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The NHS Atlas of Variation
in Healthcare for
Respiratory Disease

September 2012


                         Copyright 2011 Right Care
2
“Robust guidance has been published by NICE and
other bodies to support evidence-based management
  of chronic obstructive pulmonary disease (COPD),
   asthma and other lung conditions, and yet in this
 NHS Atlas of Variation in Healthcare for People with
  Respiratory Disease a stark picture is presented of
                     the variation in
   the quality of care and outcomes experienced by
         people ..in different parts of England”




3
4
Why does unwarranted variation matter?

    John Wennberg, who has championed research into clinical variation
    over four decades and who founded the pioneering Dartmouth Atlas of
    Health Care, concludes that:

     “much of the variation … is accounted for by the willingness and ability
     of doctors to offer treatment rather than differences in illness or patient
                                    preference”.

    Wennberg defines unwarranted variation in healthcare as variation that
    cannot be explained on the basis of illness, medical evidence, or patient
    preference.



    Wennberg J (2010) Tracking Medicine: A Researcher’s Quest to Understand Health Care.
    Oxford University Press.

5
6
Where people live significantly affects
their likelihood of being admitted to
hospital with COPD and dying from it.

This shows that proactive
management of COPD is better is
some parts of England than others

For PCTs in England, the rate of
COPD emergency admissions to
hospital ranged from 76.9 to 421.6
per 100,000 population (5-fold
variation).

When the five PCTs with the highest
rates and the five PCTs with the
lowest rates are excluded, the range
is 87.6–340.5 per 100,000 population,
and the variation is 3.9-fold.




7
Although there are legitimate reasons for
exception-reporting, the difference               Map 2
between the published QOF achievement
and actual coverage varies substantially at
PCT level.

Patients who are excepted are at high risk
of not receiving appropriate pro-active
chronic disease management and
therefore of experiencing worse outcomes.

Options for action to increase access to
chronic disease management in COPD:

•   Calculate the actual QOF coverage by
    including excepted patients in denominator
•   Benchmark and share local exception
    reporting data
•   Identify the systems to maximise patient-
    reach used in the best-performing practices
•   Support local practices with high exception
    rates to implement best-practice systems


    8
For PCTs in England, the rate of deaths
within 30 days of an admission for COPD
ranged from 3404.6 to 11,826.1 per
100,000 population (3.5-fold variation).
When the five PCTs with the highest rates
and the five PCTs with the lowest rates
are excluded, the range is 4237.5–
10,119.0 per 100,000 population, and the
variation is 2.4-fold.

Some of the difference in death rates
within 30 days of an admission for COPD
may be due to differences in:

›› case-mix;
›› population composition.

However, some of the difference in death
rates is likely to be due to variation in the
quality of clinical care provided before,
during and following admission to
hospital.

  9
Case-study: Integrated COPD services across 14 PCTs
East of England
                                 Changes that have been instigated include,
                                 amongst others:
Integrated care was
developed in the 14 PCTs in          ›› agreeing patient pathways across
the East of England by               organisations;
commissioning integrated             ›› self-management plans;
services and the introduction        ›› multidisciplinary meetings;
                                     ›› universal availability of pulmonary
of innovations by local
                                     rehabilitation and home oxygen
providers and commissioners.         assessment and review;
                                     ›› community COPD clinics;
This work has been facilitated
by the local respiratory         Outcome data from South East Essex after
networks in each PCT with the    the introduction of an integrated service
involvement of all provider      show:
organisations, commissioners
and patients.                    ›› a reduction of 19% in COPD admissions;
                                 ›› a reduction of 24% in COPD bed-days;
                                 ›› a saving of £650,000 per year.


10
For people with asthma, the risk of
being admitted with an acute
exacerbation can vary up to three
times depending on where they live.

Some of this variation can be
accounted for by differences in local
population characteristics, but much
is unwarranted due to differences in
the quality of asthma care, and the
support people receive to manage
their condition.

