Weighing in on Social Media for Diabetes Educators
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Weighing in on Social Media Hands-On Social Media Workshop ADEU -- Association of Diabetes Educators of Utah Update Pre-Conference Workshop November 4, 2009 Presented by Nancy Lombardo, MLS; Todd Vandenbark, MLS/TM; Ginny Burns, CDE, RN, MEd; Grant Sunada, MPH
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Weighing in on Social Media for Diabetes Educators
- 1. ADEU Update Pre-Conference Workshop November 4, 2009 Presented by Nancy Lombardo, MLS; Todd Vandenbark, MLS/TM; Ginny Burns, CDE, RN, MEd; Grant Sunada, MPH Weighing in on Social Media Hands-On Social Media Workshop
- 7. Our society is changing … so is the World Wide Web
- 13. Two Sides of Web 2.0 With social media, people communicate with each other. With web services, machines communicate by sharing data.
- 14. What is Social Software?
- 20. “ Get health info” http://www.slideshare.net/PewInternet/generations-online-in-2009-charts
- 27. Listening Creating Connecting BLOG Fooducate : 3 steps to embrace social media for RDs #FNCE2009 http://yfrog.com/0r42459875j 12:44 PM Oct 19th http://twitter.com/fooducate/statuses/4998762906
- 29. Forward to Local Expert* Local Diabetes Questions Local Answers ???? * “Local Expert” not necessarily a diabetes expert
- 31. Forward to Local Diabetes Expert Record for Public Reference Local Answers Local Diabetes Questions
- 47. Listening Creating Connecting BLOG Fooducate : 3 steps to embrace social media for RDs #FNCE2009 http://yfrog.com/0r42459875j 12:44 PM Oct 19th http://twitter.com/fooducate/statuses/4998762906
- 50. The “Old Way” – Web sites
- 51. The “New Way” – RSS feeds
- 54. PubMed and RSS PubMed: http://pubmed.gov/
- 57. RSS Demo and Exercise
- 58. Listening Creating Connecting BLOG Fooducate : 3 steps to embrace social media for RDs #FNCE2009 http://yfrog.com/0r42459875j 12:44 PM Oct 19th http://twitter.com/fooducate/statuses/4998762906
- 63. Utah Diabetes - http://twitter.com/UtahDiabetes
- 64. Ask Ginny - http://twitter.com/askginny
- 65. American Diabetes Association - http://www.diabetes.org/
- 70. Facebook
- 75. Exercises
- 76. Exercises
- 77. Exercises
- 78. Exercises
- 79. Listening Creating Connecting BLOG Fooducate : 3 steps to embrace social media for RDs #FNCE2009 http://yfrog.com/0r42459875j 12:44 PM Oct 19th http://twitter.com/fooducate/statuses/4998762906
- 80. Create - Blogs
- 81. In theory, blogs take the complexity out of creating content, or publishing, on the web
- 82. Most blogs have a comments area to facilitate feedback and conversation
- 83. Blogs are (usually) organized in reverse chronological order
- 84. Blogging started out as first-person, informal communication
- 85. Blogging has evolved to include professional, political, and editorial communication/publication
- 87. Blogs for Diabetes Information
- 92. Blog Exercise
- 95. We shall see! Thank you!
Notas do Editor
- Another change is happening concurrently. As health economist Jane Sarasohn-Kahn writes, health-related social technologies capture “the exchange of health information and personal stories in a way that transcends both medical textbooks and chatting with a friend on the phone – yet offers some of the benefits of both.”
- Certain demographic groups are more likely than others to look online for information about a specific disease or medical problem. These differences have also changed very little over the past six years.
- It turns out that e-patients’ enthusiasm for social media is not limited to activities related to health. Internet users who have looked online for health information are more likely than non-health seekers to have created or worked on their own blog, read someone else’s blog, used a social network site, used Twitter or another status update service, and to have consulted Wikipedia. Even when controlling for age, education, and other variables, being an e-patient emerges as a significant predictor for other social media engagement. http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information/03-Social-Media-and-Health/3-Epatients-are-more-likely-than-other-internet-users-to-engage-in-social-media.aspx?r=1
- [In addition] When asked, "Now thinking about all the sources you turn to when you need information or assistance in dealing with health or medical issues, please tell me if you use any of the following sources..." 86% of all adults ask a health professional, such as a doctor. 68% of all adults ask a friend or family member. 57% of all adults use the internet. 54% use books or other printed reference material. 33% contact their insurance provider. 5% use another source not mentioned in the list. “ Social Life of Health Information”, Susana Fox, Pew Internet
- About two-thirds of e-patients ages 18-49 have done at least one of the activities listed, compared with one-half of e-patients age 50 and older. http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information/03-Social-Media-and-Health/ There are signs that change is coming: First, mobile access is on the rise. Those with mobile access to the internet are more likely than those who have tethered access to contribute their comments and reviews to the online conversation about health and health care. Second, adults between the ages of 18 to 49 are more likely than older adults to participate in social technologies related to health. As younger adults face more health care questions and challenges, they may turn to the tools they have sharpened in other contexts of their lives to gather and share health advice. But in the end, experts remain vital to the health-search and decision-making process. This practice “will not budge” and therefore require designers of any new health care application “to look not ahead, but to look around” in order to see the way forward (John Seely Brown and Paul Duguid, The Social Life of Information. Harvard Business School Press: 2000). http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information/06-Trends-to-Watch/1-Mobile-access-and-generational-shifts-will-each-have-an-effect-on-social-media-and-health-care.aspx?r=1
- Add – On July 16, the National Institutes of Health and the Wikimedia Foundation, the nonprofit organization that operates the Wikipedia® online encyclopedia, joined forces to make health and science information more accessible and reliable. This collaboration was the first of its kind for both organizations. http://www.nih.gov/news/health/jul2009/od-14.htm
- Frustrated – Was our Web site really addressing people’s questions? People call in with questions, but we are not doing patient care. Our hands were tied, but we could refer them. Then what though? How do we know what happened to them. There were national, online, diabetes communities, but nothing local.
