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MAX MOLLON
CONFLICTUAL DESIGN ARTEFACTS REVEAL VERTICAL POWER RELATIONSHIPS
PHD THESIS : 

BRIDGING THROUGH BREACHING, DESIGNED PROVOCATION AS A MEANS FOR PARTICIPATION

SUPERVISION
ANNIE GENTES – TELECOM PARISTECH

EMMANUEL MAHÉ – ENSADLAB

REMY BOURGANEL
2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS
AND POWER – SCHOOL OF ARTS AND COMMUNICATION (K3), MALMÖ
UNIVERSITY – SWEDEN
2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ
UNIVERSITY – SWEDEN – MAX MOLLON
2
PAPER ’S ABSTRACT
(Find the paper on https://ensad-fr.academia.edu/MaxMollon)
Contemporary issues of occidental society are multi-faceted and
addressing them needs bringing multiple points of views around the
table. However, making every voices heard is a challenge, especially
the ones in the margins. On the other hand, the concept of
intersectionality allows to consider how various categories –
including sectarian ones as race, gender, age, ability… –
simultaneously compose traits of one's identity. Here, rather than
focusing on identity constitution or intersections of various
categories, I address “domination” as a common attribute to these
vertical relationships. In fact, many of these oppressions remain
silent, because of being untold, unthought-of or unknown. They
remain embedded and hidden in everyday life and everyday objects.
Indeed, human-made objects often support these state of power –
as they involve many actors and assumptions in their making and
using. But they can also allow to identify them and to interfere with
them, opening a space for horizontal discussion. I argue that
“Speculative and Critical Design” (SCD) artefacts have this potential
when bringing a state of “dissensus”.
3
4
5
6
– “Pourquoi un tel calendrier ?”
– “Pourquoi ces couleurs et ce dégradé ?”
– “Qui est le designer, vous ?”
– “Pourquoi un tel calendrier ?”
– “Pourquoi ces couleurs et ce dégradé ?”
– “Qui est le designer, vous ?”
12PLEASE CHECK THE VIDEO:VIMEO.COM/MAXMOLLON/EPHEMERIDE
Et si les pages noires c’était la nuit ? J’y collerai des étoiles et des lunes…
J’avais tellement hâte des pages noires, j’ai déjà acheté mon stylo argenté, j’adore l’argenté !
Pour moi c’est comme un aiguillon, un défi que je me fixe, à relever chaque jours
Je m’en sers comme aide-mémoire ou carnet intime et parfois, j’y découvre un message à mon attention
À lui même
ÉTAT D’ESPRIT
FACE À SA MALADIE
ESPÉRER
(UNE AMÉLIORATION)
NE PLUS ATTENDRE
RÉAGIR
REPRENDRE
LE CONTRÔLE
DEVENIR ACTEUR
PLUTÔT QUE SPECTATEUR
ATTE
PASSIV
EN
LA PR
L’IMPU
ET LE D
VIVRE DANS
L’URGENCE
CONTRAINT À VIVRE
DANS LE PRÉSENT
VIVRE OU SURVIVRE
COURSE CONTRE
LE TEMPS
FAIRE
LE BILAN
PRESSION SOCIALE
D’UNE DEADLINE IMAGINAIRE
TOUT CHANGER POUR
FAIRE CE QUI PLAIT
S’AFFRANCHIR
DU TEMPS
LIBERTÉ
PRENDRE LE TEMPS
VIVRE NORMALEMENT
DANS L’INSTANT PRÉSENT
SE
SOUVENIR
COMPTER
LE NOMBRE D’ANNÉES DE MALADIE COMME
UN POINT DE REPÈRE, DE COMPARAISON
ENLISEMENT DANS LE PASSÉ
DÉNI DU DIAGNOSTIC
Le rapport au temps,
différent pour chaque personne
malade d’une MND,
influence sa relation :
N O N - A N T I C I PAT I O N
( PA S S É I S M E &
P R É S E N T I S M E )
L’un des points communs
aux différentes maladies neuro-dégénératives (MND)
réside dans leur chronicité,
l’évolution connue de la pathologie
implique un rapport particulier
au temps :
CE SUCE SUCE SUCE SUCE SU
À lui même
IDENTITÉ
VALEURS
IMAGE
DE SOI
ÉTAT D’ESPRIT
FACE À SA MALADIE
À l’autre
(proche ou non)
Aux
institutions
LA CITÉ :
BANQUES
ASSURANCES
ASSOCIATIONS
METIER
QUELS RESPECT
DES DROITS
ET DEVOIRS ?
ÉDUQUER
CONTRE L’INDIFFÉRENCE
ÉVITER L’ISOLEMENT ET
LE CLOISONNEMENT
(GHETTOÏSATION)
DES PATIENTS
L’AIDE
OU LA MALTRAITANCE
L’AIDE EST PERÇUE COMME :
UN ENRICHISSEMENT
UNE AVENTURE HUMAINE
UN AMOUR
UNE COOPÉRATION
(UNE AIDE MUTUELLE)
UNE MÉDIATION
UNE HIÉRARCHIE
UNE INTRUSION
APPRENDRE À ÊTRE AIDÉ
ET CHOISIR COMMENT