Emergency admission to hospital is
a major adverse outcome for
patients. The degree of variation
observed shows that in many
localities there is substantial scope
for reducing emergency events.


11
For PCTs in England, the
emergency admission rate for
children with asthma ranged from
38.7 to 732.6 per 100,000
population aged 0–17 years (19-fold
variation).

When the five PCTs with the highest
rates and the five PCTs with the
lowest rates are excluded, the
variation is 5-fold.

Action to reduce emergency
admissions requires a whole
pathway approach, including public
health, and primary and secondary
care. Parental education and school
medication management are vital to
good care.


12
One of the reasons for variation in the emergency admission rate could be
 deprivation: there is a moderate correlation between frequency of
 emergency admission and the level of socio-economic deprivation (r=0.56;
 Figure 14.1). However, this may not be the sole explanation for the degree
 of variation observed because a comparison of the 10 most deprived PCTs
 shows a 19-fold variation in emergency admission rates and a 2.1-fold
 variation among the 10 least deprived PCTs




13
Case-study: SIMPLE approach to asthma management
     NHS Leicester City
 Leicester City was identified as having
 very high emergency admission rates
 for asthma, which were substantially
 above the national average.

 NHS Leicester City developed a
 Medicines Use Review (MUR) service.       Implementation of the service is
                                           expected:
 The service was designed to be
 delivered by community pharmacists        ›› to reduce the number of asthma
 for people with asthma. The service is    exacerbations and hospital
 built on the SIMPLE approach to           admissions;
 asthma management.
                                           ›› to improve the prescribing of cost-
                                           effective medicines;
 An educational toolkit was developed
 to support pharmacists undertaking        ›› to reduce the over-prescription of
 the asthma reviews.                       steroids.
14
Obstructive sleep apnoea (OSA) syndrome
has conservative prevalence estimates of
1–2%; the vast majority of people suffering
from this disorder are undiagnosed.

Access to diagnostic assessment for people
with sleep disorders remains patchy; failure
to diagnose is common, and intervention
rates remain low relative to the prevalence
of sleep problems.

Action to increase the diagnosis of sleep
disorders includes:

• Improving understanding of expected
  and observed prevalence of sleep-
  related conditions
• Raising awareness in primary care to
  promote prompt referral
• Assessing the demand for and capacity
  of local sleep services



  15
For PCTs in England, the ADQ of
combination (ICS and LABA)
inhalers ranged from 51,954 to
167,259 ADQ per 1000 patients on
GP COPD and Asthma registers
(3.2-fold variation).

When the five PCTs with the highest
ADQs and the five PCTs with the
lowest ADQs are excluded, the
range is 73,260 to 141,695 per
1000 patients on GP COPD and
Asthma registers, and the variation
is 1.9-fold.

When used appropriately,
combination inhalers have a clear
evidence base. However, they are
very expensive: three of the top five
highest spend items prescribed in
England are respiratory inhalers.
 16
Clinicians can improve the
clinical effectiveness and cost
effectiveness of respiratory
prescribing through
responsible guidance-based
prescribing.

This is likely to improve
patients’ quality of life, reduce
the risk of deterioration
sufficient to require
hospitalisation, reduce the risk
of harm from ICS, and reduce
expenditure.




  17
Case-study: Improving inhaler technique
     Isle of Wight PCT                     The PCT developed a programme to
     Isle of Wight PCT found that it had   train healthcare professionals in:
     high levels of emergency
                                           ›› use of the inhaler;
     admission for asthma and high         ›› patient training;
     spend on inhaled medication.          ›› assessment of inhaler technique

     When used effectively, 20% of the     Patients receiving training were issued
     medication in a metered dose          with a training aid to help them maintain
     inhaler (MDI) reaches the lungs       the correct technique
     (the other 80% is swallowed),         Within the first year of the programme:
     whereas with a poor technique the
     percentage inhaled falls to           ›› expenditure on selective beta-agonists
     between 0% and 10%.                   fell by 22.7% – a saving greater than
                                           seven times the initial
                                           investment by Isle of Wight PCT;
     Therefore, an intervention to
                                           ›› prescription numbers fell by 25.2%;
     improve inhalation techniques was     ›› emergency admissions due to asthma
     identified as a cost-effective way    were reduced by 50%.
     of improving patient outcomes.
18
Smoking is the main reason for the
gap in healthy life-expectancy
between higher and lower socio
economic groups. COPD affects
around 3m people in England:
85% of cases are caused by
smoking.

