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                                        Our   Health   Counts
Sunday, February 26, 2012                                       1
Unique Partnership
                            Our Health Counts was a collaborative effort by:

                             • Ontario Federation of Indian Friendship Centres (OFIFC)
                             • Métis Nation of Ontario (MNO)
                             • Ontario Native Women’s Association (ONWA)
                             • Tungasuvvingat Inuit (TI)
                                    Urban First Nations Health - Research Project Team
                                   •   De dwa da dehs ney>s Aboriginal Health Access Centre
                                   •   Hamilton Executive Directors Aboriginal Coalition
                                   •   Centre for Research on Inner City Health (CRICH) - Led
                                       by Dr. Janet Smylie
                                   •   Multiple funders: OFIFC, MOHLTC, AHTF, CRICH
                                   •   Data linked to Institute for Clinical & Evaluative
                                       Sciences (CEIS)


Sunday, February 26, 2012                                                                       2
First Nations Partners
                            Hamilton site was selected because:
                            • Large First Nations Pop. (>13,735 based on 2006 Census)
                            • Strong Native organizational infrastructure
                            • Well developed networks
                            • Implications relevant to all urban settings
                            Research partners:
                            •   De dwa da dehs ney>s Aboriginal Health Access Centre
                            •   Hamilton Executive Directors Aboriginal Coalition




Sunday, February 26, 2012                                                               3
Unique Approach
     • Community-based urban setting
     • Participatory research design
               •       Multi-sector collaboration
               •       Shared decision making
               •       Respondent driven sampling
               •       Community capacity building
               •       Trained First Nations interviewers

     • Reflective of Aboriginal beliefs
               • Concept mapping - health dimensions
               • Holistic - health linked to social determinants
               • Respectful engagement vs rapid response

Sunday, February 26, 2012                                          4
‘Ways of Knowing’
       Use of ‘concept mapping’
       Community partners worked with researchers to
       develop a ‘concept map’ to inform survey design
       •      Aligns with traditional Aboriginal tools
       •      102 health ‘concepts’ identified by group
       •      Sorted into 10 domains
       •      Questionnaire built on community priorities
       •      Ensures meaningful info is gathered
       •      Assesses both strengths & vulnerabilities
       •      Reflects Aboriginal world-view - health &
              wellbeing is a balance of physical, mental, social &
              spiritual dimensions


Sunday, February 26, 2012                                            5
Research Findings
      • Historic Study
                •       A lack of population-based health data for First Nations
                        people - leading to poor planning & policy neglect

                •       Confirms community’s belief regarding poor health status

                •       Results significantly higher than Statistics Canada figures

                •       790 people recruited (554 adult, 236 child)

                •       92% participant allowed link to OHIP

                •       Allowed access to detailed health information through the
                        Institute for Clinical Evaluative Science (ICES). First time
                        access to more robust health information

Sunday, February 26, 2012                                                              6
Demographics
                               •   13, 735 people in Hamilton report Aboriginal
                                   ancestry (Census 2006) - significant underestimation

                               •   First Nation’s people represent 2.8% of Hamilton’s
                                   population

                               •   OHC population much younger than general pop.

                               •   51% report being Registered Indians (under the
                                   Indian Act)

                               •   95% most often speak English at home




Sunday, February 26, 2012                                                                7
Housing Impacts Health
        I live entirely off food banks, that’s where nutrition comes in, no choice over food


                            •   90% moved at least once in 5 years - vastly higher than non Natives

                            •   50% have move 3 or more times

                            •   13% report being homeless or in ‘transition’

                            •   74% live in crowded conditions (using Stats Canada definition)

                            •   Housing is inadequate and in disrepair

                            •   70% people live in poorest neighbourhood in Hamilton (3% general pop.)

