Patient-generated data

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Alexandra Carmichael

Presentation to IFTF Health Horizons Conference on patient-generated data and future trends, June 10, 2009, in San Jose, CA

Saúde e medicina

Patient-generated data

Alexandra Carmichael
IFTF Health Horizons Conference
July 2009

I track myself every day

• Chronic pain symptoms, supplements, mood, sex life
• Genetics research and bioinformatics background
• WebMD and DailyStrength, no patient data sites!

Culture of participation

• Started with 3
conditions, now 300

Data growth 25% per month
• 100+ measures tracked:
calories to chronic pain
• Medium-term: genomics,
streaming biometrics

What this means for
the future of health

• Self-organized clinical trials -
lithium trial
• Social Data Network - private
individual, open aggregate
• Personalized medicine - which
treatment will work for my
symptoms?

Find me online

• alexandra@curetogether.com
• curetogether.com/blog
• @accarmichael on Twitter

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Patient-generated data

1. Patient-generated data Alexandra Carmichael IFTF Health Horizons Conference July 2009

2. I track myself every day • Chronic pain symptoms, supplements, mood, sex life • Genetics research and bioinformatics background • WebMD and DailyStrength, no patient data sites!

3.

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7. Culture of participation • Started with 3 conditions, now 300 Data growth 25% per month • 100+ measures tracked: calories to chronic pain • Medium-term: genomics, streaming biometrics

8. What this means for the future of health • Self-organized clinical trials - lithium trial • Social Data Network - private individual, open aggregate • Personalized medicine - which treatment will work for my symptoms?

9. Find me online • alexandra@curetogether.com • curetogether.com/blog • @accarmichael on Twitter