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Rehabilitation and return to work after cancer — instruments and practices
1. Safety and health at work is everyone’s concern. It’s good for you. It’s good for business.
Rehabilitation and return to work after cancer —
instruments and practices
Focus: OSH experts
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http://osha.europa.eu
Content
Background
Project overview: methodology
Methodology’s strengths and limitations
Results
• Review of the literature: rehabilitation and RTW after cancer diagnosis
• Overview of instruments, practices, policies and interventions
• Innovative instruments, practices, policies and interventions
• Programmes in enterprises and employers’ experiences
• Implementation of instruments, practices, policies and interventions — barriers
• Implementation of instruments, practices, policies and interventions — facilitators
Recommendations for research
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Background: employment after a cancer diagnosis
Increase in the number of workers diagnosed with cancer at the workplace
• Number of cancer patients of working age is increasing
• Better treatment and higher survival rates
• Increasing retirement age
• Ageing working population
• 3.4 million new cases of cancer each year in Europe
• Of which 1.4 million people are of working age each year
Cancer and return to work is an OSH problem of increasing importance
• Of all chronic medical conditions, cancer has by far the highest prevalence of work loss and
reduction in work functioning 1
• Average RTW rate: 64% after 18 months 2
• Cancer survivors: likelihood of unemployment is 37% higher 3
• Cancer survivors: likelihood of disability pension is three times higher 3
1 Kessler 2001, JOEM; 2 Mehnert 2013; 3 De Boer et al. 2009, JAMA
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Background: RTW after a cancer diagnosis is important
RTW after cancer is important
• Worker
− Quality of life for cancer survivors
− Income and insurance
− Structure in normal life and social contacts
• Employer
− Keep experienced employees in companies
− Reduce financial impact on companies and society
Optimising the rehabilitation and RTW of workers with cancer is essential
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Background: RTW after a cancer diagnosis is important
Policies, programmes and instruments to support RTW process of workers with cancer
are important
• Modifiable factors provide opportunities for interventions to enhance cancer patients’ RTW
• Despite a limited number of interventions aimed at enhancing cancer patients’ RTW, little is
known about:
− their success factors
− facilitators of their implementation in other settings
− barriers to their implementation in other settings
• Policies and practices are needed to avoid problems
• Employers need advice in assisting the worker affected by cancer while returning to work
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Project overview: methodology
Task 1:
Background information on rehabilitation
and RTW after cancer
• Scientific literature search
• Grey literature search
• Online questionnaire
Task 3:
Examples of companies’ experiences
• Semi-structured interviews with stakeholders*
in eight companies in NL, BE, IE, UK (two to four
interviews in each company)
• Structured qualitative analysis
*Worker, employer, occupational physician, representative of
trade union
Task 2:
Detailed descriptions of policies, systems,
programmes and instruments in the field of
rehabilitation/RTW after cancer
• Grey literature search
• Interviews with programme leaders of seven programmes
Task 4:
Identification of facilitators of and barriers
to implementation of programmes to
improve RTW of cancer-diagnosed workers
• Four semi-structured focus groups with intermediaries** in
NL, BE, IE, UK
• Structured qualitative analysis
**OSH service providers, labour inspectors, occupational
health services, HR managers, healthcare providers,
government representatives, trade union representatives,
networks/NGOs
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Methodology’s strengths and limitations
Strengths
• Systematic review
• Extensive literature
• Extensive description of programmes
• Extensive knowledge of programmes
• Extensive information from different experts through interviews and focus groups in four
countries
• Same protocol for interviewing, focus groups and analysis in four countries
Limitations
• No data saturation because of four countries involved
• The extent to which findings can be applied to all EU countries might be limited, as not all EU
countries were involved
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Review of literature: health implications and costs
Health and safety implications for workers affected by cancer
• Effects of cancer and its treatment on health:
− Psychological and cognitive symptoms, e.g. depression, anxiety and
concentration problems
− Physical symptoms: mainly fatigue
• Occupational implications:
− Diminished work productivity
− Work ability impairments and reduced functioning
Costs for workers, employers and society
• Sick leave and no RTW:
− Financial loss for the worker, the employer and society
