommoners
and observers of the Jamaican and Caribbean
reggae culture have made observations that are
consistent with this conceptual elaboration of
the contextual conditions that explain the
adoption of modifications that Europeans and
North
Americans have made in the reggae culture by
the peoples of Jamaica and the Caribbean.
One of
the experts argues that because of the degree to
which the works of Bob Marley and the
Wailers
after the mid-1070s reflect the modifications that
Europeans and North Americans made in
the
reggae culture, the works are “alien” and
“inauthentic” (Alleyne, 1994, p. 83)
representations of
the culture. But that expert also noted that in
the acceptance of their reggae and other
creative
works, Jamaican and other Caribbean audiences display an
“undue reliance on Western arbiters
regarding the value and representation of regional
creativity” (p. 76). The second expert noted
that the liking or preference that Jamaican and
Caribbean audiences display for the works of
Marley have been contingent to a substantial
degree on the perceptions they had developed of
the popularity of the works in the United States
and other more powerful societies. The expert
proposed that many in these audiences developed a
45. certain liking or preference for the works
on the basis of their perceptions of the popularity or
endorsement or validation of the works in
the United States and these other countries, then
rationalized the liking or preference by
saying
that it was based on their evaluations of the
quality of the works (Walrond, 1991). Indeed,
that
expert proposed that in Jamaica and the Caribbean
the perception of reggae as an instrument
of
revolution developed only after that view had been validated in
the United States and the other
more powerful societies, and therefore called the reggae
“revolution” a “sanctioned” revolution.
Overarching and Philosophical Conclusion
In the study of the relationship between (mass)
communication and development and between
(mass) communication and cultural domination, the
earlier perspectives sprang from the more
powerful societies, and reflected their understandings of
the world through their lenses. In the
study of the former relationship, the earlier
perspectives have co-existed with those from the
less powerful societies. In the study of the
latter relationship, there is a need to
recognize and
to receive guidance from perspectives that spring
from the less powerful societies – such as the
46. cultural domination by re-importation or re-
exportation framework this document describes.
The application of this framework in the study
of the reggae “revolution” in the latter
half of the
last century seems to indicate that the framework
has the potential to provide fertile ground
for
the study of the relationship between (mass)
communication and cultural domination. But the
adoption of this framework from the less powerful
societies does not demand the discarding of
the framework from the more powerful societies:
nuances and complexities and diversiveness
in human relations suggest that it is likely
that between the two frameworks there will be
both
contestation and complementarity in the elaboration
of the relationship.
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AND
50. THE BAND
PLAYED ON
POLITICS, PEOPLE,
AND THE AIDS EPIDEMIC
RANDY SHILTS
Souvenir Press
For Ann Neuenschwander
CONTENTS
Title Page
ACKNOWLEDGMENTS
DRAMATIS PERSONAE
THE BUREAUCRACY
PROLOGUE
PART I. BEHOLD, A PALE HORSE
1. The Feast of the Hearts
PART II. BEFORE/1980
2. Glory Days
3. Beaches of the Dispossessed
4. Foreshadowing
5. Freeze Frames
51. PART III. PAVING THE ROAD/1981
6. Critical Mass
7. Good Intentions
8. The Prettiest One
9. Ambush Poppers
10. Golf Courses of Science
11. Bad Moon Rising
PART IV. THE GATHERING DARKNESS/1982
12. Enemy Time
13. Patient Zero
14. Bicentennial Memories
15. Nightsweats
16. Too Much Blood
17. Entropy
18. Running on Empty
19. Forced Feeding
20. Dirty Secrets
21. Dancing in the Dark
PART V. BATTLE LINES/JANUARY–JUNE 1983
22. Let It Bleed
23. Midnight Confessions
24. Denial
25. Anger
26. The Big Enchilada
27. Turning Points
28. Only the Good
29. Priorities
30. Meanwhile
31. AIDSpeak Spoken Here
32. Star Quality
52. PART VI. RITUALS/JULY–DECEMBER 1983
33. Marathons
34. Just Another Day
35. Politics
36. Science
37. Public Health
38. Journalism
39. People
PART VII. LIGHTS & TUNNELS/1984
40. Prisoners
41. Bargaining
42. The Feast of the Hearts, Part II
43. Squeeze Play
44. Traitors
45. Political Science
46. Downbound Train
47. Republicans and Democrats
48. Embarrassed
49. Depression
50. The War
PART VIII. THE BUTCHER’S BILL/1985
51. Heterosexuals
52. Exiles
53. Reckoning
54. Exposed
55. Awakening
56. Acceptance
53. 57. Endgame
PART IX. EPILOGUE/AFTER
58. Reunion
59. The Feast of the Hearts, Part III
NOTES ON SOURCES
INDEX
Also by Randy Shilts
Copyright
ACKNOWLEDGMENTS
I would not have been able to write this book if I had not been a
reporter at
the San Francisco Chronicle, the only daily newspaper in the
United States
that did not need a movie star to come down with AIDS before
it
considered the epidemic a legitimate news story deserving
thorough
coverage. Because of the Chronicle’s enlightened stance, I have
had free
rein to cover this epidemic since 1982; since 1983, I have spent
virtually all
my time reporting on AIDS. My reporting provided the core of
this book.
