Creating Health Information Connections for Persons With Disabilities

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University of Michigan Taubman Health Sciences Library

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Creating Health Information Connections for Persons with Disabilities Marisa Conte, MLIS; Anna Ercoli Schnitzer, AMLS, Deborah Lauseng, AMLS, Patricia Martin, AMLS University of Michigan Health Sciences Libraries - www.lib.umich.edu/hsl Carolyn Grawi, MSW, LMSW, ACSW Ann Arbor Center for Independent Living - www.aacil.org ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],This project has been funded in whole or in part with Federal funds from the National Library of Medicine, National Institutes of Health, Department of Health and Human Services, under Contract No. N01-LM-6-3503 with the University of Illinois at Chicago . ,[object Object],[object Object],[object Object],[object Object],SUMMARY Creating Health Information Connections for Persons with Disabilities is a collaborative project between the University of Michigan Health Sciences Libraries and the Ann Arbor Center for Independent Living (AACIL). The project consists of three components: staff sensitivity training, a health-information needs assessment, and customized instructional sessions. The primary goal of the project is to improve access to reliable health information for the local population of individuals with disabilities. BACKGROUND Target Population – People with disabilities living in the Ann Arbor area. Demographic Information* for Ann Arbor, Michigan Total Population (2005): 98,743 estimated Percentage of people aged 5 to 20 years old with disabilities: 3% Percentage of people aged 21 to 64 years of age with disabilities: 7% Percentage of people aged 65 years and older with disabilities: 36% Carolyn Grawi, AACIL Director of Advocacy and Education, identifies 3,500 active constituents of the AACIL, and an identified population of 17,000 individuals with disabilities. *Source: US Census Bureau. American FactFinder, 2005 Data Profiles from the American Community Survey for Ann Arbor (city), Michigan. ,[object Object],[object Object],[object Object],[object Object],[object Object],“ The one thing that I would be the most interested in learning is how to go out and search. And part of the way of understanding how to go out and search is what words to pick.” “ Whether it’s health or anything else, if it gets to the point where it’s frustrating and I can’t do it and it’s wasting my time and I can’t find any other way to do it I just leave the site. It’s not worth it. I’m not getting anywhere.”* * All quotes from focus group participants “ There’s an assumption that the person has transportation, can get out of their house, and that they have money to pay … and that they’ve got the bus service and that they can get there. Some of the people … have a limited amount of energy because of their disability and … well geez, do they use all of their energy and effort to get to the library and get information or are they maybe going to stay at home and try to pay bills or do something else?”* “ It’s often assumed that the patient has that, that they’ve got a computer, they’ve got Internet. And they don’t, you know, especially people who are living on Social Security, disability or something, you know, that’s expensive, to have a computer. And to pay Internet monthly – they don’t have it.” * All quotes from focus group participants ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

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