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AIDSVu: Mapping HIV Surveillance Data and
         Promoting HIV Testing


               Jennifer Taussig
               Patrick Sullivan
       Rollins School of Public Health
              Emory University

              August 15, 2011
What is AIDSVu?
 A new mapping tool to make U.S. HIV prevalence
  data widely accessible and locally relevant

 Concept originated with the desire to find a way
  to expand the reach, impact and utility of HIV
  surveillance data

 Target audience includes researchers, advocates,
  public health officials, youth, policymakers, and
  other members of the general public
AIDSVu Goals
 Make U.S. HIV prevalence data widely accessible, locally
  relevant, and easy to understand by providing users with a
  visual way to connect with the data on a national and local
  level

 Motivate viewers to take action on an individual and
  community level including locating HIV testing sites in their
  community

 Generate traditional and non-traditional stakeholder interest
  and position AIDSVu as a trusted resource for HIV data and
  information
AIDSVu Technical Advisory Group
 Emory University                 Centers for Disease Control and
   – Patrick Sullivan               Prevention
   – Jennifer Taussig                – Luke Shouse

 Gilead Sciences, Inc.            Kaiser Family Foundation
   – Kacy Hutchison                  – Jennifer Kates

 HIV Surveillance Coordinators    National Alliance of State and
   – Eve Mokotoff, Michigan         Territorial AIDS Directors (NASTAD)
   – Nanette Benbow, Chicago         – Natalie Cramer
   – Debbie Wendell, Louisiana
   – Angelique Griffin, D.C.       University of Medicine & Dentistry
                                    of New Jersey
                                     – Patricia Fleming
 State HIV/AIDS Director
   – Thomas Liberti, Florida
AIDSVu Guiding Principles
 Integrity of the data is paramount

 Establish the site as an ongoing, reliable, trusted source of
  information

 Work in partnership with surveillance staff at the local,
  state, and federal levels

 Present data in a way that makes it accessible to a broader
  audience

 Pair data with other relevant information to help users
  contextualize the data and take action
www.AIDSVu.org



Let’s tour the site!
Pre-Launch Preparation
 AIDSVu and message testing
   – Test the AIDSVu experience and key takeaways

 Empower states to leverage AIDSVu
   – Brief state AIDS directors, surveillance coordinators and
     media teams
   – Develop Public Education Resource Kit and other PR
     support

 Stakeholder previews
   – Preview of site with key influencers
Promotion of AIDSVu Web Site
 Traditional Media Outreach
   – News bureaus
 Social Media/Online Advertising
   – Twitter
   – Facebook
   – YouTube
 Strategic Partnership Activity
   –   Corporate
   –   HIV-related media networks
   –   Conferences
   –   State and local HIV planning groups
Highlights of Website Launch on June 1
                  Many With HIV Don't Know They Have It
         "The USA TODAY analysis relied on CDC data supplied by Emory
           University's AIDSVu project, an effort designed to make HIV
            visible to the public by presenting state- and county-level
          infection rates on a user friendly map. AIDSVu reinforces the
                      reality of AIDS in your own community."

               AIDS in America: 30 Years In, New Map Shows
                        Epidemic Still Widespread
          "The data that tell us about how many people are living with an
          HIV diagnosis and how that's distributed across the country tells
            us a really strong story about how we can best address the
                               epidemic." Read more.

