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The Outcomes and
Reimbursement in
Home Care
Joan Escarrabill MD
Chronic Care Program– Barcelona Esquerra.
Hospital Clínic (Barcelona)

Ankara, November 15th 2013
1

Master Plan for Respiratory Diseases (PDMAR) & Home
Respiratory Therapies Observatory (ObsTRD). FORES.
Ministry of Health (Catalonia)
Agenda

Context

Home
care

Alternatives

Outcomes
2
Historically, most health care was
provided in the home

N Engl J Med 1997;337: 1815-20.

% house calls in patient–physician encounters
40
40
30
10

20

%
0.6

10
0
3

1930

1950

1980
Types of visits in Primary Care
Home care
1%

2005

Phone contact
0%

Primary Care Visits
42,000,000
41,000,000
Visit
99%

40,000,000
39,000,000
38,000,000
37,000,000

Home care
2%

36,000,000

2009

35,000,000
34,000,000
2005

2006

2007

2008

2009

Visits PC

Visit
94%

Phone
contact
4%
Home care Primary Care ICS (2010)
Who cares at home?

Place of care

6% 3%

2%
5%
30%
Mainly outof-hours

63%

91%

Mainly long-term
care (ATDOM)
Doctors

Nurses

Social workers

Home care support

Office visits

Phone calls

Total number of consultations: 33.420.762

Home visits
Home oxygen therapy (1885)

6
There is no place like home
There are clinical reasons
to avoid hospitalization

Overmedication
Social isolation

Adverse events

In the hospital
Inactivity
7
Different services in one place
Out-of-Hours
• Nursing care
• Out-of-Hours Service

Support from discharge
• Hospital at home
• Transitional care

Long-term care
• “Preventive”
• Specialized

Procedures at home
• Drug administration
Definition: a difficult task

Aten Primaria 2002;30:304-309

You can set the standards
of care based on criteria

Criteria

Definition

Duration of care

Short < 15 days or long > 60 days

Complexity

Devices, decissions, daily life support

Intensity

Number of visitis per day

Speed ​of response

Emergencies / Support from discharge

Coverage

24/7/265 vs working hours
Definition: a difficult task
Out-ofHours

Hospital
at home

Transitional care

Long-term
(ATDOM)

Long-term
(Specialist)

Procedures

Duration of
care

Short

< 15 days

< 60 days

> 60 days

> 60 days

Days

Complexity

Very low

Low

Low

Low

Very high

High

Intensity

Once

High

Low

Once a
month?

Daily

(twice/day?)

Once a
week ?

Speed ​of
response

Same day

High

Low

Scheduled

Immediately

Quick

Coverage

Out of
working
hours

24/7/365

Working
hours

Working
hours

24/7/365

24/7/365
From transitional care to long-term care
Primary care
Acute
care
Hospital
at home

Long-term care

Transitional care
Rehabilitation
Palliative care

Specialised long-term care
Home mechanical ventilation
Nutrition (enteral/parenteral)
Peritoneal dialysis
From transitional care to long-term care
1

It is often difficult to draw the
line between transitional care
and long-term care

Primary care

Long-term care
Transitional care

2

Rehabilitation
Palliative care

Specialised long-term care

It is not easy to define the role
of generalist and specialist

Home mechanical ventilation
Nutrition (enteral/parenteral)
Peritoneal dialysis
Evaluation of home care

From
Products

To

Number of visits
Phone calls
Admissions
….

Services
Meet the needs of patients according
to local resources
Agenda

Context

Home
care

Alternatives

Outcomes
14
Home care strategies
1

Home care from
Primary care
Post-diascharge &
Hospital at home

2
3

4

Long-term &
Integrated care
Long-term &
HMV

5
15

Palliative care
1

Home care from primary care services

Aten Primaria 2003;31:473-9

Main protocols

Pressure ulcers
End-of-life
Bedridden patients
Pain

Main problems

Lack of time
Scarce social resources
Poor coordination

Nursing
leadership
2

BMJ 2005;329:315-20
COPD: Hospital at home

22% refuse

Escarrabill J.
Eur Respir J 2009; 34: 507–512
Hernández. Eur Resp J 2003;21:58-6.

