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Status epilepticus : Information for patients and 
families 
Vancouver General Hospital Intensive Care Unit 
Myp Sekhon MD 
Clinical Instructor, Staff Intensivist 
Division of Critical Care Medicine 
Vancouver General Hospital 
University of British Columbia
Outline 
Definitions 
Etiologies 
Pathophysiology 
Encephalitis 
Diagnosis 
Management 
Definition 
Seizure: This occurs when a part of or the patient’s whole 
body starts shaking uncontrollably 
The patient is usually not awake when this happens 
If it continues for more than 5 minutes without stopping 
then it is called “status epilepticus”
Outline 
Definitions 
Etiologies 
Pathophysiology 
Encephalitis 
Diagnosis 
Management 
Why is this happening? 
There is chaotic abnormal discharges or electricity in the 
brain which keeps activating all areas of the brain…”an 
electrical storm” 
The “electrical storm” keeps activating the brain which 
results in continued movements of the body 
Often, there may be continued “electrical storms” without 
the patient revealing any abnormal movements 
•This is called non-convulsive status epilepticus
Outline 
Definitions 
Etiologies 
Pathophysiology 
Encephalitis 
Diagnosis 
Management 
What is the cause? 
The most common is cause is non-compliance with anti-seizure 
medications if the patient has an underlying seizure 
related disease 
Other causes include: 
•Infections 
•Abnormalities in the salts in the blood 
•Drugs 
•Strokes 
•Cancer 
•Autoimmune diseases 
•Epilepsy (a primary disease of the brain which causes 
seizures)
Outline 
Definitions 
Etiologies 
Pathophysiology 
Encephalitis 
Diagnosis 
Management 
What to expect? 
If your family member has status epilepticus: 
•They will undergo tests to find the cause 
•These could include 
•Blood tests 
•CT or MRI scans of the brain 
•A “lumbar puncture” – a common test when a 
needle is inserted into the lower back to obtain 
some fluid which surrounds the brain. It helps to 
assess for an infection.
Outline 
Definitions 
Etiologies 
Pathophysiology 
Encephalitis 
Diagnosis 
Management 
What to expect? 
If your family member has status epilepticus: 
•He/she will be treated for an underlying cause (if 
found) 
•We treat patients with a combination of anti-seizure 
medications 
•Some of these medications are given intravenously 
which can heavily sedate patients 
•If patients require intravenous sedation then the 
breathing machine (ventilator) is used to help them 
breathe
Outline 
Definitions 
Etiologies 
Pathophysiology 
Encephalitis 
Diagnosis 
Management 
How do we know the patient is or 
is not seizing? 
We use a test called an EEG (electroencephalogram) 
During this test (which may be continuous), gel pads are 
attached to the patient’s scalp and a recording of electrical 
activity in the brain is gathered 
We may increase or decrease the anti-seizure medications 
based on the results
Outline 
Definitions 
Etiologies 
Pathophysiology 
Encephalitis 
Diagnosis 
Management 
What to expect? 
Once the patient is not seizing (based on the EEG), 
we will start to decrease the intravenous sedation 
medications 
If the patient wakes up without further seizures and is 
strong enough, we will take them off the ventilator 
The further that seizures keep ongoing, the more 
damage to the brain that will result

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Status epilepticus infor for patients and families

  • 1. Status epilepticus : Information for patients and families Vancouver General Hospital Intensive Care Unit Myp Sekhon MD Clinical Instructor, Staff Intensivist Division of Critical Care Medicine Vancouver General Hospital University of British Columbia
  • 2. Outline Definitions Etiologies Pathophysiology Encephalitis Diagnosis Management Definition Seizure: This occurs when a part of or the patient’s whole body starts shaking uncontrollably The patient is usually not awake when this happens If it continues for more than 5 minutes without stopping then it is called “status epilepticus”
  • 3. Outline Definitions Etiologies Pathophysiology Encephalitis Diagnosis Management Why is this happening? There is chaotic abnormal discharges or electricity in the brain which keeps activating all areas of the brain…”an electrical storm” The “electrical storm” keeps activating the brain which results in continued movements of the body Often, there may be continued “electrical storms” without the patient revealing any abnormal movements •This is called non-convulsive status epilepticus
  • 4. Outline Definitions Etiologies Pathophysiology Encephalitis Diagnosis Management What is the cause? The most common is cause is non-compliance with anti-seizure medications if the patient has an underlying seizure related disease Other causes include: •Infections •Abnormalities in the salts in the blood •Drugs •Strokes •Cancer •Autoimmune diseases •Epilepsy (a primary disease of the brain which causes seizures)
  • 5. Outline Definitions Etiologies Pathophysiology Encephalitis Diagnosis Management What to expect? If your family member has status epilepticus: •They will undergo tests to find the cause •These could include •Blood tests •CT or MRI scans of the brain •A “lumbar puncture” – a common test when a needle is inserted into the lower back to obtain some fluid which surrounds the brain. It helps to assess for an infection.
  • 6. Outline Definitions Etiologies Pathophysiology Encephalitis Diagnosis Management What to expect? If your family member has status epilepticus: •He/she will be treated for an underlying cause (if found) •We treat patients with a combination of anti-seizure medications •Some of these medications are given intravenously which can heavily sedate patients •If patients require intravenous sedation then the breathing machine (ventilator) is used to help them breathe
  • 7. Outline Definitions Etiologies Pathophysiology Encephalitis Diagnosis Management How do we know the patient is or is not seizing? We use a test called an EEG (electroencephalogram) During this test (which may be continuous), gel pads are attached to the patient’s scalp and a recording of electrical activity in the brain is gathered We may increase or decrease the anti-seizure medications based on the results
  • 8. Outline Definitions Etiologies Pathophysiology Encephalitis Diagnosis Management What to expect? Once the patient is not seizing (based on the EEG), we will start to decrease the intravenous sedation medications If the patient wakes up without further seizures and is strong enough, we will take them off the ventilator The further that seizures keep ongoing, the more damage to the brain that will result