While this newspaper’s commitment is a credit to all levels of
Chronicle
management, I particularly want to thank my city editor, Alan
Mutter, who
believed in the value of this story long before it was
fashionable. I’m also
grateful to the following Chronicle colleagues for their
54. guidance and
assistance: Katy Butler, David Perlman, Jerry Burns, Keith
Power, and
Kathy Finberg. The Chronicle’s library staff, especially Charlie
Malarkey,
also helped immensely.
My newspaper reporting would never have been transformed
into a book
if it were not for the faith of my editor at St. Martin’s Press,
Michael
Denneny. He believed in this project when most in publishing
doubted that
the epidemic would ever prove serious enough to warrant a
major book. I’m
also grateful to the confidence of my agent, Fred Hill.
A number of other people helped me edit the manuscript.
Without the
constant encouragement, hand-holding, and insightful editing of
Doris
Ober, I could never have made it to the end of what became a
very long
tome. I’m also grateful to Katie Leishman and Rex Adkins for
devoting
their extraordinary editing talents to the manuscript.
The research phase of the book required much travel and would
not have
been tolerable without hosts such as Poul Birch Eriksen in
Copenhagen,
Mark Pinney in New York City, and Bob Canning and Steve
Sansweet in
Los Angeles. I’m also thankful to Frank Robinson, who kept
voluminous
files on the epidemic and generously shared them all with me.
55. Among the
other people who charitably opened their files to me were Tim
Westmoreland, Dan Turner, David Nimmons, Jeff Richardson,
Lawrence
Schulman, Tom Murray of The Sentinel, Don Michaels of the
Washington
Blade, Terry Biern of the American Foundation for AIDS
Research, and
Jim Kepner of the AIDS History Project at the International Gay
and
Lesbian Archives in Los Angeles. Steve Unger and Fred
Hoffman provided
expert computer assistance. I would be remiss if I didn’t
acknowledge the
help I got from the media relations staffs of San Francisco
General
Hospital, Pasteur Institute, National Cancer Institute, National
Institute for
Allergy and Infectious Diseases, and especially Chuck Fallis at
the Centers
for Disease Control. They made my job much easier.
I remain indebted to my brothers Reed Shilts, Russell Dennis
Shilts III,
and Gary Shilts for their support during the long writing
process. I’m also
blessed by some terrific friends who stuck by me during the
insanity of this
project: Janie Krohn, Bill Reiner, David Israels, Bill Cagle,
Will Pretty, and
Rich Shortell. Thanks also to the friends of Bill W. who
sustained me with
their experience, strength, and hope.
56. Ultimately, a reporter is only as good as his sources. The people
to
whom I remain most grateful are the hundreds who shared their
time with
me both during my newspaper reporting and during the book
research.
Many were scientists and doctors who carved large blocks of
time out of
hectic schedules. My deep background and off-the-record
sources were also
invaluable; you know who you are, and I thank you.
The people for whom I will always bear special reverence are
those who
were suffering from AIDS and who gave some of their last
hours for
interviews, sometimes while they were on their deathbeds
laboring for
breath. When I’d ask why they’d take the time for this, most
hoped that
something they said would save someone else from suffering. If
there is an
act that better defines heroism, I have not seen it.
DRAMATIS
PERSONAE
DR. FRANCOISE BARRE, a researcher with the Pasteur
Institute, the first to
isolate the AIDS virus.
DR. BOB BIGGAR, a researcher with the Environmental
Epidemiology
57. branch of the National Cancer Institute.
FRANCES BORCHELT, a San Francisco grandmother.
DR. EDWARD BRANDT, Assistant Secretary for Health of the
U.S.
Department of Health and Human Services.
JOE BREWER, a gay psychotherapist in San Francisco’s Castro
Street
neighborhood.
HARRY BRITT, the only openly gay member of San
Francisco’s board of
supervisors, the local equivalent of a city council.
U.S. REPRESENTATIVE PHILIP BURTON, a staunch liberal
who represented
San Francisco in Congress.
U.S. REPRESENTATIVE SALA BURTON succeeded her
husband in Congress.
MICHAEL CALLEN, a rock singer who organized the People
With AIDS
Coalition in New York City.
LU CHAIKIN, a lesbian psychotherapist in San Francisco’s
Castro Street
neighborhood.
DR. JEAN-CLAUDE CHERMANN, part of the Pasteur Institute
team that first
isolated the AIDS virus.