                            •   High mobility tied to cycle of poverty

                            •   63% give up important things - food - to afford housing

                            •   22% report they do not have enough to eat



Sunday, February 26, 2012                                                                                8
Education/Employment
                            Low levels of formal education:
                            • 57% First Nations adults over 18 completed some high school
                            • 20% report completing high school
                            • 5% completed some/all university
                            • Women trend to more education
                            Income & employment:
                            •   28% income from wages & salaries, 8% from self-employment
                            •   69% provincial/municipal social assistance, 10% EI, 17% Child Tax
                                Benefits, 13% other income sources
                            •   18% earn less than $4,999, 22% between $5,000 & $15,000, 15% earn
                                between $15,000 & $20,000
                            •   Only 22% earn over $20,000 (compared to 57% of Hamilton residents)
                            •   Only 2% First Nations in highest income quartile


Sunday, February 26, 2012                                                                            9
Social Determinants of Health
                      First Nation people have less access to social
                      determinants of health
                      •     Structural & institutional inequalities can’t be solved at individual level -
                            policy, practice and legal changes needed
                      •     Striking levels of poverty
                      •     Housing & food instability
                      •     Lower levels of education & employment
                      •     Less access to public transportation - impacts employment/inclusion
                      •     Poorer health status - more chronic illnesses
                      •     Racism, social exclusion & discrimination
                      •     Unequal access to health, supports & services



Sunday, February 26, 2012                                                                                   10
Impact of Colonization
     The legacy of colonization & residential schools has a
     serious impact on health, wellbeing & family cohesion
        •      6% were students at residential schools

        •      40% have family member

        •      65% felt personal negative impacted

        •      34% felt impact as family

        •      40% report child protection was part of their childhood care

        •      35% report their children have been involved with child protection

        •      49% felt this has negatively affected their overall health/wellbeing




Sunday, February 26, 2012                                                             11
Impact of Colonization
     Violence & abuse
        •      58% report violence is part of their community

        •      95% report violence is related to crime with their neighbourhood

        •      81% reported lateral violence - between First Nations peers

        •      67% reported violence related to racism & discrimination

        •      60% reported family violence

              •      96% mental/emotional abuse

              •      90% physical

              •      52% sexual abuse

        •      Women experiencing more violence than men.


Sunday, February 26, 2012                                                         12
Being Out of Balance
    •       First Nations people see health as more than physical wellness

    •       Includes physical, mental, emotional and spiritual dimensions

    •       43% feel ‘in balance’ in the four aspects of wellness
    •       37% balanced some of the time, 20% little/no balance all of the time

    •       Women less likely to feel balanced than men (28% vs 14%)

    •       42% report having a psychological or mental health disorder
    •       Men more physically active than women (30 min. daily exercise)

    •       Older adults (50+) report zero / 1 day exercise per week

    •       54% drink more than 5 drinks at least once a month vs 27% general
            population

    •       87% smoke (higher underage of 50 years), same for men and women
            vs 24% of general Hamilton population

Sunday, February 26, 2012                                                          13
Chronic Disease & Disability
         First Nations people carry a greater health burden,
         at a younger age, that limits functional activity
           •       16% have diabetes (3 x general pop.)
           •       26% high blood pressure (20% general pop.)
           •       31% have arthritis (20% general pop.)
           •       9% Hepatitis C (> 1% within the general population)
           •       36% report their health is fair to poor
           •       1/2 - 3/4 adults have limitations due to illness
           •       First Nations men feel their health is better than women
           •       18% of First Nations women feel health is excellent/good vs 61% women
                   within general population.



Sunday, February 26, 2012                                                                  14
Health Care Access
                              “Our health deserves appropriate and dedicated care”


                      Urgent need for improved health care access
                      •     40% rate access to health care as fair to poor

                      Barriers to care reported:
                      •     Long waiting lists - 48%
                      •     Access to transportation - 35%
                      •     Can’t afford direct costs - 32%
                      •     Doctors not available
                      •     24% report a lack of trust in health care providers
                      •     Stigma & discrimination contributing role


                      We need more Aboriginal people in health care, education, places where people are looking
                      up to other people. More native role models.”



Sunday, February 26, 2012                                                                                     15
Emergency Room Use
         First Nations more likely to use Emergency Room
           • Using emergency department for acute & non-acute illness
           •       50% report using ER in past year (22% general population)
           •       11% had more than 6 visits (< 2% general population)
           •       ER use holds for both children and adults

         Children less likely to be admitted
           •       Compared to non native children - lower rates of admission
           •       With comparable or more severe symptoms of illness
           •       Is there a systemic bias toward admitting non-native children?




