Theses are the slides from a presentation by Cristina Reyes Smith, OTD, OTR/L and Susan Toth-Cohen, PhD, OTR/L from the 2011 AOTA Conference in Philadelphia, PA.
Cultural Caring: Bringing Occupational Therapy into High Definition for Clients Across Cultures (2011 AOTA Conference Presentation)
1. CULTURAL CARING
BRINGING OCCUPATIONAL THERAPY INTO HIGH
DEFINITION FOR CLIENTS ACROSS CULTURES
Cristina Reyes Smith, OTD, OTR/L, Coastal Therapy Services, Inc., Charleston, SC
Susan Toth-Cohen, PhD, OTR/L, Thomas Jefferson University, Philadelphia, PA
2. Objectives
Identify professional guidelines for clinical
practice when serving clients across diverse
cultures
Discuss supports and barriers to care uniquely
experienced by clients across diverse cultures
Discuss strategies and resources for
enhancing clinical practice related to clients
across cultures
Discuss reflections on own culture/values and
how they relate to practice
4. Now and into the future:
AOTA’s Centennial Vision
"We envision that occupational
therapy is a powerful, widely
recognized, science-driven, and
evidence-based profession with a
globally connected and diverse
workforce meeting society's
occupational needs.“
http://www.aota.org/News/Centennial.aspx
5. Settings…
Assisted living
Community
mental health
Corporations
Early intervention
Home health
Hospitals & clinics
Private practice
Schools
Skilled nursing facilities
Other community-based
programs
7. World Population Distribution by
Region
Based on United Nations Population Division, Briefing Packet, 1998 Revision
of World Population Prospects; and World Population Prospects, The 2006
Revision.
9. National Standards on Culturally and
Linguistically Appropriate Services
(CLAS)
Published by U.S. Department of Health & Human
Services Office of Minority Health (OMH), 2007
Directed at health care organizations and
providers
For integration in partnership with communities
Topics include:
Culturally Competent Care (Standards 1-3)
Language Access Services (Standards 4-7)
Organizational Supports for Cultural Competence
(Standards 8-14)
(OMH, 2007)
10. CLAS Standards
Mandates for Federal fund recipients:
Standards 4, 5, 6, and 7*
Recommended adoption by accrediting
agencies:
Standards 1, 2, 3, 8, 9, 10, 11, 12, and 13
Voluntary adoption by health care
organizations:
Standard 14
(OMH, 2007)
11. List of CLAS Standards (1-4)
Health care organizations should:
Standard 1: Ensure patients/consumers receive
effective, understandable, and respectful care compatible
with cultural health beliefs, practices, and language.
Standard 2: Implement strategies to recruit, retain, and promote
diverse staff and leadership representative of the service
area.
Standard 3: Ensure staff at all levels/disciplines receive ongoing
education and training in culturally and linguistically
appropriate service delivery.
*Standard 4: Offer and provide free language assistance
services for each patient/consumer at all times.
(OMH, 2007)
12. List of CLAS Standards (5-8)
*Standard 5: Provide verbal and written notices in preferred
language informing patients of right to language assistance
services.
*Standard 6: Assure competence of language assistance
provided by interpreters and bilingual staff. (Family and
friends not used unless requested by the patient/consumer).
*Standard 7: Provide easily understood patient-related
materials and signs in commonly encountered languages in
the service area.
Standard 8: Develop, implement, and promote written
strategic plan to provide culturally and linguistically
appropriate services.
(OMH, 2007)
13. List of CLAS Standards (9-11)
Standard 9: Conduct initial and ongoing organizational self-
assessments of CLAS-related activities and integrate related
measures into audits and performance improvement
programs.
Standard 10: Ensure data on the individual
race, ethnicity, and language (spoken and written) are
collected, integrated, and periodically updated.
Standard 11: Maintain current demographic, cultural, and
epidemiological community profile and needs assessment for
planning/implementing services.
Standard 12: Develop participatory, collaborative partnerships
with communities and facilitate involvement in
designing/implementing CLAS-related activities.
(OMH, 2007)
14. List of CLAS Standards (12-14)
Standard 13: Ensure conflict and grievance resolution
processes are culturally and linguistically sensitive and
effective for cross-cultural conflicts or complaints.