• Total economic loss to European Union owing to lost working days as a result of cancer:
€9.5 billion in 2009
https://osha.europa.eu/en/tools-and-publications/publications/rehabilitation-and-return-work-after-cancer-literature-review
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Review of the literature: occupational cancer and SMEs
Work-related and occupational cancer
• RTW issues seem to be no different from those concerning non-occupational cancers
− Most occupational cancers have long latency
− Exposure to carcinogens at work may be unknown
Small and medium-sized enterprises (SMEs)
• RTW of cancer patients seems more problematic for those in SMEs
• Barriers
− Information and resources for RTW programmes are lacking
− Fewer alternative jobs and tasks
• Facilitators
− Family-like atmosphere: more supportive environment
https://osha.europa.eu/en/tools-and-publications/publications/rehabilitation-and-return-work-after-cancer-literature-review
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Overview of instruments, practices, policies and interventions in
Europe
In tasks 1 and 2, 78 instruments,
practices, policies and interventions
were found in:
• 13 European countries (69)
• USA and Australia (9)
Instruments, practices,
policies and interventions
include:
• Training
• Providing information
− by phone
− online
− on paper
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Interventions aimed at workers and employers
Aimed at workers
• Workplace accommodations, including:
− workload
− tasks
− assistance
• Information and training on cancer and RTW issues
• Psycho-educational interventions
• Rehabilitation services
• Job coaching
Aimed at employers
• Support for employers in constructing RTW plans for workers with cancer
• Workplace accommodations to facilitate RTW
• Improved communication between the employee and co-workers
• Factual information on diagnosis and treatment of cancer
• Guidelines
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Innovative interventions: Macmillan and municipality-based programme
1. Working through cancer programme of Macmillan Cancer Support (UK)
• Online information, support, training, tools, videos
• Help for different stakeholders
− people with cancer and their families/carers
− health and social care professionals
− employers
2. Municipality-based occupational rehabilitation programme (Denmark)
• Individual, tailored to worker’s needs
• Involves different stakeholders
− hospital (nurses)
− employer
− job consultant
− worker
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Innovative interventions: in-hospital and work reintegration agencies
3. In-hospital rehabilitation intervention (the Netherlands)
• Early intervention
• Involves different stakeholders
4. Work reintegration agency Rentree (Belgium)
• Involves different stakeholders
• Worker chooses who is involved in the RTW process
• Tailored to the worker
5. Work reintegration agency Re-turn (the Netherlands)
• Includes issues regarding work, home, family, relationships and physical/mental effects of
treatment and RTW
• Involves different stakeholders
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Innovative interventions: work reintegration agency and booklet
6. Reintegration agency oPuce (the Netherlands)
• Provides help for unemployed cancer patients
• Results in new jobs for unemployed cancer patients
• Works together with large companies
7. Booklet of the Irish Congress of Trade Unions (Ireland)
• Aimed at:
− Breaking the stigma of cancer and RTW
− Encouraging good conversations between the employer and worker
− Providing assistance to unions who represent members diagnosed with
breast cancer who are returning to work
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Programmes in enterprises and employers’ experiences
We found 28 examples of enterprises that have implemented successful measures for
managing the RTW of workers with cancer
• Seven European countries
They represent:
• Different types of cancer
• A variety of workplace sizes
• A variety of activity sectors and locations
• Medium-sized companies
• A variety of professions
Employers are key stakeholders in the RTW process
• They are in a position to create good working conditions
• They can reduce discrimination and stigmatisation
• They can help minimise the economic impact of a cancer diagnosis
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RTW programmes for occupational and work-related cancer and for SMEs
Employers’ positive attitude and understanding is crucial
We found no programmes aimed at RTW for workers with occupational and work-
related cancer
Companies with fewer than 250 workers (SMEs) lack information and resources for
RTW strategies or programmes
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Communication and project organisation in companies
Communication between companies and workers
• Depends on the size of the company
− In smaller companies, the communication lines seemed to be shorter and the worker was likely
to be informed sooner
• Depends on the situation of the worker, including the severity of the medical diagnosis and
their personal preferences
Project organisation within companies
