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The Voice of the Patient
Delivering healthcare insights from
social media
The Voice of the Patient

1. The potential for social media as a
   patient research resource

2. Some industry initiatives


3. Trufflenet Health case studies
What Social Media is good for


Listening                       Talking                      Supporting Energising Embracing




                                                                                                                                    Develop-
Research Marketing                                                Support                              Sales
                                                                                                                                     ment


  Source: Li, Charlene and Bernoff, Josh. Groundswell: Winning in a World Transformed by Social Technologies, Copyright 2008 Forrester Research, Inc.
Some basic questions

             Do healthcare
       professionals and patients
             talk online …?




Can those comments      Will that analysis
and conversations be    deliver actionable
found and analysed?          insights?
Answers from Latin America
Growth in conversations about a specific
disease on social media
Why listen to Social Media?

        Understand            Find
        audiences         influencers




Understand      Patient           Crisis
 markets        Journey         monitoring



        Evaluate           Reputation
       campaigns          management
When to listen to Social Media
           Ph I   Ph II   Ph III    Pre-        Ph IV
Pre-Clin                           Launch

YEAR                                  10                     22


                  R&D               Launch              Patent Expiry

 Understanding
 the market                                Protecting
                                           the brand
                     Shaping
                  the product
Industry
Initiatives
Who is doing what?
healthmap.org mines news websites, government
alerts, eyewitness accounts, for illness outbreaks
reported around the world




                                                 9
Who is doing what?
                                    MappyHealth
Condition: Pertussis




Social Noise Zone
WHO IS DOING WHAT




                    11
Who is doing what?

National Science Foundation
Case
Studies
Case Study 1: Patient Journey
                          Understand
Horses for Courses         markets

                               Find
                           influencers
Engage & Influence
                            Evaluate
                           campaigns
Market Comparison &
                            Patient
                            Journey
Evolution
Case Study 1: Patient Journey
online discussions during the lifecycle of
the disease
                                            Treatment
                     Diagnosis                                                   Side
                                                                                Effects




                                                Facebook
                                                Healthcare forums /
     Symptoms                                                                                   Quality of
                                                                                                  Life



                                             Social
  Prevention                                 media:                             Healthcare forums /   Unmet
   and Risk     Twitter / Facebook
                                             patient                            Twitter               Needs
    Factors
                                            journey

         Sentiment Key:     Very negative     Negative                Neutral            Positive      Very positive
Case Study 1: Patient Journey
Monitoring volume of patient, social media
conversations, pre and post awareness
campaign
                   Volume of other campaign conversations
  20
  18
  16
  14
  12
  10
   8
   6
   4
   2
   0




                                                      N = 105
Case Study 2: Neurology
                          Understand
Key Channels/Sites         markets

                              Find
Patients, Care Givers &   influencers
HCPs                      Understand
                          audiences
Treatments

Sentiment

Unmet Needs
Case Study 2: Neurology
Top Risk Factors    Manganese steel

                    Age Elderley and middle age onset

                    Tea and Coffee

                    Hereditary / Genetic susceptibility

                    Insomnia

                    Carbonated beverages

                    Natural pesticides

n=392               Managing diet
Case Study 2: Neurology
   Preventative      Diet - apples and blueberries

    Measures
                     Omega-3 fatty acids


                     Red wine in moderation


                     Avoiding garlic and curries


                     Drinking coffee


                     Regular neurological check ups


n=129                Meditation / Tai Chi
Case Study 3: Dermatology
                                     Understand
Key Opinion Leaders                   markets

                                         Find
                                     influencers
Unmet Needs
                                     Understand
                                     audiences
Market Comparison

            Everything hurts.
        #HidradenitisSuppurativa I
                hate you.
Case Study 3: Dermatology
                Conversation by Country
Other countries 24.0%


   Netherlands 0.70%


      Australia 0.80%


         Canada 1.30%


United Kingdom 3.80%


 United States 69.40%

                        0.00%   10.00%   20.00%   30.00%   40.00%   50.00%   60.00%   70.00%   80.00%
n=1000
Case Study 3: Dermatology
    Conversation by        Twitter 28.30%
       Platform
                           Forums 24.20%

