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The Internet and Health:
                                   Controversies and Opportunities


                                                     I. Basagoiti
                                     Technologies for Health and Well-being
                                                Instituto ITACA
                                      Universidad Politécnica de Valencia
                                             jbasago@itaca.upv.es

                                                     How to cite:
                       BASAGOITI, I. (2006) “The Internet and Health: Controversies and
                      Opportunities”. I Workshop on Technologies for Healthcare and Healthy
                                        Lifestyle (ISBN 97884-611-1311-8)


                       Abstract                                  With all this controversy, it is indispensable to
                                                             build tools that offer professionals the possibility to
    Searching for health information is one of the main      access and prescribe trustful sites with quality health
Internet activities. Harris Interactive last survey          information.
estimates that over 117 million of U..S adults looked            In the present article we tried to approach the
for health information in 2005, which means over 75%         phenomenon of the access online to the sanitary
of population with internet access. In Spain, this           information on the part of the citizens, its importance
percentage decreases to 28% (INE 2005).                      and utility, but also the problems which one faces and
    The Networks huge formation possibilities join           the possible solutions to consider.
each other with a new health care attention model,
where information access is one of the main activities
that gives patients possibilities to take their own          1. Introduction
decisions about their health.
    In the same way, new management models                       The WHO, in Alma-Ata conference of 1978, when
recognize preventive activities as highly cost-efective,     protesting the access to the health as a universal right,
and these interventions are also based on sanitary           was not only considering its clinical or curative aspect
information and education as changing gears towards          but, fundamentally, the access of all to the prevention
more healthy habits and preventive philosophy                of the disease. Thus, it was understood that the
inclusion in all areas of human activities.                  prevention is one of the main activities - if not the
    Nevertheless, the Internet sanitary information has      main - of the sanitary professionals.
serious problems. It is estimated that there are more        And within these activities, the indispensable tool is
than 4 billion web pages with medical contents and           the sanitary education to ensure that, the individuals
this number is increasing every year. More than half of      and the communities, become people in charge in the
those pages do not match minimum quality                     decision making on their health, and gain autonomy in
requirements like author or sources identification,          the resolution of their problems.
date, or easy consultation to discuss this information           Until a few years ago, patients did not have their
with the doctor.                                             own means to access to the sanitary information that
    On the other hand, a serious lack of contents is         interested them, and this information was given
found that matches the patients’ needs. When patients        directly by the sanitary professionals. The new reality
have access to professionally-oriented information,          that the incorporation of Internet indaily life has
with no criteria or filter, usually more problems and        supposed, and the instantaneous access to the
fears appear than the ones this information solves.          information online, generates a different situation, and
This is due to the fact that the patient does not have the   a different way to relate between patient and
needed tools or knowledge to understand and                  professional. Today it isn´t rare that the patient looks
comprehend the information if it is not given in an          for information in the Internet to complement and to
adequate environment                                         extend what explains its doctor to him and, even, to
discuss with this one the diagnostic options and the        forget that not only can nearly everyone use the
treatments available.                                       information, but publishing your own Web site is just
    In addition it is undeniable that, in last decade,      as easy. This has resulted in an unprecedent
health has become a consumer product. Preventive            proliferation of information sources on a global scale.
activities and the healthful habits have been piercing in       Searching for information has become more
the thickness of the population, thanks to the efforts of   difficult, and the quality of search results is often
the professional associations and the aid of media.         disappointing. Web sites offering health advice
Concepts like "cardiovascular risk", "cardiohealthy         abound; as shown by Google, currently the most
habits" or "Mediterranean diet" have happened to            complete, which proposes over 4 billion (4x109) pages
thicken the daily heap.                                     containing the word “health” (108 million 3 years
    Thus, at this moment the utility of sanitary            ago), 1 billion mentioning the term “medicine” (20
information online is unquestionable, as a excelent tool    million 3 years ago) and 136 million the term “salud”.
for the sanitary education of patients and continuous           In next text, we are going to exclusively approach
formation of professionals. An educated health care         the health information topic, leaving aspects like the
consumer is likely to get better care. A “citizen-          electronic mail, the communication between health
centered health system” that promotes health, requires      professionals and patients, the forums and spaces of
informed patients capables to take their own decisions      interaction and other important emergent elements like
about his life [37].                                        health blogs, drugs commerce and the children in the
     “E-Health refers to the use of modern information      Internet
and communication technologies to meet needs of
citizens, patients, healthcare professionals, healthcare    2. The WWW of the World Wide Web:
providers, as well as policy makers.” This definition of    Who, What and Why access to medical
e-Health was first developed in the e-Health
Ministerial Declaration, 22 May 2003, and made              information?
during the 2003 e-Health Ministerial Conference.
    Access to the best medical information available, as    How many user are online?
much for doctors as for patients, is singly one of the          Pew Internet Project surveys between January and
great ICT contributions [29]. Network groups, the new       June in 2005 show that 67% of the adult American
medicine education possibilities, the saving of time,       population goes online, including 68% of men and
the extension of the sanitary attention to any place and    66% of women. But women slightly outnumber men in
the changes in the relations between doctors and            the internet population because they make up a greater
patients are other phenomena that show that the             share of the overall U.S. population.
sanitary system is changing.                                   Younger women are more likely than younger men
    So, Internet users report two effects of online         to be online; older men are more likely than older
health resources: better health information and             women to be online: 86% of women ages 18-29 are
services, and different (but not always better)             online, compared with 80% of men that age. On the
relationships with their doctors. Three-quarters (73%)      other hand, 34% of men 65 and older use the internet,
of health seekers say the Internet has improved the         compared with 21% of women that age [3]
health information and services they receive. Some
online surveys respondents say that doctors are                 Although very large numbers of Internet users
receptive to Internet research; others are cautioned to     conduct health searches, most do so infrequently. Eight
avoid any online health information [1].                    of ten of those who have conducted health searches say
    However, beyond its potential, the effectiveness of     they do so every few months or less frequently than
health information online is not even well established      that. Indeed, on a typical day, just 6% of Internet users
in the case of the patients and, although the prevention    look for health or medical information online (by
strategies are theoretically feasible, face great           contrast, 49% use email, 19% research a product or
problems putting them in practice. Still it has not been    service, and 5% buy a product online).
explored how the communication online can promote               In Spain, INE survey show that 31% population
physical activity, healthful dietetic habits or quitting    goes online in 2005, being 30% of homes with the
smoking [2] [36] .                                          Internet acess (48% EU media) [4].
    In addition, "democratization" of the information           One of each two Spaniards has never used Internet,
access has opened new possibilities, but it also            a percentage seven points superior to the European
generates new problems and incognitos relations,            average (43%) according to the data of a study
generally, to the quality of this information. We do not    published by Eurostat. Only the 35 percent is
connected weekly, as opposed to 40% in the set of the       values around 29%, descending these numbers to the
UE [5].                                                     26 for populations between 10,000 and 20,000
                                                            inhabitants, and 23% for populations smaller to
                                                            10.000.
Who access to medical information?.
                                                              Figure 1. Spanish Health-Seekers of all those online,
    “Health seekers” are Internet users who search                             years 2003-2005.
online for information on health topics, whether they
are acting as consumers, caregivers, or e-patients [3]
                                                              2005                               28%
While everyone agrees that the number of health
seekers is rising, the way to establish that number is a
controversial matter.
    In USA, Harris Interactive calculated that 117            2004                         23%

million adults have looked for health information on
the Internet, compared to 111 million in 2004, 109
lmillion in 2003 and 110 million in 2002.                     2003                   18%