          HIV Google Map Gives New Perspective on Epidemic
           "[AIDSVu] may be the most thorough geographical depiction
           of HIV ever created."
Highlights of Website Launch on June 1

 Unique visitors to website: 112,050 since June 1


 Total page views: 204,007 individual page views

 Top Referring Sites
   – Huffington Post
   – Wired.com
   – USA Today


 Top State/City Visitors
AIDSVu Visitors by State, June 1 – August 9, 2011
AIDSVu Visitors by City, June 1 – August 9, 2011
How can AIDSVu be a resource?
 Individual Level
   – Inform users about epidemic
   – Motivate users to take action on an individual and community level
   – Find places to get tested for HIV

 Community/Structural Level
   – Social media outreach and promotion
   – Increased awareness of highly impacted areas leading to greater focus
     on prevention, care, etc.
   – Broader % of community knowing their HIV status

 Organizational/Policy Level
   – Assist planning processes and allocation of resources
   – Provide data for grant applications, reports, lobbying
   – Identify gaps in services (e.g. HIV testing sites)
Challenges/Limitations
 Incomplete data for county-level view

 Possible inflation of county-level rates and case
  counts because of correctional facilities

 Residence at diagnosis vs. current address

 Meet the needs/interests of diverse users

 Testing sites not exhaustive
Future Direction of AIDSVu
 Research-facing side to the website

 Mobile app

 Data at finer geographic levels– city and zip code

 Display other HIV prevention, care and treatment resources

 Transmission risk category data

 Overlay of correctional facilities
AIDSVu Contacts

 Patrick Sullivan, Principal Investigator
  (404) 727-2038; pssulli@emory.edu

 Jennifer Taussig, Project Director
  (404) 712-8950; jatauss@emory.edu

                 www.aidsvu.org
AIDSVu: Homepage
AIDSVu Map:
Overall HIV Prevalence Rate at County Level
AIDSVu Map:
Overall HIV Prevalence Rate at State Level
AIDSVu: County Pop-Up Balloon, Prince George’s, MD
AIDSVu Map:
HIV Prevalence Rate at County Level, Florida
AIDSVu Map:
HIV Prevalence Rate at County Level Overlaid with
              Poverty Rate, Florida
AIDSVu Map:
HIV Prevalence Rate at County Level Overlaid with
       HIV Testing Center Locations, Florida
AIDSVu Map: NIH-Funded HIV Prevention
        and Vaccine Trials Sites
AIDSVu Map: HIV Prevalence Rate at Zip
     Code-level, Washington, D.C.
AIDSVu State Profile Page, Florida
AIDSVu: Three Things You Can Do
AIDSVU: HIV Testing Site Locator

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AIDSVu: Mapping HIV Surveillance Data and Promoting HIV Testing