Sunday, February 26, 2012                                                           16
Challenges & Strengths
                            Main challenges people identified
                            •   Drugs & alcohol are main concerns - 68%
                            •   Housing - 61%
                            •   Crime, poverty, & employment - 60%

                            Community strengths
                            •   Strong family values - 53%
                            •   Awareness of First Nations culture - 41%
                            •   Community health programs/ traditional ceremonies - 38%
                            •   Presence of elders within community - 36%
                            •   Social connections within the community - 35%




Sunday, February 26, 2012                                                                 17
Reclaiming identity




                Strong sense of identity as First Nations people
                            •   Over 93% of people feel it is import/very import for their children
                                learn their language and culture
                            •   1/3 people report using traditional medicine
                            •   Hamilton’s First Nation’s community has remarkable cultural
                                continuity, resilience & hope - despite alarming inequalities

Sunday, February 26, 2012                                                                             18
Whole Government Approach
                            Problems facing Urban Aboriginals in Hamilton are complex
                            Solutions require a whole government approach - working with
                            First Nations leaders
                                •   Our Health Data demonstrates increasing disparities in
                                    the social determinants of health for urban Aboriginals
                                •   Needs inter sectorial partnerships to resolve

                                •   Requires urban Aboriginal specific, cultural based,
                                    community driven strategy

                                    •   Address inequalities in accessing social determinants
                                        of health in accordance with human rights legislation
                                        (housing, food security)

                                    •   Chronic disease & disability is disproportionally felt.
                                        Requires municipal & provincial governments
                                        working with Aboriginal community to set priorities,
                                        preventative action & health promotion plans
Sunday, February 26, 2012                                                                         19
Whole government cont...
       Work with Aboriginal community leaders municipal,
       provincial & federal governments to...
               •       Collaborate to remove barriers to equitable access
                       to community health care, emergency departments
                       & inpatient hospital services
               •       Fund the development & expansion of culturally
                       reflective, community based traditional family
                       treatment centres, mental & maternal health
                       programs & services
                     •      Build cultural safety & competence skills
                            recognizing Aboriginal world-view & healing
                            practices
                     •      Promote self-determination in health care
                            delivery, governance, research, planning,
                            development, delivery & evaluation


Sunday, February 26, 2012                                                   20
Child Health Approach
      Our children are our future... a shared commitment to their
      health & wellbeing is critical
       •      Support children’s language & cultural programming
              - include Aboriginal organizations & school boards
       •      Eliminate barriers to primary health care, reduce wait
              lists, target health concerns in culturally sensitive
              ways
       •      Support First Nations families in parenting their
              children in culturally supportive ways
       •      Accord Aboriginal children their human right to live
              in healthy homes & attend schools/ programs which
              do not worsen their health




Sunday, February 26, 2012                                              21
Research & Planning
        ‘Our Health Counts’ demonstrates that research can be
        done by Aboriginal people for the community’ benefit

        • Fund First Nations led applied service research
        • Planning is best done in respectful partnership
           • Support interagency collaboration & cooperation
           • Work with Aboriginal agencies & organizations
             to gain knowledge, promote self-determination
             in planning, design, development & delivery of
             culturally specific health services programs &
             policies