    But there have been no epidemics reported of
Internet users rushing online for health information.                0%       5%       10%        15%     20%     25%   30%

The global percentage of internauts interested in the
health information in the last three years has descended
to 72% of al those who are online (74% in 2004 and                        Source: SIBIS 2004, INE 2003 & 2005
78% in 2003). 61% users of Internet between 18 and
34 years has consulted information of health in the
network in the last 12 months, as opposed to 7.1% that        Figure 2. Spain: Percentage of the Internet users that
it has preferred to resort to a specialist. Although the     search for in the last three month health information of
                                                               whole population and online population, by gender.
number descends as increases the age, 21.4% of the
internauts greater of 65 years resorts to the network to
inquire on health subjects, as opposed to 20.9% that it              40                                         30,9
                                                                                   28,13          25,84
continues consulting doctor [6].
                                                                     30
    March 2004 demographic data from Hitwise
revealed that most of the visitors to health and Medical
                                                                     20
Information web sites were higher earning 35 to 44
years old females who accesed the Internet from home.
                                                                     10
    In Spain according to the last survey of the INE [7],
28% of users of Internet it has consulted information
                                                                      0
on health in the last 3 months, which represents an                          Both            Men          Women
increase of 6% with respect to the 2004 (figure 1). Of
them, 23% have between the 15 and 24 years (figure
                                                                                    Source: INE 2005
5). The internaut population greater of 65 years than
has been interested in health subjects in the network is
practically nonexistent (0,27%).
    Main number of the Internet users and health-
seekers are between 25 and 34 years. Women online
search health information more than men (30,9 vs
25,8, figure 2). 34% of online users betwwen 35-44
years, search the web for health information in last tree
months. A higher educational level correlates a higher
search for health information (figure 3). So,
Housewife and pensioners online are the two groups
with highest percentages of health-seekers (figure 4).
    The consultation of health information percentage,
from the point of view as large of city user, does not
offer statistically significant differences from greater
populations of 20,000 inhabitants, locating itself in
Figure 3.Percentage of Internet users searching for health
   information last three months of all online users, by                35                             34,33
                                                                                           30,58
                     educational level                                        28,13                      28,85
                                                                        30
                                                            35,18                                                25,91
         28,13                                       27,2                                                                24,4
   30                             22,47
                                           26,47                        25                                                      22,24
   20                    16,65                                                        20,61
                                                                                          19,07
   10              0                                                    20
                                                                                    16,15       16,3
    0
                                                                        15
             l       es         .   st      E. a...           .
        Al        at        y E E. 1                       yE
                                         igh nic
                                                                                                       9,15
             it er        ar      y    H             it ar              10
         Ill           im      ar            ch    rs
                   Pr       nd             Te nive                           4,87                              4,36
                         co             gh     U                         5
                       Se            Hi                                                                               0,92 0,16
                                                                         0
                       Source: INE 2005                                      Total 15-24 25-34 35-44 45-54 55-64 65-74 >74


Figure 4. Percentage of use Internet to search for health                    % whole population               % online population
information last tree month of all online users, by work
                        situation                                                         Source: INE 2005

   40                                                               What information is sought?
   35                                       34,19 35,23 35,22
   30    28,13 29,3        26,3
   25                                                                   In USA, recents surveys about tematic preferences of the
                                   21,8
   20                                                               Internet seekers offers that 44% of Internet users have
   15                                                               searched online for information about diet, nutrition,
   10                                                               vitamins, or nutritional supplements; 36% have
                                                                    searched online for information about exercise or
                         ed




                         er
                           ll

               em rs




                          ts

             Pe gar

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                        A




                       en
                      ke




                      ne

                      th
                      oy




                                                                    fitness. Internet users between the ages of 18 and 29
                      o
                   ud




                    O
                   or




                   io
                  sh
                   pl




                ns




                                                                    are the most likely to have searched for this last topics
              ew




                St

               re
            bo
           un
            iv




                                                                    of information – 51%, compared to 35% of 30-49
          ct




        La
         e
    A

       iv




                                                                    year-olds, 28% of 50-64 year-olds, and just 13% of
     ct
        A




                                                                    Internet users age 65 or older.
                                                                        34% users have searched online for information
                       Source: INE 2005                             about prescription or over-the-counter drugs .25%
                                                                    have searched online for information related to health
 Figure 5. Percentage of Internet use searching for health          insurance.
information last tree month of all and online users, by age             80% internet users have looked online for
                          groups.                                   information on at least one of 16 related health topics,
                                                                    with increased interest since 2002 in diet, fitness,
                                                                    drugs, health insurance, experimental treatments, and
                                                                    particular doctors and hospitals.
                                                                        Some demographic groups showed notable interest
                                                                    in specific topics – 59% of online women have read up
                                                                    on nutrition information online, for example, compared
                                                                    with 43% of online men. Thirty-eight percent of online
                                                                    parents have checked online for health insurance
                                                                    information, compared with 26% of internet users who
                                                                    do not have children living at home [3] .
                                                                        In Spain we do not have trustworthy data on the main
                                                                    topics consultation online. An approach has been made from
                                                                    the UOC from the main topics boarded by spanish webs of
                                                                    health emphasizing anxiety, cancer, pregnancy and AIDS
                                                                    like the items more repeated [8].
Why users seek health information?                                               4,5
                                                                                   4
    Main activities of Internet users about health are to                        3,5
                                                                                   3
research a diagnosis or prescription, prepare for                                2,5
                                                                    Both           2
surgery or find out how best to recover from one, get                            1,5
tips from other caregivers and e-patients about dealing             Men            1
                                                                                 0,5
with a particular symptom, give and receive emotional               Women          0
support and keep family and friends informed of a                                              o         n              n            ce
                                                                                        i   nf       tio             tio           vi
loved one’s condition.                                                               or          lta             rip             ad
    47% of Internet users have at some point searched                           o kf         ns
                                                                                               u
                                                                                                           re
                                                                                                              sc            to
                                                                                                                               r
                                                                              Lo          co            tp               oc
online for information about a certain medical                                       e st            es               rd
                                                                                   qu            qu                fo
                                                                                 Re           Re              ok
treatment or procedure. 63% of Internet users have at                                                      Lo
some point looked for information about a specific
                                                                                 Source: INE 2005
disease or medical problem. 44% of Internet users
have searched online for information about diet,
                                                                Parents are a specific proactive group of the
nutrition, vitamins, or nutritional supplements. Some
                                                            Internet searches. So 38% of online parents have
of these searches are certainly for weight management.
                                                            checked online for health insurance information,
57% of those who recently conducted searches did so
                                                            compared with 26% of internet users who do not have
on behalf of someone else — a spouse, child, friend, or
                                                            children living at home. Mothers are more active in the
other loved one — not for themselves.
                                                            information search. 71% of the connected mothers
    Main groups of the Internet seekers are parents,
                                                            have looked for information on subjects of health for
women, healthy people, and the middle aged between
                                                            their children in the last month [3][10].
30 and 49 years old. In addition, there is a small group
                                                            Taking in consideration gender differences women are
of Internet users who are living with a disability,
                                                            significantly more likely than men to look for general
handicap, or chronic disease or who take care of
                                                            health and medical information, as well as information
someone living in their household
                                                            on specific diseases or medical conditions, treatments
    Caregivers who live with someone who is
                                                            or procedures. They also are more likely to look for
chronically ill or disabled, a group of searchers who
                                                            support groups to communicate with for diseases or
make frequent use of the Internet for health issues, are
                                                            conditions, to search for information on diet and
particularly likely to have searched for information
                                                            nutrition, on how to quit smoking, and on mental
about a specific treatment – 62% have done so.
                                                            health issues, including depression, anxiety, and stress
    Some demographic groups showed notable interest
                                                            [1].
in specific topics – 59% of online women have read up
                                                                In the ranking of the 10 first associations and
on nutrition information online, for example, compared
                                                            Spanish medical organizations in Internet in 2004,
with 43% of online men. Thirty-eight percent of online
                                                            three of them are pediatrics associations, occupying the
parents have checked online for health insurance
                                                            first position tle Asociación Española de Pediatría
information, compared with 26% of internet users who
                                                            (AEP) [4].
do not have children living at home. Forty-one percent
of internet users with a broadband connection at home        Figure 7. Percentage of Internet use to search for health
have looked up a particular doctor or hospital,               information last tree month of all and online users, by
compared with 19% of internet users with a dial-up                                   gender.
connection at home [10].

