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How to live a life with a cancer diagnosis

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How to live a life with a cancer diagnosis

  1. 1. Cancer Crusaders Club 35th Annual Christmas Get-together December 4, 2022 ROJOSON LECTURETTE How to Live a Life with a Cancer Diagnosis (ROJoson TPORs – Thoughts, Perceptions, Opinions and Recommendations)
  2. 2. How to live a life with a cancer diagnosis How does or how should one live a life after a cancer diagnosis? Here are my personal TPORs (thoughts, perceptions, opinions and recommendations).
  3. 3. “After a cancer diagnosis” may mean the following: • Right after diagnosis that one is said to truly have a cancer in the body • During treatment • After treatment • During the surveillance (monitoring) period • During the time cancer recurrence has occurred • During the near-end-of-life stage How to live a life with a cancer diagnosis
  4. 4. Note that psychological distresses (emotional sufferings) can be seen in the following phases of the cancer journey: • PHASE OF DIAGNOSIS • PHASE OF TREATMENT (DURING, RIGHT AND/OR SOON AFTER TREATMENT) • PHASE AFTER TREATMENT (IN REMISSION) • PHASE WHEN THERE IS RECURRENCE OF CANCER • PHASE DURING NEAR-END-OF-LIFE This is the reason for this talk on “How to live a life with a cancer diagnosis.” How to live a life with a cancer diagnosis
  5. 5. “How to live a life” will be operationally defined as how to live or continue to live a functional and meaningful earthly life after a cancer diagnosis. How to live a life with a cancer diagnosis
  6. 6. A lot of times, after a cancer diagnosis, people or patients have ceased or have a hard time living a functional and meaningful earthly life. This is mainly due to uncontrolled ANXIETY AND DEPRESSION which in turn are due to • uncontrolled fear • sadness • personal apprehensions • psychosocial apprehensions How to live a life with a cancer diagnosis
  7. 7. In the past Cancer Crusaders Club Annual Get-Togethers, I have identified and mentioned the following which I think are key coping tactics against the psychological distresses of cancer patients: • Acceptance of the cancer diagnosis • Intentional living plan in the light of cancer diagnosis • Trust in a competent and compassionate physician • Spiritual trust • Support from loved ones and significant others • Cancer journey sharing How to live a life with a cancer diagnosis
  8. 8. This year, my lecturette on how to deal with cancer, I will expound on ACCEPTANCE AND INTENTIONAL LIVING PLAN as coping tactics against the psychological distresses of cancer patients. Before anything else, I like to emphasize that there must be AWARENESS then ACCEPTANCE before the formulation of the INTENTIONAL LIVING PLAN. How to live a life with a cancer diagnosis ILP
  9. 9. AWARENESS At least of your cancer diagnosis and its prognosis with correlation to your purpose and estimated lifespan on earth. How to live a life with a cancer diagnosis
  10. 10. How to live a life with a cancer diagnosis After AWARENESS
  11. 11. ACCEPTANCE Acceptance of cancer has long been recognized as playing a critical role in the psychological adjustment to the illness (also true for other diseases). It is effective in reducing the patient’s distress with cancer. How to live a life with a cancer diagnosis
  12. 12. What is ACCEPTANCE? Acceptance is emotion-focused coping that involves acknowledging the reality of the illness, learning to live with it, and engaging in attempts to address it (Carver et al., 1989). That is why I said there must be acceptance first before the formulation of the intentional living plan. How to live a life with a cancer diagnosis
  13. 13. What is ACCEPTANCE? Other definitions of acceptance Acceptance of illness - as a process of value change by which the patient accepts the losses related to the illness while maintaining a sense of self-worth. This process may involve exploring new meanings or possibilities in life based on one’s existing values and strengths (Wright, 1983). How to live a life with a cancer diagnosis
  14. 14. What is ACCEPTANCE? Other definitions of acceptance Acceptance - as a willingness to be present with one’s illness-related thoughts, feelings, and bodily sensations without judging or making unnecessary attempts to control them (Hayes, Jacobson, Follette, & Dougher, 1994). How to live a life with a cancer diagnosis
  15. 15. What is ACCEPTANCE? Other definitions of acceptance Acceptance is a realistic way of living with illness; that is, an accepting patient does not judge, avoid, or deny the illness, but continues feasible engagement in everyday activities.(McCracken and Eccleston 2003) How to live a life with a cancer diagnosis