Sunday, February 26, 2012                                       22

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Our health counts

  • 1. Launched December 2011 Our Health Counts Sunday, February 26, 2012 1
  • 2. Unique Partnership Our Health Counts was a collaborative effort by: • Ontario Federation of Indian Friendship Centres (OFIFC) • Métis Nation of Ontario (MNO) • Ontario Native Women’s Association (ONWA) • Tungasuvvingat Inuit (TI) Urban First Nations Health - Research Project Team • De dwa da dehs ney>s Aboriginal Health Access Centre • Hamilton Executive Directors Aboriginal Coalition • Centre for Research on Inner City Health (CRICH) - Led by Dr. Janet Smylie • Multiple funders: OFIFC, MOHLTC, AHTF, CRICH • Data linked to Institute for Clinical & Evaluative Sciences (CEIS) Sunday, February 26, 2012 2
  • 3. First Nations Partners Hamilton site was selected because: • Large First Nations Pop. (>13,735 based on 2006 Census) • Strong Native organizational infrastructure • Well developed networks • Implications relevant to all urban settings Research partners: • De dwa da dehs ney>s Aboriginal Health Access Centre • Hamilton Executive Directors Aboriginal Coalition Sunday, February 26, 2012 3
  • 4. Unique Approach • Community-based urban setting • Participatory research design • Multi-sector collaboration • Shared decision making • Respondent driven sampling • Community capacity building • Trained First Nations interviewers • Reflective of Aboriginal beliefs • Concept mapping - health dimensions • Holistic - health linked to social determinants • Respectful engagement vs rapid response Sunday, February 26, 2012 4
  • 5. ‘Ways of Knowing’ Use of ‘concept mapping’ Community partners worked with researchers to develop a ‘concept map’ to inform survey design • Aligns with traditional Aboriginal tools • 102 health ‘concepts’ identified by group • Sorted into 10 domains • Questionnaire built on community priorities • Ensures meaningful info is gathered • Assesses both strengths & vulnerabilities • Reflects Aboriginal world-view - health & wellbeing is a balance of physical, mental, social & spiritual dimensions Sunday, February 26, 2012 5
  • 6. Research Findings • Historic Study • A lack of population-based health data for First Nations people - leading to poor planning & policy neglect • Confirms community’s belief regarding poor health status • Results significantly higher than Statistics Canada figures • 790 people recruited (554 adult, 236 child) • 92% participant allowed link to OHIP • Allowed access to detailed health information through the Institute for Clinical Evaluative Science (ICES). First time access to more robust health information Sunday, February 26, 2012 6
  • 7. Demographics • 13, 735 people in Hamilton report Aboriginal ancestry (Census 2006) - significant underestimation • First Nation’s people represent 2.8% of Hamilton’s population • OHC population much younger than general pop. • 51% report being Registered Indians (under the Indian Act) • 95% most often speak English at home Sunday, February 26, 2012 7
  • 8. Housing Impacts Health I live entirely off food banks, that’s where nutrition comes in, no choice over food • 90% moved at least once in 5 years - vastly higher than non Natives • 50% have move 3 or more times • 13% report being homeless or in ‘transition’ • 74% live in crowded conditions (using Stats Canada definition) • Housing is inadequate and in disrepair • 70% people live in poorest neighbourhood in Hamilton (3% general pop.) • High mobility tied to cycle of poverty • 63% give up important things - food - to afford housing • 22% report they do not have enough to eat Sunday, February 26, 2012 8
  • 9. Education/Employment Low levels of formal education: • 57% First Nations adults over 18 completed some high school • 20% report completing high school • 5% completed some/all university • Women trend to more education Income & employment: • 28% income from wages & salaries, 8% from self-employment • 69% provincial/municipal social assistance, 10% EI, 17% Child Tax Benefits, 13% other income sources • 18% earn less than $4,999, 22% between $5,000 & $15,000, 15% earn between $15,000 & $20,000 • Only 22% earn over $20,000 (compared to 57% of Hamilton residents) • Only 2% First Nations in highest income quartile Sunday, February 26, 2012 9
  • 10. Social Determinants of Health First Nation people have less access to social determinants of health • Structural & institutional inequalities can’t be solved at individual level - policy, practice and legal changes needed • Striking levels of poverty • Housing & food instability • Lower levels of education & employment • Less access to public transportation - impacts employment/inclusion • Poorer health status - more chronic illnesses • Racism, social exclusion & discrimination • Unequal access to health, supports & services Sunday, February 26, 2012 10
  • 11. Impact of Colonization The legacy of colonization & residential schools has a serious impact on health, wellbeing & family cohesion • 6% were students at residential schools • 40% have family member • 65% felt personal negative impacted • 34% felt impact as family • 40% report child protection was part of their childhood care • 35% report their children have been involved with child protection • 49% felt this has negatively affected their overall health/wellbeing Sunday, February 26, 2012 11
  • 12. Impact of Colonization Violence & abuse • 58% report violence is part of their community • 95% report violence is related to crime with their neighbourhood • 81% reported lateral violence - between First Nations peers • 67% reported violence related to racism & discrimination • 60% reported family violence • 96% mental/emotional abuse • 90% physical • 52% sexual abuse • Women experiencing more violence than men. Sunday, February 26, 2012 12