 Figure 6. Spanish health seekers by type of activity and
                         gender
of the information for the education and information of
       35        28,13                               30,9      the patients.
                                25,84
       30

       25                                                      4.1.Accesibility and usability.
       20
                             9,85             9,45                  In firstly, the Internet does not reach all places
       15
             4,87
                                                               and, when it does, it does not offer the same speed of
       10
                                                               access. More than 70% world population have no
        5                                                      access to a telephone line. In Spain number of Internet
        0                                                      connections through ADSL lines has increased during
                All           Men             Women            the last years. Nevertheless, this advance is not
                        % whole population                     significant either if we compared it with the rest of the
                        % online population                    european countries of the 15, where Germany
                      Source: INE 2005                         maintains the leadership with 6,700,000, as opposed to
                                                               the 2,583,000 of lines in Spain at the beginning of the
                                                               year 2005 percentage [11]. If we express that in
                                                               percentage data, 25% Spanish homes have broadband
3. Health information online: opportunities                    access (23% EU media).
                                                                   In addition, users conditions often limit their
    A citizen-centred medicine requires informed               capacity of access to the information online. A great
citizens, able to freely make decisions on own their           number of patients have special necessities, they are
health. Internet provides an ideal media to receive            physical, cognitivas or, simply, educational.
information       on     healthful    habits    of     life,       Rising demand for health and social services, due
recommendations on prevention and, handling of the             to an ageing population and higher income and
disease or knowledge of first aid.                             educational levels. In particular, by 2051, close to 40%
    Their main advantages are:                                 of the European Union’s population will be older than
    Accesibility to information: one of the most               65 years old. At this moment, In Spain there are more
important aspects of online health advice is the fact          than 19 million chronic patients, of whom more than
that it is available at any hour of the day or night, from     half they are greater of 65 years.
wherever users are able to log on.                                 As we can see, elderly people constitute a growing
    Instantaneously, because the Internet users dont           group of computer users and information seekers on
have delays or reserves to access the information.             the Internet. Furthermore, the elderly are a big
    The use of Internet and the information retrieval          consumer of healthcare services, and the Internet can
are comfortable and, after a small training, easy to do.       offer unparalleled opportunities to adquire health
    Connectability (interaction space). Internet offers        information. From the viewpoint of health
new possibilities of interaction with other users and          professionals, the opportunity to reach this largely
professionals. To send and to receive information, to          unwired population is increasingly recognized. Indeed,
participate in forums and to relate to users and               more initiatives are being put into place in order to
professionals were hardly attainable activities until the      ease seniors into Internet use and to give them the
arrival of Internet.                                           means of access. Technical adaptation to ageing
    Personalization: allows consumers to customize the         changes is necessary for better usability. Additionally,
portal interface and information preferences and allows        cognitive, psychological and social factors are just as
the portal to individually target consumers.                   important for optimizing access and usage of
    Anonimity it is important that Internet users can get      computers by the elderly population [12].
health information anonymously.
    The Internet offers the possibility of obtaining the       4.2.Quality and pertinence of information.
newest and updated information
                                                                   Not only can nearly everyone use the information,
4. Health information online: controversies                    but publishing your own Web site is just as easy. This
                                                               has resulted in an unprecedent proliferation of
    The theoric advantages of health information               information sources on a global scale.
currently access online has important problems                     On the other hand, a serious lack of contents is
unsolved. These problems are limiting as the capacity          found that matches the patients’ needs. When patients
of access to the information and like the effectiveness
have access to professionally oriented information,
with no criteria or filter, usually more problems and                               The Internet is characterized by the excess of
fears appear than the ones this information solves [33].                        information and its chaotic organization. To find
This is due to the fact that the patient does not have the                      pertinent information requires training.
needed tools or knowledge to understand and
comprehend the information if it is not given in an                             4.5. “A new religión”: Absolutely truths,
adequate environment. Information must be                                       solution for whole problems, virtual sustitute...
comprehensible and must be written in “Plain
language”.                                                                          In the health field, "news frequently transmits to
                                                                                their public a vision absolutely distorted. For the
   Figure 8. What sources of information truths                                 reader, the viewer or the listener with little medical
               european citizens?                                               training, that is to say, for the immense majority,
                        0     20          40      60          80          100
                                                                                thanks to mother cells the Parkinson, the diabetes or
                                                                                the Altzheimer is going to shortly be cure. Those that
   Medical societies                                               84,4         create and spread these false illusions carry a heavy
    Consumers org.                                     67,2
                                                                                responsibility; on the one hand they favor the
                                                                                unreliability of the medical research if the created
        Universities                                   65,5
                                                                                hopes are not materialized and, more importantly, they
        Mass Media                         39,3                                 create an irresponsibility when originating the illusion
                                                                                that investigation research will solve all health
        Goverment                  23,4
                                                                                problems and that does not matter to smoke, to be
      Religious org                22,9                                         obese, or, in general, to behave in an aggressive way
                                                                                for own health[13].
        Political org       10,7
                                                                                    In addition, users must accept the considerable
                                                                                discrepancy (‘asymmetry’) in knowledge between
             Source: Eurobarometer 58.0 (2003)                                  themselves and health professionals. It is difficult to
                                                                                transmit that the medicine is not an exact science but a
    The access to information does not guarantee its                            "statistical science".
utility or its understanding. Low health literacy limits
many Americans' ability to understand what is                                   Figure 9. Home Internet conection in Spain by kind and
available online. It is necessary to adapt the                                                           year
information to the different profiles of users to make
                                                                                       5
this comprehensible without losing rigor and veracity.                                 5
This is one of the greater difficulties for scientific                                 4                      2003    2004   2005
communication in general, and education for the health                                 4
in individual.      Finding relevant information and                                   3
ascertaining its trustworthiness creates two inseparable                               3
                                                                                       2
concepts necessary for the Web to flourish as an
                                                                                       2
unpredecedent source of knowledge and continue in                                      1
helping ill patient or citizen to stay healthy. Consumer                               1
health information should be written with a                                            0
comprehensible reading level                                                               Whole homes Phone line       Broadband
                                                                                             online    traditional
4.3.Credibility                                                                             Source INE, Ministerio de Industria

