2. On today s call:
Sue Sheridan
Bill Silberg
JL Neptune
Jenn Stone
Patient Engagement Communications Senior Vice President
Challenge Manager
Director
Director
PCORI
PCORI
Health 2.0
Health 2.0
3. Agenda for Today s Meeting
PCORI Overview
Challenge Background
The Challenge
Evaluation Criteria
Timeline
Q & A
4. Patient-Centered Outcomes
Research Institute (PCORI)
A non-governmental organization authorized by
Congress in 2010.
Overseen by 21-member multi-stakeholder Board of
Governors.
Funds patient-centered comparative effectiveness
research.
Committed to continuously seeking input from
patients and broad range of stakeholders to guide its
work.
5. What PCORI Has Done To Date
Key Accomplishments
o Defined patient-centered outcomes research.
o Developed research priorities and agenda.
o Issued methods standards.
o Launched engagement initiatives.
o Issued $30MM in Pilot Project awards.
o Began funding primary research ($41MM so far).
o Compiled more than $300MM to support 2013
research projects (3 funding cycles/year).
6. Engagement: A Path to Rigorous
Research
Stakeholder communities shape our work
o We seek to answers questions patients/caregivers have
about health care decisions they face.
o We have a 21-member multi-stakeholder Board.
o We require patients to be part of research teams
receiving our funding.
o Patients, caregivers and other stakeholders review
funding applications.
o We see stakeholders as partners in disseminating and
using the research we support.
7. How We Engage
Inperson and online.
Small-group meetings.
Roundtables and workshops.
Large multi-stakeholder events.
Surveys.
Soliciting research questions through our web site
and meetings.
This challenge.
8. Challenge Background
PCORI is committed to meaningful patient, caregiver
and stakeholder engagement as a tool for rigorous
research.
PCORI funding announcements require patients be
fully engaged throughout research process.
Engagement is among the criteria PCORI uses to
score applications.
9. The Challenge
Develop a “matching” system that can connect
researchers and potential patient partners.
Solution could be:
o A well-articulated conceptual model.
o An adaptation of existing matching protocol.
o A prototype or an entirely new web-based
service or app.
o Some combination of these approaches, or
something else entirely.
10. The Challenge
Two first-place awards:
o Conceptual model -- $10,000
o Prototype of app -- $40,000
Winners’ work may be considered for additional
PCORI support, depending on outcome of the review
process.
Submission materials: slide deck (5 slides), overview
doc (5 pgs), video demo (5 min), link to working app
(optional).
11. Evaluation Criteria
Technical feasibility, usability and scalability of the
proposed conceptual model/prototype.
Differences in ways patients, caregivers and
researchers understand, describe and seek answers to
problems or issues they face.
Maximizing “patient-centeredness” & scientific rigor.
Particular challenges of serving "hard-to-reach"
audiences: ethnic & racial minorities, rural pops, the
elderly, physically challenged and non-English speakers.
12. Timeline
Submission period begins: December 14, 2012.
Submission period ends: April 15, 2013.
Winners notified: May 15, 2013.
Winners announced: at a major national health
conference in the spring of 2013.