There is a 2.3- fold variation
among PCTs in England in the
rate of successful smoking quitters
when the top and bottom 5 PCTs
taken out.

This suggests that some PCTs are
more effective than others at
supporting smoking cessation.




 19
Case-study: Stop-smoking stickers
East Kent Hospitals University NHS Foundation Trust

 In May 2011, a new referral route was
 put in place to ensure that patients
 attending outpatients departments

 A sticker was introduced as an aide-
 memoire into the inside back cover of
 each set of outpatient notes to be
 completed by the relevant staff              In the 9 months following
 member at booking.                           introduction of the sticker system:

 The sticker provides a prompt not only       ›› referrals to the stop-smoking
 for supporting patients to quit smoking      service quadrupled from 206 to 834
 but also to ensure that smoking status
                                              ›› there was a statistically
 is recorded in the notes.
                                              significant increase in the number
                                              of successful 4-week quitters.


20
What can we do about unwarranted variation?


            “Knowledge does not, unfortunately, always lead to action.
             Publicising the existence of unwarranted variations and their
                causes does not guarantee that they will be tackled1”

        The narrative about unwarranted variation is the most crucial step
        on the pathway from data to change. The narrative helps
        clinicians and commissioners to understand the magnitude of the
        problem locally, the impact on population outcomes and the
        opportunity costs of not reducing unwarranted variation.




1. Appleby J, Raleigh V (2011) Variations in Health Care – the Good, the Bad and the Inexplicable. The
King’s Fund. http://www.kingsfund.org.uk/publications/healthcare_variation.html

21
The grieving process

     ..some clinicians will lack the expertise to interpret data in detail and some
     may respond defensively…




        After the Kubler Ross bereavement cycle




22
Essential steps in the use of data to drive change




                 If clinicians and commissioners are to use
                     data to drive change locally, several
                        essential steps need to be taken




23
Importance of the narrative in driving change




24
Improving outcomes in respiratory disease: the role of
     clinical commissioning groups
     When they become fully operational in 2013, clinical
     commissioning groups will be held to account for the delivery of
     outcomes for their patients through the indicators in the NHS
     Outcomes Framework.

     Clinical commissioning groups will therefore have an express
     responsibility not only for the quality of the services they
     commission but also for the quality of primary care provided by
     constituent local practices.




25
Improving outcomes for people with respiratory disease
     – resources available
     ›› Department of Health (2011) An Outcomes Strategy for COPD and Asthma:
     NHS Companion Document.
     http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolic
     yAndGuidance/DH_134000

     ›› NHS Medical Directorate (2012) COPD Commissioning Toolkit. A Resource
     for Commissioners. https://www.wp.dh.gov.uk/publications/files/2012/08/chronic-
     obstructive-pulmonary-disease-COPD-commissioning-toolkit.pdf

     ›› NHS Improvement – Lung; resources on the website:
     http://www.improvement.nhs.uk/lung/

     ›› IMPRESS – Improving and integrating respiratory services; resources on the
         website: http://www.impressresp.com/

     ›› Quality Intelligence East. INHALE – Interactive Health Atlas for Lung
         conditions in England. http://www.inhale.nhs.uk/

26
“The central message of the NHS
       Atlas of Variation in Healthcare is
      that it is possible to achieve better
              outcomes for patients.
     Although data may be open to more
     than one interpretation, the power of
       the Atlas lies not in the answers it
         provides but in the questions it
                     raises.”