    According to the Eurobarometer 58,0 (2003)                                  4.6. “Cybercondriacs”.
citizens consider the trustworthy sources of health
information    the   medical     societies     (84,4%),                             The great consumer of information has a certain
organizations of consumers (67,2%) and universities                             profile. He does not access information who most
(65,5%), in front of mass media (39%), government                               needs it. The healthy patient usually does not perceive
sources (23,4%)and politic organizations (just 10.7%).                          a necessity of information (primary prevention) except
                                                                                in case they must use it for some reason (caretakers,
4.4. Training.                                                                  relatives of patients, mothers).
Although the total number of adults who have                They are the rules and guiding principles a health
looked for health information online have decreased,        site follows with respect to privacy, security, editorial,
the frequency with the North American users consult         and advertising. Their main problems are that often are
webpages that offer health contents increases. Thus,        posted as footnotes –so consumers may be unaware of
58% of the interviewed people who have access to            their existence-, they are self-proclaimed, and are not
Internet recognize that it looks for this class of          standardized [30].
information "some times" or "often", as opposed to
50% that have consulted this information the past year.         Third part seals.
Thus, adults who now look for medical information or            The accreditation of portals, directions and other
sanitary cares do more assiduously than in previous         resources of free access through Internet has a main
years. A 89% affirm that it has been successful and         importance, that they make like a control mechanism
have found in the Web the medical data that they            on the heterogenea nature and quality of information
looked for. In addition, 90% of them consider that the      that is offered; and although the studies made on the
information that has consulted is trustworthy. Survey       guidelines of the users emphasize the lack of valuation
also indicates that most of the internauts (57%) have       that the internauts grant to these instruments [1] the
discussed at least once the information found in the        measurable quality in the health pages based on formal
cyberspace with his doctors and 52% have gone to the        aspects as well as the pursuit of ethical commitments
network after having spoken with the doctor [24] [43].      and rigorous codes of conduct. The organisms in
  Table 1. Frequency Of Accessing Health Information        charge to credit this aspects make a meticulous pursuit
                  Online: 1998-2005.                        of the Web pages, reason why the obtaining and
                                                            maintenance of their accreditations guarantee the
                                                            visitor the quality of contents, authority, transparency
                                                            and honesty of the emitter of the information.
                                                                They remedy some of the drawbacks associated
                                                            with self-regulation policies. The Webs Médicas de
                                                            Calidad projecct, Health On the Net Foundation, Trust,
                                                            URAC and Hi-Ethics are the five main health related
                                                            seal programs.
                Source: Harris Interactive                      WMC Project is an inter-institutional iniciative
                                                            with an important presence of scientific iberamerican
                                                            organizations (TSB, AEP...) that looks for rigurous
5. Finding solutions                                        acreditation of the Internet resources, from an ethical
                                                            and usability perspective.
    All cited troubles, must be resolved to find                The number of certified resources of health has a
trustworthy health information, capable of being used       marginal character in relation to the total volume of
by patients and promoting their own health [40].            resources to which the users can access. This
                                                            inevitable risk, associated with the nature of Internet, is
5.1 Accesibility                                            reinforced by the fact that the popular sites are not,
                                                            necessarily, those credited or that they count on the
    The European Commission has been active in              endorsement of sanitary institutions [1].
establishing quality criteria for Health related websites
[17] and accessibility of web sites [18]. Patients who          “Accreditated” search engines
seek online health information may have a variety of            The search engines, on the heels of the Web,
physical impairments, and its important to develop          realized that they have a real stake in making sure the
resources that are usable by individuals with               results of their searches are relevant, reliable and
disabilities. The Web Accesible Initiative (WAI) and        trustworthy. Some search engines (not specialized)
the spanish UNE 139803, provides guidelines for             promoting trustworthy health and medical sites such as
assuring broad accesibility to Internet Based               Kosmix.com, mamashealth.com, Webmd.com and
Information.                                                Healthline.com whith “all sites that have been
                                                            accredited by online Web ethics committees like the
5.2 Trust-Building measures                                 Health on the Net Foundation.”[14].

