This document provides an overview of a web-based tool that offers standardized community-based indicators for HIV programs. It addresses the need for guidance on indicators to evaluate community-level HIV program performance. The tool was developed by reviewing data collection tools from HIV programs in 8 countries and identifying the most commonly collected indicators. The tool includes 27 standardized indicators organized under key areas of community HIV implementation, along with detailed definitions and examples of data use.

1. Community-based
Indicators for HIV Programs
Jackie Hellen, MPH
MEASURE Evaluation
Palladium
July 31, 2018
WEBINAR

2. Overview of the collection
A web-based interactive tool that provides
community-based HIV programs with a list of
routine standardized indicators, detailed
indicator definitions and reference details,
examples of data use, additional resources,
and a means by provide feedback and
recommendations
Available at:
https://www.measureevaluation.org/community-based-indicators
Monitoring community HIV
programs

4. Addressing a need
• Community data is key to HIV programming
but access to quality data can be
complicated
• Lack of guidance on a set of standardized
indicators to evaluate HIV program performance
at community level
• Information collected primarily to inform reporting
requirements, not decision making
• Community-based information systems (CBIS)
often collect duplicative and poor-quality
information, cause high reporting burden for
community workers
at the community level

5. What do you mean by
Community-based HIV programs or program
components, implemented by government or
nongovernmental agencies, target the general
population, key populations, or vulnerable
children and their families in HIV prevention or
treatment interventions at the household and
individual levels through community workers
community-based HIV programs?

6. What do you mean by
A CBIS is a dynamic system that
includes information on how
data are collected, how they
flow, how to assess and improve
data quality, and how the
information is used. A CBIS
involves data collection,
management, and analysis of
health and related services
provided to communities outside
of facilities (de la Torre, 2014).
community-based information
systems?

7. What do you mean by
• Volunteer or non-volunteer
community health, extension, or
outreach workers
• Can also be called community
volunteers, agents, promoters, or
distributors
• Skilled birth attendants or midwives,
social service or case management
workers
• Key collectors of this data
• Provide household-level HIV care
and support
• Often members of the communities
that they support
• Often trained and supported by the
health or social service systems
community workers?

8. Background and Methods
In 2017-2018, MEASURE mapped
data elements from data
collection tools used at the
community level by HIV
programs in Nigeria, Ethiopia,
South Africa, Uganda, Kenya,
Côte d’Ivoire, the Democratic
Republic of the Congo, and
Botswana.
We examined registers, home
visit and household data
collection sheets, referral forms,
and checklists from key
population, vulnerable children,
outreach, and HIV prevention,
care, and treatment programs
used at the community level.

10. Methods step by step
1. Reached out to governmental partners and
implementing partners in each country
2. Collected data collection tools used at community
level for HIV programs
3. Extracted all data elements from the tools in Excel
database
4. Recorded data elements by source and number of
times collected
5. Identified the most commonly collected data
elements
6. Sent to partners for feedback
7. Transformed final data elements into list of
indicators
8. Created performance indicator reference sheets
per indicator

12. Summary List
27 indicators are
categorized in the
summary list by areas of
community-based HIV
program implementation:
1. Vulnerable children
2. Prevention of mother-to-
child transmission
3. Key populations
4. HIV prevention
5. Home-based care

13. implementation
Areas of program

14. Clicking on an indicator brings users
to indicator definitions based on
USAID’s performance indicator
reference sheets. Indicators were
designed for data collection by
community programs and agents.
Definitions include:
• How to use the indicator
• Numerator
• Unit of measure
• Calculation
• Method of measurement
• Data source
• Disaggregation
• Data quality considerations
• Reporting frequency
• Data element
• Category
• References and additional resources
Reference sheets
Performance Indicator

15. Data use cases
We also reached out to
partners to learn about
instances where community-
based HIV data informed
programmatic actions,
plans, or decisions. These
decisions led to reallocation
of project inputs or could be
attributed to improved
outputs or outcomes.
Are there examples of data
use for these indicators?
Source: L10K Project, JSI

16. Conceptual framework
for community-based HIV
program data demand and use

17. Thank you….
Any questions?
For any additional questions,
please contact either myself
(Jackie.hellen@thepalladiugroup.com) or Dawne
Walker (dawne.walker@thepalladiumgroup.com).

18. This presentation was produced with the support of the United States
Agency for International Development (USAID) under the terms of
MEASURE Evaluation cooperative agreement AID-OAA-L-14-00004.
MEASURE Evaluation is implemented by the Carolina Population
Center, University of North Carolina at Chapel Hill in partnership with
ICF International; John Snow, Inc.; Management Sciences for Health;
Palladium; and Tulane University. Views expressed are not necessarily
those of USAID or the United States government.
www.measureevaluation.org