Age: 70.8 9.8 years
FEV1 1.1 0.5 l.
Home care

Convencional

Mortality (%)

4,1

6,9

Readmisions (%)

20

27,7

Visits ER

0.13 (0.43)

0.31 (0.62)

0.01

LOS hospital (days)

1.71 (2.33)

4.15 (4.1)

< 0.001

16.5

47.5

< 0.001

7.5

0.03

% admissions > 3 days
LOS home (days)

1.56 (1.31)

Phone calls

2.33 (2-05)

Satisfaction
19

3,56 (1-14)

Home visits

8.0

p
Intervention effects
Conventional tharapy

Home care

Cost = 38% lower in home care
Hernández C. Eur Resp J 2003;21:58-6
3

Eur Respir J 2006;28:123-30

Función respiratoria
Co-morbilidad
Problemas sociales

Valoración
global
Integrated
care

Educación (autocuidado)
Deshabituación tabáquica
Conocimiento de la enfermedad
Tratamiento inhalatorio
Actividad física
Signos y síntomas de alarma
21

Programa de
asistencia
personalizda

Coodinación entre los
diversos dispositivos
asistenciales
Long-term follow up by specialists in LTOT
Chnages related to home care
20
15

Chest 2001; 119:364–369

10

5
0
ER visits

Admissions
Home care

Positive inpact of
nurse/respiratory therapist +
telephone + home visit

LOS
Control
4

Chest 2005; 127:2132–2138

Benefits of “package of care”:
assessment + follow up +
home support
Protocol
Eur Respir J 2010; 35: 310–316

5,4

Calls/patient/year

6%

Requiered home care

25/188 no mechanical
fault was identified
13 patients were either found to
be unwell or required hospital
admission
Systemaic follow-up

Population: 291.500.000

25

Escarrabill J. Breathe 2009;6:37-42.
26

Escarrabill J. Breathe 2009;6:37-42.
PLoS ONE 8(8): e71238. doi:10.1371/journal.pone.0071238







Grups petits de pacients.
Seguiment curt
Variabilitat terminológica
Diferents intervencions
Orientats a malalties – poc holístic

27

No queda clar si els efectes es relacionan
amb la telemonitorització (e-Health) o
amb el canvi d’estratègia assistencial
PLoS ONE 8(8): e71238. doi:10.1371/journal.pone.0071238

“Digital Health Divide”

Hi ha grups de pacients que no estan
prou representats en els estudis:




28

Multimobilitat
Trastorns cognitius
Problemes socials
Discapacitats
Pinnok et al. BMJ 2013;347:f6070 doi: 10.1136/bmj.f6070

Risc d’ingrés

29
Journal of Telemedicine and Telecare 2012; 18: 211–220
5

Gómez-Batiste X et al. J Pain Symptom Manage 2010;40:652-60

Home care support teams
Gómez-Batiste X et al. J Pain Symptom Manage 2006;31:522-32

Health Care Interventions
3%
9%

34%

26%
14%

n=395
32

Home visits

Hospital admission

GP Visit

14%

Phone call

Outpatient clinic

Others
Agenda

Context

Home
care

Alternatives

Outcomes
33
NEJM 2010;363:2477-81

Value

34

=

Outcomes
Cost
The Outcome Measures Hierarchy.
NEJM 2010;363:2477-81

• Time to recovery.
• Desutilities

• Sustainability of health
• Long-term consequences
Focus on results
Some mistakes can be made speaking of results
1

Believe that the results of the pilot studies
can be extrapolated automatically

2

The results must to be good in the full process

3

Average approach is harmful

4

The time, from the point of view of
patients, is not process is a key result.
Home care evaluation
Health
System

Sustainability
Population Impact

Specific
program
Coverage
Specific objectives

Patient
Patient experience
Health results
37
NEJM 2013;368:201-3

38
Patient experience (i)
Time
Resolution
capability

Co-participation
Information
39

• Waiting
• Response
• Resolution
• How many professionals are
involved to solve the problems?
• Several options
• Decission-making process
• Deliberation

• Intelligible
• At the right time
Patient experience (ii)
Utility

Interference

Benefit

Maintenance
40

• How much was useful…

• Inconveniences that generated the
activity in their daily lives

• Will the benefits outweigh the
drawbacks?