DR. MARCUS CONANT, a dermatologist affiliated with the
University of
58. California at San Francisco.
DR. JAMES CURRAN, an epidemiologist and director of AIDS
research
efforts at the U.S. Centers for Disease Control in Atlanta.
WILLIAM DARROW, a sociologist and epidemiologist
involved with AIDS
research at the Centers for Disease Control.
DR. WALTER DOWDLE, director of the Center for Infectious
Diseases.
DR. SELMA DRITZ, assistant director of the Bureau of
Communicable
Disease Control at the San Francisco Department of Public
Health.
GAETAN DUGAS, a French-Canadian airline steward for Air
Canada, one of
the first North Americans diagnosed with AIDS.
DR. MYRON “MAX” ESSEX, a retrovirologist with Harvard
University
School of Public Health.
SANDRA FORD, a drug technician at the Centers for Disease
Control.
DR. WILLIAM FOEGE, director of the Centers for Disease
Control during the
first years of the AIDS epidemic.
DR. DONALD FRANCIS, a retrovirologist who directed
laboratory efforts for
59. AIDS research at the Centers for Disease Control.
DR. ROBERT GALLO, a retrovirologist with the National
Cancer Institute in
Bethesda.
DR. MICHAEL GOTTLIEB, an immunologist with the
University of
California at Los Angeles.
ENRIQUE “KICO” GOVANTES, a gay San Francisco artist,
lover of Bill
Kraus.
DR. JAMES GROUNDWATER, a dermatologis t who treated
San Francisco’s
first reported AIDS case.
DR. MARY GUINAN, an epidemiologist involved with early
AIDS research
at the Centers for Disease Control.
MARGARET HECKLER, Secretary of the U.S. Department of
Health and
Human Services from early 1983 through the end of 1985.
KEN HORNE, the first reported AIDS case in San Francisco.
DR. HAROLD JAFFE, an epidemiologist with the AIDS
program at the
Centers for Disease Control.
CLEVE JONES, a San Francisco gay activist, organizer of the
Kaposi’s
Sarcoma Research and Education Foundation.
LARRY KRAMER, novelist, playwright, and film producer,
organizer of Gay
60. Men’s Health Crisis in New York City.
BILL KRAUS, prominent San Francisco gay leader, aide to U.S.
Reps. Philip
and Sala Burton.
MATTHEW KRIEGER, a San Francisco graphic designer, lover
of Gary
Walsh.
DR. MATHILDE KRIM, socially prominent cancer researcher,
organized the
AIDS Medical Foundation.
DR. DALE LAWRENCE, conducted early studies of AIDS in
hemophiliacs
and blood transfusion recipients for the Centers for Disease
Control.
MICHAEL MALETTA, hair dresser who was one of San
Francisco’s early
AIDS cases.
DR. JAMES MASON, director of the Centers for Disease
Control since late
1983, served as acting Assistant Secretary for Health in 1985.
RODGER MCFARLANE, executive director of the Gay Men’s
Health Crisis in
New York City.
DR. DONNA MILDVAN, AIDS researcher at Beth Israel
Medical Center in
61. Manhattan.
DR. LUC MONTAGNIER, head of the Pasteur Institute team
that first isolated
the AIDS virus.
JACK NAU, one of New York City’s early AIDS cases, a
former lover of
Paul Popham.
ENNO POERSCH, a graphic designer drawn into AIDS
organizing because of
the death of his lover, Nick, in early 1981.
PAUL POPHAM, Wall Street businessman, president of Gay
Men’s Health
Crisis.
DR. GRETHE RASK, Danish surgeon in Zaire, first westerner
documented to
have died of AIDS.
DR. WILLY ROZENBAUM, leading AIDS clinician in Paris.
DR. ARYE RUBINSTEIN, immunologist in the Bronx, among
the first to
detect AIDS in infants.
DR. DAVID SENCER, health commissioner of New York City.
DR. MERVYN SILVERMAN, director of the San Francisco
Department of
Public Health.
DR. PAUL VOLBERDING, director of the San Francisco
General Hospital
AIDS Clinic.
62. GARY WALSH, a San Francisco gay psychotherapist, early
organizer of
AIDS sufferers.
U.S. REPRESENTATIVE HENRY WAXMAN of Los Angeles,
chair of House
Subcommittee on Health and the Environment.
DR. JOEL WEISMAN, a prominent gay physician in Los
Angeles, among the
first to detect the AIDS epidemic.
RICK WELLIKOFF, a Brooklyn schoolteacher who was among
the nation’s
first AIDS cases, close friend of Paul Popham.
TIM WESTMORELAND, counsel to the House Subcommittee
on Health and
the Environment.
DR. DAN WILLIAM, a prominent gay physician in New York
City.