• Some programmes were actual policies within the companies
• Others were organised by external agencies
• Some had teams within the company that were responsible for the RTW programme
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Implementation of instruments, practices, policies and
interventions – barriers
Barriers
• Companies being unable to provide work adjustments
• Occupational healthcare after treatment phase not being covered by the health insurer
• Lack of clarity about who is responsible for RTW
• Cultural stigma of cancer diagnosis
• Cultural misconceptions about possibilities of working after cancer diagnosis
• Lack of time
• Financial difficulties
• Lack of knowledge and insufficient skills at the workplace to support the RTW of the worker
with cancer
• Privacy legislation that hinders open communication, although this is the patient’s statutory
right
• Failure to address work immediately from the start of treatment
• Attending physicians being too protective regarding RTW
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Implementation of instruments, practices, policies and
interventions — facilitators
Facilitators
• Communication with worker and between stakeholders
• Multidisciplinary programme including psychosocial and physical aspects, and occupational
healthcare
• Flexible programme (tailored to the worker’s situation)
• Knowledge among HR personnel and supervisors on cancer and work via, for example,
workshops
• Company’s positive policy
• Structural implementation of an RTW programme within the company
• Training of supervisors, HR personnel and case managers in cancer and work aspects, e.g.
long-term side effects, communicating with the worker with cancer, and elements of an RTW
programme
• Legal possibilities of offering part-time work
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Recommendations for research
More research is needed on the cost-effectiveness of programmes
Development of new, multidisciplinary interventions that take psychosocial, physical
and occupational healthcare into account
• Successful programmes should focus not only on RTW but also on remaining in work once a
worker has returned
Development of interventions aimed at employers
• Companies should allocate enough time, finances and training in knowledge and skills for
the implementation of the programmes to be successful
• Need for practical information regarding, for example, reasonable accommodation within the
organisation
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Recommendations for research
More research and knowledge is needed on programmes and policies in SMEs
• SMEs should be provided with help. It is difficult for them to implement RTW programmes,
because it is harder for them to accommodate work modifications and provide gradual RTW,
as they have less flexibility
More research is needed on programmes and policies for work-related and
occupational cancers
Work should be assessed earlier
• Occupational health physicians should have access to the worker with cancer and should
support both the worker and the employer early in the diagnosis and treatment process
Notas do Editor
Amendable/modifiable factors: e.g. fatigue, concentration problems, need for work adaptations
Regarding 1)
This programme shows a particularly comprehensive approach, with different resources targeted at multiple stakeholders, including employees, employers, the self-employed, HR managers and healthcare providers. It has multiple modalities, including online information, information in toolkits, consultations, e-learning modules, expert advice, (telephone) support and in-company training courses. The programme is for patients, healthcare providers and companies.
Regarding 2)
This Danish intervention is specifically targeted at seven different types of cancer, including more neglected diagnoses such as head and neck cancer and thyroid cancer. The programme is individual and tailored to the patient’s needs, and is carried out by a job consultant of the municipality.The innovative element of this intervention is the timing of the occupational rehabilitation, which is initiated much earlier than usual, and the active involvement of the workplace (employer and colleagues). Vulnerable cancer survivors will benefit from this approach, and the effects of social inequality on work ability will be reduced.
The programme also allows patients to receive information on RTW before their treatment is over and before their sickness benefits run out. This is innovative, as otherwise patients do not receive RTW information or support until their sickness benefits are about to end. The involvement of the municipality (job consultant) is also innovative.
Regarding 3) This programme shows a particularly comprehensive approach, with different modules targeted at multiple stakeholders, including employees, occupational health physicians (OHPs) and employers. It has multiple modalities, including face-to-face counselling and information, patient education, enhanced communication between treating physicians and OHPs, and collaboration between the employer, employees and OHP. It is executed by an oncology nurse trained in occupational issues.