Standard 14: Regularly provide public information about
progress/successful innovations in implementing CLAS
standards and about availability of the information.
(OMH, 2007)
15. OT Resources to Guide Practice
Occupational Therapy Code of Ethics
(AOTA, 2010)
OT Practice Framework (AOTA, 2008)
On Cultural Competency and Ethical Practice
(Wells, 2005)
Five Competencies for the Future
(Moyers, 2003)
16. Occupational Therapy Code of
Ethics
Public statement of principles for the profession
Promotes inclusion, diversity, independence, and
safety
Relates to all recipients in various stages of
life, health, and illness
Aims to empower all OT beneficiaries
Extends to recipients as well as
colleagues, students, educators, businesses, and
the community
(AOTA, 2010)
17. Occupational Therapy Code of
Ethics
Occupational therapy personnel shall:
Principle 1. Beneficence
Demonstrate a concern for the well-being and safety of the
recipients of their services.
Principle 2. Nonmaleficence
Intentionally refrain from actions that cause harm.
Principle 3. Autonomy and Confidentiality
Respect the right of the individual to self-determination.
Principle 4. Social Justice
Provide services in a fair and equitable manner.
(AOTA, 2010)
18. Occupational Therapy Code of
Ethics
Principle 5. Procedural Justice
Comply with institutional rules, local, state, federal, and
international laws and AOTA documents applicable to the
profession of occupational therapy.
Principle 6. Veracity
Provide comprehensive, accurate, and objective information
when representing the profession.
Principle 7. Fidelity
Treat colleagues and other professionals with
respect, fairness, discretion, and integrity.
(AOTA, 2010)
19. OT Practice Framework: Domain and
Process
2nd Edition published by AOTA in 2008
Explains promotion of health and participation
through engagement in occupation
Relates to people, organizations, and populations
Core beliefs of profession include:
positive relationship between occupation and
health
people are occupational beings
(AOTA, 2008)
20. OT Practice Framework (cont.)
“All people need to be able or enabled to engage
in the occupations of their need and choice, to
grow through what they do, and to experience
independence or
interdependence, equality, participation, security
, health, and well-being” (Wilcock &
Townsend, 2008, p. 198).
21. OT Practice Framework (cont.)
Area of Client Performance Performan Context and Activity
Occupation Factors Skills ce Environmen Demands
Patterns t
Activities of Values, Sensory Habits Cultural Objects Used
Daily Living Beliefs, Perceptual Routines Personal and Their
(ADL) and Skills Roles Physical Properties
Instrumental Spirituality Motor and Rituals Social Space
Activities of Body Praxis Skills Temporal Demands
Daily Functions Emotional Virtual Social
Living (IADL) Body Regulation Skills Demands
Rest and Structures Cognitive Skills Sequencing
Sleep Communication and Timing
Education and Social Skills Required
Work Actions
Play Required
Leisure Body
Social Functions
Participation Required
Body
Structures
Figure 4. Aspects of Occupational Therapy’s Domain
22. On Cultural Competency & Ethical Practi
Advisory Opinion released by AOTA
Ethics Commission
Highlighted ethical care requires
acknowledging the relationship
between
trust,
culturalcompetence, and
the therapeutic relationship.
(Wells, 2005)
23. Five Competencies for the Future
Integrates concepts from Health Professions
Education: A Bridge To Quality (Institute of
Medicine, 2003)
For professional development and entry-level
education
I. Client-centered care:
Understand client differences, values, preferences, and expressed
needs.
Effective communication skills (listen carefully, clearly inform
client, etc.).
Collaborative clinical decision-making between client and clinician.
Knowledge of how community health is influenced by health of each
citizen.
Community engagement in occupations influences individual health.
24. Five Competencies for the Future
II. Working in teams and integrating services
Providing continuity of care (reliable processes to manage
health needs continuously and without disruption).
III. Evidence-based practice
Using best available research evidence with clinical expertise
and client values to select strategies for optimum care.
IV. Quality improvement competencies
Knowledge of standardization and simplification.
Improvement strategies for changes in systems and
processes.
