1. living
by what we get !
we make a life !
by what we give
We make a
Winston Churchill

2. 1. Citizenship should be our goal
2. Work is essential to citizenship
3. Employment is an important form of work
4. Self-directed support is for citizenship
5. It offers new options to enable work
6. But, we’re living in crazy times
7. We must hold our nerve and work together

3. 1. The goal is citizenship
•
How should we live together, given all our
many differences?
•
How do we avoid the stigma and prejudice
that threatens the lives of so many?
•
What kind of help should we offer one
another?

4. Aristotle explains that a
community is not made out of
equals, but on the contrary
of people who are different
and unequal. The community
comes into being through
equalising,'isathenai.' !
[Nich. Ethics 1133 a 14]
Hannah Arendt

5. •
The name for a community of equals - people who
accept and welcome their differences - is a
community of citizens.
•
A citizen is someone who is different and equal uniquely themselves, and also one of us - treated
with respect ‘as an equal’.
•
It’s got nothing to do with passport-citizenship - it’s
how we stop people from becoming outcasts.

6. •
For people with disabilities our dark inheritance is
not citizenship nor community inclusion.
•
Our inheritance is eugenics, Nazi mass murder,
sterilisation, institutions, segregated services,
stigma and shame.
•
We are not standing on the shoulders of giants.

7. Sir Francis Galton: Eugenics = race improvement
A cousin of Darwin, Galton was treated as one of the
great minds of his time.

10. Not only did most of the men and women involved
in committing the euthanasia murders escape
justice, but the atrocities committed against
disabled people in Germany, Austria, Poland, the
former Soviet Union, and other regions during
the Nazi era have gone largely unrecognised and
uncompensated. Because of the neglect by
historians, as well as the political
powerlessness and economic deprivation of people
with disabilities, no memorial centre or museum
specifically for survivors with disabilities
exists anywhere in the world today.
Suzanne Evans

11. We only have
only just begun
to learn how to
undo the
damage done
by decades of
harmful
scapegoating.
We need a sense
of humility and
the ability to work
together and
learn from each
other if we are
going to build a
better world.

13. This shows spending in one part of
England after the institutions were closed:

15. •
The journey away from the institution has been long
and closing down long-stay hospitals was only a
beginning.
•
We have had to develop a range of different
innovations and theories in order to help guide us
away from our dark past.
•
We have still got a long way to go.

18. Citizenship is very
practical. We can
use the idea of
citizenship to think
about how to help
someone.

20. If we are not
supporting
people to be
citizens what
are we actually
trying to do?
–Johnny Appleseed

21. 2. Work is essential to citizenship
•
Work of love - bringing up our children
•
Work of community - building a better world
•
Work of service - helping others for free
•
Work of employment - helping others for reward
We must respect all work

22. Work builds citizenship
1. We can express our gifts we can grow as a person
2. We can exercise some
control
3. We can earn some money
4. We can strengthen our
home life
5. We can offer others the
chance to help
6. We can make a difference
- get stuck in
7. We can find new friends

23. There are eight degrees of charity, one
higher than the other. The highest degree,
exceeded by none, is that of the person who
assists a poor Jew by providing him with a
gift or loan or by accepting him into a
business partnership or by helping him find
employment - in a word, by putting him
where he can dispense with other people's
aid. With reference to such aid, it is
said, “You shall strengthen him, be he a
stranger or a settler, he shall live with
you” [Lev. 25:35], which means strengthen
him in such manner that his falling into
want is prevented.
Maimonides

24. 3. Employment is part of work
•
Employment is the when we work for another
person or for an organisation
•
But there’s also self-employment
•
Social enterprise!
•
Micro-employment and other options
•
Can offer an important degree of economic
independence

25. Employment is good especially when:
1. It fits who we are
2. It allows some freedom
3. It provides a good income
4. It fits with our home life
5. It is supportive
6. If it is fruitful and adds real value
7. It helps us form friendships
Obviously quality employment matters.