THE BUREAUCRACY
In the government of the United States, health agencies are part
of the U.S.
Department of Health and Human Services (HHS). Most of the
key health
and scientific research agencies fall under the umbrella of the
U.S. Public
63. Health Service (PHS), which is directed by the Assistant
Secretary for
Health of the Department of Health and Human Services. The
National
Institutes of Health (NIH), Food and Drug Administration
(FDA), and
Centers for Disease Control (CDC) are among the agencies that
comprise
the PHS.
The National Institutes of Health is comprised of various
separate
institutes that conduct most of the government’s laboratory
research into
health matters. Two of the largest institutes at the NIH are also
the two that
were most involved in AIDS research, the National Cancer
Institute (NCI)
and the National Institute of Allergy and Infectious Diseases
(NIAID).
The Centers for Disease Control is comprised of different
centers that
handle various public health problems. The largest is the Center
for
Infectious Diseases, under which AIDS research has been
handled through
most of the epidemic. The Kaposi Sarcoma–Opportunistic
Infections Task
Force (KSOI Task Force), which changed its name to the AIDS
Task Force,
and later to the AIDS Activities Office, was part of the CID.
The Kaposi’s Sarcoma Research and Education Foundation (KS
Foundation) was organized in San Francisco in early 1982. In
1983, it split
64. into the National Kaposi’s Sarcoma/AIDS Research and
Education
Foundation (National KS Foundation), which dissolved in 1984,
and the
San Francisco Kaposi’s Sarcoma/AIDS Research Foundation.
The latter
group subsequently changed its name to the San Francisco AIDS
Foundation.
The AIDS Medical Foundation was organized in New York City
in 1983.
In 1985, it merged with the National AIDS Research Foundation
to become
the American Foundation for AIDS Research (AmFAR).
AND
THE BAND
PLAYED ON
PROLOGUE
By October 2, 1985, the morning Rock Hudson died, the word
was familiar
to almost every household in the Western world.
AIDS.
Acquired Immune Deficiency Syndrome had seemed a
comfortably
distant threat to most of those who had heard of it before, the
65. misfortune of
people who fit into rather distinct classes of outcasts and social
pariahs. But
suddenly, in the summer of 1985, when a movie star was
diagnosed with the
disease and the newspapers couldn’t stop talking about it, the
AIDS
epidemic became palpable and the threat loomed everywhere.
Suddenly there were children with AIDS who wanted to go to
school,
laborers with AIDS who wanted to work, and researchers who
wanted
funding, and there was a threat to the nation’s public health that
could no
longer be ignored. Most significantly, there were the first
glimmers of
awareness that the future would always contain this strange new
word.
AIDS would become a part of American culture and indelibly
change the
course of our lives.
The implications would not be fleshed out for another few
years, but on
that October day in 1985 the first awareness existed just the
same. Rock
Hudson riveted America’s attention upon this deadly new threat
for the first
time, and his diagnosis became a demarcation that would
separate the
history of America before AIDS from the history that came
after.
The timing of this awareness, however, reflected the unalterable
tragedy
66. at the heart of the AIDS epidemic: By the time America paid
attention to
the disease, it was too late to do anything about it. The virus
was already
pandemic in the nation, having spread to every corner of the
North
American continent. The tide of death that would later sweep
America
could, perhaps, be slowed, but it could not be stopped.
The AIDS epidemic, of course, did not arise full grown from the
biological landscape; the problem had been festering throughout
the decade.
The death tolls of the late 1980s are not startling new
developments but an
unfolding of events predicted for many years. There had been a
time when
much of this suffering could have been prevented, but by 1985
that time had
passed. Indeed, on the day the world learned that Rock Hudson
was
stricken, some 12,000 Americans were already dead or dying of
AIDS and
hundreds of thousands more were infected with the virus that
caused the
disease. But few had paid any attention to this; nobody, it
seemed, had
cared about them.
The bitter truth was that AIDS did not just happen to America—
it was
allowed to happen by an array of institutions, all of which failed
to perform
67. their appropriate tasks to safeguard the public health. This
failure of the
system leaves a legacy of unnecessary suffering that will haunt
the Western
world for decades to come.
There was no excuse, in this country and in this time, for the
spread of a
deadly new epidemic. For this was a time in which the United
States
boasted the world’s most sophisticated medicine and the world’s
most
extensive public health system, geared to eliminate such
pestilence from our
national life. When the virus appeared, the world’s richest
nation housed the
most lavishly financed scientific research establishments—both
inside the
vast governmental health bureaucracy and in other
institutions—to
investigate new diseases and quickly bring them under control.
And making
sure that government researchers and public health agencies did
their jobs
were the world’s most unfettered and aggressive media, the
public’s
watchdogs. Beyond that, the group most affected by the
epidemic, the gay
community, had by then built a substantial political
infrastructure,
particularly in cities where the disease struck first and most
virulently.
