Dana Roth: Autonomy and Dependency Relationship with Self-Perception and Quality of Life among People with Complex Learning Disabilities, Adjustment and Function Disorders: An Inclusive Research - Slide presentation
Semelhante a Dana Roth: Autonomy and Dependency Relationship with Self-Perception and Quality of Life among People with Complex Learning Disabilities, Adjustment and Function Disorders: An Inclusive Research - Slide presentation
Semelhante a Dana Roth: Autonomy and Dependency Relationship with Self-Perception and Quality of Life among People with Complex Learning Disabilities, Adjustment and Function Disorders: An Inclusive Research - Slide presentation (20)
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Dana Roth: Autonomy and Dependency Relationship with Self-Perception and Quality of Life among People with Complex Learning Disabilities, Adjustment and Function Disorders: An Inclusive Research - Slide presentation
1. Knowledge Database
• Slide Presentation for the lecture of: Dana Roth
Beit Issie Shapiro, Israel
• Topic of lecture: Autonomy and Dependency Relationship
with Self-Perception and Quality of Life among People with
Complex Learning Disabilities, Adjustment and Function
Disorders: An Inclusive Research
• The lecture was given at Beit Issie Shapiro’s 6th International
Conference on Disabilities - Israel
• Year: 2015
5. Inclusive Action Research
Inclusive / participatory research approach
includes representatives of those who are
the “Subjects” of the research.
This approach is geared to study the issues
most relevant and important to the group.
Based on finding of the research one
outcome is action (Social, Policy, etc.)
6. People with disabilities participate in establishing the
research topic and research question (s).
People with disabilities participate in the literature review.
People with disabilities participate in designing the
research methods?
People with disabilities participate in designing the
instruments to assure relevance, accessibility, and
usability.
People with disabilities participate in selecting and
recruiting study participants (sample).
How Inclusive is the research?
D. N. Bryen 2012
7. People with disabilities participate in designing the
institutional review application (ethics review), especially as it
relates to informed consent.
People with disabilities participate in data collection.
People with disabilities participate in data analysis.
People with disabilities participate in writing the research
results and conclusions.
People with disabilities participate in research dissemination,
including publication, presentations, brochures, papers in
easy language to ensure accessibility and ease of
understanding.
People with disabilities participate in ensuring that research
findings are sustainable and are used for social justice
changes.
8. The Researchers
Adults with complex learning, adjustment &
Function disabilities (4); Professional
researches (2).
The Research process
20 work meetings, about 3 hours each,
(May 2012-may 2015),
all graduates of BIS “Inclusive University”.
9. The Research Question
Is there a correlation between
autonomy, dependency, self- image
(perception) & Quality of life of
people with complex learning
disabilities, adjustment and function
disorders
10. Literature Review
[Patricia ,Sitlington and Frank (1990) Cuskelly and Bryde (2004) Deci, Hodges, Pierson and
Tommasone (2001), Margalit and Schulman (2001), shessel and reif (1999), Gereber (1999)]
Discussion pre-study
• What is the difference between disability &
dependency?
• Does disability means dependence?
• Are autonomy & dependency Antonyms?
• Is autonomy positive & dependency negative?
Almost no publications regarding ADULTS with LD
11. Research Measures (based on)
1. Quality of life Questionnaire, (Cummins, 2005).
2. Autonomy, Dependence scale, (ACS -30)
(Bekker & Van - Assen, 2006)
3. Self Esteem Questionnaire, (Rosenberg, 1965)
4. Sociodemographic information
-pilot-
12. Research Measures
2. Autonomy, Dependence scale (ACS -30)
1. Quality of life Questionnaire
i.e. How satisfied are you from your life generally
How satisfied are you from thing you achieved in life
3. Self Esteem Questionnaire
i.e. I feel that I am worth less than others
I don't feel there is much I can be proud of
i.e. I can not stand that someone is angry at me
Very rarely I think about experiences or feelings of others
A. Autonomy in relationships
i.e. Many times I am not sure of what my opinions are
Usually when I am asked I know the answer
B. Autonomy in thinking/thought
C. Initiations
i.e. It is hard for me to plan new activities
I easily deal with problems
13. Data Collection
• Respondents recruited by the
researchers with disability :
• explaining the study
• Supporting respondents
• Collecting questionnaires
16. Significant findings Based on indept. Var
0
0.5
1
1.5
2
2.5
3
3.5
QOLSelf Esteem
Single
In a relationship
17. Correlations among the variable
independent
thinking
Initiative
Autonomy in
relationships
Self esteem
Quality of
life
.083.354**.292**.461**1Quality of life
.311**.320**.0741Self esteem
.211*.278**1Autonomy in
relationships
.501**1Initiative
1Independent
thinking
18. Conclusion
Relationship is an area where emphasis must take
place, its complexity, significance in self esteem and
quality of life , with relations to independence and
dependence, etc.
The correlation of independent thinking and
initiative, implication for early intervention
approach.
The correlation of self-esteem and QOL, and the fact
that those in relationships rate a higher self esteem.
19. Recommendations
Inclusive research is a MUST when conducting
research on lives of people, critical in
formulating the relevant questions and in
selecting the measures.
In the future a measure of efficacy and self-
efficacy should be included.
Notas do Editor
הסולם של עצמאות ביחסים הוא סולם מורכב. יש בו פריטים המתייחסים לקשר עם האחר וההשפעה של הקשר עם האחר עלי ויש פריטים המתייחסים לצורך באחר.
עבור אוכלוסייה זו פריטים של צורך באחר קיבלו ציונים גבוהים מאלה של ההשפעה של הקשר עם האחר עלי. כך לדוגמא הממוצע בפריט- לעיתים קרובות אני זקוק לחום ואהבה קיבל ציון ממוצע של 3.5 (סולם 1- לא מסכים כלל, 4= מסכים מאוד) והפריט לעיתים רחוקות אני חושב על חוויות ורגשות של אחרים שקיבל ציון ממוצע של 2.9 (4= מסכים מאוד
בהשוואה במדגם של אנשים ללא לקות למידה הפריט אני זקוק לחום ואהבה קיבל ממוצע של 2.8 בלבד ולעומתו לעיתים רחוקות אני חושב על חוויות ורגשות של אחרים קיבל ממוצע של .2.4
הצורך בהכנסת המשתנה מסוגלות עצמית נובע מהקשר האפשרי בין אוטונמיה בחשיבה וביוזמה ובין תחושת מסוגלות