LA DÉPENDANCE
AIMANT / AIDANT / EXPERT
SOUTENIR LES AIDANTS
CULTURE DU RÉPIT
À PROMOUVOIR
LA DIFFÉRENCE
OU LA RESSEMBLANCE
FRATERNITÉ
PROXIMITÉ INTRINSÈQUE AVEC CEUX
QUI PARTAGENT LA MÊME MALADIE
ENTRE COMPLÉMENTARITÉ
ET COMPARAISON
AVEC L’AUTRE
LIMITES DE L’EMPATHIE
IMPOSSIBLE DE RESSENTIR
CE QUE VIE AUTRUI
RÉCONCILIATION
AVEC SA PROPRE HISTOIRE
SON PASSÉ
SA CULTURE
LÂCHER PRISE
ENVERS L’ÉPHÉMÈRE
QUELLE VALEUR
DONNÉE À LA VIE
CONFLIT AVEC L’ANCIEN
SYSTÈME DE VALEURS
ÊTRE DANS
LA DÉGÉNÉRESCENCE
OU L’EVOLUTION
(INFLUENCE DES CRISES)
ÊTRE AIDÉ
OU COLLABORER
ÊTRE DANS
LA PERTE
OU LE GAIN
(ÉLOGE DE LA LENTEUR)
RECONQUÊTE
FACE À L’INCONNU
APPROPRIATION
COLLOCATAIRE DE SA MALADIE
HABITER LA MALADIE
VIVRE À 3 AVEC ELLE ET L’AIDANT
NIER
CACHER
RÉSISTER
COMBATTRE
S’ADAPTER
RÉSILIENCE : VIVRE AVEC,
RECONQUÊTE FACE À L’ÉTRANGER
IMPACT DES
ÉMOTIONS
ET PSYCHOLOGIE
ANXIÉTÉ
FRUSTRATION
ÉPANOUISSEMENT
BONHEUR
(PENSÉE POSITIVE)
LE REGARD
DES TABOUS
AUX STIGMATISATIONS
DE L’EMPATHIE
AUX A-PRIORI
PARTAGE
DES MÊMES VALEURS
ESPÉRER
(UNE AMÉLIORATION)
NE PLUS ATTENDRE
RÉAGIR
REPRENDRE
LE CONTRÔLE
DEVENIR ACTEUR
PLUTÔT QUE SPECTATEUR
ATTENDRE
PASSIVEMENT
ENTRE
LA PRUDENCE
L’IMPUISSANCE
ET LE DÉSESPOIR PRÉVOIR
PLANIFIER
LES CONSÉQUENCES
DES ÉVOLUTIONS
À VENIR
VIVRE DANS
L’URGENCE
CONTRAINT À VIVRE
DANS LE PRÉSENT
VIVRE OU SURVIVRE
COURSE CONTRE
LE TEMPS
FAIRE
LE BILAN
PRESSION SOCIALE
D’UNE DEADLINE IMAGINAIRE
TOUT CHANGER POUR
FAIRE CE QUI PLAIT
S’AFFRANCHIR
DU TEMPS
LIBERTÉ
PRENDRE LE TEMPS
VIVRE NORMALEMENT
DANS L’INSTANT PRÉSENT
SE
SOUVENIR
COMPTER
LE NOMBRE D’ANNÉES DE MALADIE COMME
UN POINT DE REPÈRE, DE COMPARAISON
ENLISEMENT DANS LE PASSÉ
DÉNI DU DIAGNOSTIC
Le rapport au temps,
différent pour chaque personne
malade d’une MND,
influence sa relation :
Carte MND & société
THÉMATIQUES ÉTHIQUES ET SOCIÉTALES
CHÈRES AUX COMMUNAUTÉS MND
A N T I C I PAT I O N S
P R E D I C T I V E , A D A P TAT I V E
E T P R OJ E C T I V E
N O N - A N T I C I PAT I O N
( PA S S É I S M E &
P R É S E N T I S M E )
Un outils favorisant l’échange :
Rassembler les thématiques éthiques et sociales proches des
intérêts des communautés MND, permet d’articuler des
discussions entre les points de vus de chacun.
Cette initiative est susceptible de faire mieux apparaître les
enjeux d’une implication concrète de la réflexion éthique au
regard de la diversité des réalités que recouvrent les MND.
Patients, aidants, soignants et personnes intéressées se sont
réunies lors de l’université d’été de l’EREMAND le 15/09/2015
(Espace de réflexion éthique sur les maladies d’Alzheimer et
neuro-dégénératives). Lors de ce tout premier Atelier de création
éthique ils ont participés collectivement au projet
d’identification et d’exploration des questions éthiques, mené
par dans le cadre du Plan MND 2014/2019.
À vous de jouer :
Vous êtes invité à imprimer cette carte au format A3 et à
organiser vous même des évènements collectifs (réunions,
discussions, débats…) afin d’ouvrir des discussions, aider à
l’inter-compréhension et nous faire parvenir vos réactions sur la
carte. Elle est destinée à être complétée et transformée, au grès
de ces retours. Ainsi, elle contribue de manière collective et
dynamique à la réflexion de l’Espace Éthique.
Retourner la carte et/ou vous commentaires à :
info@espace-ethique.fr ou par courrier, Espace éthique – CHU
Saint-Louis – 75475 Paris Cedex 10.
Initiative portée par l’Espace de réflexion éthique région
Ile-de-France et par l’Espace national de réflexion MND.
Démarche inspirée et acompagnée par Max Mollon du studio de
design spéculatif:What if?
Poster transformable et réutilisable en licence Creative Commons
. Auteur = “Max Mollon pour Espace Éthique Île-de-France”
À noter, tous ces enjeux
évoluent dans le temps :
t
WHAT IF?
SPECULATIVE DESIGN STUDIO
&
18
ÉQUIPE
Max Mollon (Design)
Victoria Darves-Bornoz (film), Alexandre Mayeur (photographie), 