   Self- regulaing policies.                                5.3 "Internal" quality
in order to help make informed clinical and sanitary
    Quality of the health information circulating in          decisions good.
Internet and, more concretely, of the one directed to              Medline plus: National Medicine Library and the
patients, is not a new subject. Periodically, in various      National Institutes of the Health of the U.S.A.
cases, it is necessary to use tools that allow patients       webpage with health information for patients.
and professionals to access health information that is             Other sources: scientific publications, scientific
guaranteed as far as quality, veracity and updates. The       societies, international institutions, consens documents,
patients do not have the abilities nor knowledge              etc.
necessary to face, on their own, single they, the present          Proposals: a patient virtual library.
health information in the network. It is necessary to              A reference site to obtain trustworthy health
implement tools that facilitate the detection and the         information for citizens who consume as well as for
access to the sites with reliable information, so that the    professionals who must provide it .
doctor can prescribe Internet with tranquillity. To                This site caracteristic must be:
date, they have not been able themselves to introduce               Access to credible and comprehensible health
initiatives that solve the problem completely. This is              information
due to the high complexity in generating information                Evidence based information
of quality directed to patients, as well as the                     Documents offered by prestigious organizations
tremendously laborious and expensivetask of                         User friendly and accesible tools
certifying each one of the generated contents. In this              Free log in
way, good intermediate solutions have settled down, as              Pattern     standard    defined      by   BIREME-
they are to credit the quality of the emitting sites of the         PAHO/WHO
information. To this the more important ethical seals
in our means are dedicated (HON, pWMC, COMB).                 6. Conclusions.
These accreditations are based on the verification of
the ethical and formal commitments of the pages with              The new technologies in general, and the Internet
sanitary information [35]. This quality or external           have contributed to the appearance of a new reality in
validity, does not always assuren quality . However,          Health. The appearance of the third space makes
the quality information (based on scientific evidences,       possible, in our scope, new solutions to old problems
updated, adapted to the understanding of the end users)       but, as well, it generates new controversies and
exists and it circulates in the network. This information     unknowns.
is mainly generated and supported by independent              Both as patients and as healthy citizens, people can
scientific societies and public health services, and is       benefit from better personal health education and
made up of recommendations, description of diseases,          disease prevention. They need support in managing
information on preventive activities and habits, etc.         their own diseases, risks and lifestyles. A growing
                                                              number of people are looking proactively for
Trust sources.                                                information on their medical conditions [15]. They
                                                              want to be involved actively in decisions related to
    By using high-quality sources, a health site can          their own health, rather than simply accepting the
demonstrate it has the ability to gather, organize, and       considerable discrepancy (‘asymmetry’) in knowledge
present quality health information and add value for          between themselves and health professionals. e-Health
consumers. If consumers trust most of the sources used        services provide timely information tailored to
by a health portal, they are likely to transfer that trust    individuals in need. Specialised online resources are
to the portal itself.                                         available for health education [16], and lifestyle
    The contributed contents, as much the practical           management. Overall, 73% of health seekers say the
advice, recommendations, the news or articles, are            Internet has improved the health and medical
based on the scientific information of greater rigor          information and services they receive [1].
available. This is obtained using as its base the                 To access this information creates many
sources of intelligence of greater prestige on the            advantages, but also it generates problems and
international landscape:                                      questions not yet solved. Diverse strategies are
    Cochrane Library: Organism without profit whose           directed to diminish the pernicious effects of the access
purpose is to elaborate systematic and updated                online to the information. Among them, they
revisions of clinical tests on the sanitary interventions     emphasize certificates of quality and the explicit
and, when these are not available, revisions of the           systems of autocontrol. However, these valuable tools
trustworthy evidence but derived from other sources,
are not able to discriminate the concrete quality of the         [11]Sociedad de la información en España 2005.
information, coming in through the valuation of their            Fundación     Telefónica.    2005.   Available:
content. Therefore, is essential the development of              http://sie2005.tpiedita.es/datos.html
new tools that allow for the reliable use of the                 [12]Vastag B. Easing the elderly online in search of
information online by citizens and professionals.
                                                                 health information. JAMA 2001; 285 (12); 1563-6
Citizens, because the information is directed toward
them, and professionals because they are who must                [13]Valtueña JA. Esperanzas             frustradas   y   temores
prescribe this information in a customized form. In this         infundados. Jano 2005; 1577; 14.
sense, the creation of a virtual library for patients, with
                                                                 [14]Vascellaro JE. New Engines Focus on Content From
information certified by ethics and scientific reliable
                                                                 Select Medical Sources, Not Just Broad Lists of Links. Wall
emitters, would create an important landmark in the              Street Journal 21 March 2006
access to sanitary information of quality.
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The Internet and Health: Controversies and Opportunities