27
www.rightcare.nhs.uk/atlas
     In print
     You can order free printed copies using
     the online form on our website

     Online
     High and Low resolution PDFs are
     available for download


     Interactive
     A fully interactive
     InstantAtlastm is available
     online




28
Follow Right Care online

     - Subscribe to get a weekly digest of our blog in your inbox
     - Receive Occasional eBulletins
     - Follow us on Twitter @qipprightcare




     www.rightcare.nhs.uk



29

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NHS Atlas of Variation in Healthcare for Respiratory Disease</TITLE

  • 1. The NHS Atlas of Variation in Healthcare for Respiratory Disease September 2012 Copyright 2011 Right Care
  • 2. 2
  • 3. “Robust guidance has been published by NICE and other bodies to support evidence-based management of chronic obstructive pulmonary disease (COPD), asthma and other lung conditions, and yet in this NHS Atlas of Variation in Healthcare for People with Respiratory Disease a stark picture is presented of the variation in the quality of care and outcomes experienced by people ..in different parts of England” 3
  • 4. 4
  • 5. Why does unwarranted variation matter? John Wennberg, who has championed research into clinical variation over four decades and who founded the pioneering Dartmouth Atlas of Health Care, concludes that: “much of the variation … is accounted for by the willingness and ability of doctors to offer treatment rather than differences in illness or patient preference”. Wennberg defines unwarranted variation in healthcare as variation that cannot be explained on the basis of illness, medical evidence, or patient preference. Wennberg J (2010) Tracking Medicine: A Researcher’s Quest to Understand Health Care. Oxford University Press. 5
  • 6. 6
  • 7. Where people live significantly affects their likelihood of being admitted to hospital with COPD and dying from it. This shows that proactive management of COPD is better is some parts of England than others For PCTs in England, the rate of COPD emergency admissions to hospital ranged from 76.9 to 421.6 per 100,000 population (5-fold variation). When the five PCTs with the highest rates and the five PCTs with the lowest rates are excluded, the range is 87.6–340.5 per 100,000 population, and the variation is 3.9-fold. 7
  • 8. Although there are legitimate reasons for exception-reporting, the difference Map 2 between the published QOF achievement and actual coverage varies substantially at PCT level. Patients who are excepted are at high risk of not receiving appropriate pro-active chronic disease management and therefore of experiencing worse outcomes. Options for action to increase access to chronic disease management in COPD: • Calculate the actual QOF coverage by including excepted patients in denominator • Benchmark and share local exception reporting data • Identify the systems to maximise patient- reach used in the best-performing practices • Support local practices with high exception rates to implement best-practice systems 8
  • 9. For PCTs in England, the rate of deaths within 30 days of an admission for COPD ranged from 3404.6 to 11,826.1 per 100,000 population (3.5-fold variation). When the five PCTs with the highest rates and the five PCTs with the lowest rates are excluded, the range is 4237.5– 10,119.0 per 100,000 population, and the variation is 2.4-fold. Some of the difference in death rates within 30 days of an admission for COPD may be due to differences in: ›› case-mix; ›› population composition. However, some of the difference in death rates is likely to be due to variation in the quality of clinical care provided before, during and following admission to hospital. 9
  • 10. Case-study: Integrated COPD services across 14 PCTs East of England Changes that have been instigated include, amongst others: Integrated care was developed in the 14 PCTs in ›› agreeing patient pathways across the East of England by organisations; commissioning integrated ›› self-management plans; services and the introduction ›› multidisciplinary meetings; ›› universal availability of pulmonary of innovations by local rehabilitation and home oxygen providers and commissioners. assessment and review; ›› community COPD clinics; This work has been facilitated by the local respiratory Outcome data from South East Essex after networks in each PCT with the the introduction of an integrated service involvement of all provider show: organisations, commissioners and patients. ›› a reduction of 19% in COPD admissions; ›› a reduction of 24% in COPD bed-days; ›› a saving of £650,000 per year. 10