  16. 16. Acceptance differs from resignation (i.e., fatalism). How to live a life with a cancer diagnosis
  17. 17. For cancer patients, resignation refers to considering the illness as fate and believing that there is little or nothing one can do to change or control the illness, its symptoms, and one’s quality of life (Livneh, 2000). In other words, resignation refers to giving up and no longer striving for a fulfilling life—choosing instead to remain helpless, hopeless, and passive. How to live a life with a cancer diagnosis
  18. 18. How to live a life with a cancer diagnosis Research suggests that ACCEPTANCE is associated with LOWER anxiety and depressive symptoms (e.g., Bussell & Naus, 2010; Peters, Goedendorp, Verhagen, van der Graaf, & Bleijenberg, 2014), whereas RESIGNATION is associated with HIGHER anxiety and depressive symptoms (Andreu et al., 2012; Hong, Wei, & Wang, 2015).
  19. 19. How to live a life with a cancer diagnosis Acceptance also differs from a FIGHTING SPIRIT. In the context of cancer, having a fighting spirit involves viewing the illness as a challenge, maintaining an optimistic outlook, and working towards beating the disease (Livneh, 2000; Watson et al., 1988). Although both acceptance and having a fighting spirit involve taking an active stance, acceptance does not necessarily include efforts of positive reframing or aiming to change the course of the disease.
  20. 20. How to live a life with a cancer diagnosis Acceptance of cancer is MAKING PEACE with the disease. Letting Go but Not Giving Up and Accepting the Reality of a Cancer Diagnosis!
  21. 21. How to live a life with a cancer diagnosis Acceptance doesn’t mean that anyone is giving up. Acceptance allows you to take control of your life and focus on what’s most important to you. Live on despite a cancer diagnosis! Continue to live a functional and meaningful life!
  22. 22. How to live a life with a cancer diagnosis So, my foremost advice is ACCEPTANCE as the coping tactic as this is effective in reducing the patient’s distress with cancer.
  23. 23. How to live a life with a cancer diagnosis After acceptance, make an INTENTIONAL LIVING PLAN. This will constitute your plan of action for a meaningful cancer journey. ILP
  24. 24. How to live a life with a cancer diagnosis My operational definition of intentional living plan: Intentional Living Plan (ILP) is a plan you make targeting a certain number of years (guided by the prognosis of your cancer) in which you write down things you intend or want to accomplish on your graduation day (last day of your targeted year) which will make you feel you have lived your life to the fullest; you have lived a meaningful life; and you are contented and ready to die a happy death. [Assumption and reality: all of us will die one day.]
  25. 25. How to live a life with a cancer diagnosis Before making an intentional living plan, get the following information from your trusted and compassionate physician: (Make an intentional living plan with the answers in mind.) • What kind of cancer do I have? • Where is the cancer? • Has it spread? • Can my cancer be treated? • What is the prognosis of my cancer? What is the chance that my cancer can be “cured”?
  26. 26. How to live a life with a cancer diagnosis • What other tests or procedures do I need? • What are my treatment options? How will the treatment benefit me? • What can I expect during treatment? What are the side effects of the treatment? • What happens if I don’t get treatment?
  27. 27. How to live a life with a cancer diagnosis • What is the surveillance plan after treatment? • What can I do to prevent my cancer from coming back? • How likely are my children or other family members to get cancer? • Others
  28. 28. How to live a life with a cancer diagnosis • Intentional living plan promotes living with intention; living a purposeful life. • It will be your cancer journey plan. • It will be your plan on how to live a life with a diagnosis of cancer.
  29. 29. How to live a life with a cancer diagnosis ROJoson Template of Intentional Living Plan My Intentional Living Plan (ILP) PART I. Owner and Number of Years to Target for the Intentional Living Plan. OWNER OF INTENTIONAL LIVING PLAN (ILP): NAME: Reynaldo O. Joson Current Age: 70 From: Year ___2019_____ to _2024__2032_ From: Age ____70______ to _75___83___
