The document discusses the role of an informationist in supporting clinical research teams. It describes how an informationist was integrated into a breast cancer screening study to improve communication within the team about data, articulate technology issues, and enhance the information skills of team members. The informationist developed resources like a data dictionary, conducted literature reviews, and assisted with systematic reviews and knowledge management. The document also discusses how an informationist provided consultation, collaboration, and dissemination services to a community engagement research group by developing best practices guides, tools for knowledge sharing, and measuring research impact.
2. In an epic battle between
Hollywood and
healthcare,
the question remains…
Who will win?
^PowerPoint presentation
3. These new professionals might be called
informationists (not a graceful term, but one
that parallels such terms as gastroenterologists
or hospitalists), or clinical knowledge workers
(in parallel with social workers).
4. The informationist programme was designed to
integrate information services, not just
resources, into the workplace of NIH clinical
and bench scientists and science
administrators.
Whitmore, S.C., Grefsheim, S.F., & Rankin, J.A. (2008) Informationist programme in support of biomedical resear
a programme description and preliminary findings of an evaluation, Health Information & Libraries Journal,
25(2), p. 135-141.
WOW! I never have to
go to the library again!
6. Librarian
Expert in health information resources
Collection development
General reference
assistance
Instruction
Searching assistance
Informationist
Expert in health information resources
and extensive domain knowledge
Consultation services
Database training
Systematic review
Knowledge management
Writing
T
O
7. The Informationist in Real Life
Study:
R01 CA-132935
Promoting Breast Cancer Screening in Non-Adherent Women
Principal Investigators:
• Roger Luckmann, MD
• Mary Costanza, MD
+
+
8. UMass Medical School
Family & Community
Medicine
Principal Investigator
Project Director
Scheduler, Counselor Instructor
Administrative Secretary
Medicine
Principal Investigator
Behavioral Psychologist
Biostatistics
Biostatistician
Analyst
Center for Health Policy &
Research
Director, Expert in Cost Analysis
Research Assistant
Library
Informationist
Fallon Community Health Plan
Claims Data Representative
Reliant Medical Group
Research Director
Research Coordinator
Site Project Director
Analyst
IT Guru
Chief of Radiology
Phone Counselors
Phone Schedulers
Primary Care Physicians
Claricode
Programmer
10. AIM 1: Improve effectiveness and efficiency of
communication w/in team regarding data
AIM 2: Articulate technology issues related to
implementation of the study
AIM 3: Enhance information
organization, management, utilization, and
access skills of team members
AIM 4: Assess value of an informationist to the
research team
11. Develop a catalogue of analytic terms, i.e. a
comprehensive data dictionary
Develop a standard data request form
12. Define the issues encountered during
development of the tracking system /
database
Discover literature related to the topic
Identify the gaps in existing literature
Develop an electronic catalog of relevant
publications and resources
Write and publish a paper on the topic
13. Assist in systematic review of telephone outreach
interventions to increase adherence to mammograms
Develop system for collection, distribution, and review of articles
Prepare and maintain timeline for project
Develop catalog of relevant resources on development
and evaluation of screening / preventive interventions
Establish and/or define rules
Set criteria
Create maintenance features
15. The Informationist in Real Life
Group:
UMass Center for Clinical & Translational Science
Community Engagement Research Section
CER Team:
• Ira Ockene, MD
• Stephenie Lemon, PhD
• Suzanne Cashman, ScD
• Phil Merriam, MS
• Amy Borg, MPH, MEd
DISSEMINATI
ON
CONSULTATI
ON
COLLABORA
TION
16. Perform extensive literature
review
Develop a catalog of best
practices
Develop a collection of
resources
Build tools for disseminating
research
Build tools for collecting and
archiving growing knowledge
base
Measure impact of CER
DISSEMINATI
ON
17. Provide knowledge
management services
Literature reviews
Bibliographic management
Data management
Information organization
Database design
Knowledge mapping
Provide education on
information organization and
management
Provide assistance with all
aspects related to NIH Public
Access Policy
CONSULTATI
ON
18. Develop tools and/or means to
promote collaboration among
researchers
Database of researchers by
specialty
Controlled vocabulary
List-serv archive
eNewsletters, ePubs
Measure impact via social
network analysis
COLLABORA
TION
19. FASEB
Science Policy Committee Face-to-Face Meeting
May15, 2012
http://opa1.faseb.org/agendas/spc/PDF/2012/July/SPC%20Symposium%20Presentations.pdf
EFFECTIVENESS
EFFICIENCY
WHY AN
INFORMATIONIST ON
YOUR TEAM?
Notas do Editor
A little of my own story
Research Team Makeup:25+ individuals involved, not counting primary care physicians who must approve eligibility of patients – one check-pointLocated in basically 4 geographic locations – UMMS, Reliant Medical Group (healthcare providers), FCHP (insurer), Claricode (computer program consultants, Cambridge)
Data, likewise, is generated and/or collected via four sources:STAGING DATA – Captures Reliant EMR data – things such as office visits; historical data on labs, prescriptions, procedures; updates demographic and insurance enrollment coverageCLAIMS DATA – Historical data of FCHP captured claims from 1997 forward; Patients with a Reliant Medical Group PCP, claims on services utilized by Reliant patientsTRACKING SYSTEM DATA – Patient responses from counseling and scheduling interviews, including the baseline survey; counselor/scheduler call log entries and call outcomes - ~ 350 variablesANALYTIC DATA – Draws from other three sources, but also adds a number of new variables related to the specific outcomes soughtSummary – 4 sources, four locations, multiple people collecting/entering, 1000+ variables, etc.
So, why did the research team feel like an informationist would benefit them?During conversations, 4 aims developed
Give some specifics for each of these, so that you have an idea of what I’m expected to do and/or produce in my role.Improveeffectiveness and efficiency of communication w/in team regarding dataEXPANDED to information in general – email / history / database
Articulate technology issues related to implementation of the study Took well over a year – much longer than originally anticipated when the researchers wrote the grant – to develop the tracking system that would be used in the interventions, i.e. the schedulers and counselor calls. Why is this? What’s been written on it? Anything? What can the experience of this study share with future studies?
Enhance information organization, management, utilization, and access skills of team membersMore “traditional” librarian skills; teaching information literacy, information management, biblographic software tools, etc. Systematic review – Something librarians have done for awhile, but new to me.
Assess value of an informationist to the research teamProgress evaluation – taking minutes from meetings, writing reports, sharing notes, etc. – not very good at it, decided instead to use a blog to track, reflect upon my experiences. It’s been really fun and, admittedly, kind of cool to see the number of people who are reading it regularly – approximately 600/week, including members of the team.Eventually, we’ll begin to meet and discuss my thoughts – me, the two PIs, the project director, and other key members on the team.Towards the end of the supplement time, we’ll have focus groups for members of the research team, as well as individual interviews – gather qualitative data for analysis; answer question of how much value I brought to the study; how, why, etc.