ENCA is a non-profit organization that works to support associations for juvenile idiopathic arthritis (JIA) across Europe. ENCA gathers information from medical associations and doctors, shares it with associations worldwide, and disseminates medical knowledge to parents and healthcare systems. ENCA also helps fund research projects and works closely with PRES and PRINTO on conferences and studies. Through collaboration, ENCA has increased knowledge of JIA and created a network for organizations and families to access expertise.

1. Wendy Costello
Chairperson

2. Gathering information from the national associations
and Doctors.
Circulating the information gathered to all the
associations worldwide.
Filtering the knowledge gained to the parents and
medical systems, thus upgrading the quality of
care.
Initiating and helping research projects.

3. We support JIA associations and associated
rheumatological conditions across Europe
Founded in 2002
Current committee:
Wendy- Ireland
Mirjam –Slovenia
Anton- France
Yona- Israel
Anita -The Netherlands

4. • We work very closely with PRES Paediatric
Rheumatology European Society and PRINTO
Paediatric Rheumatology International Trials
Organisation. Our yearly conference is held in
conjunction with the PRES conference . This
year it is Genoa, Italy.

5. As parents of children with JIA,ENCA has
greatly increased its knowledge within all
areas of health and social care.
It has given us a diverse network allowing us
access to a broad source of expertise,
knowledge and resources.
Through pooled resources it has helped weaker
organisations.

6.  We have developed links with EULAR, PARE
and Young PARE, we attended the EULAR
conference in London 2016 and were
delighted to present a Poster
 We have attended meetings such as a SJIA
conference hosted by Novartis in Frankfurt
this year.

8.  We have helped in the SHARE project which you will
hear all about later in our meeting . Parent survey: in
order to mirror the WP4 survey for physicians and
have a clear picture of the standards of care from a
patient/parent point of view, a dedicated survey has
been prepared in a collaborative effort between Dr
Nico Wulffraat and the ENCA (European Network for
Children with Arthritis) members, represented by Ms
Claudia Grave. The patient/parent survey has been
translated in the following languages: Arabic, Czech,
Danish, Dutch, English, French, German, Greek,
Hebrew, Italian, Latvian, Lithuanian, Polish.
Portuguese, Serbian, Slovak, Slovenian, Spanish.

9. www.printo.it
We have worked with PRINTO to translate their
website aimed at Family Associations.

10. • www.enca.org
• Facebook forum
• Email us president.enca@hotmail.com