  • 11. For people with asthma, the risk of being admitted with an acute exacerbation can vary up to three times depending on where they live. Some of this variation can be accounted for by differences in local population characteristics, but much is unwarranted due to differences in the quality of asthma care, and the support people receive to manage their condition. Emergency admission to hospital is a major adverse outcome for patients. The degree of variation observed shows that in many localities there is substantial scope for reducing emergency events. 11
  • 12. For PCTs in England, the emergency admission rate for children with asthma ranged from 38.7 to 732.6 per 100,000 population aged 0–17 years (19-fold variation). When the five PCTs with the highest rates and the five PCTs with the lowest rates are excluded, the variation is 5-fold. Action to reduce emergency admissions requires a whole pathway approach, including public health, and primary and secondary care. Parental education and school medication management are vital to good care. 12
  • 13. One of the reasons for variation in the emergency admission rate could be deprivation: there is a moderate correlation between frequency of emergency admission and the level of socio-economic deprivation (r=0.56; Figure 14.1). However, this may not be the sole explanation for the degree of variation observed because a comparison of the 10 most deprived PCTs shows a 19-fold variation in emergency admission rates and a 2.1-fold variation among the 10 least deprived PCTs 13
  • 14. Case-study: SIMPLE approach to asthma management NHS Leicester City Leicester City was identified as having very high emergency admission rates for asthma, which were substantially above the national average. NHS Leicester City developed a Medicines Use Review (MUR) service. Implementation of the service is expected: The service was designed to be delivered by community pharmacists ›› to reduce the number of asthma for people with asthma. The service is exacerbations and hospital built on the SIMPLE approach to admissions; asthma management. ›› to improve the prescribing of cost- effective medicines; An educational toolkit was developed to support pharmacists undertaking ›› to reduce the over-prescription of the asthma reviews. steroids. 14
  • 15. Obstructive sleep apnoea (OSA) syndrome has conservative prevalence estimates of 1–2%; the vast majority of people suffering from this disorder are undiagnosed. Access to diagnostic assessment for people with sleep disorders remains patchy; failure to diagnose is common, and intervention rates remain low relative to the prevalence of sleep problems. Action to increase the diagnosis of sleep disorders includes: • Improving understanding of expected and observed prevalence of sleep- related conditions • Raising awareness in primary care to promote prompt referral • Assessing the demand for and capacity of local sleep services 15
  • 16. For PCTs in England, the ADQ of combination (ICS and LABA) inhalers ranged from 51,954 to 167,259 ADQ per 1000 patients on GP COPD and Asthma registers (3.2-fold variation). When the five PCTs with the highest ADQs and the five PCTs with the lowest ADQs are excluded, the range is 73,260 to 141,695 per 1000 patients on GP COPD and Asthma registers, and the variation is 1.9-fold. When used appropriately, combination inhalers have a clear evidence base. However, they are very expensive: three of the top five highest spend items prescribed in England are respiratory inhalers. 16
  • 17. Clinicians can improve the clinical effectiveness and cost effectiveness of respiratory prescribing through responsible guidance-based prescribing. This is likely to improve patients’ quality of life, reduce the risk of deterioration sufficient to require hospitalisation, reduce the risk of harm from ICS, and reduce expenditure. 17
  • 18. Case-study: Improving inhaler technique Isle of Wight PCT The PCT developed a programme to Isle of Wight PCT found that it had train healthcare professionals in: high levels of emergency ›› use of the inhaler; admission for asthma and high ›› patient training; spend on inhaled medication. ›› assessment of inhaler technique When used effectively, 20% of the Patients receiving training were issued medication in a metered dose with a training aid to help them maintain inhaler (MDI) reaches the lungs the correct technique (the other 80% is swallowed), Within the first year of the programme: whereas with a poor technique the percentage inhaled falls to ›› expenditure on selective beta-agonists between 0% and 10%. fell by 22.7% – a saving greater than seven times the initial investment by Isle of Wight PCT; Therefore, an intervention to ›› prescription numbers fell by 25.2%; improve inhalation techniques was ›› emergency admissions due to asthma identified as a cost-effective way were reduced by 50%. of improving patient outcomes. 18