V. Informatics
Technological management to enhance patient care and
reduce error.
(Moyers, 2003)
25. Current Evidence
Numerous studies have been conducted including:
improving attitudes and reducing resistance towards
addressing cross-cultural communication (Kaul &
Guiton, 2010),
improving patient satisfaction for patients with
limited English proficiency
(Fung, Lagha, Henderson, & Gomez, 2010), and
measuring attitudes toward caring for immigrant
patients (Hudelson, Perron and Perneger, 2010)
26. Kaul & Guiton, 2010
Reduced resistance and improved students’
attitudes towards medical cross-cultural
communication by
Utilizing upper-level students with clinicians as
instructors
Providing opportunities to relate to culture
personally and medically
Providing opportunities to practice skills to
address culture
27. Fung, Lagha, Henderson, &
Gomez, 2010
Found that addressing interpreter position
significantly impacted patient satisfaction
Instructed interpreter to sit behind patient to
support clinician-patient eye contact
28. Hudelson, Perron and Perneger, 2010
More likely to think providers should adapt to needs of
immigrant patients
Medical students, hospital doctors, women, those
trained in cultural competence, and those interested in
immigrant care
Had greater interest in caring for immigrant patients
Medical students, doctors with more immigrant
patients, and those trained in cultural competence
Gave greater importance to psychosocial contexts for
immigrant patients
Medical students, women, those younger, those
trained in cultural competence, and those interested in
immigrant care
30. Strategies for OT Practice
Promote Language
Language Interpreting
Access Proficiency
Cultural Community
Competence Partnerships
31. Promoting Language Access
Effective medical language interpretation
conductedby individual fluent in conversational
and medical vocabulary in both languages
Effective medical document translation
Verified
for meaning, grammatical, and contextual
accuracy
Effective signs and patient information
Verified
for meaning, grammatical, and contextual
accuracy
32. Promoting Language Interpreting
Proficiency
Recruit interpreters and translators from
Entitiesserving cultural groups in the community
Diverse university, religious, and social groups
Language-oriented organizations and businesses
Medical interpreting education/certification
programs
Collaborate with academic or community
entities for Medical Interpreting workshops
Utilize non-medical interpreters for non-
medical patient encounters
33. Promoting Cultural Competence
Coordinate or collaborate with cultural
celebration events
Hold small/focus group discussions for
reviewing articles, topics, or resources
Explore personal cultural identities and their
influences on health and occupation
Invite individuals from diverse cultures to
share their stories and occupations
Distribute resources on cultural competence
34. Promoting Community Partnerships
Provide services at community health fairs and cultural
festivals
Partner with media and publications to promote health
and wellness events, resources, or information
Collaborate with public or advocacy groups to address
social conditions which impact health and well-being
Collaborate with educational institutions incorporating
student learning into practice
35. Potential Community Partnership
Groups
Poverty and Student groups
homelessness Civic groups
Racism and social
inequality Media and
broadcasting
Crime prevention
Domestic and child Small Businesses
abuse prevention Corporations
Professional ESL and language
associations organizations
Cultural groups
Religious groups
36. Resources on Cultural Competence
“Unnatural Causes” PBS documentary series on socio-
economic and racial inequalities in health
(Adelman, Smith, & Herbes-Sommers, 2008):
www.unnaturalcauses.org
“Provider's Guide to Quality and Culture” (Management
Sciences for Health, 2008):
http://erc.msh.org/mainpage.cfm?file=1.0.htm&module=
provider&language=English
National Center for Cultural Competence:
http://www11.georgetown.edu/research/gucchd/nccc/
AARC Cultural Diversity Resources:
http://www.aarc.org/resources/cultural_diversity/assessi
ng_competency.cfm
37. Resources on Self-Assessment &
Growth
ASHA Self-Assessment for Cultural Competence:
http://www.asha.org/practice/multicultural/self.htm
Cultural Competence Health Practitioner Assessment
(CCHPA):
http://www11.georgetown.edu/research/gucchd/nccc/features/
CCHPA.html
“A Guide to…Planning and Implementing Cultural
Competence Organizational Self-Assessment”
(Goode, Jones, & Mason, 2002):
http://www11.georgetown.edu/research/gucchd/nccc/docume
nts/ncccorgselfassess.pdf
“Conducting A Cultural Competence Self-assessment”
(Andrulis, Delbanco, Avakian, and Shaw-Taylor, n.d.):
http://www.consumerstar.org/pubs/Culturalcompselfassess.pd
39. Case Study
1y.o. AA male patient “Alexander”