Gautier Mallet et Réanne Clot (assistance conception)
REMERCIEMENTS
Françoise Maillard, Émilie Hermant, Magali T,
Alexandre Descamps, Samuel Huron, Tiphaine Kazi-Tani, Pierrick Thébaut, Jeremy Boy,
Elfie Mahé, Pauline Gourlet, Thomas et la famille Lelouch, Emmanuel Hirsch 

et l’équipe de l’Espace Éthique, Annie Gentes et l’équipe de recherche doctorale 

de Telecom-ParisTech et de SACRe/ EnsadLab, Espacerepro.fr (imprimerie, Nantes)
2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ
UNIVERSITY – SWEDEN – MAX MOLLON
19
A RESEARCHER LOOK AT THE PROJECT:
ON DESIGN CHOICES MADE TO MASTER THE ART OF SUBTILE-PROVOCATION
2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ
UNIVERSITY – SWEDEN – MAX MOLLON
20
EXPERIMENTATION1/3
2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ
UNIVERSITY – SWEDEN – MAX MOLLON
21
EXPERIMENTATION1/3
2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ
UNIVERSITY – SWEDEN – MAX MOLLON
22
EMPIRICAL RESULTS2/3
1. Participants proposed to redesign
• ›› “Unacceptable objects” – complementary to intermediary ones
2. Provocation needs not only balance – it dependent on context
• ›› The “context of reception” also needs to be designed
• ›› Spectators are the actual user
• ›› They mobilise audiences / construct publics 

