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Maddie\'s Journey
- 1. Maddie’s Journey Through Leukemia & Cord Blood Transplant
- 2. 10/2/2006 Diagnosis: Acute Lymphocytic Leukemia Goal: Remission in 28 Days
- 3. Treatment Plan Includes Chemo, Steroids, and Antibiotics
- 4. 11/1/2006 One Month into Treatment Primary Induction Failure
- 5. Doctors Prepare a New Treatment Plan while Current Chemo Causes Hair Loss
- 6. 11/7/2006 New Treatment Plan includes Inpatient Chemo & Referral to U of M for Bone Marrow Transplant
- 7. 12/14/2006 Remission is Finally Achieved!!!
- 8. 12/26/2006 In Remission but Treatment Continues – Second Round of Inpatient Chemo
- 9. Winter 2006 Friends Help Make the Hospital Fun!
- 10. 1/20/2007 Search of the National Bone Marrow Registry Shows No Acceptable Marrow Matches but Several Cord Blood Matches are Found
- 11. 2/14/2007 Final Plans are Set for Cord Blood Transplant at U of M, Also Enrolled in Clinical Trial Studying Double Cord Transplants
- 12. 2/21/2007 Off to U of M for Cord Blood Transplant
- 13. 2/22/2007 Napping after Placement of 2 nd Central Line at CS Mott Children’s Hospital
- 14. Pre-Transplant Conditioning Includes 5 Days of Chemo & 4 Days of Total Body Radiation
- 15. 3/5/07 Double Cord Blood Transplant
- 16. Pain From Mouth Sores Requires Continuous Morphine Failure to Take in Enough Calories Orally Makes IV Nutrition Necessary
- 17. Rising Blood Counts and Skin Rash (GVHD) Signs of Engraftment
- 18. 4/9/2007 Continuing to Battle GVHD of the Skin & Gut on Easter
- 19. Multiple Medications to Control GVHD, Starting to Feel Better
- 20. 4/14/2007 First Post Transplant Bone Marrow Biopsy Shows No Leukemia and 100% Donor Cells
- 21. 4/20/2007 After 2 Month Stay Discharged from Mott Children’s Hospital, Moved to Apartment in Ann Arbor
- 22. Home Routine Includes Oral Meds, IV Meds, & IV Nutrition
- 23. 5/21/2007 Home Again After 3 Months in Ann Arbor
- 24. Summer 2007 Follow-up Appointments at U of M Cancer Center Every 2 Weeks Throughout the Summer
- 25. 8/7/2007 Poor Appetite Leads to Weight Loss and IV Nutrition is Once Again Required-Plans Made for Surgical Placement of Feeding Tube
- 26. 9/21/2007 Surgery to Place Feeding Tube in Stomach – Surgical Complication Leads to Perforated Bowel And Emergency Surgery to Repair
- 27. 10/31/2007 Healing from Surgery and Thriving on Tube Feedings
- 28. 12/2007 Appointments to U of M Becoming Less Frequent, Reductions Made in Meds & Tube Feeds
- 29. 3/5/2008 One Year Post Transplant: Leukemia Free and 100% Donor Cells
- 30. 4/29/2008 Issues Being Monitored: GVHD Endocrine Issues (Hypothyroidism & Height/Weight)
- 31. Survival into the Future!!