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building better healthcare 
for low-income Californians: 
results on shared decision making 
blueshieldcafoundation.org 
blueshieldcafoundation.org 
Institute of Medicine 
Dec. 6, 2013 
Presenter: 
Gary Langer 
Langer Research Associates 
langerresearch.com 
@LangerResearch
blueshieldcafoundation.org 
a model of patient engagement 
feel informed about your health 
comfortable asking 
provider questions 
provider usually explains things in 
a way you understand 
confident you can make healthcare 
decisions 
page 2 
connectedness 
continuity 
engagement 
empowerment:
blueshieldcafoundation.org 
information is essential 
page 3
desire for clear, accessible information 
have all you need would like more 
page 4 blueshieldcafoundation.org 
44% 
28% 
55% 
71% 
overall if information were clear and 
easily accessible
healthcare decision making 
% who want an equal say in care decisions 
% who prefer to leave decisions to their care provider 
page 5 blueshieldcafoundation.org 
59% 
81% 
39% 
17% 
initially if clear information about 
treatment options is provided
preference for an equal say 
information attenuates group differences 
initially when clear info is provided 
page 6 blueshieldcafoundation.org 
47% 
72% 75% 
49% 
43% 
72% 
76% 
83% 
90% 
77% 
72% 
90% 
<HS college whites latinos non-english english
patient-provider relationships 
• while information is a necessary component of shared decision 
making, communication between patients and providers is critical 
• virtually every key outcome is predicted by the quality of patient-provider 
relationships: satisfaction with care, trust in medical 
professionals, confidence, empowerment and engagement 
• top predictors of positive patient-provider relationships: 
• feeling informed about one’s health 
• having care providers who encourage an active role 
• having as much of a say in health decisions as desired 
• connectedness 
• using alternative care strategies and tools 
blueshieldcafoundation.org 
page 7
features of patient-provider relationships 
weak strong 
blueshieldcafoundation.org 
30% 
35% 
47% 
54% 
62% 
73% 
have all the info you 
need to make 
informed decisions 
have desired amount 
of say 
very confident in 
decision-making ability 
page 8 
patient-provider relationship:
forthcoming: addressing the income gap 
feel you have a great deal of say in decisions about 
your care: 
low-income Californians: 37% 
higher income Californians: 50% 
however: the gap among income groups in patients’ 
perceptions of the amount of say they have in their 
care is highly attenuated by positive patient-provider 
relationships 
blueshieldcafoundation.org 
page 9
forthcoming: major decision making 
among low-income Californians who’ve made a major 
medical decision in the past year, 75% say they wanted to be 
“very involved” in the decision 
• 57% percent say they were 
of 9 basic decision-support activities tested, low-income 
Californians who’ve made a major medical decision say their 
caregivers initiated an average of 4.9 
these supports powerfully impact engagement & satisfaction 
decision supports: <5 5+ 
very involved in the decision 38% 75% 
very satisfied with the process 41% 76% 
blueshieldcafoundation.org 
page 10
blueshieldcafoundation.org 
conclusions 
• expressed desire for concierge care signifies patients’ deeper 
need for connectedness and continuity 
• these plus information and communication are key components 
of patient empowerment and engagement 
• positive patient-provider relationships are the mechanism through 
which the critical outcomes of patient centeredness are achieved 
• strong patient-provider relationships can be achieved outside the 
traditional model, via: 
• alternative approaches such as team-based care and healthcare 
navigators 
• use of health information and communication technology – patient 
portals, internet resources, e-mail and text communications 
• accessible, understandable information and communication from 
trusted sources 
• encouragement of patient engagement and self-efficacy 
page 11
blueshieldcafoundation.org 
blueshieldcafoundation.org 
Institute of Medicine 
Dec. 6, 2013 
Thank you! 
Presenter: 
Gary Langer 
Langer Research Associates 
langerresearch.com 
@LangerResearch

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Building Better Healthcare for Low-income Californians: Results on Shared Decision Making

  • 1. building better healthcare for low-income Californians: results on shared decision making blueshieldcafoundation.org blueshieldcafoundation.org Institute of Medicine Dec. 6, 2013 Presenter: Gary Langer Langer Research Associates langerresearch.com @LangerResearch
  • 2. blueshieldcafoundation.org a model of patient engagement feel informed about your health comfortable asking provider questions provider usually explains things in a way you understand confident you can make healthcare decisions page 2 connectedness continuity engagement empowerment:
  • 4. desire for clear, accessible information have all you need would like more page 4 blueshieldcafoundation.org 44% 28% 55% 71% overall if information were clear and easily accessible
  • 5. healthcare decision making % who want an equal say in care decisions % who prefer to leave decisions to their care provider page 5 blueshieldcafoundation.org 59% 81% 39% 17% initially if clear information about treatment options is provided
  • 6. preference for an equal say information attenuates group differences initially when clear info is provided page 6 blueshieldcafoundation.org 47% 72% 75% 49% 43% 72% 76% 83% 90% 77% 72% 90% <HS college whites latinos non-english english
  • 7. patient-provider relationships • while information is a necessary component of shared decision making, communication between patients and providers is critical • virtually every key outcome is predicted by the quality of patient-provider relationships: satisfaction with care, trust in medical professionals, confidence, empowerment and engagement • top predictors of positive patient-provider relationships: • feeling informed about one’s health • having care providers who encourage an active role • having as much of a say in health decisions as desired • connectedness • using alternative care strategies and tools blueshieldcafoundation.org page 7
  • 8. features of patient-provider relationships weak strong blueshieldcafoundation.org 30% 35% 47% 54% 62% 73% have all the info you need to make informed decisions have desired amount of say very confident in decision-making ability page 8 patient-provider relationship:
  • 9. forthcoming: addressing the income gap feel you have a great deal of say in decisions about your care: low-income Californians: 37% higher income Californians: 50% however: the gap among income groups in patients’ perceptions of the amount of say they have in their care is highly attenuated by positive patient-provider relationships blueshieldcafoundation.org page 9
  • 10. forthcoming: major decision making among low-income Californians who’ve made a major medical decision in the past year, 75% say they wanted to be “very involved” in the decision • 57% percent say they were of 9 basic decision-support activities tested, low-income Californians who’ve made a major medical decision say their caregivers initiated an average of 4.9 these supports powerfully impact engagement & satisfaction decision supports: <5 5+ very involved in the decision 38% 75% very satisfied with the process 41% 76% blueshieldcafoundation.org page 10
  • 11. blueshieldcafoundation.org conclusions • expressed desire for concierge care signifies patients’ deeper need for connectedness and continuity • these plus information and communication are key components of patient empowerment and engagement • positive patient-provider relationships are the mechanism through which the critical outcomes of patient centeredness are achieved • strong patient-provider relationships can be achieved outside the traditional model, via: • alternative approaches such as team-based care and healthcare navigators • use of health information and communication technology – patient portals, internet resources, e-mail and text communications • accessible, understandable information and communication from trusted sources • encouragement of patient engagement and self-efficacy page 11
  • 12. blueshieldcafoundation.org blueshieldcafoundation.org Institute of Medicine Dec. 6, 2013 Thank you! Presenter: Gary Langer Langer Research Associates langerresearch.com @LangerResearch