  • 19. Smoking is the main reason for the gap in healthy life-expectancy between higher and lower socio economic groups. COPD affects around 3m people in England: 85% of cases are caused by smoking. There is a 2.3- fold variation among PCTs in England in the rate of successful smoking quitters when the top and bottom 5 PCTs taken out. This suggests that some PCTs are more effective than others at supporting smoking cessation. 19
  • 20. Case-study: Stop-smoking stickers East Kent Hospitals University NHS Foundation Trust In May 2011, a new referral route was put in place to ensure that patients attending outpatients departments A sticker was introduced as an aide- memoire into the inside back cover of each set of outpatient notes to be completed by the relevant staff In the 9 months following member at booking. introduction of the sticker system: The sticker provides a prompt not only ›› referrals to the stop-smoking for supporting patients to quit smoking service quadrupled from 206 to 834 but also to ensure that smoking status ›› there was a statistically is recorded in the notes. significant increase in the number of successful 4-week quitters. 20
  • 21. What can we do about unwarranted variation? “Knowledge does not, unfortunately, always lead to action. Publicising the existence of unwarranted variations and their causes does not guarantee that they will be tackled1” The narrative about unwarranted variation is the most crucial step on the pathway from data to change. The narrative helps clinicians and commissioners to understand the magnitude of the problem locally, the impact on population outcomes and the opportunity costs of not reducing unwarranted variation. 1. Appleby J, Raleigh V (2011) Variations in Health Care – the Good, the Bad and the Inexplicable. The King’s Fund. http://www.kingsfund.org.uk/publications/healthcare_variation.html 21
  • 22. The grieving process ..some clinicians will lack the expertise to interpret data in detail and some may respond defensively… After the Kubler Ross bereavement cycle 22
  • 23. Essential steps in the use of data to drive change If clinicians and commissioners are to use data to drive change locally, several essential steps need to be taken 23
  • 24. Importance of the narrative in driving change 24
  • 25. Improving outcomes in respiratory disease: the role of clinical commissioning groups When they become fully operational in 2013, clinical commissioning groups will be held to account for the delivery of outcomes for their patients through the indicators in the NHS Outcomes Framework. Clinical commissioning groups will therefore have an express responsibility not only for the quality of the services they commission but also for the quality of primary care provided by constituent local practices. 25
  • 26. Improving outcomes for people with respiratory disease – resources available ›› Department of Health (2011) An Outcomes Strategy for COPD and Asthma: NHS Companion Document. http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolic yAndGuidance/DH_134000 ›› NHS Medical Directorate (2012) COPD Commissioning Toolkit. A Resource for Commissioners. https://www.wp.dh.gov.uk/publications/files/2012/08/chronic- obstructive-pulmonary-disease-COPD-commissioning-toolkit.pdf ›› NHS Improvement – Lung; resources on the website: http://www.improvement.nhs.uk/lung/ ›› IMPRESS – Improving and integrating respiratory services; resources on the website: http://www.impressresp.com/ ›› Quality Intelligence East. INHALE – Interactive Health Atlas for Lung conditions in England. http://www.inhale.nhs.uk/ 26
  • 27. “The central message of the NHS Atlas of Variation in Healthcare is that it is possible to achieve better outcomes for patients. Although data may be open to more than one interpretation, the power of the Atlas lies not in the answers it provides but in the questions it raises.” 27
  • 28. www.rightcare.nhs.uk/atlas In print You can order free printed copies using the online form on our website Online High and Low resolution PDFs are available for download Interactive A fully interactive InstantAtlastm is available online 28
  • 29. Follow Right Care online - Subscribe to get a weekly digest of our blog in your inbox - Receive Occasional eBulletins - Follow us on Twitter @qipprightcare www.rightcare.nhs.uk 29