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Felicia Marie Knaul, PhD
Harvard Global Equity Initiative,
Global Task Force on Expanded Access to Cancer Care and Control in LMICs
Union for International Cancer Control
Tómatelo a Pecho A.C. México
Mexican Health Foundation
Washington,	
  DC	
  
May	
  7th,	
  2013	
  
Global	
  goal	
  se9ng:	
  	
  
a	
  pathway	
  to	
  results	
  
2.5	
  x	
  2025	
  
Women and mothers in LMICs
face many risks through the life cycle:
The New Maternal Health Agenda
Diabetes
120,889
Breast
cancer
166,577
Source: Estimates based on data from WHO: Global Health Observatory, 2008 and Murray et al Lancet 2011.
Cervical
cancer
142,744
Mortality
in
childbirth
342,900
- 35%
in 30
years
= 430, 210 deaths
Women 15-59, annual deaths	
  
The Diagonal Approach to
Health System Strengthening
!   Rather than focusing on disease-specific vertical
programs or only on horizontal system
constraints, harness synergies that provide
opportunities to tackle disease-specific priorities
while addressing systemic gaps.
!   Optimize available resources so that the whole is
more than the sum of the parts.
!   Bridge the divide as patients suffer diseases over a
lifetime, most of it chronic.
Why diagonal delivery?
!  Shared risk factors
!  Co-morbidity
!  Life cycle approach
!  Efficiency: Common need for strong health
system platforms
!  Knowledge sharing and inter-institutional
collaboration
!  Economic development
!  Social justice
Diagonal Strategies:
Positive Externalities
!   Promoting prevention and healthy lifestyles:
!   Reduce risk for cancer and many other diseases
!   Reducing stigma around women’s cancers:
!   Contributes to reducing gender discrimination
!   Pain control and palliation
!   Reducing barriers to access is essential for cancer as
well as for for other diseases and for surgery.
Country examples:
‘Diagonalizing’ Financing:
Integrate cancer care and control into
national insurance and social security
programs to express previously suppressed
demand beginning with cancers of women
and children:
!  Mexico, Colombia, Dom Rep, Peru
!  China, India, Thailand
!  Rwanda, Ghana, South Africa
Universal Health Coverage in Mexico
through Seguro Popular
Horizontal	
  Coverage:	
  	
  
>	
  54.6	
  million	
  Beneficiaries	
  
Ver1cal	
  
C
overage	
  
	
  
	
  
Diseases	
  
a
nd	
  
I
nterven1ons:	
  
	
  
	
  
E
xpanded	
  
B
enefit	
  
P
ackage	
  
	
  
	
  
Seguro Popular:
Cancer and the Fund for Protection from
Catastrophic Illness
!   Accelerated, universal, vertical coverage by disease
with an effective package of interventions
!  2004: HIV/AIDS
!  2005: cervical cancer
!  2006: ALL in children
!  2007: All pediatric cancers; Breast cancer
!  2011: Testicular and Prostate cancer and NHL
!  2012: Colorectal and ovarian cancer
Engaging	
  breast	
  cancer	
  advocates:	
  
REPORTE	
  ROSA:	
  	
  
MEXICO	
  
Lessons 1:
Advocacy + evidence + action
•  Non-governmental actors do unite around a common
project with measurable goals and this enables engagement
w/ government
•  Evidence-Based Passion & Passion inspired Evidence
–  Advocacy without evidence is likely to be misguided and will
tend towards error
–  The mission of evidence is weakened when neither inspired by
nor applied to the needs of patients and people
•  Methods for merging personal experience/advocacy and
evidence have not been formally developed – never been
rigorously studied
Lessons 2: Diagonal Approach to
Evidence-based, Passionate Advocacy
•  Advocating only for ourselves or our own disease, particular disease
limits potential for impact: Huge responsibility for cancer, and
especially breast cancer advocates
•  The art of patient advocacy is going ‘diagonal’
–  Common demands across diseases – i.e. pain control
–  Strengthen health and social systems
–  Collaboration and cooperation strengthen your message
•  ‘Neglected and emerging’ areas for goal development:
–  where patients do not live long enough to advocate for themselves
–  Survivorship challenges – long life with disease or symptoms–
quality of life
–  Mental health - …and the NCD movement
Lessons 3:
Local and Global Inseparability:
The opportunity-space?
•  Addressing disparities: not months but whole
lifetimes to be gained
•  Recognize disadvantaged groups as part of a
global solution
•  Focus on prevention but do not stop there
–  No prevent/treat dichotomization
•  Harness global and national health system
platforms
•  Innovate in implementation, delivery and
financing
Why might a global, inter-
institutional, goal-based
initiative contribute:
•  Global evidence from children´s rights and MDGs
•  MDGs post 2015 agenda
•  NCD/UN agenda - UICC
•  Global wake-up to new and emerging challenges to health in LMICs
•  Knowledge base and treatment options for the disease
•  Global accountability frameworks focussing on the health of women
and children
•  Frameworks for identifying priorities and measuring progress (GBD)
•  Need for a Shared global vision that crosses divides: Patients,
Providers, Global institutions
What might a global, inter-
institutional, goal-based
initiative contribute:
•  Shared vision and ownership – ours; among ourselves
–  to enable us to contribute more effectively to global and
national initiatives
•  “lighthouse effect”
•  Better measurement of process and outcomes
•  Generate more and better lives for women and their
families and societies – motor of and for broader
goals of social development
•  Promote uncharted areas for action - that can
contribute to global and women’s health
•  Produce new knowledge that can help all women
Challenges and questions in
designing a global, inter-
institutional, goal-based initiative:
•  Funding gap
•  Specific yet inclusive
•  Vertical and horizontal
•  Relevance/Excellence: measurement
•  Interim goals that are
–  Achievable
–  Instrumentally and intrinsically valuable to many
–  Measurable
–  Inspirational