• To what extent it will be possible to
maintain ....?
Indicators
• Admission
• Readmission
• Visits

• Age/gender
• Diagnostic
• Comorbidity
Transitions
and
contacts

Care cycle

• Resolution
• Hospital
days/yerar

41

Demography

Mortality

• Intra-hosp
BMJ 2012;345:e6017

42
BMJ 2012;345:e6017

43
The paradox of "pilot studies"
Pilot
studies

Real life
43%

32%

Eur J Cardiovasc Nurs. 2011 Mar 12.
“Value-based
purchasing”

The value is measured by
considering the "whole process"
not every "individual procedures"
Standardization

Març 2009

… and health professionals
(mainly physicians) they prefer
the arts to science
48

JAMA 2013;309:355-363
Ann Intern Med. 2010;153:167-175.

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Home care

  • 1. The Outcomes and Reimbursement in Home Care Joan Escarrabill MD Chronic Care Program– Barcelona Esquerra. Hospital Clínic (Barcelona) Ankara, November 15th 2013 1 Master Plan for Respiratory Diseases (PDMAR) & Home Respiratory Therapies Observatory (ObsTRD). FORES. Ministry of Health (Catalonia)
  • 3. Historically, most health care was provided in the home N Engl J Med 1997;337: 1815-20. % house calls in patient–physician encounters 40 40 30 10 20 % 0.6 10 0 3 1930 1950 1980
  • 4. Types of visits in Primary Care Home care 1% 2005 Phone contact 0% Primary Care Visits 42,000,000 41,000,000 Visit 99% 40,000,000 39,000,000 38,000,000 37,000,000 Home care 2% 36,000,000 2009 35,000,000 34,000,000 2005 2006 2007 2008 2009 Visits PC Visit 94% Phone contact 4%
  • 5. Home care Primary Care ICS (2010) Who cares at home? Place of care 6% 3% 2% 5% 30% Mainly outof-hours 63% 91% Mainly long-term care (ATDOM) Doctors Nurses Social workers Home care support Office visits Phone calls Total number of consultations: 33.420.762 Home visits
  • 7. There is no place like home There are clinical reasons to avoid hospitalization Overmedication Social isolation Adverse events In the hospital Inactivity 7
  • 8. Different services in one place Out-of-Hours • Nursing care • Out-of-Hours Service Support from discharge • Hospital at home • Transitional care Long-term care • “Preventive” • Specialized Procedures at home • Drug administration
  • 9. Definition: a difficult task Aten Primaria 2002;30:304-309 You can set the standards of care based on criteria Criteria Definition Duration of care Short < 15 days or long > 60 days Complexity Devices, decissions, daily life support Intensity Number of visitis per day Speed ​of response Emergencies / Support from discharge Coverage 24/7/265 vs working hours
  • 10. Definition: a difficult task Out-ofHours Hospital at home Transitional care Long-term (ATDOM) Long-term (Specialist) Procedures Duration of care Short < 15 days < 60 days > 60 days > 60 days Days Complexity Very low Low Low Low Very high High Intensity Once High Low Once a month? Daily (twice/day?) Once a week ? Speed ​of response Same day High Low Scheduled Immediately Quick Coverage Out of working hours 24/7/365 Working hours Working hours 24/7/365 24/7/365
  • 11. From transitional care to long-term care Primary care Acute care Hospital at home Long-term care Transitional care Rehabilitation Palliative care Specialised long-term care Home mechanical ventilation Nutrition (enteral/parenteral) Peritoneal dialysis
  • 12. From transitional care to long-term care 1 It is often difficult to draw the line between transitional care and long-term care Primary care Long-term care Transitional care 2 Rehabilitation Palliative care Specialised long-term care It is not easy to define the role of generalist and specialist Home mechanical ventilation Nutrition (enteral/parenteral) Peritoneal dialysis
  • 13. Evaluation of home care From Products To Number of visits Phone calls Admissions …. Services Meet the needs of patients according to local resources
  • 15. Home care strategies 1 Home care from Primary care Post-diascharge & Hospital at home 2 3 4 Long-term & Integrated care Long-term & HMV 5 15 Palliative care
  • 16. 1 Home care from primary care services Aten Primaria 2003;31:473-9 Main protocols Pressure ulcers End-of-life Bedridden patients Pain Main problems Lack of time Scarce social resources Poor coordination Nursing leadership
  • 18. COPD: Hospital at home 22% refuse Escarrabill J. Eur Respir J 2009; 34: 507–512