Leaders were in place to monitor the gay community’s health
and survival
interests.
68. But from 1980, when the first isolated gay men began falling ill
from
strange and exotic ailments, nearly five years passed before all
these
institutions—medicine, public health, the federal and private
scientific
research establishments, the mass media, and the gay
community’s
leadership—mobilized the way they should in a time of threat.
The story of
these first five years of AIDS in America is a drama of national
failure,
played out against a backdrop of needless death.
People died while Reagan administration officials ignored pleas
from
government scientists and did not allocate adequate funding for
AIDS
research until the epidemic had already spread throughout the
country.
People died while scientists did not at first devote appropriate
attention
to the epidemic because they perceived little prestige to be
gained in
studying a homosexual affliction. Even after this denial faded,
people died
while some scientists, most notably those in the employ of the
United States
government, competed rather than collaborated in international
research
efforts, and so diverted attention and energy away from the
central struggle
against the disease itself.
69. People died while public health authorities and the political
leaders who
guided them refused to take the tough measures necessary to
curb the
epidemic’s spread, opting for political expediency over the
public health.
And people died while gay community leaders played politics
with the
disease, putting political dogma ahead of the preservation of
human life.
People died and nobody paid attention because the mass media
did not
like covering stories about homosexuals and was especial ly
skittish about
stories that involved gay sexuality. Newspapers and television
largely
avoided discussion of the disease until the death toll was too
high to ignore
and the casualties were no longer just the outcasts. Without the
media to
fulfill its role as public guardian, everyone else was left to
deal—and not
deal—with AIDS as they saw fit.
In those early years, the federal government viewed AIDS as a
budget
problem, local public health officials saw it as a political
problem, gay
leaders considered AIDS a public relations problem, and the
news media
regarded it as a homosexual problem that wouldn’t interest
anybody else.
Consequently, few confronted AIDS for what it was, a
70. profoundly
threatening medical crisis.
Fighting against this institutional indifference were a handful of
heroes
from disparate callings. Isolated teams of scientists in research
centers in
America and Europe risked their reputations and often their jobs
to pioneer
early research on AIDS. There were doctors and nurses who
went far
beyond the call of duty to care for its victims. Some public
health officials
struggled valiantly to have the epidemic addressed in earnest. A
handful of
gay leaders withstood vilification to argue forcefully for a sane
community
response to the epidemic and to lobby for the funds that
provided the first
breakthroughs in research. And there were many victims of the
epidemic
who fought rejection, fear, isolation, and their own deadly
prognoses to
make people understand and to make people care.
Because of their efforts, the story of politics‚ people, and the
AIDS
epidemic is, ultimately, a tale of courage as well as cowardice,
compassion
as well as bigotry, inspiration as well as venality, and
redemption as well as
despair.
It is a tale that bears telling, so that it will never happen again,
71. to any
people, anywhere.
PART I
BEHOLD‚ A PALE HORSE
And I looked, and behold a pale horse: and his name that sat on
him was
Death, and Hell followed with him. And power was given unto
them over
the fourth part of the earth, to kill with sword, and with hunger,
and with
death, and with the beasts of the earth.
—REVELATION 6:8
1 THE FEAST OF THE HEARTS
July 4, 1976
NEW YORK HARBOR
Tall sails scraped the deep purple night as rockets burst, flared,
and
flourished red, white, and blue over the stoic Statue of Liberty.
The whole
world was watching, it seemed; the whole world was there.
Ships from
fifty-five nations had poured sailors into Manhattan to join the
throngs,
counted in the millions, who watched the greatest pyrotechnic
extravaganza
72. ever mounted, all for America’s 200th birthday party. Deep into
the
morning, bars all over the city were crammed with sailors. New
York City
had hosted the greatest party ever known, everybody agreed
later. The
guests had come from all over the world.
This was the part the epidemiologists would later note, when
they stayed
up late at night and the conversation drifted toward where it had
started and
when. They would remember that glorious night in New York
Harbor, all
those sailors, and recall: From all over the world they came to
New York.
Christmas Eve, 1976
KINSHASA, ZAIRE
The hot African sky turned black and sultry; it wasn’t like
Christmas at all.
The unrelenting mugginess of the equatorial capital made Dr. Ib
Bygbjerg even lonelier for Denmark. In the kitchen, Dr. Grethe
Rask,
determined to assuage her young colleague’s homesickness,
began
preparing an approximation of the dinner with which Danes
traditionally
begin their Christmas observance, the celebration known
through centuries
of custom as the Feast of the Hearts.
The preparations brought back memories of the woman’s
childhood in
73. Thisted, the ancient Jutland port nestled on the Lim Fiord not
far from the
North Sea. As the main course, Grethe Rask knew, there needed
to be
something that flies. In Jutland that would mean goose or duck;
in Zaire,
chicken would have to suffice. As she began preparing the fowl,
Grethe
again felt the familiar fatigue wash over her. She had spent the
last two
years haunted by weariness, and by now, she knew she couldn’t
fight it.