  • 1. The Internet and Health: Controversies and Opportunities I. Basagoiti Technologies for Health and Well-being Instituto ITACA Universidad Politécnica de Valencia jbasago@itaca.upv.es How to cite: BASAGOITI, I. (2006) “The Internet and Health: Controversies and Opportunities”. I Workshop on Technologies for Healthcare and Healthy Lifestyle (ISBN 97884-611-1311-8) Abstract With all this controversy, it is indispensable to build tools that offer professionals the possibility to Searching for health information is one of the main access and prescribe trustful sites with quality health Internet activities. Harris Interactive last survey information. estimates that over 117 million of U..S adults looked In the present article we tried to approach the for health information in 2005, which means over 75% phenomenon of the access online to the sanitary of population with internet access. In Spain, this information on the part of the citizens, its importance percentage decreases to 28% (INE 2005). and utility, but also the problems which one faces and The Networks huge formation possibilities join the possible solutions to consider. each other with a new health care attention model, where information access is one of the main activities that gives patients possibilities to take their own 1. Introduction decisions about their health. In the same way, new management models The WHO, in Alma-Ata conference of 1978, when recognize preventive activities as highly cost-efective, protesting the access to the health as a universal right, and these interventions are also based on sanitary was not only considering its clinical or curative aspect information and education as changing gears towards but, fundamentally, the access of all to the prevention more healthy habits and preventive philosophy of the disease. Thus, it was understood that the inclusion in all areas of human activities. prevention is one of the main activities - if not the Nevertheless, the Internet sanitary information has main - of the sanitary professionals. serious problems. It is estimated that there are more And within these activities, the indispensable tool is than 4 billion web pages with medical contents and the sanitary education to ensure that, the individuals this number is increasing every year. More than half of and the communities, become people in charge in the those pages do not match minimum quality decision making on their health, and gain autonomy in requirements like author or sources identification, the resolution of their problems. date, or easy consultation to discuss this information Until a few years ago, patients did not have their with the doctor. own means to access to the sanitary information that On the other hand, a serious lack of contents is interested them, and this information was given found that matches the patients’ needs. When patients directly by the sanitary professionals. The new reality have access to professionally-oriented information, that the incorporation of Internet indaily life has with no criteria or filter, usually more problems and supposed, and the instantaneous access to the fears appear than the ones this information solves. information online, generates a different situation, and This is due to the fact that the patient does not have the a different way to relate between patient and needed tools or knowledge to understand and professional. Today it isn´t rare that the patient looks comprehend the information if it is not given in an for information in the Internet to complement and to adequate environment extend what explains its doctor to him and, even, to
  • 2. discuss with this one the diagnostic options and the forget that not only can nearly everyone use the treatments available. information, but publishing your own Web site is just In addition it is undeniable that, in last decade, as easy. This has resulted in an unprecedent health has become a consumer product. Preventive proliferation of information sources on a global scale. activities and the healthful habits have been piercing in Searching for information has become more the thickness of the population, thanks to the efforts of difficult, and the quality of search results is often the professional associations and the aid of media. disappointing. Web sites offering health advice Concepts like "cardiovascular risk", "cardiohealthy abound; as shown by Google, currently the most habits" or "Mediterranean diet" have happened to complete, which proposes over 4 billion (4x109) pages thicken the daily heap. containing the word “health” (108 million 3 years Thus, at this moment the utility of sanitary ago), 1 billion mentioning the term “medicine” (20 information online is unquestionable, as a excelent tool million 3 years ago) and 136 million the term “salud”. for the sanitary education of patients and continuous In next text, we are going to exclusively approach formation of professionals. An educated health care the health information topic, leaving aspects like the consumer is likely to get better care. A “citizen- electronic mail, the communication between health centered health system” that promotes health, requires professionals and patients, the forums and spaces of informed patients capables to take their own decisions interaction and other important emergent elements like about his life [37]. health blogs, drugs commerce and the children in the “E-Health refers to the use of modern information Internet and communication technologies to meet needs of citizens, patients, healthcare professionals, healthcare 2. The WWW of the World Wide Web: providers, as well as policy makers.” This definition of Who, What and Why access to medical e-Health was first developed in the e-Health Ministerial Declaration, 22 May 2003, and made information? during the 2003 e-Health Ministerial Conference. Access to the best medical information available, as How many user are online? much for doctors as for patients, is singly one of the Pew Internet Project surveys between January and great ICT contributions [29]. Network groups, the new June in 2005 show that 67% of the adult American medicine education possibilities, the saving of time, population goes online, including 68% of men and the extension of the sanitary attention to any place and 66% of women. But women slightly outnumber men in the changes in the relations between doctors and the internet population because they make up a greater patients are other phenomena that show that the share of the overall U.S. population. sanitary system is changing. Younger women are more likely than younger men So, Internet users report two effects of online to be online; older men are more likely than older health resources: better health information and women to be online: 86% of women ages 18-29 are services, and different (but not always better) online, compared with 80% of men that age. On the relationships with their doctors. Three-quarters (73%) other hand, 34% of men 65 and older use the internet, of health seekers say the Internet has improved the compared with 21% of women that age [3] health information and services they receive. Some online surveys respondents say that doctors are Although very large numbers of Internet users receptive to Internet research; others are cautioned to conduct health searches, most do so infrequently. Eight avoid any online health information [1]. of ten of those who have conducted health searches say However, beyond its potential, the effectiveness of they do so every few months or less frequently than health information online is not even well established that. Indeed, on a typical day, just 6% of Internet users in the case of the patients and, although the prevention look for health or medical information online (by strategies are theoretically feasible, face great contrast, 49% use email, 19% research a product or problems putting them in practice. Still it has not been service, and 5% buy a product online). explored how the communication online can promote In Spain, INE survey show that 31% population physical activity, healthful dietetic habits or quitting goes online in 2005, being 30% of homes with the smoking [2] [36] . Internet acess (48% EU media) [4]. In addition, "democratization" of the information One of each two Spaniards has never used Internet, access has opened new possibilities, but it also a percentage seven points superior to the European generates new problems and incognitos relations, average (43%) according to the data of a study generally, to the quality of this information. We do not published by Eurostat. Only the 35 percent is
  • 3. connected weekly, as opposed to 40% in the set of the values around 29%, descending these numbers to the UE [5]. 26 for populations between 10,000 and 20,000 inhabitants, and 23% for populations smaller to 10.000. Who access to medical information?. Figure 1. Spanish Health-Seekers of all those online, “Health seekers” are Internet users who search years 2003-2005. online for information on health topics, whether they are acting as consumers, caregivers, or e-patients [3] 2005 28% While everyone agrees that the number of health seekers is rising, the way to establish that number is a controversial matter. In USA, Harris Interactive calculated that 117 2004 23% million adults have looked for health information on the Internet, compared to 111 million in 2004, 109 lmillion in 2003 and 110 million in 2002. 2003 18% But there have been no epidemics reported of Internet users rushing online for health information. 0% 5% 10% 15% 20% 25% 30% The global percentage of internauts interested in the health information in the last three years has descended to 72% of al those who are online (74% in 2004 and Source: SIBIS 2004, INE 2003 & 2005 78% in 2003). 61% users of Internet between 18 and 34 years has consulted information of health in the network in the last 12 months, as opposed to 7.1% that Figure 2. Spain: Percentage of the Internet users that it has preferred to resort to a specialist. Although the search for in the last three month health information of whole population and online population, by gender. number descends as increases the age, 21.4% of the internauts greater of 65 years resorts to the network to inquire on health subjects, as opposed to 20.9% that it 40 30,9 28,13 25,84 continues consulting doctor [6]. 30 March 2004 demographic data from Hitwise revealed that most of the visitors to health and Medical 20 Information web sites were higher earning 35 to 44 years old females who accesed the Internet from home. 10 In Spain according to the last survey of the INE [7], 28% of users of Internet it has consulted information 0 on health in the last 3 months, which represents an Both Men Women increase of 6% with respect to the 2004 (figure 1). Of them, 23% have between the 15 and 24 years (figure Source: INE 2005 5). The internaut population greater of 65 years than has been interested in health subjects in the network is practically nonexistent (0,27%). Main number of the Internet users and health- seekers are between 25 and 34 years. Women online search health information more than men (30,9 vs 25,8, figure 2). 34% of online users betwwen 35-44 years, search the web for health information in last tree months. A higher educational level correlates a higher search for health information (figure 3). So, Housewife and pensioners online are the two groups with highest percentages of health-seekers (figure 4). The consultation of health information percentage, from the point of view as large of city user, does not offer statistically significant differences from greater populations of 20,000 inhabitants, locating itself in