Born premature at 23 weeks
PMHx Grade IV IVH with post hemorrhagic
hydrocephalus, sensorineural hearing
loss, CVI, and dysphagia
Lives with great-
grandmother, grandmother, mother, and young
cousins
Family resides in inner city community
40. Case Study (cont.)
Supports Barriers
Stable family structure Limited family income
Family language/literacy Limited family education
Family familiarity with Some distrust of
healthcare system
healthcare system
Medical complications
Family organizational Limited transportation
skills High provider turnover
Access to early Limited provider
intervention services communication
41. Patient “Alexander” Outcomes
Created journal to enhance provider communication
Included provider contact info and pt. medication
list
Informally inquired about the “lived experience” of
the patient and family
Collaborated with family on goals and objectives
Integrated home programs into family routines
Educated family on interventions, potential
outcomes, and medical resources
Directed family to community-based resources for
additional funding and supplies
42. Case Study
55 y.o. female patient “Dina”:
Recently diagnosed with diabetes
Lives with husband and 2 middle-aged sons
Low income, high crime community
Pt. speaks only Spanish
43. Case Study (cont.)
Supports Barriers
Stable family structure Limited family income
Family organizational Limited family
skills education
Access to charitable Limited language
healthcare services fluency
Some transportation Limited literacy
Limited familiarity with
healthcare system
Limited trust of
healthcare system
44. Patient “Dina” Outcomes
Patient was able to access free medical clinic
Provided language interpreter services to facilitate
clinical encounter
Provided medical information in native language
Educated on medications, potential outcomes, and
medical resources
Educated on necessary lifestyle changes (i.e. diet
and exercise, etc.)
Educated on relevant features of the healthcare
system
46. Organizational Case Study
Faith-based medical clinic “DCC” opened Jan.
2009
Free medical services for uninsured local
residents
Low-income, low-education, & high-crime area
Racially diverse community (White, AA, &
Hispanic)
Staffed by medical and non-medical volunteers
(mostly from neighboring communities)
47. Organizational Case Study (cont.)
Supports to Organizational Cultural
Competence
Incorporated, non-profit charitable organization
Enthusiastic coordinators and volunteers
Large volunteer base (over 300 initially)
Free-standing facility acquired in October 2008
Informed by Community Health Needs
Assessment
Established sub-committees for various needs
Relationship established with community and host
church
Website established for communication
48. Organizational Case Study (cont.)
Barriers for Organizational Cultural
Competence
Limited patient access (hours and transportation)
