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Frambu Resource Centre for Rare Disorders  -  an orientation Kaja Giltvedt Physiotherapist Frambu
Norway Resource centers University hospitals, County doctors, 16 Resource Centres for Rare Disorders 3rd line Special education schools, special education consultants Local hospitals, rehabilitation service 2nd line Schools, kindergartens, pedagogical/psychological service center Primary doctors, physiotherapists, occupational therapists, social workers 1st line Education Health
Rare Disorders in Norway ,[object Object],[object Object],[object Object],[object Object]
Frambu,Norway ,[object Object],[object Object],[object Object],[object Object],[object Object]
Diagnoses ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Staff ,[object Object],[object Object],[object Object]
In-house Family Courses at Frambu  ,[object Object],[object Object],[object Object],[object Object],[object Object]
Peer Interaction in the Kindergarten at Frambu during a Family Course for PWS.
Handball-Exercises in the Gym at Frambu during a Family Course for PWS
Water Activity in the Pool at Frambu
Videoconferences at Frambu ,[object Object],[object Object],[object Object]
Outreach  Services to the Clients Municipality ,[object Object],[object Object],[object Object]
A Visit to the Clients Municipality: Activities which challenges balance and concentration
Research Projects ,[object Object],[object Object],[object Object]
Research Projects ,[object Object],[object Object],[object Object]
The project: Development of motor skills in preschool children with PWS  ,[object Object],[object Object],[object Object]
From the Project: Goal: Put on Unfastened Shoes
The Situation in Norway for Rare Diseases ,[object Object],[object Object]

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About Frambu

  • 1. Frambu Resource Centre for Rare Disorders - an orientation Kaja Giltvedt Physiotherapist Frambu
  • 2. Norway Resource centers University hospitals, County doctors, 16 Resource Centres for Rare Disorders 3rd line Special education schools, special education consultants Local hospitals, rehabilitation service 2nd line Schools, kindergartens, pedagogical/psychological service center Primary doctors, physiotherapists, occupational therapists, social workers 1st line Education Health
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  • 8. Peer Interaction in the Kindergarten at Frambu during a Family Course for PWS.
  • 9. Handball-Exercises in the Gym at Frambu during a Family Course for PWS
  • 10. Water Activity in the Pool at Frambu
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  • 13. A Visit to the Clients Municipality: Activities which challenges balance and concentration
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  • 17. From the Project: Goal: Put on Unfastened Shoes
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Notas do Editor

  1. I will present a little bit about the situation for rare diseases in Norway but mainly talk to you about Frambu Resource centre for rare disorders where I work as a physiotherapist