                           Blogs 16.10%

                           General 17.20%

                           YouTube 9.30%

                           Facebook 3.40%

                           Flickr 1.00%

n=1000                     News 0.50%
CONTACT DETAILS
Kevin Savage                                      Janet Gunner
@K9Savage                                          Trufflenet Health
Kevin.savage@trufflenet.com
                                                   12 Suffolk Street
                                                            London
                                                         SW1Y 4HG
                                           T: +44 (0) 20 7812 6565
                                             E: info@trufflenet.com
                              E: janet.gunner@trufflenethealth.com
                                          www.trufflenet.com/health

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Trufflenet health presentation to social media in pharma conference - jan13

  • 1. The Voice of the Patient Delivering healthcare insights from social media
  • 2. The Voice of the Patient 1. The potential for social media as a patient research resource 2. Some industry initiatives 3. Trufflenet Health case studies
  • 3. What Social Media is good for Listening Talking Supporting Energising Embracing Develop- Research Marketing Support Sales ment Source: Li, Charlene and Bernoff, Josh. Groundswell: Winning in a World Transformed by Social Technologies, Copyright 2008 Forrester Research, Inc.
  • 4. Some basic questions Do healthcare professionals and patients talk online …? Can those comments Will that analysis and conversations be deliver actionable found and analysed? insights?
  • 5. Answers from Latin America Growth in conversations about a specific disease on social media
  • 6. Why listen to Social Media? Understand Find audiences influencers Understand Patient Crisis markets Journey monitoring Evaluate Reputation campaigns management
  • 7. When to listen to Social Media Ph I Ph II Ph III Pre- Ph IV Pre-Clin Launch YEAR 10 22 R&D Launch Patent Expiry Understanding the market Protecting the brand Shaping the product
  • 9. Who is doing what? healthmap.org mines news websites, government alerts, eyewitness accounts, for illness outbreaks reported around the world 9
  • 10. Who is doing what? MappyHealth Condition: Pertussis Social Noise Zone
  • 11. WHO IS DOING WHAT 11
  • 12. Who is doing what? National Science Foundation
  • 14. Case Study 1: Patient Journey Understand Horses for Courses markets Find influencers Engage & Influence Evaluate campaigns Market Comparison & Patient Journey Evolution
  • 15. Case Study 1: Patient Journey online discussions during the lifecycle of the disease Treatment Diagnosis Side Effects Facebook Healthcare forums / Symptoms Quality of Life Social Prevention media: Healthcare forums / Unmet and Risk Twitter / Facebook patient Twitter Needs Factors journey Sentiment Key: Very negative Negative Neutral Positive Very positive
  • 16. Case Study 1: Patient Journey Monitoring volume of patient, social media conversations, pre and post awareness campaign Volume of other campaign conversations 20 18 16 14 12 10 8 6 4 2 0 N = 105
  • 17. Case Study 2: Neurology Understand Key Channels/Sites markets Find Patients, Care Givers & influencers HCPs Understand audiences Treatments Sentiment Unmet Needs
  • 18. Case Study 2: Neurology Top Risk Factors Manganese steel Age Elderley and middle age onset Tea and Coffee Hereditary / Genetic susceptibility Insomnia Carbonated beverages Natural pesticides n=392 Managing diet
  • 19. Case Study 2: Neurology Preventative Diet - apples and blueberries Measures Omega-3 fatty acids Red wine in moderation Avoiding garlic and curries Drinking coffee Regular neurological check ups n=129 Meditation / Tai Chi
  • 20. Case Study 3: Dermatology Understand Key Opinion Leaders markets Find influencers Unmet Needs Understand audiences Market Comparison Everything hurts. #HidradenitisSuppurativa I hate you.
  • 21. Case Study 3: Dermatology Conversation by Country Other countries 24.0% Netherlands 0.70% Australia 0.80% Canada 1.30% United Kingdom 3.80% United States 69.40% 0.00% 10.00% 20.00% 30.00% 40.00% 50.00% 60.00% 70.00% 80.00% n=1000
  • 22. Case Study 3: Dermatology Conversation by Twitter 28.30% Platform Forums 24.20% Blogs 16.10% General 17.20% YouTube 9.30% Facebook 3.40% Flickr 1.00% n=1000 News 0.50%
  • 23. CONTACT DETAILS Kevin Savage Janet Gunner @K9Savage Trufflenet Health Kevin.savage@trufflenet.com 12 Suffolk Street London SW1Y 4HG T: +44 (0) 20 7812 6565 E: info@trufflenet.com E: janet.gunner@trufflenethealth.com www.trufflenet.com/health