…

3. Artefacts’ cristallise dominations and make them accessible
(instead of supporting them or avoiding them) 

…

4.A conflict with the object, a dialogue with others
• Patients—experts dialogue (despite ethics commission’s boss) 

…
2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ
UNIVERSITY – SWEDEN – MAX MOLLON
25
EMPIRICAL RESULTS2/3
1. Participants proposed to redesign
• ›› “Unacceptable objects” – complementary to intermediary ones
2. Provocation needs not only balance – it dependent on context
• ›› The “context of reception” also needs to be designed
• ›› Spectators are the actual user
• ›› They mobilise audiences / construct publics 

(Dewey-›Disalvo’s public construction, Mouffe’s affects)

3. Artefacts’ cristallise dominations and make them accessible
(instead of supporting them or avoiding them) 

(Mouffe-›Disalvo’s remainder reconfiguration)

4.A conflict with the object, a dialogue with others
2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ
UNIVERSITY – SWEDEN – MAX MOLLON
27
DISCUSSION › THEORETICAL DIRECTIONS3/3
Seating in-between
• Esteban Muñoz’s Disidentification: minority (i.e. queer people of
colour), negotiate identity in a majoritarian world – does not
assimilate (identify) nor reject (counter identify) › working on,
with and against.
• Moraga & Anzaldúa’s “This bridge called my back” – feeling of
belonging to two origins and fitting to none of them
• Connecting deaf hears and mute mouths

Breaching the norms
• L’Éphéméride supports a political position which is under-
represented › Disalvo’s remainder.
• It is like Garfinkel's “breaching experiment” but triggered with an
artefact (techno methodology)
• Conflict with the object & dialogue with others
2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ
UNIVERSITY – SWEDEN – MAX MOLLON
30
LIMITS
• Needs more analysis to show the domination between ethics boss
& participants
• The artefact creates a discussion on fatalism, and not about
domination (which is analysed afterward)
• The theoretical references are not mobilised in the practical work –
but they are keys to read the work afterwards.

I.e. Needs a reflection on ANT ActorNetworkTheory, Hermeneutic
Phenomenology and “time decolonisation” in speculative design.
2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ
UNIVERSITY – SWEDEN – MAX MOLLON
31
Q&A FROM THE SYMPOSIUM:
This paper’s presentation triggered questions =
• on the decolonialisation of time (in SCD). This is not addressed in
this project because my practice of SCD, here, speculates in an
alternative present. Also, the decolonialisation of time’s linear
representation is not the main point of this research. It is rather
used as a caricature, through the L’Éphéméride artefact, in order to
start actual discussions of representations shifts (of the whole
disease, including time) between patients and so called experts.
• on the teaching of SCD. Is it really relevant if freshly graduated
designers can not use SCD in a conventional (non-SCD) company?
What space for designers as game-changers in society?
Participants proposed that designers’ activism intentions may be
hidden until being in a power position, in oder to steer, advise and
impact companies strategies – even at the scale of mere graphic
design choices, or reframing the brief. I argue that designers could
either not hide and get fired, or not use their title and work in other
fields, where designers are not expected, but where there is room
(and need) for critique, debate, and mutual understanding.
MAX MOLLON
CONFLICTUAL DESIGN ARTEFACTS REVEAL VERTICAL POWER RELATIONSHIPS
THÈSE : 

BRIDGING THROUGH BREACHING, DESIGNED PROVOCATION AS A MEANS FOR PARTICIPATION

SUPERVISION
ANNIE GENTES – TELECOM PARISTECH

EMMANUEL MAHÉ – ENSADLAB

REMY BOURGANEL
2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS
AND POWER – SCHOOL OF ARTS AND COMMUNICATION (K3), MALMÖ
UNIVERSITY – SWEDEN
TACK
2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ
UNIVERSITY – SWEDEN – MAX MOLLON
33
PICTURES OF THE EVENT
©LUIZA PRADO
(2016) Conflictual design artefacts reveal vertical power relationships (work in progress)
(2016) Conflictual design artefacts reveal vertical power relationships (work in progress)
(2016) Conflictual design artefacts reveal vertical power relationships (work in progress)

