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‘ Caring and Sharing’ – The Quest To Develop a Strategy For Sharing Electronic Patient Records HINZ Seminar 24 July 2009, Auckland Dr Inga Hunter Senior Lecturer Department of Management,  Massey University [email_address] Sharing personal health information:  The patients’ views on the sharing  of clinical records ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
HRC-funded Survey 2007/8 ,[object Object],[object Object],[object Object],[object Object],[object Object]
Structure of vignettes ,[object Object]
Potential vignettes ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Anonymous with no information to link the record to you Your name and address Your medical record number, but no information about your name or address < type of identification detail > Improving the Health of New Zealanders  Assess eligibility for financial assistance  Care  Quality Audit  Financial Audit < reason for request > all your past medical history information about your current health problem < content of medical information > Community Health Worker Government Health Agency Private Insurer  Health Professional* Laboratory staff Emergency Personnel  Hospital Doctor/Nurse  Allied Health Professional Health Administrator/Manager Pharmacist Researcher GP/Practice Nurse < person requesting information > Values Attribute
Example 1 ,[object Object]
Example 2 ,[object Object]
Potential bias ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Provisional analysis  ,[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object]
Comfort and Agree ,[object Object],[object Object],[object Object],[object Object]
For each scenario
For an individual
[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object]
Clinical care
For Care Name and address
For Care Name and address
For Care Name and address Gender Role
For Care /Name & address Age group & Role
For Care /Name & address Age group & Role
For Care Name and address
For Care Name and address
For Care Name and address
 
For Care Name and address Chronic disease
For Care Name and address Chronic disease
 
For Care Name and address Sensitive Information
For Care Name and address Sensitive Information
 
Something ‘Sensitive’
For Care Name and address
For Care Name and address
Identification
 
 
For any reason
Overcome discomfort to agree
The respondent is most willing to overcome their discomfort when the enquirer is a hospital Dr/nurse or Ambulance Paramedic - or Researcher!
 
The oldest age group is most willing to overcome their discomfort and  Agree.  The youngest age group is least  willing to agree even when actually quite comfortable.
Summary ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Summary 2 ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Study Conclusions ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Where to next? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object]

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Patients' Views on Sharing EHRs