  • 1. AIDSVu: Mapping HIV Surveillance Data and Promoting HIV Testing Jennifer Taussig Patrick Sullivan Rollins School of Public Health Emory University August 15, 2011
  • 2. What is AIDSVu?  A new mapping tool to make U.S. HIV prevalence data widely accessible and locally relevant  Concept originated with the desire to find a way to expand the reach, impact and utility of HIV surveillance data  Target audience includes researchers, advocates, public health officials, youth, policymakers, and other members of the general public
  • 3. AIDSVu Goals  Make U.S. HIV prevalence data widely accessible, locally relevant, and easy to understand by providing users with a visual way to connect with the data on a national and local level  Motivate viewers to take action on an individual and community level including locating HIV testing sites in their community  Generate traditional and non-traditional stakeholder interest and position AIDSVu as a trusted resource for HIV data and information
  • 4. AIDSVu Technical Advisory Group  Emory University  Centers for Disease Control and – Patrick Sullivan Prevention – Jennifer Taussig – Luke Shouse  Gilead Sciences, Inc.  Kaiser Family Foundation – Kacy Hutchison – Jennifer Kates  HIV Surveillance Coordinators  National Alliance of State and – Eve Mokotoff, Michigan Territorial AIDS Directors (NASTAD) – Nanette Benbow, Chicago – Natalie Cramer – Debbie Wendell, Louisiana – Angelique Griffin, D.C.  University of Medicine & Dentistry of New Jersey – Patricia Fleming  State HIV/AIDS Director – Thomas Liberti, Florida
  • 5. AIDSVu Guiding Principles  Integrity of the data is paramount  Establish the site as an ongoing, reliable, trusted source of information  Work in partnership with surveillance staff at the local, state, and federal levels  Present data in a way that makes it accessible to a broader audience  Pair data with other relevant information to help users contextualize the data and take action
  • 7. Pre-Launch Preparation  AIDSVu and message testing – Test the AIDSVu experience and key takeaways  Empower states to leverage AIDSVu – Brief state AIDS directors, surveillance coordinators and media teams – Develop Public Education Resource Kit and other PR support  Stakeholder previews – Preview of site with key influencers
  • 8. Promotion of AIDSVu Web Site  Traditional Media Outreach – News bureaus  Social Media/Online Advertising – Twitter – Facebook – YouTube  Strategic Partnership Activity – Corporate – HIV-related media networks – Conferences – State and local HIV planning groups
  • 9. Highlights of Website Launch on June 1 Many With HIV Don't Know They Have It "The USA TODAY analysis relied on CDC data supplied by Emory University's AIDSVu project, an effort designed to make HIV visible to the public by presenting state- and county-level infection rates on a user friendly map. AIDSVu reinforces the reality of AIDS in your own community." AIDS in America: 30 Years In, New Map Shows Epidemic Still Widespread "The data that tell us about how many people are living with an HIV diagnosis and how that's distributed across the country tells us a really strong story about how we can best address the epidemic." Read more. HIV Google Map Gives New Perspective on Epidemic "[AIDSVu] may be the most thorough geographical depiction of HIV ever created."
  • 10. Highlights of Website Launch on June 1  Unique visitors to website: 112,050 since June 1  Total page views: 204,007 individual page views  Top Referring Sites – Huffington Post – Wired.com – USA Today  Top State/City Visitors
  • 11. AIDSVu Visitors by State, June 1 – August 9, 2011
  • 12. AIDSVu Visitors by City, June 1 – August 9, 2011
  • 13. How can AIDSVu be a resource?  Individual Level – Inform users about epidemic – Motivate users to take action on an individual and community level – Find places to get tested for HIV  Community/Structural Level – Social media outreach and promotion – Increased awareness of highly impacted areas leading to greater focus on prevention, care, etc. – Broader % of community knowing their HIV status  Organizational/Policy Level – Assist planning processes and allocation of resources – Provide data for grant applications, reports, lobbying – Identify gaps in services (e.g. HIV testing sites)
  • 14. Challenges/Limitations  Incomplete data for county-level view  Possible inflation of county-level rates and case counts because of correctional facilities  Residence at diagnosis vs. current address  Meet the needs/interests of diverse users  Testing sites not exhaustive
  • 15. Future Direction of AIDSVu  Research-facing side to the website  Mobile app  Data at finer geographic levels– city and zip code  Display other HIV prevention, care and treatment resources  Transmission risk category data  Overlay of correctional facilities
  • 16. AIDSVu Contacts  Patrick Sullivan, Principal Investigator (404) 727-2038; pssulli@emory.edu  Jennifer Taussig, Project Director (404) 712-8950; jatauss@emory.edu www.aidsvu.org
  • 18. AIDSVu Map: Overall HIV Prevalence Rate at County Level
  • 19. AIDSVu Map: Overall HIV Prevalence Rate at State Level
  • 20. AIDSVu: County Pop-Up Balloon, Prince George’s, MD
  • 21. AIDSVu Map: HIV Prevalence Rate at County Level, Florida
  • 22. AIDSVu Map: HIV Prevalence Rate at County Level Overlaid with Poverty Rate, Florida
  • 23. AIDSVu Map: HIV Prevalence Rate at County Level Overlaid with HIV Testing Center Locations, Florida
  • 24. AIDSVu Map: NIH-Funded HIV Prevention and Vaccine Trials Sites
  • 25. AIDSVu Map: HIV Prevalence Rate at Zip Code-level, Washington, D.C.
  • 26. AIDSVu State Profile Page, Florida
  • 27. AIDSVu: Three Things You Can Do
  • 28. AIDSVU: HIV Testing Site Locator