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Mais de Max Mollon (11)

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(2015) Speculation and the uncanny, design approaches to probe the acceptable
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(2015) Designing to trigger reflection: state of my telepresence researches
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(2015) The three stances of the designer in a research team – At EAD#11
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(2014) The Rhetoric of Design for Debate: triggering conversation with an “un...
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(2011) Introducing the Abysses Project from Salone del Mobile de Milano 2010
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EnsadLab Design & Research Seminar
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(2016) Conflictual design artefacts reveal vertical power relationships (work in progress)

  • 1. MAX MOLLON CONFLICTUAL DESIGN ARTEFACTS REVEAL VERTICAL POWER RELATIONSHIPS PHD THESIS : 
 BRIDGING THROUGH BREACHING, DESIGNED PROVOCATION AS A MEANS FOR PARTICIPATION
 SUPERVISION ANNIE GENTES – TELECOM PARISTECH
 EMMANUEL MAHÉ – ENSADLAB
 REMY BOURGANEL 2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – SCHOOL OF ARTS AND COMMUNICATION (K3), MALMÖ UNIVERSITY – SWEDEN
  • 2. 2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ UNIVERSITY – SWEDEN – MAX MOLLON 2 PAPER ’S ABSTRACT (Find the paper on https://ensad-fr.academia.edu/MaxMollon) Contemporary issues of occidental society are multi-faceted and addressing them needs bringing multiple points of views around the table. However, making every voices heard is a challenge, especially the ones in the margins. On the other hand, the concept of intersectionality allows to consider how various categories – including sectarian ones as race, gender, age, ability… – simultaneously compose traits of one's identity. Here, rather than focusing on identity constitution or intersections of various categories, I address “domination” as a common attribute to these vertical relationships. In fact, many of these oppressions remain silent, because of being untold, unthought-of or unknown. They remain embedded and hidden in everyday life and everyday objects. Indeed, human-made objects often support these state of power – as they involve many actors and assumptions in their making and using. But they can also allow to identify them and to interfere with them, opening a space for horizontal discussion. I argue that “Speculative and Critical Design” (SCD) artefacts have this potential when bringing a state of “dissensus”.
  • 3. 3
  • 4. 4
  • 5. 5
  • 6. 6
  • 7.
  • 8.
  • 9.
  • 10. – “Pourquoi un tel calendrier ?” – “Pourquoi ces couleurs et ce dégradé ?” – “Qui est le designer, vous ?”
  • 11. – “Pourquoi un tel calendrier ?” – “Pourquoi ces couleurs et ce dégradé ?” – “Qui est le designer, vous ?”
  • 12. 12PLEASE CHECK THE VIDEO:VIMEO.COM/MAXMOLLON/EPHEMERIDE
  • 13. Et si les pages noires c’était la nuit ? J’y collerai des étoiles et des lunes…
  • 14. J’avais tellement hâte des pages noires, j’ai déjà acheté mon stylo argenté, j’adore l’argenté !
  • 15. Pour moi c’est comme un aiguillon, un défi que je me fixe, à relever chaque jours
  • 16. Je m’en sers comme aide-mémoire ou carnet intime et parfois, j’y découvre un message à mon attention
