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Life beyond Epilepsy

     Jayanti Mani
     Neurologist
What is epilepsy?
• Epilepsy is a brain disorder
• Person has repeated “seizures” or “fits”

What is a fit or seizure?
Brain works on electricity
Are there many types of seizures?
• Seizure can be of many types
  – Blank stare only
  – Confused behavior
  – Jerking or twitching of muscles
  – Violent body shaking with unconsciousness
• Everything that shakes is not a seizure
  – Pseudoseizures
  – syncope
Is epilepsy common?
• 2nd commonest brain problem after
  headache
• 1/100 have at least one fit in their life
• 1/200 have epilepsy
• Can start at any age
What tests?

EEG
• Records brain
  waves
• Usually takes one
  hour
• May be normal in
  person with
  epilepsy
• Repeated tests
Tests : Brain scans
CT Scan          MRI Scan
Treatment : Medications
– More than 10 types of Medicines available
– Doses of each medicine different
– Same medicine available as different brands
– NEVER MISS YOUR MEDICINE
– NEVER STOP MEDICINES ABRUPTLY
– 60% persons are well on one drug
– Others may require two or three drugs
Some precautions
•   Ask your doctor about allergy/side effects
•   Ensure regular SLEEP
•   Discuss DRIVING/ SWIMMING with your doctor
•   PREGNANCY
    – Ask doctor about safe drugs
    – NEVER STOP MEDICINES ABRUPTLY
    – RISKS to baby from medicines MINIMAL
    – These can be tested during pregnancy
What if medicines fail?
• Check correct medicine and dose with doctor
• 20-30% patients have seizures inspite of
  medicines.
  – Ketogenic Diet
  – Surgery
   • Can be very effective and even cure epilepsy in
     some patients
   • Video EEG and Repeat MRI
  – Vagal Nerve Stimulator
Lead a normal life!!
• Most patients with epilepsy
 – Can pursue studies
 – Can hold regular jobs
 – Participate in most sports
 – Enjoy hobbies and leisure activity
 – Marry and have children
 – ACHIEVE DESPITE EPILEPSY
Achieve despite Epilepsy


                    Napolean




Leonardo Da Vinci
                               Julius Ceasar
Epilepsy service at KDAH
       The Team                           The Facilities

•   Epileptologist                 •   EEG
•   Pediatric Neurologist          •   3 Tesla MRI
•   Neurophysiologist              •   Video EEG Telemetry
•   Epilepsy Surgeon               •   SPECT/PET
•   Neuroradiologist               •   Intraoperative MRI
•   Psychiatrist                   •   24 hour Emergency
•   Psychologist
                                   •   Well equipped ICU
         EPILEPSY SUPPORT GROUP at KDAH
Life beyond Epilepsy

    Dr.Shekhar Patil
  Pediatric Neurologist
• Why does my child have epilepsy?

• Is it my fault?

• Will my child grow out of the
  epilepsy?
• Febrile seizures

• Seizure mimics
    Breath Holding spasms
• Bullying & Teasing at school

• Keep a positive outlook


• Epilepsy & Learning

• Epilepsy & Behaviour
First Aid
• Watch the clock!!!
• Call ambulance if
  – Vigorous shaking for
    more than 2 min
  – Two or more attacks in
    succession
Life beyond Epilepsy

 Dr. Bhaskara Rao Malla
      Neurosurgeon
Epilepsy : The facts and figures



250,000,000   :   One seizure in a life time
 50,000,000   :   People with active epilepsy
 42,000,000   :   PWE in the developing countries
  2,500,000   :   New cases each year

70% of PWE can be seizure free with treatment
80% of AEDs sold in 20% of countries
80% of are not properly diagnosed or treated
Epilepsy surgery in India
                   1951


              Jacob Chandy &
                Baldev Singh
                CMC, Vellore




                B.Ramamurthi &
                 ST Narasimhan
                MGH, Madras
• Seizure freedom after surgery   : 70%
• Off medication after surgery    : 30%
Epilepsy Care Program
Epilepsy is curable
Epilepsy service at KDAH
       The Team                           The Facilities

•   Epileptologist                 •   EEG
•   Pediatric Neurologist          •   3 Tesla MRI
•   Neurophysiologist              •   Video EEG Telemetry
•   Epilepsy Surgeon               •   SPECT/PET
•   Neuroradiologist               •   Intraoperative MRI
•   Psychiatrist                   •   24 hour Emergency
•   Psychologist
                                   •   Well equipped ICU
         EPILEPSY SUPPORT GROUP at KDAH
Jmsupport program