  30. 30. How to live a life with a cancer diagnosis ROJoson Template of Intentional Living Plan My Intentional Living Plan (ILP) PART I. Owner and Number of Years to Target for the Intentional Living Plan. NUMBER OF YEARS TO TARGET IN THE INTENTIONAL LIFE PLAN: __5 yrs to 13 yrs__ If with STRETCH TARGET, specify the reasons.
  31. 31. How to live a life with a cancer diagnosis ROJoson Template of Intentional Living Plan PART II. People to include in Intentional Living Plan Enumerate the names of other people (spouse / partner; children; and significant others) you want to include in your Intentional Living Plan (ILP). SPOUSE / PARTNER to be included in the ILP: NAME: ________________________ Current Age: ____ CHILDREN to be included in the ILP: NAME: ________________________ Current Age: ____ SIGNIFICANT OTHERS to be included in the ILP: NAME: ________________________ Current Age: ____
  32. 32. How to live a life with a cancer diagnosis ROJoson Template of Intentional Living Plan Part III. Legacies (Answer the following questions as indicated) IF I WERE TO DIE AT ___75___83___ YEARS OLD (AGE) OR IN _2024___2032__ (YEAR), WHAT ARE THE LEGACIES THAT I WANT TO LEAVE BEHIND FOR MY FAMILY AND FOR MY COMMUNITY? [Be as specific as possible and include a timeline or deadline.]
  33. 33. How to live a life with a cancer diagnosis ROJoson Template of Intentional Living Plan Part IV. FOR SPOUSE / PARTNER (Answer the following questions as indicated) IF I WERE TO DIE AT ___75___83___ YEARS OLD (AGE) OR IN _2024___2032__ (YEAR), WHAT WILL I DO FOR MY SPOUSE / PARTNER? [Be as specific as possible and include a timeline or deadline. Place NA if not applicable.]
  34. 34. How to live a life with a cancer diagnosis ROJoson Template of Intentional Living Plan Part V. FOR CHILDREN (Answer the following questions as indicated) IF I WERE TO DIE AT ___75___83___ YEARS OLD (AGE) OR IN _2024___2032__ (YEAR), WHAT WILL I DO FOR CHILDREN [Be as specific as possible and include a timeline or deadline. Place NA if not applicable.]
  35. 35. How to live a life with a cancer diagnosis ROJoson Template of Intentional Living Plan Part VI. FOR SIGNIFICANT OTHERS (Answer the following questions as indicated) IF I WERE TO DIE AT ___75___83___ YEARS OLD (AGE) OR IN _2024___2032__ (YEAR), WHAT WILL I DO FOR MY SIGNIFICANT OTHERS? [Be as specific as possible and include a timeline or deadline. Place NA if not applicable.]
  36. 36. How to live a life with a cancer diagnosis ROJoson Template of Intentional Living Plan Part VII. FOR MYSELF (Answer the following questions as indicated) IF I WERE TO DIE AT ___75___83___ YEARS OLD (AGE) OR IN _2024___2032__ (YEAR), WHAT WILL I DO FOR MYSELF? [Be as speciifc as possible and include a timeline or deadline. Include the following goals as applicable: health; contentment; enjoyment; God or Creator; financial; career; professional; social and relationship goal; etc.]
  37. 37. How to live a life with a cancer diagnosis ROJoson Template of Intentional Living Plan Part VIII. PREPARING FOR A HAPPY DEATH (Answer the following questions as indicated) IF I WERE TO DIE AT ___75___83___ YEARS OLD (AGE) OR IN _2024___2032__ (YEAR), WHAT WILL I DO TO PREPARE FOR A HAPPY DEATH (CONTENTED AND READY TO LEAVE THIS EARTH)? [Be as specific as possible and include a timeline or deadline.] Signature Date First Accomplished: Date Reviewed and Updated:
  38. 38. How to live a life with a cancer diagnosis Having a well-formulated INTENTIONAL LIVING PLAN in the light of cancer can contribute to • BEING HEALTHY and NOT CRIPPLED AS LONG AS POSSIBLE • BEING PRODUCTIVE • HAVING PEACE OF MIND • BEING CONTENTED • ENJOYING LIFE • BEING HAPPY IN LIFE • REACHING THE REALISTIC LONGEVITY TARGETS • BEING READY TO FACE CURTAIN CALL (DEATH)
  39. 39. How to live a life with a cancer diagnosis So, my advice is to have acceptance of cancer as the first step in living a life with cancer so as to live a functional and meaningful earthly life as long as possible. Make peace with the cancer disease or cancer diagnosis. Let go but not giving up. Continue to live a functional and meaningful earthly life as long as possible through your well-formulated intentional living plan.
  40. 40. Cancer Crusaders Club 35th Annual Christmas Get-together December 4, 2022 ROJOSON LECTURETTE How to Live a Life with a Cancer Diagnosis (ROJoson TPORs – Thoughts, Perceptions, Opinions and Recommendations)

Notas do Editor

  • I will give a lecturette with the title: How to Live a Life with a Cancer Diagnosis
  • How to live a life with a cancer diagnosis
    How does or how should one live a life after a cancer diagnosis?
    Here are my personal TPORs (thoughts, perceptions, opinions and recommendations).

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