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Caregiving Styles




Mary A Corcoran PhD, OT/L
Professor and Associate Dean
George Washington University
Why Study
   Caregiving
    Styles?



 “If you’ve seen one
caregiver, you’ve seen
    one caregiver”
The Caregiving Style Studies

Spouses (68)
 5 years
 National Institute on Aging
Adult children (33)
 1 year
 Virginia
  Commonwealth, ARDRAF
Mixed Methods Design

• QUAL-quant
  • Grounded theory


Focusing on qualitative
 analysis today
Data

• Qualitative
  • Long interview (250+ total
    hours)
  • Videotapes (33+ total hours)
• Quantitative
  • Sociodemographics
  • Measures of well-being
Qualitative Analytic Approach

Three iterative tasks
 Coding Describe what is going on
 Categories Identify larger “parts”
 Theme Develop a theory of
 caregiving style
Getting from Codes to Categories

Coding – unlinked descriptions
 of data
Categories – arrange codes as
 hierarchies


      Hierarchies of what?
Beliefs
Meanings




           Actions




      Style
Categories: Elements of Style
Beliefs
   What is …?
Meanings
   The role signifies …?
Actions
   Caregiving gets done by …?
Action: Taking Care of Self
Looking at data as a whole, caregivers
 take care of self by
 Reducing demands of role
 Doing something important
 Getting healthy
 Staying connected
Taking Care of Self
                         No
  Has strategies
                     strategies

          Does not   Does not
 Meets
           meet       meet
 needs
           needs      needs
Three groups

Compare and contrast through
axial coding
 Causes
 Consequences
 Context
 Conditions
Example: Exercise and
Conditions

                           No exercise
                  CR not
           Help    OK
                  alone


              CR OK
Exercise
              alone
Example: Exercise and
Consequences
Four Caregiving Styles




Facilitating   Directing   Balancing   Advocating
Facilitating Caregiver
     Priority
                          Strategy
   Emotional                               Interaction
                       Anything that
health, identity of                        Cooperative
                       involves self
        CR



      Needs               Emotions
 Recognizes but        Worries about
 doesn’t address      ability to provide
   own needs               best care
Directing Caregiver

     Priority
                       Strategy         Interaction
Physical health of
                        Verbal        Limited or none
       CR




     Needs             Emotions
Recognized needs     Frustrated and
 limited to work        stressed
Balancing Caregiver

                                           Strategy
           Priority                     Environmental              Interaction
  Maintaining the status quo   controls, supervision, repetitive    Parallel
                                           activities




                                          Emotions
            Needs
                                Generally satisfied with care
Has help and meets own needs
                                         provision
Advocating Caregiver
                                        Interaction
    Priority           Strategy
                                        Range with
Managing others     Vigilance and
                                        purpose of
 to support CR        advocacy
                                        assessment



                      Emotions
    Needs
                  Generally satisfied
 Has help and
                      with care
meets own needs
                      provision
Conclusion

• Caregivers may
   - demonstrate a mix of styles
   - change over time; circumstances

• Understanding priorities of caregiver
  regarding self and care recipient is key
Caveats
• Styles are a guide, not a prescription
• Theory - Requires further testing
Reference


Corcoran, M.A. (2011). Caregiving Styles: A
Cognitive and Behavioral Typology Associated
With Dementia Family Caregiving. The
Gerontologist 51, 4, 463-472.
doi:10.1093/geront/gnr002

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Four styles for ot audience cotton 1

  • 1. Caregiving Styles Mary A Corcoran PhD, OT/L Professor and Associate Dean George Washington University
  • 2. Why Study Caregiving Styles? “If you’ve seen one caregiver, you’ve seen one caregiver”
  • 3. The Caregiving Style Studies Spouses (68) 5 years National Institute on Aging Adult children (33) 1 year Virginia Commonwealth, ARDRAF
  • 4. Mixed Methods Design • QUAL-quant • Grounded theory Focusing on qualitative analysis today
  • 5. Data • Qualitative • Long interview (250+ total hours) • Videotapes (33+ total hours) • Quantitative • Sociodemographics • Measures of well-being
  • 6. Qualitative Analytic Approach Three iterative tasks  Coding Describe what is going on  Categories Identify larger “parts”  Theme Develop a theory of caregiving style
  • 7. Getting from Codes to Categories Coding – unlinked descriptions of data Categories – arrange codes as hierarchies Hierarchies of what?
  • 8. Beliefs Meanings Actions Style
  • 9. Categories: Elements of Style Beliefs  What is …? Meanings  The role signifies …? Actions  Caregiving gets done by …?
  • 10.
  • 11. Action: Taking Care of Self Looking at data as a whole, caregivers take care of self by  Reducing demands of role  Doing something important  Getting healthy  Staying connected
  • 12. Taking Care of Self No Has strategies strategies Does not Does not Meets meet meet needs needs needs
  • 13. Three groups Compare and contrast through axial coding Causes Consequences Context Conditions
  • 14. Example: Exercise and Conditions No exercise CR not Help OK alone CR OK Exercise alone
  • 16. Four Caregiving Styles Facilitating Directing Balancing Advocating
  • 17. Facilitating Caregiver Priority Strategy Emotional Interaction Anything that health, identity of Cooperative involves self CR Needs Emotions Recognizes but Worries about doesn’t address ability to provide own needs best care
  • 18. Directing Caregiver Priority Strategy Interaction Physical health of Verbal Limited or none CR Needs Emotions Recognized needs Frustrated and limited to work stressed
  • 19. Balancing Caregiver Strategy Priority Environmental Interaction Maintaining the status quo controls, supervision, repetitive Parallel activities Emotions Needs Generally satisfied with care Has help and meets own needs provision
  • 20. Advocating Caregiver Interaction Priority Strategy Range with Managing others Vigilance and purpose of to support CR advocacy assessment Emotions Needs Generally satisfied Has help and with care meets own needs provision
  • 21. Conclusion • Caregivers may - demonstrate a mix of styles - change over time; circumstances • Understanding priorities of caregiver regarding self and care recipient is key
  • 22. Caveats • Styles are a guide, not a prescription • Theory - Requires further testing
  • 23. Reference Corcoran, M.A. (2011). Caregiving Styles: A Cognitive and Behavioral Typology Associated With Dementia Family Caregiving. The Gerontologist 51, 4, 463-472. doi:10.1093/geront/gnr002

Notas do Editor

  1. Using an inductive reasoning process, I wanted to develop a theory about caregiving style that was grounded in the data
  2. End goal is theory of style. What is a style? What are the essential ingredients for something to be a style? Pattern over time, but what else? Used the literature to define style = essential elements. Used these elements as a hierarchy for codes.
  3. If I looked at my participants as individuals (rather than clumping the data together as a whole) I saw there were three possible conditions. BTW, looking at things individually rather than as a block of data is part of what researchers mean when they say they are considering the context (contextualizing, placing in context).How did the cg talk about taking care of themselves? I asked specifically what they did to recharge their batteries and some had strategies and some didn’t …BTW, if I had not asked the batteries question, what would have been the effect on the trustworthiness of my analysis?
  4. (would need to double check the underlying logic of this illustration with author - Priorities lead to formulation of strategies and types of interaction. These affect 1) the way the CR deals with their needs 2) the CR’s emotions.) Facilitative - Seeks to maintain identity of CR (i.e., clothing, former roles)Self-image tied to “good caregiving”
  5. Priority is physical health of CRElaborate regimes of medication, nutrition, or use of supplementsAppearances important (keeps house clean, worries about being embarrassed)