  • 17. À lui même ÉTAT D’ESPRIT FACE À SA MALADIE ESPÉRER (UNE AMÉLIORATION) NE PLUS ATTENDRE RÉAGIR REPRENDRE LE CONTRÔLE DEVENIR ACTEUR PLUTÔT QUE SPECTATEUR ATTE PASSIV EN LA PR L’IMPU ET LE D VIVRE DANS L’URGENCE CONTRAINT À VIVRE DANS LE PRÉSENT VIVRE OU SURVIVRE COURSE CONTRE LE TEMPS FAIRE LE BILAN PRESSION SOCIALE D’UNE DEADLINE IMAGINAIRE TOUT CHANGER POUR FAIRE CE QUI PLAIT S’AFFRANCHIR DU TEMPS LIBERTÉ PRENDRE LE TEMPS VIVRE NORMALEMENT DANS L’INSTANT PRÉSENT SE SOUVENIR COMPTER LE NOMBRE D’ANNÉES DE MALADIE COMME UN POINT DE REPÈRE, DE COMPARAISON ENLISEMENT DANS LE PASSÉ DÉNI DU DIAGNOSTIC Le rapport au temps, différent pour chaque personne malade d’une MND, influence sa relation : N O N - A N T I C I PAT I O N ( PA S S É I S M E & P R É S E N T I S M E ) L’un des points communs aux différentes maladies neuro-dégénératives (MND) réside dans leur chronicité, l’évolution connue de la pathologie implique un rapport particulier au temps : CE SUCE SUCE SUCE SUCE SU À lui même IDENTITÉ VALEURS IMAGE DE SOI ÉTAT D’ESPRIT FACE À SA MALADIE À l’autre (proche ou non) Aux institutions LA CITÉ : BANQUES ASSURANCES ASSOCIATIONS METIER QUELS RESPECT DES DROITS ET DEVOIRS ? ÉDUQUER CONTRE L’INDIFFÉRENCE ÉVITER L’ISOLEMENT ET LE CLOISONNEMENT (GHETTOÏSATION) DES PATIENTS L’AIDE OU LA MALTRAITANCE L’AIDE EST PERÇUE COMME : UN ENRICHISSEMENT UNE AVENTURE HUMAINE UN AMOUR UNE COOPÉRATION (UNE AIDE MUTUELLE) UNE MÉDIATION UNE HIÉRARCHIE UNE INTRUSION APPRENDRE À ÊTRE AIDÉ ET CHOISIR COMMENT LA DÉPENDANCE AIMANT / AIDANT / EXPERT SOUTENIR LES AIDANTS CULTURE DU RÉPIT À PROMOUVOIR LA DIFFÉRENCE OU LA RESSEMBLANCE FRATERNITÉ PROXIMITÉ INTRINSÈQUE AVEC CEUX QUI PARTAGENT LA MÊME MALADIE ENTRE COMPLÉMENTARITÉ ET COMPARAISON AVEC L’AUTRE LIMITES DE L’EMPATHIE IMPOSSIBLE DE RESSENTIR CE QUE VIE AUTRUI RÉCONCILIATION AVEC SA PROPRE HISTOIRE SON PASSÉ SA CULTURE LÂCHER PRISE ENVERS L’ÉPHÉMÈRE QUELLE VALEUR DONNÉE À LA VIE CONFLIT AVEC L’ANCIEN SYSTÈME DE VALEURS ÊTRE DANS LA DÉGÉNÉRESCENCE OU L’EVOLUTION (INFLUENCE DES CRISES) ÊTRE AIDÉ OU COLLABORER ÊTRE DANS LA PERTE OU LE GAIN (ÉLOGE DE LA LENTEUR) RECONQUÊTE FACE À L’INCONNU APPROPRIATION COLLOCATAIRE DE SA MALADIE HABITER LA MALADIE VIVRE À 3 AVEC ELLE ET L’AIDANT NIER CACHER RÉSISTER COMBATTRE S’ADAPTER RÉSILIENCE : VIVRE AVEC, RECONQUÊTE FACE À L’ÉTRANGER IMPACT DES ÉMOTIONS ET PSYCHOLOGIE ANXIÉTÉ FRUSTRATION ÉPANOUISSEMENT BONHEUR (PENSÉE POSITIVE) LE REGARD DES TABOUS AUX STIGMATISATIONS DE L’EMPATHIE AUX A-PRIORI PARTAGE DES MÊMES VALEURS ESPÉRER (UNE AMÉLIORATION) NE PLUS ATTENDRE RÉAGIR REPRENDRE LE CONTRÔLE DEVENIR ACTEUR PLUTÔT QUE SPECTATEUR ATTENDRE PASSIVEMENT ENTRE LA PRUDENCE L’IMPUISSANCE ET LE DÉSESPOIR PRÉVOIR PLANIFIER LES CONSÉQUENCES DES ÉVOLUTIONS À VENIR VIVRE DANS L’URGENCE CONTRAINT À VIVRE DANS LE PRÉSENT VIVRE OU SURVIVRE COURSE CONTRE LE TEMPS FAIRE LE BILAN PRESSION SOCIALE D’UNE DEADLINE IMAGINAIRE TOUT CHANGER POUR FAIRE CE QUI PLAIT S’AFFRANCHIR DU TEMPS LIBERTÉ PRENDRE LE TEMPS VIVRE NORMALEMENT DANS L’INSTANT PRÉSENT SE SOUVENIR COMPTER LE NOMBRE D’ANNÉES DE MALADIE COMME UN POINT DE REPÈRE, DE COMPARAISON ENLISEMENT DANS LE PASSÉ DÉNI DU DIAGNOSTIC Le rapport au temps, différent pour chaque personne malade d’une MND, influence sa relation : Carte MND & société THÉMATIQUES ÉTHIQUES ET SOCIÉTALES CHÈRES AUX COMMUNAUTÉS MND A N T I C I PAT I O N S P R E D I C T I V E , A D A P TAT I V E E T P R OJ E C T I V E N O N - A N T I C I PAT I O N ( PA S S É I S M E & P R É S E N T I S M E ) Un outils favorisant l’échange : Rassembler les thématiques éthiques et sociales proches des intérêts des communautés MND, permet d’articuler des discussions entre les points de vus de chacun. Cette initiative