Overview of the Haemophilia Patient Record System. Presentation by Declan Noone, President, European Haemophilia Consortium, originally presented at the IPPOSI Annual Conference 2019

1. DYNAMIC ELECTRONIC
HEALTH RECORDS IN
HAEMOPHILIA
Declan Noone
7th Oct 2019

2. All
Regional
Hospitals
CCC’s and
HTC’s
Main National
Centre
Independent Delivery
Company
Patients
Product
Selection
Committe
e
TENDER
EHR
One way info
Two-way info
One way
product

3. IMPACT OF DYNAMIC EHR’S
oSafest & Most Efficacious Products
oAvailability of Treatment as required
oProphylaxis, Immune Tolerance Therapy,
Surgery
oOne of the highest uses of Factor
concentrate per capita in Europe
oFirst Country in the World to Switch
to all patients to Extended Half-Life