Grethe collapsed on her bed. She had been among the Danish
doctors
who came to replace the Belgian physicians who were no longer
welcome
in this new nation eager to forget its recent colonial incarnation
as the
Belgian Congo. Grethe had first gone there in 1964, returning to
Europe for
training in stomach surgery and tropical diseases. She had spent
the last
four years in Zaire but, despite all this time in Africa, she
remained
unmistakably from the Danish stock who proudly announce
themselves as
north of the fjord. To be north of the Lim Fiord was to be direct
and
decisive, independent and plainspoken. The Jutlanders born
south of the
stretch of water that divides the Danish peninsula tend toward
weakness, as
74. anyone north of the fjord might explain. Far from the kings in
Copenhagen,
these hardy northern people had nurtured their collective
heritage for
centuries. Grethe Rask from Thisted mirrored this.
It explained why she was here in Zaire, 5,000 miles from w here
she
might forge a lucrative career as a surgeon in the sprawling
modern
hospitals of Copenhagen. Such a cosmopolitan career meant
people looking
over her shoulder, giving orders. Grethe preferred the work she
had done at
a primitive hospital in the remote village of Abumombazi in the
north of
Zaire. She alone was in charge there.
The hospital conditions in Abumombazi were not as deplorable
as in
other parts of the country. A prominent Zairian general came
from the
region. He had had the clout to attract a white doctor to the
village, and
there, with Belgian nuns, Grethe worked with what she could
beg and
borrow. This was Central Africa, after all, and even a favored
clinic would
never have such basics as sterile rubber gloves or disposable
needles. You
just used needles again and again until they wore out; once
gloves had worn
through, you risked dipping your hands in your patient’s blood
because that
was what needed to be done. The lack of rudimentary supplies
meant that a
75. surgeon’s work had risks that doctors in the developed world
could not
imagine, particularly because the undeveloped part, specifically
Central
Africa, seemed to sire new diseases with nightmarish regularity.
Earlier that
year, not far from Abumombazi, in a village along the Ebola
River on the
Zaire-Sudan border, a virulent outbreak of a horrifying new
disease had
demonstrated the dangers of primitive medicine and new
viruses. A trader
from the village of Enzara, suffering from fevers and profuse,
uncontrollable bleeding, had come to the teaching hospital for
nurses in
Maridi. The man apparently had picked up the disease sexually.
Within
days, however, 40 percent of the student nurses in Maridi were
stricken
with the fever, transmitted by contact with the patient’s infected
blood
either through standard care procedures or through accidental
needle-sticks.
Frightened African health officials swallowed their pride and
called the
World Health Organization, who came with a staff from the
American
Centers for Disease Control. By the time the young American
doctors
arrived, thirty-nine nurses and two doctors were dead. The CDC
doctors
worked quickly, isolating all patients with fevers. Natives were
76. infuriated
when the Americans banned the traditional burials of the
victims since the
ritual bathing of the bodies was clearly spreading the disease
further. Within
weeks, however, the epidemic was under control. In the end, the
Ebola
Fever virus, as it came to be known, killed 53 percent of the
people it
infected, seizing 153 lives before it disappeared as suddenly and
mysteriously as it had arisen. Sex and blood were two horribly
efficient
ways to spread a new virus, and years later, a tenuous relief
would fill the
voices of doctors who talked of how fortunate it was for
humankind that
this new killer had awakened in this most remote corner of the
world and
had been stamped out so quickly. A site just a bit closer to
regional
crossroads could have unleashed a horrible plague. With modern
roads and
jet travel, no corner of the earth was very remote anymore;
never again
could diseases linger undetected for centuries among a distant
people
without finding some route to fan out across the planet.
The battle between humans and disease was nowhere more
bitterly
fought than here in the fetid equatorial climate, where heat and
humidity
fuel the generation of new life forms. One historian has
suggested that
humans, who first evolved in Africa eons ago, migrated north to
Asia and
77. Europe simply to get to climates that were less hospitable to the
deadly
microbes the tropics so efficiently bred.
Here, on the frontiers of the world’s harshest medical realities,
Grethe
Rask tended the sick. In her three years in Abumombazi, she
had bullied
and cajoled people for the resources to build her jungle hospital,
and she
was loved to the point of idolization by the local people. Then,
she returned
to the Danish Red Cross Hospital, the largest medical institution
in the
bustling city of Kinshasa, where she assumed the duties of chief
surgeon.