est susceptible de faire mieux apparaître les enjeux d’une implication concrète de la réflexion éthique au regard de la diversité des réalités que recouvrent les MND. Patients, aidants, soignants et personnes intéressées se sont réunies lors de l’université d’été de l’EREMAND le 15/09/2015 (Espace de réflexion éthique sur les maladies d’Alzheimer et neuro-dégénératives). Lors de ce tout premier Atelier de création éthique ils ont participés collectivement au projet d’identification et d’exploration des questions éthiques, mené par dans le cadre du Plan MND 2014/2019. À vous de jouer : Vous êtes invité à imprimer cette carte au format A3 et à organiser vous même des évènements collectifs (réunions, discussions, débats…) afin d’ouvrir des discussions, aider à l’inter-compréhension et nous faire parvenir vos réactions sur la carte. Elle est destinée à être complétée et transformée, au grès de ces retours. Ainsi, elle contribue de manière collective et dynamique à la réflexion de l’Espace Éthique. Retourner la carte et/ou vous commentaires à : info@espace-ethique.fr ou par courrier, Espace éthique – CHU Saint-Louis – 75475 Paris Cedex 10. Initiative portée par l’Espace de réflexion éthique région Ile-de-France et par l’Espace national de réflexion MND. Démarche inspirée et acompagnée par Max Mollon du studio de design spéculatif:What if? Poster transformable et réutilisable en licence Creative Commons . Auteur = “Max Mollon pour Espace Éthique Île-de-France” À noter, tous ces enjeux évoluent dans le temps : t WHAT IF? SPECULATIVE DESIGN STUDIO &
  • 18. 18 ÉQUIPE Max Mollon (Design) Victoria Darves-Bornoz (film), Alexandre Mayeur (photographie), 
 Gautier Mallet et Réanne Clot (assistance conception) REMERCIEMENTS Françoise Maillard, Émilie Hermant, Magali T, Alexandre Descamps, Samuel Huron, Tiphaine Kazi-Tani, Pierrick Thébaut, Jeremy Boy, Elfie Mahé, Pauline Gourlet, Thomas et la famille Lelouch, Emmanuel Hirsch 
 et l’équipe de l’Espace Éthique, Annie Gentes et l’équipe de recherche doctorale 
 de Telecom-ParisTech et de SACRe/ EnsadLab, Espacerepro.fr (imprimerie, Nantes)
  • 19. 2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ UNIVERSITY – SWEDEN – MAX MOLLON 19 A RESEARCHER LOOK AT THE PROJECT: ON DESIGN CHOICES MADE TO MASTER THE ART OF SUBTILE-PROVOCATION
  • 20. 2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ UNIVERSITY – SWEDEN – MAX MOLLON 20 EXPERIMENTATION1/3
  • 21. 2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ UNIVERSITY – SWEDEN – MAX MOLLON 21 EXPERIMENTATION1/3
  • 22. 2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ UNIVERSITY – SWEDEN – MAX MOLLON 22 EMPIRICAL RESULTS2/3 1. Participants proposed to redesign • ›› “Unacceptable objects” – complementary to intermediary ones 2. Provocation needs not only balance – it dependent on context • ›› The “context of reception” also needs to be designed • ›› Spectators are the actual user • ›› They mobilise audiences / construct publics 
 …
 3. Artefacts’ cristallise dominations and make them accessible (instead of supporting them or avoiding them) 
 …
 4.A conflict with the object, a dialogue with others • Patients—experts dialogue (despite ethics commission’s boss) 
 …
  • 23. 2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ UNIVERSITY – SWEDEN – MAX MOLLON 25 EMPIRICAL RESULTS2/3 1. Participants proposed to redesign • ›› “Unacceptable objects” – complementary to intermediary ones 2. Provocation needs not only balance – it dependent on context • ›› The “context of reception” also needs to be designed • ›› Spectators are the actual user • ›› They mobilise audiences / construct publics 