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Global goal setting: a pathway to results 2.5 x 2025

  • 1. Felicia Marie Knaul, PhD Harvard Global Equity Initiative, Global Task Force on Expanded Access to Cancer Care and Control in LMICs Union for International Cancer Control Tómatelo a Pecho A.C. México Mexican Health Foundation Washington,  DC   May  7th,  2013   Global  goal  se9ng:     a  pathway  to  results   2.5  x  2025  
  • 2. Women and mothers in LMICs face many risks through the life cycle: The New Maternal Health Agenda Diabetes 120,889 Breast cancer 166,577 Source: Estimates based on data from WHO: Global Health Observatory, 2008 and Murray et al Lancet 2011. Cervical cancer 142,744 Mortality in childbirth 342,900 - 35% in 30 years = 430, 210 deaths Women 15-59, annual deaths  
  • 3.
  • 4. The Diagonal Approach to Health System Strengthening !   Rather than focusing on disease-specific vertical programs or only on horizontal system constraints, harness synergies that provide opportunities to tackle disease-specific priorities while addressing systemic gaps. !   Optimize available resources so that the whole is more than the sum of the parts. !   Bridge the divide as patients suffer diseases over a lifetime, most of it chronic.
  • 5. Why diagonal delivery? !  Shared risk factors !  Co-morbidity !  Life cycle approach !  Efficiency: Common need for strong health system platforms !  Knowledge sharing and inter-institutional collaboration !  Economic development !  Social justice
  • 6. Diagonal Strategies: Positive Externalities !   Promoting prevention and healthy lifestyles: !   Reduce risk for cancer and many other diseases !   Reducing stigma around women’s cancers: !   Contributes to reducing gender discrimination !   Pain control and palliation !   Reducing barriers to access is essential for cancer as well as for for other diseases and for surgery.
  • 7. Country examples: ‘Diagonalizing’ Financing: Integrate cancer care and control into national insurance and social security programs to express previously suppressed demand beginning with cancers of women and children: !  Mexico, Colombia, Dom Rep, Peru !  China, India, Thailand !  Rwanda, Ghana, South Africa
  • 8. Universal Health Coverage in Mexico through Seguro Popular Horizontal  Coverage:     >  54.6  million  Beneficiaries   Ver1cal   C overage       Diseases   a nd   I nterven1ons:       E xpanded   B enefit   P ackage      
  • 9. Seguro Popular: Cancer and the Fund for Protection from Catastrophic Illness !   Accelerated, universal, vertical coverage by disease with an effective package of interventions !  2004: HIV/AIDS !  2005: cervical cancer !  2006: ALL in children !  2007: All pediatric cancers; Breast cancer !  2011: Testicular and Prostate cancer and NHL !  2012: Colorectal and ovarian cancer
  • 10. Engaging  breast  cancer  advocates:   REPORTE  ROSA:     MEXICO  
  • 11. Lessons 1: Advocacy + evidence + action •  Non-governmental actors do unite around a common project with measurable goals and this enables engagement w/ government •  Evidence-Based Passion & Passion inspired Evidence –  Advocacy without evidence is likely to be misguided and will tend towards error –  The mission of evidence is weakened when neither inspired by nor applied to the needs of patients and people •  Methods for merging personal experience/advocacy and evidence have not been formally developed – never been rigorously studied
  • 12. Lessons 2: Diagonal Approach to Evidence-based, Passionate Advocacy •  Advocating only for ourselves or our own disease, particular disease limits potential for impact: Huge responsibility for cancer, and especially breast cancer advocates •  The art of patient advocacy is going ‘diagonal’ –  Common demands across diseases – i.e. pain control –  Strengthen health and social systems –  Collaboration and cooperation strengthen your message •  ‘Neglected and emerging’ areas for goal development: –  where patients do not live long enough to advocate for themselves –  Survivorship challenges – long life with disease or symptoms– quality of life –  Mental health - …and the NCD movement
  • 13. Lessons 3: Local and Global Inseparability: The opportunity-space? •  Addressing disparities: not months but whole lifetimes to be gained •  Recognize disadvantaged groups as part of a global solution •  Focus on prevention but do not stop there –  No prevent/treat dichotomization •  Harness global and national health system platforms •  Innovate in implementation, delivery and financing
  • 14. Why might a global, inter- institutional, goal-based initiative contribute: •  Global evidence from children´s rights and MDGs •  MDGs post 2015 agenda •  NCD/UN agenda - UICC •  Global wake-up to new and emerging challenges to health in LMICs •  Knowledge base and treatment options for the disease •  Global accountability frameworks focussing on the health of women and children •  Frameworks for identifying priorities and measuring progress (GBD) •  Need for a Shared global vision that crosses divides: Patients, Providers, Global institutions
  • 15. What might a global, inter- institutional, goal-based initiative contribute: •  Shared vision and ownership – ours; among ourselves –  to enable us to contribute more effectively to global and national initiatives •  “lighthouse effect” •  Better measurement of process and outcomes •  Generate more and better lives for women and their families and societies – motor of and for broader goals of social development •  Promote uncharted areas for action - that can contribute to global and women’s health •  Produce new knowledge that can help all women
  • 16. Challenges and questions in designing a global, inter- institutional, goal-based initiative: •  Funding gap •  Specific yet inclusive •  Vertical and horizontal •  Relevance/Excellence: measurement •  Interim goals that are –  Achievable –  Instrumentally and intrinsically valuable to many –  Measurable –  Inspirational