Here she met Ib Bygbjerg, who had returned from another rural
outpost in
the south. Bygbjerg’s thick dark hair and small compact frame
belied his
Danish ancestry, the legacy, he figured, of some Spanish sailor
who made
his way to Denmark centuries ago. Grethe Rask had the features
one would
expect of a woman from Thisted, high cheekbones and blond
hair worn
short in a cut that some delicately called mannish.
To Bygbjerg’s eye, on that Christmas Eve, there were troubling
things to
note about Grethe’s appearance. She was thin, losing weight
from a
mysterious diarrhea. She had been suffering from the vague yet
78. persistent
malaise for two years now, since her time in the impoverished
northern
villages. In 1975, the problem had receded briefly after drug
treatments, but
for the past year, nothing had seemed to help. The surgeon’s
weight
dropped further, draining and weakening her with each passing
day.
Even more alarming was the disarray in the forty-six-year-old
woman’s
lymphatic system, the glands that play the central role in the
body’s never-
ending fight to make itself immune from disease. All of
Grethe’s lymph
glands were swollen and had been for nearly two years.
Normally, a lymph
node might swell here or there to fight this or that infection,
revealing a
small lump on the neck, under an arm, or perhaps, in the groin.
There didn’t
seem to be any reason for her glands to swell; there was no
precise infection
anywhere, much less anything that would cause such a universal
enlargement of the lymph nodes all over her body.
And the fatigue. It was the most disconcerting aspect of the
surgeon’s
malaise. Of course, in the best of times, this no-nonsense
woman from north
of the fjord did not grasp the concept of relaxation. Just that
day, for
example, she had not been scheduled to work, but she put in a
full shift,
anyway; she was always working, and in this part of the world
79. nobody
could argue because there was always so much to be done. But
the
weariness, Bygbjerg could tell, was not bred by overwork.
Grethe had
always been remarkably healthy, throughout her arduous career.
No, the
fatigue was something darker; it had become a constant
companion that
weighted her every move, mocking the doctor’s industry like the
ubiquitous
cackling of the hyena on the savannah.
Though she was neither sentimental nor particularly Christian,
Grethe
Rask had wanted to cheer her young colleague; instead, she lay
motionless,
paralyzed again. Two hours later, Grethe stirred and began,
halfheartedly, to
finish dinner. Bygbjerg was surprised that she was so sick then
that she
could not muster the strength to stay awake for something as
special as the
Feast of the Hearts.
November 1977
HJARDEMAAL, DENMARK
A cold Arctic wind blistered over the barren heath outside a
whitewashed
cottage that sat alone, two miles from the nearest neighbors in
the desolate
region of Denmark north of the Lim Fiord. Sweeping west, from
80. the North
Sea over the sand dunes and low, bowed pines, the gusts made a
whoosh-
whooshing sound. Inside the little house, under a neat red-tiled
roof, Grethe
Rask gasped her short, sparse breaths from an oxygen bottle.
“I’d better go home to die,” Grethe had told Ib Bygbjerg matter -
of-factly.
The only thing her doctors could agree on was the woman’s
terminal
prognosis. All else was mystery. Also newly returned from
Africa,
Bygbjerg pondered the compounding mysteries of Grethe’s
health. None of
it made sense. In early 1977, it appeared that she might be
getting better; at
least the swelling in her lymph nodes had gone down, even as
she became
more fatigued. But she had continued working, finally taking a
brief
vacation in South Africa in early July.
Suddenly, she could not breathe. Terrified, Grethe flew to
Copenhagen,
sustained on the flight by bottled oxygen. For months now, the
top medical
specialists of Denmark had tested and studied the surgeon.
None, however,
could fathom why the woman should, for no apparent reason, be
dying.
There was also the curious array of health problems that
suddenly appeared.
Her mouth became covered with yeast infections. Staph
infections spread in
81. her blood. Serum tests showed that something had gone awry in
her
immune system; her body lacked T-cells, the quarterbacks in the
body’s
defensive line against disease. But biopsies showed she was not
suffering
from a lymph cancer that might explain not only the T-cell
deficiency but
her body’s apparent inability to stave off infection. The doctors
could only
gravely tell her that she was suffering from progressive lung
disease of
unknown cause. And, yes, in answer to her blunt questions, she
would die.
Finally, tired of the poking and endless testing by the
Copenhagen
doctors, Grethe Rask retreated to her cottage near Thisted. A
local doctor
fitted out her bedroom with oxygen bottles. Grethe’s longtime
female
companion, who was a nurse in a nearby hospital, tended her.
Grethe lay in
the lonely whitewashed farmhouse and remembered her years in
Africa
while the North Sea winds piled the first winter snows across
Jutland.
