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RDA/NISO Privacy Implications of Research
Data Sets IG – Task Groups
• Framework: Development of a framework that explains, at a high level, the precautions that
data creators, repositories, aggregators and scientists should use in creating, using, preserving, and
providing access to research data.
• Definitions and Use Cases: Definitions of key areas where privacy issues are evident in the
ecosystem of data sharing and reuse. An outline of situations where the privacy principles would be
applied.
• Legal Variances: Identification of key areas of variance in privacy laws or regulations at national
and international levels that are significant when sharing data worldwide.
• Disciplinary Differences: Identification of key differences among research disciplines that are
significant as it relates to data sharing and related privacy concerns.
• Metadata: Definition of a set of technical metadata that can be used to describe privacy-related
information contained within a data set, parameters for use, and description of where it should be
applied.
• Policy & practice: Development of policies, recommendations and guidance to support
responsible sharing of personal and sensitive data, as well as tools to help researchers put
these recommendations into practice.

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Tijerina-RDA-NISO-Task Groups-sept11

  • 1. RDA/NISO Privacy Implications of Research Data Sets IG – Task Groups • Framework: Development of a framework that explains, at a high level, the precautions that data creators, repositories, aggregators and scientists should use in creating, using, preserving, and providing access to research data. • Definitions and Use Cases: Definitions of key areas where privacy issues are evident in the ecosystem of data sharing and reuse. An outline of situations where the privacy principles would be applied. • Legal Variances: Identification of key areas of variance in privacy laws or regulations at national and international levels that are significant when sharing data worldwide. • Disciplinary Differences: Identification of key differences among research disciplines that are significant as it relates to data sharing and related privacy concerns. • Metadata: Definition of a set of technical metadata that can be used to describe privacy-related information contained within a data set, parameters for use, and description of where it should be applied. • Policy & practice: Development of policies, recommendations and guidance to support responsible sharing of personal and sensitive data, as well as tools to help researchers put these recommendations into practice.