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Jmsupport program

  • 1. Life beyond Epilepsy Jayanti Mani Neurologist
  • 2. What is epilepsy? • Epilepsy is a brain disorder • Person has repeated “seizures” or “fits” What is a fit or seizure?
  • 3. Brain works on electricity
  • 4. Are there many types of seizures? • Seizure can be of many types – Blank stare only – Confused behavior – Jerking or twitching of muscles – Violent body shaking with unconsciousness • Everything that shakes is not a seizure – Pseudoseizures – syncope
  • 5. Is epilepsy common? • 2nd commonest brain problem after headache • 1/100 have at least one fit in their life • 1/200 have epilepsy • Can start at any age
  • 6. What tests? EEG • Records brain waves • Usually takes one hour • May be normal in person with epilepsy • Repeated tests
  • 7. Tests : Brain scans CT Scan MRI Scan
  • 8. Treatment : Medications – More than 10 types of Medicines available – Doses of each medicine different – Same medicine available as different brands – NEVER MISS YOUR MEDICINE – NEVER STOP MEDICINES ABRUPTLY – 60% persons are well on one drug – Others may require two or three drugs
  • 9. Some precautions • Ask your doctor about allergy/side effects • Ensure regular SLEEP • Discuss DRIVING/ SWIMMING with your doctor • PREGNANCY – Ask doctor about safe drugs – NEVER STOP MEDICINES ABRUPTLY – RISKS to baby from medicines MINIMAL – These can be tested during pregnancy
  • 10. What if medicines fail? • Check correct medicine and dose with doctor • 20-30% patients have seizures inspite of medicines. – Ketogenic Diet – Surgery • Can be very effective and even cure epilepsy in some patients • Video EEG and Repeat MRI – Vagal Nerve Stimulator
  • 11. Lead a normal life!! • Most patients with epilepsy – Can pursue studies – Can hold regular jobs – Participate in most sports – Enjoy hobbies and leisure activity – Marry and have children – ACHIEVE DESPITE EPILEPSY
  • 12. Achieve despite Epilepsy Napolean Leonardo Da Vinci Julius Ceasar
  • 13. Epilepsy service at KDAH The Team The Facilities • Epileptologist • EEG • Pediatric Neurologist • 3 Tesla MRI • Neurophysiologist • Video EEG Telemetry • Epilepsy Surgeon • SPECT/PET • Neuroradiologist • Intraoperative MRI • Psychiatrist • 24 hour Emergency • Psychologist • Well equipped ICU EPILEPSY SUPPORT GROUP at KDAH
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  • 15. Life beyond Epilepsy Dr.Shekhar Patil Pediatric Neurologist
  • 16. • Why does my child have epilepsy? • Is it my fault? • Will my child grow out of the epilepsy?
  • 17. • Febrile seizures • Seizure mimics Breath Holding spasms
  • 18. • Bullying & Teasing at school • Keep a positive outlook • Epilepsy & Learning • Epilepsy & Behaviour
  • 19. First Aid • Watch the clock!!! • Call ambulance if – Vigorous shaking for more than 2 min – Two or more attacks in succession
  • 20. Life beyond Epilepsy Dr. Bhaskara Rao Malla Neurosurgeon
  • 21. Epilepsy : The facts and figures 250,000,000 : One seizure in a life time 50,000,000 : People with active epilepsy 42,000,000 : PWE in the developing countries 2,500,000 : New cases each year 70% of PWE can be seizure free with treatment 80% of AEDs sold in 20% of countries 80% of are not properly diagnosed or treated
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  • 25. Epilepsy surgery in India 1951 Jacob Chandy & Baldev Singh CMC, Vellore B.Ramamurthi & ST Narasimhan MGH, Madras
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  • 28. • Seizure freedom after surgery : 70% • Off medication after surgery : 30%
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  • 33. Epilepsy service at KDAH The Team The Facilities • Epileptologist • EEG • Pediatric Neurologist • 3 Tesla MRI • Neurophysiologist • Video EEG Telemetry • Epilepsy Surgeon • SPECT/PET • Neuroradiologist • Intraoperative MRI • Psychiatrist • 24 hour Emergency • Psychologist • Well equipped ICU EPILEPSY SUPPORT GROUP at KDAH

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