In Copenhagen, Ib Bygbjerg, now at the State University
Hospital,
fretted continually about his friend. Certainly, there must be an
answer to
the mysteries of her medical charts. Maybe if they ran more
tests…. It could
82. be some common tropical culprit they had overlooked, he
argued. She
would be cured, and they would all chuckle over how easily the
problem
had been solved when they sipped wine and ate goose on the
Feast of the
Hearts. Bygbjerg pleaded with the doctors, and the doctors
pleaded with
Grethe Rask, and reluctantly the wan surgeon returned to the
old
Rigshospitalet in Copenhagen for one last chance.
Bygbjerg would never forgive himself for taking her away from
the
cottage north of the fjord. The virulent microbes that were
haunting her
body would not reveal themselves in the bombardment of tests
she endured
in those last days. On December 12, 1977, just twelve days
before the Feast
of the Hearts, Margrethe P. Rask died. She was forty-seven
years old.
Later, Bygbjerg decided he would devote his life to studying
tropical
medicine. Before he died, he wanted to know what microscopic
marauder
had come from the African jungles to so ruthlessly rob the life
of his best
friend, a woman who had been so intensely devoted to helping
others.
An autopsy revealed that Grethe Rask’s lungs were filled with
millions
of organisms known as Pneumocystis carinii; they had caused a
rare
83. pneumonia that had slowly suffocated the woman. The diagnosis
raised
more questions than answers: Nobody died of Pneumocystis.
Intrigued,
Bygbjerg wanted to start doing research on the disease, but he
was
dissuaded by wizened professors, who steered him toward work
in malaria.
Don’t study Pneumocystis, they told him; it was so rare that
there would be
no future in it.
PART II
BEFORE: 1980
All history resolves itself quite easily into the biography of a
few stout and
earnest persons.
—RALPH WALDO EMERSON,
“Self-Reliance”
2 GLORY DAYS
June 29, 1980
SAN FRANCISCO
The sun melted the morning fog to reveal a vista so clear, so
crystalline that
you worried it might break if you stared too hard. The
Transamerica
84. Pyramid towered over the downtown skyline, and the bridges
loped toward
hills turning soft gold in the early summer heat. Rainbow flags
fluttered in
the gentle breezes.
Seven men were beginning their day. Bill Kraus, fresh from his
latest
political triumph in Washington, D.C., was impatient to get to
the foot of
Market Street to take his place at the head of the largest parade
in San
Francisco. There was much to celebrate.
In his apartment off Castro Street, in the heart of San
Francisco’s gay
ghetto, Cleve Jones waited anxiously for his lover to get out of
bed. This
was parade day, Cleve kept repeating. No man, even the
delightful muffin
lolling lazily in the bed next to him, would make him late for
this day of
days. Cleve loved the sight of homosexuals, thousands strong. It
was he
who had led the gay mob that rioted at City Hall just a year ago,
although
he had now refashioned himself into the utterly respectable aide
to one of
California’s most powerful politicians. He wasn’t selling out,
Cleve told
friends impishly; he was just adding a new chapter to his
legend. “Meet me
at the parade,” he called to his sleepy partner as he finally
dashed for the
door. “I can’t be late.”
85. A few blocks away, Dan William waited to meet David Ostrow.
The two
doctors were in town for a gathering of gay physicians at San
Francisco
State University. At home in New York City, gay parades drew
only 30,000
or so; Dan William tried to imagine what a parade with
hundreds of
thousands of gays would look like. From what he had heard,
David Ostrow
was glad they didn’t have parades like San Francisco’s in
Chicago; it would
never play.
On California Street, airline steward Gaetan Dugas examined
his face
closely in the mirror. The scar, below his ear, was only slightly
visible. His
face would soon be unblemished again. He had come all the way
from
Toronto to enjoy this day, and for the moment he would put
aside the
troubling news the doctors had delivered just a few weeks
before.
In the Mission District, the Gay Freedom Day Parade was the
event
twenty-two-year-old Kico Govantes had anticipated the entire
five weeks
he’d been in San Francisco. The tentative steps Kico had taken
in exploring
his homosexuality at a small Wisconsin college could now turn
to proud
strides. Maybe among the thousands who had been streaming
86. into the city
all week, Kico would find the lover he sought.
Before.
It was to be the word that would define the permanent
demarcation in the
lives of millions of Americans, particularly those citizens of the
United
States who were gay. There was life after the epidemic. And
there were
fond recollections of the times before.
Before and after. The epidemic would cleave lives in two, the
way a
great war or depression presents a commonly understood point
of reference
around which an entire society defines itself.
Before would encompass thousands of memories laden with
nuance and
nostalgia. Before meant innocence and excess, idealism and
hubris. More
than anything, this was the time before death. To be sure, Death
was already
elbowing its way through the crowds on that sunny morning,
like a rude
tourist angling for the lead spot in the parade. It was still an
invisible
presence, though, palpable only to twenty, or perhaps thirty, gay
men who
were suffering from a vague malaise. This handful ensured that
the future
and the past met on that single day.
People like Bill Kraus and Cleve Jones, Dan William and David