  • 4. Figure 3.Percentage of Internet users searching for health information last three months of all online users, by 35 34,33 30,58 educational level 28,13 28,85 30 35,18 25,91 28,13 27,2 24,4 30 22,47 26,47 25 22,24 20 16,65 20,61 19,07 10 0 20 16,15 16,3 0 15 l es . st E. a... . Al at y E E. 1 yE igh nic 9,15 it er ar y H it ar 10 Ill im ar ch rs Pr nd Te nive 4,87 4,36 co gh U 5 Se Hi 0,92 0,16 0 Source: INE 2005 Total 15-24 25-34 35-44 45-54 55-64 65-74 >74 Figure 4. Percentage of use Internet to search for health % whole population % online population information last tree month of all online users, by work situation Source: INE 2005 40 What information is sought? 35 34,19 35,23 35,22 30 28,13 29,3 26,3 25 In USA, recents surveys about tematic preferences of the 21,8 20 Internet seekers offers that 44% of Internet users have 15 searched online for information about diet, nutrition, 10 vitamins, or nutritional supplements; 36% have searched online for information about exercise or ed er ll em rs ts Pe gar rs A en ke ne th oy fitness. Internet users between the ages of 18 and 29 o ud O or io sh pl ns are the most likely to have searched for this last topics ew St re bo un iv of information – 51%, compared to 35% of 30-49 ct La e A iv year-olds, 28% of 50-64 year-olds, and just 13% of ct A Internet users age 65 or older. 34% users have searched online for information Source: INE 2005 about prescription or over-the-counter drugs .25% have searched online for information related to health Figure 5. Percentage of Internet use searching for health insurance. information last tree month of all and online users, by age 80% internet users have looked online for groups. information on at least one of 16 related health topics, with increased interest since 2002 in diet, fitness, drugs, health insurance, experimental treatments, and particular doctors and hospitals. Some demographic groups showed notable interest in specific topics – 59% of online women have read up on nutrition information online, for example, compared with 43% of online men. Thirty-eight percent of online parents have checked online for health insurance information, compared with 26% of internet users who do not have children living at home [3] . In Spain we do not have trustworthy data on the main topics consultation online. An approach has been made from the UOC from the main topics boarded by spanish webs of health emphasizing anxiety, cancer, pregnancy and AIDS like the items more repeated [8].
  • 5. Why users seek health information? 4,5 4 Main activities of Internet users about health are to 3,5 3 research a diagnosis or prescription, prepare for 2,5 Both 2 surgery or find out how best to recover from one, get 1,5 tips from other caregivers and e-patients about dealing Men 1 0,5 with a particular symptom, give and receive emotional Women 0 support and keep family and friends informed of a o n n ce i nf tio tio vi loved one’s condition. or lta rip ad 47% of Internet users have at some point searched o kf ns u re sc to r Lo co tp oc online for information about a certain medical e st es rd qu qu fo Re Re ok treatment or procedure. 63% of Internet users have at Lo some point looked for information about a specific Source: INE 2005 disease or medical problem. 44% of Internet users have searched online for information about diet, Parents are a specific proactive group of the nutrition, vitamins, or nutritional supplements. Some Internet searches. So 38% of online parents have of these searches are certainly for weight management. checked online for health insurance information, 57% of those who recently conducted searches did so compared with 26% of internet users who do not have on behalf of someone else — a spouse, child, friend, or children living at home. Mothers are more active in the other loved one — not for themselves. information search. 71% of the connected mothers Main groups of the Internet seekers are parents, have looked for information on subjects of health for women, healthy people, and the middle aged between their children in the last month [3][10]. 30 and 49 years old. In addition, there is a small group Taking in consideration gender differences women are of Internet users who are living with a disability, significantly more likely than men to look for general handicap, or chronic disease or who take care of health and medical information, as well as information someone living in their household on specific diseases or medical conditions, treatments Caregivers who live with someone who is or procedures. They also are more likely to look for chronically ill or disabled, a group of searchers who support groups to communicate with for diseases or make frequent use of the Internet for health issues, are conditions, to search for information on diet and particularly likely to have searched for information nutrition, on how to quit smoking, and on mental about a specific treatment – 62% have done so. health issues, including depression, anxiety, and stress Some demographic groups showed notable interest [1]. in specific topics – 59% of online women have read up In the ranking of the 10 first associations and on nutrition information online, for example, compared Spanish medical organizations in Internet in 2004, with 43% of online men. Thirty-eight percent of online three of them are pediatrics associations, occupying the parents have checked online for health insurance first position tle Asociación Española de Pediatría information, compared with 26% of internet users who (AEP) [4]. do not have children living at home. Forty-one percent of internet users with a broadband connection at home Figure 7. Percentage of Internet use to search for health have looked up a particular doctor or hospital, information last tree month of all and online users, by compared with 19% of internet users with a dial-up gender. connection at home [10]. Figure 6. Spanish health seekers by type of activity and gender
  • 6. of the information for the education and information of 35 28,13 30,9 the patients. 25,84 30 25 4.1.Accesibility and usability. 20 9,85 9,45 In firstly, the Internet does not reach all places 15 4,87 and, when it does, it does not offer the same speed of 10 access. More than 70% world population have no 5 access to a telephone line. In Spain number of Internet 0 connections through ADSL lines has increased during All Men Women the last years. Nevertheless, this advance is not % whole population significant either if we compared it with the rest of the % online population european countries of the 15, where Germany Source: INE 2005 maintains the leadership with 6,700,000, as opposed to the 2,583,000 of lines in Spain at the beginning of the year 2005 percentage [11]. If we express that in percentage data, 25% Spanish homes have broadband 3. Health information online: opportunities access (23% EU media). In addition, users conditions often limit their A citizen-centred medicine requires informed capacity of access to the information online. A great citizens, able to freely make decisions on own their number of patients have special necessities, they are health. Internet provides an ideal media to receive physical, cognitivas or, simply, educational. information on healthful habits of life, Rising demand for health and social services, due recommendations on prevention and, handling of the to an ageing population and higher income and disease or knowledge of first aid. educational levels. In particular, by 2051, close to 40% Their main advantages are: of the European Union’s population will be older than Accesibility to information: one of the most 65 years old. At this moment, In Spain there are more important aspects of online health advice is the fact than 19 million chronic patients, of whom more than that it is available at any hour of the day or night, from half they are greater of 65 years. wherever users are able to log on. As we can see, elderly people constitute a growing Instantaneously, because the Internet users dont group of computer users and information seekers on have delays or reserves to access the information. the Internet. Furthermore, the elderly are a big The use of Internet and the information retrieval consumer of healthcare services, and the Internet can are comfortable and, after a small training, easy to do. offer unparalleled opportunities to adquire health Connectability (interaction space). Internet offers information. From the viewpoint of health new possibilities of interaction with other users and professionals, the opportunity to reach this largely professionals. To send and to receive information, to unwired population is increasingly recognized. Indeed, participate in forums and to relate to users and more initiatives are being put into place in order to professionals were hardly attainable activities until the ease seniors into Internet use and to give them the arrival of Internet. means of access. Technical adaptation to ageing Personalization: allows consumers to customize the changes is necessary for better usability. Additionally, portal interface and information preferences and allows cognitive, psychological and social factors are just as the portal to individually target consumers. important for optimizing access and usage of Anonimity it is important that Internet users can get computers by the elderly population [12]. health information anonymously. The Internet offers the possibility of obtaining the 4.2.Quality and pertinence of information. newest and updated information Not only can nearly everyone use the information, 4. Health information online: controversies but publishing your own Web site is just as easy. This has resulted in an unprecedent proliferation of The theoric advantages of health information information sources on a global scale. currently access online has important problems On the other hand, a serious lack of contents is unsolved. These problems are limiting as the capacity found that matches the patients’ needs. When patients of access to the information and like the effectiveness