Limited staff training and experience in the setting
Limited knowledge of potential cultural challenges
Limited resources to facilitate cultural
competence
Limited staff to assist non-English speaking
patients
Limited trust from community groups
Limited referral systems for culturally-relevant
49. Key Players &
Stakeholders
Organizational
Supports &
Environment Barriers
& Culture
Cultural
Competence
Plan
Organization
National CLAS
Mission
Statement Standards
Development of Cultural Competence Plan
50. Organizational Case Study (cont.)
Objectives:
Promote communication across language
barriers
Provide culturally-sensitive clinical care
Establish sense of trust and safety for patients
Access community resources to address
issues
51. Organizational Strategies for
“DCC”
Translator and Interpreter Training:
mission and background of clinic
concept of “cultural caring”
need for enabling language access
roles/qualifications for interpreters & translators
interpreter etiquette
ethical/legal considerations
resources for further study
52. Organizational Strategies for “DCC”
Patient-
Centered
Respectful of
Knowledgeable
Others
Seeking Humbly
Understanding Educating
Ambassador
Skillful
Communicator of Cultural Leading
Caring
Interpreters & translators as “Ambassadors of Cultural Caring”
53. Organizational Strategies for “DCC”
Meeting held for staff and volunteers:
Discussed values, beliefs, and behaviors
Discussed importance of patient access to skilled
language interpreting services
Discussed importance of sensitivity to cultural issues for
“cultural caring”
Discussed individual and organizational strategies for
working across cultures
54. Small Group Discussion (15
min)
Your cultural
identity and how
it relates to
practice
Observed
barriers to care
in various
practice settings
related to
cultural factors
Strategies for
•
developing
culturally
competent
clinicians and
organizations in
your practice
area
55. Large Group Discussion and
Synthesis
Insights
and
innovations
Continued
challenges
or questions
Additional
resources
for further
study
57. References
AOTA. (n.d.). The Road to the Centennial Vision. Retrieved from
http://www.aota.org/News/Centennial.aspx
AOTA. (2010). Occupational therapy code of ethics. American
Journal of Occupational Therapy, 64, in press. Retrieved from
http://www.aota.org/Practitioners/Ethics/Docs/Standards/38527.asp
x
AOTA. (2008). Occupational therapy practice framework: Domain
and process 2nd edition. American Journal of Occupational
Therapy, 62(6), 625-683.
Adelman, L. (Executive producer), Smith, L. M. (Co-executive
Producer) & Herbes-Sommers, C. (Senior Producer). (2008).
Unnatural Causes: Is Inequality Making Us Sick? [Television
Broadcast]. San Francisco: California Newsreel in association with
Vital Pictures, Inc.
58. References (cont.)
Andrulis, D., Delbanco, T., Avakian, L., and Shaw-Taylor, Y. (n.d.).
Conducting a Cultural Competence Self-Assessment. Retrieved
from http://www.consumerstar.org/pubs/Culturalcompselfassess.pdf
Fung, C. C., Lagha, R. R., Henderson, P., & Gomez, A. G. (2010).
Working with interpreters: how student behavior affects quality of
patient interaction when using interpreters. Medical Education
Online, 15. doi: 10.3402/meo.v15i0.5151
Goode, T. D., Jones, W., & Mason, J. (2002). A Guide to…Planning
and Implementing Cultural Competence Organizational Self-
Assessment. Retrieved from
http://www11.georgetown.edu/research/gucchd/nccc/documents/nc
ccorgselfassess.pdf
59. References (cont.)
Hudelson, P., Perron, N. J., & Perneger, T. V. (2010). Measuring
physicians' and medical students' attitudes toward caring for
immigrant patients. Evaluation & the Health Professions. Retrieved
from
http://ehp.sagepub.com.proxy1.lib.tju.edu:2048/cgi/rapidpdf/016327
8710370157v1
Institute of Medicine. (2003). Health professions education: A bridge
to quality. Washington, DC: National Academy Press.
Kaiser Family Foundation. (2010). Distribution of U.S. Population by
Race/Ethnicity, 2010 and 2050. Retrieved from
http://facts.kff.org/chart.aspx?ch=364
Kaul, P., & Guiton, G. (2010). Responding to the challenges of
teaching cultural competency. Medical Education, 44(5):506.
60. References (cont.)
Management Sciences for Health. (2008). The culturally competent
organization. Provider's Guide to Quality and Culture. Retrieved
from
http://erc.msh.org/mainpage.cfm?file=9.1.htm&module=provider&la
nguage=English
Moyers, P. (2003). Five competencies for the future. OT
Practice, 8(20), 8.
Population Reference Bureau. (2011). World Population Distribution
by Region, 1800–2050. Retrieved from
http://www.prb.org/Educators/TeachersGuides/HumanPopulation/Po
pulationGrowth/QuestionAnswer.aspx
Wallace, E. A., & Duffy, F. D. (2010). Cultural competency training
and performance measures to reduce racial disparities in health
care quality. Annals of Internal Medicine, 152, 685.
61. References (cont.)
Wells, S. A. (2005). On Cultural Competency and Ethical Practice.
Retrieved from
http://www.aota.org/Practitioners/Ethics/Advisory/36525.aspx
U.S. Department of Health & Human Services Office of Minority
Health. (2007). National Standards on Culturally and Linguistically
Appropriate Services (CLAS). Retrieved from
http://www.omhrc.gov/templates/browse.aspx?lvl=2&lvlID=15