26. The lame rides a horse!
the maimed drives the herd!
the deaf is brave in battle.!
A man is better!
blind than buried.!
A dead man is deft at nothing.
Havamal (The Sayings of the Vikings)

27. 4. Self-directed support was
developed to enable citizenship
•
There are many different systems
•
The quality of implementation varies enormously
•
We know something about what better systems
•
Scotland is exploring these options today

28. Spending people’s money, on things
!
!
!
!
!
!
!
!
!
people wouldn’t buy for themselves

30. it is developing around the world
but it is still early days

31. Quality always goes up
Costs can go up, down or stay
the same
Demand increases
Citizenship can increase a lot

34. It is not about increasing
choice
It is not about markets and
consumerism
It is about life, community and
citizenship

35. 1. Rights - Is my budget really mine - an entitlement?
2. Control - Is control as close to me as possible?
3. Clarity - Is it clear what I have?
4. Flexible - Can I use my budget as I think best?
5. Ease of use - Can I limit the bureaucracy?
6. Pro-community - Are we strengthening community?
7. Sustainable - Is the system affordable & innovative?

36. moving from a gift to an entitlement

37. It can’t always be the government’s money
!
!
!
!
!
!
!
!
!
!
The government have to get it from us.

39. finding the right point of control

40. Individual Service Fund (ISF)

41. Knowing upfront

43. real wealth

45. flexibility is the key to value

46. making it easy to use
INFO
Give useful information
Connect to another individual or family
£
Refer to community organisations
Recommend appropriate providers

47. dynamic implementation

48. 5. New opportunities emerge
• No
longer just about supported employment competing
with day services
• People
can be employers, employees, micro-businesses,
social entrepreneurs, family businesses
• People
can start from their networks, family, friends, peers,
e.g. PFG
• Employers
can engage directly, e.g. Project Search
• Schools
can get real about employment, e.g. Personalised
Transition
• Local
communities can take back control from the system

52. Wards
Average Population
40
%
1,700
Over 65
376
22.1%
15 and under
308
18.1%
People seriously misusing drugs or alcohol
14
0.8%
People with limiting long-term illness
383
22.5%
7
0.4%
1,365
80.3%
People in poor health
181
10.6%
Deaths in a year
20
1.2%
Crimes
88
5.2%
‘Looked After Children’
2
0.1%
People entitled to social care
78
4.6%
Working age people on benefits
177
10.4%
Children SEN statements
People in homes in private ownership (incl. rental)

53. moving resources into community

54. 6. Policy madness
•
Wicked and unjust cuts
•
Crazy systems that don’t work
•
Intentional scapegoating

57. •
A Work Programme - that doesn’t get people work
•
Employment and Support Allowance for people who are not in
employment
•
Job Seekers Allowance for the poorest
•
Universal Credit system which they don’t have the computers for
•
Atos instead of disabled people and family doctors
•
Work Related Activities Group (?) split from the Support Group (?)
•
Workfare - forced labour - which is bad for the labour market
•
Negative incentives - conditionality and punishment - sanctions for the
poorest in society
•
UK is the 3rd most unequal developed society
•
UK is the 2nd most centralised welfare state (after new Zealand)

61. 7. Going forward
•
Time to think differently
•
Time to challenge incoherent policies
•
Time to act
•
Time to collaborate

62. This is in turn
leading to new
more radical
and political
expressions of
the need for
change.

64. 1. Close down the DWP - Integrate tax and benefits
2. End Newspeak - The nonsense of ‘Job Seekers Allowances’ or
‘Employment and Support Allowances’ etc.
3. Focus on Basic Income - In the long-run it is the basic income
level that is the most important foundation of any decent system.
4. Justifiable Supplements - There may be an argument for
supplementing a basic income if people are always likely to be
disadvantaged by disability.
5. Welcome innovation - We already know a lot about what really
helps, not the Work Programme but…
6. Support the Local - We keep asking central government to solve
problems that can only be tackled at the local level.

65. 1.Are you thinking of citizenship as the goal?
2.Does your support encourage work?
3.Can people find employment?
4.Are you offering self-directed support?
5.Have you explored all your options?
6.Are you awake to the crazy times?
7.What are you going to do?

66. One's sense of honour is the
only thing that does not grow
old, and the last pleasure,
when one is worn out by age, is
not, as the poet said, making
money, but having the respect
of one's fellow men.
Pericles

67. For more information:
Web: www.centreforwelfarereform.org
!
Twitter: @CforWR and @simonjduffy
!
Blog: www.simonduffy.info
!
Facebook: centreforwelfarereform
!
Campaign: www.campaignforafairsociety.org
!
Petition: WOWpetition.com
Presentation by Dr Simon Duffy for Values Into Action Scotland and In
Control Scotland on 4th November 2013 in Glasgow.
© Simon Duffy. Rights Reserved. Full copyright details at www.centreforwelfarereform.org