 (Dewey-›Disalvo’s public construction, Mouffe’s affects)
 3. Artefacts’ cristallise dominations and make them accessible (instead of supporting them or avoiding them) 
 (Mouffe-›Disalvo’s remainder reconfiguration)
 4.A conflict with the object, a dialogue with others
  • 24. 2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ UNIVERSITY – SWEDEN – MAX MOLLON 27 DISCUSSION › THEORETICAL DIRECTIONS3/3 Seating in-between • Esteban Muñoz’s Disidentification: minority (i.e. queer people of colour), negotiate identity in a majoritarian world – does not assimilate (identify) nor reject (counter identify) › working on, with and against. • Moraga & Anzaldúa’s “This bridge called my back” – feeling of belonging to two origins and fitting to none of them • Connecting deaf hears and mute mouths
 Breaching the norms • L’Éphéméride supports a political position which is under- represented › Disalvo’s remainder. • It is like Garfinkel's “breaching experiment” but triggered with an artefact (techno methodology) • Conflict with the object & dialogue with others
  • 25. 2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ UNIVERSITY – SWEDEN – MAX MOLLON 30 LIMITS • Needs more analysis to show the domination between ethics boss & participants • The artefact creates a discussion on fatalism, and not about domination (which is analysed afterward) • The theoretical references are not mobilised in the practical work – but they are keys to read the work afterwards.
 I.e. Needs a reflection on ANT ActorNetworkTheory, Hermeneutic Phenomenology and “time decolonisation” in speculative design.
  • 26. 2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ UNIVERSITY – SWEDEN – MAX MOLLON 31 Q&A FROM THE SYMPOSIUM: This paper’s presentation triggered questions = • on the decolonialisation of time (in SCD). This is not addressed in this project because my practice of SCD, here, speculates in an alternative present. Also, the decolonialisation of time’s linear representation is not the main point of this research. It is rather used as a caricature, through the L’Éphéméride artefact, in order to start actual discussions of representations shifts (of the whole disease, including time) between patients and so called experts. • on the teaching of SCD. Is it really relevant if freshly graduated designers can not use SCD in a conventional (non-SCD) company? What space for designers as game-changers in society? Participants proposed that designers’ activism intentions may be hidden until being in a power position, in oder to steer, advise and impact companies strategies – even at the scale of mere graphic design choices, or reframing the brief. I argue that designers could either not hide and get fired, or not use their title and work in other fields, where designers are not expected, but where there is room (and need) for critique, debate, and mutual understanding.
  • 27. MAX MOLLON CONFLICTUAL DESIGN ARTEFACTS REVEAL VERTICAL POWER RELATIONSHIPS THÈSE : 
 BRIDGING THROUGH BREACHING, DESIGNED PROVOCATION AS A MEANS FOR PARTICIPATION
 SUPERVISION ANNIE GENTES – TELECOM PARISTECH
 EMMANUEL MAHÉ – ENSADLAB
 REMY BOURGANEL 2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – SCHOOL OF ARTS AND COMMUNICATION (K3), MALMÖ UNIVERSITY – SWEDEN TACK
  • 28. 2016.NOV.14-15 – INTERSECTIONAL PERSPECTIVES ON DESIGN, POLITICS AND POWER – K3, MALMÖ UNIVERSITY – SWEDEN – MAX MOLLON 33 PICTURES OF THE EVENT
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