- We never dreamed that it would be this big. Ginny knew the system and the educators – who else could help these people navigate the system? Bolster existing networks.
- Used Web 1.0 technology (e-mail and html) to do Web 2.0 activities.
- 1 st of 3 examples – Ask Ginny helps identify and address community needs, market and improve local resources, and share information and personal stories
- Spike during KUTV Ask the Expert Time on page
- Utah cities and towns are highlighted, many of which are distant and rural communities.
- CDE becomes moderator Twitter – Microblogging, 140 characters On Twitter: # designates a keyword (or hashtag such as #diabetes) and @ directs the message to someone (such as @AskGinny) Links are usually shortened urls, so you should specify the source of the link: http://www.rikomatic.com/blog/2009/06/twitter-as-an-event-organization-tool-our-experience-with-the-frankie-95-birthday-festival.html Becomes http://bit.ly/3X0jG
- Try http://www.blogspot.com, http://www.wordpress.com, Linking to Twitter and using Google Analytics are all just options. Only put on your plate as much as you can handle.
- Ning – Personalize-able Facebook where CDE becomes the moderator Discussions are already happening among CDEs on AADEs Facebook page 10,000~ people “touched by diabetes” are on TuDiabetes.com (which is Ning-based)
- Created a series of interconnected web sites and applications that are easier to publish to, follow, link to, search for, share, and comment on.
- Ning – Personalize-able Facebook Moderator – Twitter – Microblogging, 140 characters
- http://www.ncbi.nlm.nih.gov/sites/entrez/ Search: osteoarthritis african american women
- http://twitter.com/PublicHealth
- http://twitter.com/NPHW
- In theory, you should be able to configure your blog once, and never again have to think about the software. With the most basic blogging software, such as Blogger.com, this is definitely the case. It takes 15 to 30 minutes to set up a blogger account and create your first blog. After that, you more or less just type in your latest blog entry and click “Publish”. The more serious you become about blogging, the more complex the software becomes and the more likely it is that you’ll need to get your hands dirty tweaking html, css, php and other types of code. WordPress and Movable Type are examples of complex but powerful blogging programs.
- Most blogs have a comments area to facilitate feedback and conversation, though some sites have had to moderate or disable comments due to the prevalence of spam. Comments let browsers respond to the initial blog post, but also lets them respond to other comments, so you can have a conversation with dozens or hundreds of participants. Most blogs also have permalinks and RSS feeds. The homepage of a blog has multiple posts and changes constantly, while a permalink sends folks to static, unchanging copy of a single post. We’ll discuss RSS feeds a bit later.
- The newest entries appear at the top of the home page, and older entries move down the page, eventually disappearing from the home page altogether. All posts are automatically archived by date so that visitors can still access older posts. Links to the archived posts can usually be found on the left or right-hand side of the home page.
- The characteristics of good blog writing are similar to the characteristics of good web writing in general. Keep paragraphs short and make frequent use of bulleted or numbered lists. Make the title of each post as descriptive as possible. Draw people into your blog by discussing your own feelings and experiences. Popular blogs reveal the individual voice and personality of the author.
- Show the following examples: http://nnlm.gov/scr/blog/?p=176 (South Central Region post-Katrina) http://nnlm.gov/gmr/blog/2008/06/17/regional-flooding-storm-reports/ (GMR post-midwest flooding)
- http://www.medworm.com/ Grunt Doc: http://gruntdoc.com/ Health, Science & Libraries, http://mblog.lib.umich.edu/hsldir/ JMLA Case Studies in Health Sciences Librarianship, http://jmlacasestudies.blogspot.com/ On the Wards, http://onthewards.com/ Running a Hospital, http://runningahospital.blogspot.com/ Life as a Healthcare CIO, http://geekdoctor.blogspot.com/ More where this came from: http://del.icio.us/gmrtechcood/astho2008
- There is an About link – Good sign, not much information Google the authors or editors – Matthew Holt http://www.matthewholt.net/ Follow the Background page – For my resume click here – 1991 - 1993 M.S. in Health Services Research , Stanford University 1989 - 1990 M.A. in Political Science, Stanford University 1982 - 1985 B.A. (Honours), Social and Political Science, Cambridge University, England Experience is relevant. John Irvine – Can’t pin down his background or education – Beware!