Interesting or innovative features were:
Patient education and support at the hospital (as part of usual psycho-oncology care): four 15-minute meetings with an oncology nurse or medical social worker.
Improvement of communication between treating and occupational physicians: a letter was sent to the occupational physician (if patients gave consent to allow medical information to be sent to the occupational physician).
Regarding 4) This programme has a comprehensive approach, with different modules targeting the employee, but it also includes the patient’s employer and colleagues. It has multiple modalities, including consultation, individual coaching and group coaching. It involves patients and companies. Interesting or innovative features were:
Rentree provides three different pathways:Rentree2, which provides support and assistance in finding a new job.Rentree Plus, which provides support and assistance in RTW (employee and Rentree create an RTW plan together), with many communication sessions with Rentree.Solo Rentree, which provides support and assistance in RTW (employee and Rentree create an RTW plan together), with no communication sessions with Rentree (employee returns to work independently).
Regarding 5) This programme has a particularly comprehensive approach, with different modules targeted at multiple stakeholders: employees, companies and the self-employed. The programme has multiple modalities, including online information, consultation, expert counselling and in-company training courses. The measure is tailored for both patients and companies, and is specifically aimed at patients with a cancer diagnosis.
Regarding 6) This programme is innovative because it focuses on the vulnerable and neglected group of unemployed cancer survivors. oPuce works closely with enterprises that are willing to place these unemployed people. The programme has several modalities, including coaching, counselling and on-the-job support. The programme involves patients and companies, the latter having job coaches. oPuce targets unemployed cancer survivors: in the Netherlands, 25% of employed cancer patients lose their job due to cancer and 61% will never work again because they won’t be appointed for a new job. By creating an ecosystem with large employers, social innovations are possible that are in line with the needs of the recovered cancer survivors and their employers. In an ecosystem, all stakeholders are included and play an equal role in finding solutions and making an impact. In the oPuce ecosystem, sharing knowledge and best practices between employers also stimulates job retention. Moreover, employers foster RTW by creating jobs for recovered cancer survivors.
Regarding 7) The Irish Congress of Trade Unions provides an overview in booklet form of the processes and policies associated with RTW for those affected by breast cancer and other illnesses. Union representatives, union members and employees have worked together on this booklet, and it is an interesting innovative initiative.
Regarding bullet 2:Occupational cancer is defined as cancer that is mainly caused by exposure at work, whereas work-related cancer is considered multifactorial and work exposure plays a smaller role, among other factors. No information was found on RTW issues and occupational cancer.
This could mean either that this is not a problem that needs examining separately for occupational cancer (in comparison with other types of cancer) or that the problem simply has not been studied. As most occupational cancers have long latency and occur after working life or the prognosis is too severe, it could be that RTW is not a desired outcome.
During the EU-OSHA stakeholder seminar, the European Commission underlined the importance of the tertiary prevention of occupational diseases, and outlined the difference between work-related and occupational diseases. The importance of performing risk assessments was also highlighted. Owing to the long latency and sensitivity of work-related cancer, risk assessments are needed so that working conditions can be adjusted in time. Furthermore, in the case of work-related cancer, it is important to talk about the risks (risk communication) so that both the employer and the worker are informed of the risks that RTW poses to health.
Regarding bullet 3:
The size of a company seems to have an impact on cancer survivors’ possibilities for returning to work. The problems seem to relate especially to small enterprises (with fewer than 50 workers) and to micro enterprises (with fewer than 10 workers).
It has been reported that the RTW of cancer survivors seems more problematic for the self-employed and those working in small enterprises. This is because being off work for treatment and necessary rest is more difficult in small companies, as they have limited access to occupational health services and lack experience in the management of sickness absence.
During the EU-OSHA seminar, stakeholders indicated that it is important to make straightforward recommendations to stakeholders in companies. It is especially important to recommend how cancer and RTW issues can be integrated into more general RTW programmes. However, the small size of SMEs was also seen as an advantage, as they provide a more family-like atmosphere, which may create a more supportive environment for workers with cancer returning to work.