This slide shows the set of task groups established under the aegis of the RDA/NISO Privacy Implications of Research Data Sets Interest Group; it was used during the NISO Symposium held on September 11, 2016 in conjunction with International Data Week events in Denver, Colorado.
1. RDA/NISO Privacy Implications of Research
Data Sets IG – Task Groups
• Framework: Development of a framework that explains, at a high level, the precautions that
data creators, repositories, aggregators and scientists should use in creating, using, preserving, and
providing access to research data.
• Definitions and Use Cases: Definitions of key areas where privacy issues are evident in the
ecosystem of data sharing and reuse. An outline of situations where the privacy principles would be
applied.
• Legal Variances: Identification of key areas of variance in privacy laws or regulations at national
and international levels that are significant when sharing data worldwide.
• Disciplinary Differences: Identification of key differences among research disciplines that are
significant as it relates to data sharing and related privacy concerns.
• Metadata: Definition of a set of technical metadata that can be used to describe privacy-related
information contained within a data set, parameters for use, and description of where it should be
applied.
• Policy & practice: Development of policies, recommendations and guidance to support
responsible sharing of personal and sensitive data, as well as tools to help researchers put
these recommendations into practice.