  • 7. have access to professionally oriented information, with no criteria or filter, usually more problems and The Internet is characterized by the excess of fears appear than the ones this information solves [33]. information and its chaotic organization. To find This is due to the fact that the patient does not have the pertinent information requires training. needed tools or knowledge to understand and comprehend the information if it is not given in an 4.5. “A new religión”: Absolutely truths, adequate environment. Information must be solution for whole problems, virtual sustitute... comprehensible and must be written in “Plain language”. In the health field, "news frequently transmits to their public a vision absolutely distorted. For the Figure 8. What sources of information truths reader, the viewer or the listener with little medical european citizens? training, that is to say, for the immense majority, 0 20 40 60 80 100 thanks to mother cells the Parkinson, the diabetes or the Altzheimer is going to shortly be cure. Those that Medical societies 84,4 create and spread these false illusions carry a heavy Consumers org. 67,2 responsibility; on the one hand they favor the unreliability of the medical research if the created Universities 65,5 hopes are not materialized and, more importantly, they Mass Media 39,3 create an irresponsibility when originating the illusion that investigation research will solve all health Goverment 23,4 problems and that does not matter to smoke, to be Religious org 22,9 obese, or, in general, to behave in an aggressive way for own health[13]. Political org 10,7 In addition, users must accept the considerable discrepancy (‘asymmetry’) in knowledge between Source: Eurobarometer 58.0 (2003) themselves and health professionals. It is difficult to transmit that the medicine is not an exact science but a The access to information does not guarantee its "statistical science". utility or its understanding. Low health literacy limits many Americans' ability to understand what is Figure 9. Home Internet conection in Spain by kind and available online. It is necessary to adapt the year information to the different profiles of users to make 5 this comprehensible without losing rigor and veracity. 5 This is one of the greater difficulties for scientific 4 2003 2004 2005 communication in general, and education for the health 4 in individual. Finding relevant information and 3 ascertaining its trustworthiness creates two inseparable 3 2 concepts necessary for the Web to flourish as an 2 unpredecedent source of knowledge and continue in 1 helping ill patient or citizen to stay healthy. Consumer 1 health information should be written with a 0 comprehensible reading level Whole homes Phone line Broadband online traditional 4.3.Credibility Source INE, Ministerio de Industria According to the Eurobarometer 58,0 (2003) 4.6. “Cybercondriacs”. citizens consider the trustworthy sources of health information the medical societies (84,4%), The great consumer of information has a certain organizations of consumers (67,2%) and universities profile. He does not access information who most (65,5%), in front of mass media (39%), government needs it. The healthy patient usually does not perceive sources (23,4%)and politic organizations (just 10.7%). a necessity of information (primary prevention) except in case they must use it for some reason (caretakers, 4.4. Training. relatives of patients, mothers).
  • 8. Although the total number of adults who have They are the rules and guiding principles a health looked for health information online have decreased, site follows with respect to privacy, security, editorial, the frequency with the North American users consult and advertising. Their main problems are that often are webpages that offer health contents increases. Thus, posted as footnotes –so consumers may be unaware of 58% of the interviewed people who have access to their existence-, they are self-proclaimed, and are not Internet recognize that it looks for this class of standardized [30]. information "some times" or "often", as opposed to 50% that have consulted this information the past year. Third part seals. Thus, adults who now look for medical information or The accreditation of portals, directions and other sanitary cares do more assiduously than in previous resources of free access through Internet has a main years. A 89% affirm that it has been successful and importance, that they make like a control mechanism have found in the Web the medical data that they on the heterogenea nature and quality of information looked for. In addition, 90% of them consider that the that is offered; and although the studies made on the information that has consulted is trustworthy. Survey guidelines of the users emphasize the lack of valuation also indicates that most of the internauts (57%) have that the internauts grant to these instruments [1] the discussed at least once the information found in the measurable quality in the health pages based on formal cyberspace with his doctors and 52% have gone to the aspects as well as the pursuit of ethical commitments network after having spoken with the doctor [24] [43]. and rigorous codes of conduct. The organisms in Table 1. Frequency Of Accessing Health Information charge to credit this aspects make a meticulous pursuit Online: 1998-2005. of the Web pages, reason why the obtaining and maintenance of their accreditations guarantee the visitor the quality of contents, authority, transparency and honesty of the emitter of the information. They remedy some of the drawbacks associated with self-regulation policies. The Webs Médicas de Calidad projecct, Health On the Net Foundation, Trust, URAC and Hi-Ethics are the five main health related seal programs. Source: Harris Interactive WMC Project is an inter-institutional iniciative with an important presence of scientific iberamerican organizations (TSB, AEP...) that looks for rigurous 5. Finding solutions acreditation of the Internet resources, from an ethical and usability perspective. All cited troubles, must be resolved to find The number of certified resources of health has a trustworthy health information, capable of being used marginal character in relation to the total volume of by patients and promoting their own health [40]. resources to which the users can access. This inevitable risk, associated with the nature of Internet, is 5.1 Accesibility reinforced by the fact that the popular sites are not, necessarily, those credited or that they count on the The European Commission has been active in endorsement of sanitary institutions [1]. establishing quality criteria for Health related websites [17] and accessibility of web sites [18]. Patients who “Accreditated” search engines seek online health information may have a variety of The search engines, on the heels of the Web, physical impairments, and its important to develop realized that they have a real stake in making sure the resources that are usable by individuals with results of their searches are relevant, reliable and disabilities. The Web Accesible Initiative (WAI) and trustworthy. Some search engines (not specialized) the spanish UNE 139803, provides guidelines for promoting trustworthy health and medical sites such as assuring broad accesibility to Internet Based Kosmix.com, mamashealth.com, Webmd.com and Information. Healthline.com whith “all sites that have been accredited by online Web ethics committees like the 5.2 Trust-Building measures Health on the Net Foundation.”[14]. Self- regulaing policies. 5.3 "Internal" quality
  • 9. in order to help make informed clinical and sanitary Quality of the health information circulating in decisions good. Internet and, more concretely, of the one directed to Medline plus: National Medicine Library and the patients, is not a new subject. Periodically, in various National Institutes of the Health of the U.S.A. cases, it is necessary to use tools that allow patients webpage with health information for patients. and professionals to access health information that is Other sources: scientific publications, scientific guaranteed as far as quality, veracity and updates. The societies, international institutions, consens documents, patients do not have the abilities nor knowledge etc. necessary to face, on their own, single they, the present Proposals: a patient virtual library. health information in the network. It is necessary to A reference site to obtain trustworthy health implement tools that facilitate the detection and the information for citizens who consume as well as for access to the sites with reliable information, so that the professionals who must provide it . doctor can prescribe Internet with tranquillity. To This site caracteristic must be: date, they have not been able themselves to introduce Access to credible and comprehensible health initiatives that solve the problem completely. This is information due to the high complexity in generating information Evidence based information of quality directed to patients, as well as the Documents offered by prestigious organizations tremendously laborious and expensivetask of User friendly and accesible tools certifying each one of the generated contents. In this Free log in way, good intermediate solutions have settled down, as Pattern standard defined by BIREME- they are to credit the quality of the emitting sites of the PAHO/WHO information. To this the more important ethical seals in our means are dedicated (HON, pWMC, COMB). 6. Conclusions. These accreditations are based on the verification of the ethical and formal commitments of the pages with The new technologies in general, and the Internet sanitary information [35]. This quality or external have contributed to the appearance of a new reality in validity, does not always assuren quality . However, Health. The appearance of the third space makes the quality information (based on scientific evidences, possible, in our scope, new solutions to old problems updated, adapted to the understanding of the end users) but, as well, it generates new controversies and exists and it circulates in the network. This information unknowns. is mainly generated and supported by independent Both as patients and as healthy citizens, people can scientific societies and public health services, and is benefit from better personal health education and made up of recommendations, description of diseases, disease prevention. They need support in managing information on preventive activities and habits, etc. their own diseases, risks and lifestyles. A growing number of people are looking proactively for Trust sources. information on their medical conditions [15]. They want to be involved actively in decisions related to By using high-quality sources, a health site can their own health, rather than simply accepting the demonstrate it has the ability to gather, organize, and considerable discrepancy (‘asymmetry’) in knowledge present quality health information and add value for between themselves and health professionals. e-Health consumers. If consumers trust most of the sources used services provide timely information tailored to by a health portal, they are likely to transfer that trust individuals in need. Specialised online resources are to the portal itself. available for health education [16], and lifestyle The contributed contents, as much the practical management. Overall, 73% of health seekers say the advice, recommendations, the news or articles, are Internet has improved the health and medical based on the scientific information of greater rigor information and services they receive [1]. available. This is obtained using as its base the To access this information creates many sources of intelligence of greater prestige on the advantages, but also it generates problems and international landscape: questions not yet solved. Diverse strategies are Cochrane Library: Organism without profit whose directed to diminish the pernicious effects of the access purpose is to elaborate systematic and updated online to the information. Among them, they revisions of clinical tests on the sanitary interventions emphasize certificates of quality and the explicit and, when these are not available, revisions of the systems of autocontrol. However, these valuable tools trustworthy evidence but derived from other sources,
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