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Let Patients Help Reshaping the Care Relationship in the Age of “e” “ e-Patient Dave” deBronkart Twitter:  @ePatientDave facebook.com/ePatientDave LinkedIn.com/in/ePatientDave [email_address]
Paternalism is Poison Proxies are Hazardous Sometimes Advocates Lose Touch Bottom Line:  Ask us.
OpenNotes ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Markle Foundation meeting ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Voilà: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Voilà: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
We (all) deserve modern,  user friendly software
Thomas Goetz,  Wired ,[object Object]
Plus: Modern software allows mash-ups!
Psoas muscle (My kidney tumor was encroaching on it)  my rendering on VisibleBody.com
Why not “Google Earth for my body”?
 
“ I want to note especially  the importance of the resource  that is most often under- utilized in our information systems – our patients” Charles Safran MD, Beth Israel Deaconess  quoting his colleague, Warner Slack MD Testimony to the House Ways & Means  subcommittee on health, 2004
Let Patients Help Reshaping the Care Relationship in the Age of “e” “ e-Patient Dave” deBronkart Twitter:  @ePatientDave facebook.com/ePatientDave LinkedIn.com/in/ePatientDave [email_address]

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ONC Consumer Engagement working session Aug 4 2011

  • 1. Let Patients Help Reshaping the Care Relationship in the Age of “e” “ e-Patient Dave” deBronkart Twitter: @ePatientDave facebook.com/ePatientDave LinkedIn.com/in/ePatientDave [email_address]
  • 2. Paternalism is Poison Proxies are Hazardous Sometimes Advocates Lose Touch Bottom Line: Ask us.
  • 3.
  • 4.
  • 5.
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  • 7. We (all) deserve modern, user friendly software
  • 8.
  • 9. Plus: Modern software allows mash-ups!
  • 10. Psoas muscle (My kidney tumor was encroaching on it) my rendering on VisibleBody.com
  • 11. Why not “Google Earth for my body”?
  • 12.  
  • 13. “ I want to note especially the importance of the resource that is most often under- utilized in our information systems – our patients” Charles Safran MD, Beth Israel Deaconess quoting his colleague, Warner Slack MD Testimony to the House Ways & Means subcommittee on health, 2004
  • 14. Let Patients Help Reshaping the Care Relationship in the Age of “e” “ e-Patient Dave” deBronkart Twitter: @ePatientDave facebook.com/ePatientDave LinkedIn.com/in/ePatientDave [email_address]