1. Life and Death do not wait for perfect theories, definitive studies, and validated intervention procedures .
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12. Dying to Communicate . . . Concluded that… Terminally ill people are not allowed to talk about their experience of dying even though this research shows they want and need to talk about it.
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15. “ I loved my children and they’re all dead now. It’s not right to outlive your children. Never in my life did I expect that. That was a shame. I’m very old.” 107 year old Wisdom
16. The Death-Defying, Death-Denying Society . . . A death-denying society is characterized by an inability to discuss death and dying openly. A death-denying society is one that views death as a punitive consequence of poor management of the physical self. A death-denying society attempts to regulate death to institutions, such as hospitals. A death-denying society places little value in a dying person.
17. Death accepting cultures of hospice and palliative care provide an environment in which the terminally ill person can talk about his or her experience of dying with people who not only understand the many dynamics of death and dying but embrace people facing death. Conclusions . .
18. Need for Death Mediators A death mediator has to embrace death and dying as a part of life and convey that acceptance in a humane and compassionate way. A death mediator is often found in an environment which values the dying. Death mediators are most often found in hospice and palliative care.
19. Society Does Not Want To Talk About Death and Dying “ It sure is strange you wanting to talk to me about dying. What type of study is it? You going to be a mortician? No, my mortician didn’t even talk to me about dying, you must be worse than that.”
20. “ I think it’s great you’re willing to come here and talk to me about dying. Does your family know you do this?”
21. Patients Want to be Told the Truth “ He couldn’t tell me I was dying, either. What’s wrong with being honest? When did it become a bad thing to be honest? I wish he had just told me we didn’t beat it. We tried, but didn’t beat it. I would have understood that, and I wouldn’t have blamed him either.”
22. “ My doctor was so busy, he couldn’t, didn’t tell me in person. He called and left a message on my answering machine. ‘Your MRI shows you have a brain tumor with mets everywhere.’ I think you need hospice now.”
23. “ I think my life is ending too soon. I think I still had more in me to go. I wish I had done some things different, but you can’t cry over spilled milk. You look back and wish your eyesight was dimmer. Memory is a rotten thing, you know?” Dying to Communicate What the Dying Say about Life
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25. Finally, somebody knows what is wrong with me. I thought I was going crazy. I’m just dying, that’s all, just dying…what a relief.” Is It Always BAD News?
26. “ Whatever happens, I don’t want to die in pain. I mean, who does? I don’t care what you guys need to do, I don’t want to be in pain. Don’t make me use a gun (laughs) . . .
27. .… I’m not talking on me, I mean on you guys. If I have real bad pain, I’ll just shoot you.”
28. “ I think it is going to be very soon and I’m, I am going to be well again somewhere else. Will you tell them that for me afterwards. Tell them I was happy to be leaving. Not leaving them, but released. Tell them that okay, when they are sad.”
29. “ How do you say goodbye? I was never good at it and now, well, I’m really having a hard time. How do you know when to say goodbye for the last time?”
30. 3 Things You Own (Things you would be sadden to lose, include pets here) 3 Personal Attributes (What you like about yourself) 3 Activities You Enjoy (Sex is an activity) 3 People You Love (Children can be grouped into 1)
31. “ It makes me a little crazy to think about it, but that’s all I ever do. I wonder, I keep wondering is this it? Is this my last day on earth? I don’t want to close my eyes. If I stay awake, I stay alive. I wish I was ready. I wish I could tell you that, but I’m not, I don’t want to die.”
32. “ I’m so tired. I think I’m ready now. I don’t think too much about it anymore. I wish it would just happen. Get it over with and let’s move on. I’m ready now, tell them all that okay? Tell them I was ready finally. Tell them please.”
33. “ Oh heavens no. It doesn’t scare me. It’s rather fascinating if you ask me. I just wish I had more time and energy to explore it and find out where I was going with all of it. I hope there is awareness. . . I don’t want to miss a thing.”
34. “ I’ve made myself an urn. I’m painting it bright red. That way nobody will forget where I’m at. . . Somebody will have to date it though. Can you do that for me?”
35. “ Don’t forget how to spell my name. . . Harry. H A R R Y! You got it?”