  • 13. Being Out of Balance • First Nations people see health as more than physical wellness • Includes physical, mental, emotional and spiritual dimensions • 43% feel ‘in balance’ in the four aspects of wellness • 37% balanced some of the time, 20% little/no balance all of the time • Women less likely to feel balanced than men (28% vs 14%) • 42% report having a psychological or mental health disorder • Men more physically active than women (30 min. daily exercise) • Older adults (50+) report zero / 1 day exercise per week • 54% drink more than 5 drinks at least once a month vs 27% general population • 87% smoke (higher underage of 50 years), same for men and women vs 24% of general Hamilton population Sunday, February 26, 2012 13
  • 14. Chronic Disease & Disability First Nations people carry a greater health burden, at a younger age, that limits functional activity • 16% have diabetes (3 x general pop.) • 26% high blood pressure (20% general pop.) • 31% have arthritis (20% general pop.) • 9% Hepatitis C (> 1% within the general population) • 36% report their health is fair to poor • 1/2 - 3/4 adults have limitations due to illness • First Nations men feel their health is better than women • 18% of First Nations women feel health is excellent/good vs 61% women within general population. Sunday, February 26, 2012 14
  • 15. Health Care Access “Our health deserves appropriate and dedicated care” Urgent need for improved health care access • 40% rate access to health care as fair to poor Barriers to care reported: • Long waiting lists - 48% • Access to transportation - 35% • Can’t afford direct costs - 32% • Doctors not available • 24% report a lack of trust in health care providers • Stigma & discrimination contributing role We need more Aboriginal people in health care, education, places where people are looking up to other people. More native role models.” Sunday, February 26, 2012 15
  • 16. Emergency Room Use First Nations more likely to use Emergency Room • Using emergency department for acute & non-acute illness • 50% report using ER in past year (22% general population) • 11% had more than 6 visits (< 2% general population) • ER use holds for both children and adults Children less likely to be admitted • Compared to non native children - lower rates of admission • With comparable or more severe symptoms of illness • Is there a systemic bias toward admitting non-native children? Sunday, February 26, 2012 16
  • 17. Challenges & Strengths Main challenges people identified • Drugs & alcohol are main concerns - 68% • Housing - 61% • Crime, poverty, & employment - 60% Community strengths • Strong family values - 53% • Awareness of First Nations culture - 41% • Community health programs/ traditional ceremonies - 38% • Presence of elders within community - 36% • Social connections within the community - 35% Sunday, February 26, 2012 17
  • 18. Reclaiming identity Strong sense of identity as First Nations people • Over 93% of people feel it is import/very import for their children learn their language and culture • 1/3 people report using traditional medicine • Hamilton’s First Nation’s community has remarkable cultural continuity, resilience & hope - despite alarming inequalities Sunday, February 26, 2012 18
  • 19. Whole Government Approach Problems facing Urban Aboriginals in Hamilton are complex Solutions require a whole government approach - working with First Nations leaders • Our Health Data demonstrates increasing disparities in the social determinants of health for urban Aboriginals • Needs inter sectorial partnerships to resolve • Requires urban Aboriginal specific, cultural based, community driven strategy • Address inequalities in accessing social determinants of health in accordance with human rights legislation (housing, food security) • Chronic disease & disability is disproportionally felt. Requires municipal & provincial governments working with Aboriginal community to set priorities, preventative action & health promotion plans Sunday, February 26, 2012 19
  • 20. Whole government cont... Work with Aboriginal community leaders municipal, provincial & federal governments to... • Collaborate to remove barriers to equitable access to community health care, emergency departments & inpatient hospital services • Fund the development & expansion of culturally reflective, community based traditional family treatment centres, mental & maternal health programs & services • Build cultural safety & competence skills recognizing Aboriginal world-view & healing practices • Promote self-determination in health care delivery, governance, research, planning, development, delivery & evaluation Sunday, February 26, 2012 20
  • 21. Child Health Approach Our children are our future... a shared commitment to their health & wellbeing is critical • Support children’s language & cultural programming - include Aboriginal organizations & school boards • Eliminate barriers to primary health care, reduce wait lists, target health concerns in culturally sensitive ways • Support First Nations families in parenting their children in culturally supportive ways • Accord Aboriginal children their human right to live in healthy homes & attend schools/ programs which do not worsen their health Sunday, February 26, 2012 21
  • 22. Research & Planning ‘Our Health Counts’ demonstrates that research can be done by Aboriginal people for the community’ benefit • Fund First Nations led applied service research • Planning is best done in respectful partnership • Support interagency collaboration & cooperation • Work with Aboriginal agencies & organizations to gain knowledge, promote self-determination in planning, design, development & delivery of culturally specific health services programs & policies Sunday, February 26, 2012 22