  • 19. Hernández. Eur Resp J 2003;21:58-6. Age: 70.8 9.8 years FEV1 1.1 0.5 l. Home care Convencional Mortality (%) 4,1 6,9 Readmisions (%) 20 27,7 Visits ER 0.13 (0.43) 0.31 (0.62) 0.01 LOS hospital (days) 1.71 (2.33) 4.15 (4.1) < 0.001 16.5 47.5 < 0.001 7.5 0.03 % admissions > 3 days LOS home (days) 1.56 (1.31) Phone calls 2.33 (2-05) Satisfaction 19 3,56 (1-14) Home visits 8.0 p
  • 20. Intervention effects Conventional tharapy Home care Cost = 38% lower in home care Hernández C. Eur Resp J 2003;21:58-6
  • 21. 3 Eur Respir J 2006;28:123-30 Función respiratoria Co-morbilidad Problemas sociales Valoración global Integrated care Educación (autocuidado) Deshabituación tabáquica Conocimiento de la enfermedad Tratamiento inhalatorio Actividad física Signos y síntomas de alarma 21 Programa de asistencia personalizda Coodinación entre los diversos dispositivos asistenciales
  • 22. Long-term follow up by specialists in LTOT Chnages related to home care 20 15 Chest 2001; 119:364–369 10 5 0 ER visits Admissions Home care Positive inpact of nurse/respiratory therapist + telephone + home visit LOS Control
  • 23. 4 Chest 2005; 127:2132–2138 Benefits of “package of care”: assessment + follow up + home support Protocol
  • 24. Eur Respir J 2010; 35: 310–316 5,4 Calls/patient/year 6% Requiered home care 25/188 no mechanical fault was identified 13 patients were either found to be unwell or required hospital admission
  • 26. 26 Escarrabill J. Breathe 2009;6:37-42.
  • 27. PLoS ONE 8(8): e71238. doi:10.1371/journal.pone.0071238      Grups petits de pacients. Seguiment curt Variabilitat terminológica Diferents intervencions Orientats a malalties – poc holístic 27 No queda clar si els efectes es relacionan amb la telemonitorització (e-Health) o amb el canvi d’estratègia assistencial
  • 28. PLoS ONE 8(8): e71238. doi:10.1371/journal.pone.0071238 “Digital Health Divide” Hi ha grups de pacients que no estan prou representats en els estudis:     28 Multimobilitat Trastorns cognitius Problemes socials Discapacitats
  • 29. Pinnok et al. BMJ 2013;347:f6070 doi: 10.1136/bmj.f6070 Risc d’ingrés 29
  • 30. Journal of Telemedicine and Telecare 2012; 18: 211–220
  • 31. 5 Gómez-Batiste X et al. J Pain Symptom Manage 2010;40:652-60 Home care support teams
  • 32. Gómez-Batiste X et al. J Pain Symptom Manage 2006;31:522-32 Health Care Interventions 3% 9% 34% 26% 14% n=395 32 Home visits Hospital admission GP Visit 14% Phone call Outpatient clinic Others
  • 35. The Outcome Measures Hierarchy. NEJM 2010;363:2477-81 • Time to recovery. • Desutilities • Sustainability of health • Long-term consequences
  • 36. Focus on results Some mistakes can be made speaking of results 1 Believe that the results of the pilot studies can be extrapolated automatically 2 The results must to be good in the full process 3 Average approach is harmful 4 The time, from the point of view of patients, is not process is a key result.
  • 37. Home care evaluation Health System Sustainability Population Impact Specific program Coverage Specific objectives Patient Patient experience Health results 37
  • 39. Patient experience (i) Time Resolution capability Co-participation Information 39 • Waiting • Response • Resolution • How many professionals are involved to solve the problems? • Several options • Decission-making process • Deliberation • Intelligible • At the right time
  • 40. Patient experience (ii) Utility Interference Benefit Maintenance 40 • How much was useful… • Inconveniences that generated the activity in their daily lives • Will the benefits outweigh the drawbacks? • To what extent it will be possible to maintain ....?
  • 41. Indicators • Admission • Readmission • Visits • Age/gender • Diagnostic • Comorbidity Transitions and contacts Care cycle • Resolution • Hospital days/yerar 41 Demography Mortality • Intra-hosp
  • 44. The paradox of "pilot studies" Pilot studies Real life
  • 45. 43% 32% Eur J Cardiovasc Nurs. 2011 Mar 12.
  • 46. “Value-based purchasing” The value is measured by considering the "whole process" not every "individual procedures"
  • 47. Standardization Març 2009 … and health professionals (mainly physicians) they prefer the arts to science
  • 49. Ann Intern Med. 2010;153:167-175.