EdgeTalks, March 3 2017, Chat box from online session

1. from Louis Warner to All Participants:
WebEx Assistance: http://theedge.nhsiq.nhs.uk/school/webex-assistance/
from Pip to All Participants:
Hello everyone - greetings from Cambridge where it's grey and rainy - but it's still
Friday!
from Mel Smith to All Participants:
Morning! Mostly grey here in Coventry but I quite like grey - usually paired with
yellow though :)
from Paul Woodley to All Participants:
Morning all from a very soggy Coventry!
from Mel Smith to All Participants:
A fellow Coventrain - Yay! Hi Paul. Hoping the #covmindthegap flock are joining in
too - Naomi, Melissa are you there?!
from Mel Smith to All Participants:
Hello!
from Mel Smith to All Participants:
Oh it is!
from Pip to All Participants:
Hi Mel - good to see you here!
from Paul Woodley to All Attendees:
Hi Mel, good to see Coventry represented again!
from Pip to All Participants:
Also #DNAofCare
from Heulwen to All Participants:
Morning all! Greetings from Chester. Looking forward to this session!
from Helen Lee to All Participants:
Morning everyone from Lancashire - really looking forward to the talk :)
from Naomi to All Participants:
Morning from Coventry! Melissa and Mel also in the same city :)
from Mel Smith to All Participants:
Love the fact that my sister is tuning in too- Morning Sis (Melissa)
from @SallyPezaro to All Participants:
Morning all :)
from Mel Smith to All Participants:
Morning Karen and Pip!
from melissa to All Participants:
morning sis!
from Mel Smith to All Participants:
Morning All!
from melissa to All Participants:
morning all!
from Mel Smith to All Participants:
Hi Damon
from Mel Smith to All Participants:

2. It is definitely time to rewrite them - so important - it's all about relationships
from Mel Smith to All Participants:
but know this can be difficult..
from Naomi to All Participants:
Oh my goodness i am loving these quotes!!
from Mel Smith to All Participants:
Brene Brown has a way with words!
from Naomi to All Participants:
I am planning to help some adult social workers develop their own stories - anyone
got any tips/thoughts?
from Helen Lee to All Participants:
the power of stories to connect us - fantastic
from Louis Warner to All Participants:
Video link for Impermanence slide: http://patientvoices.org.uk/flv/1028pv384.htm
from Naomi to All Participants:
60 miles!!!
from Heulwen to All Participants:
So important to hear that you draw out a way for people to PRESENT their own
stories, rather than to RE-PRESENT their stories.... so important.
from Mel Smith to All Participants:
...amazing
from Pip to All Participants:
Thank you @Heulwen - we think so too!
from Mel Smith to All Participants:
...this is incredibly powerful
from Mel Smith to All Participants:
...creating a level playing field
from Mel Smith to All Participants:
Naomi, Melissa - we have to do this!
from Naomi to All Participants:
ooh yes such good learning
from Naomi to All Participants:
do what exactly Mel?
from Paul Woodley to All Attendees:
If you cannot hear the video please switch on your computer speakers
from Mel Smith to All Participants:
digitalise
from Naomi to All Participants:
ahh
from Naomi to All Participants:
yes that'd be good
from melissa to All Participants:
This is what I wanted to do with the stories... with a dash of doodling!
from Heulwen to All Participants:

3. Compassion to self and others is the recurring theme...after our staff engagement
day yesterday in my NHS Trust!
from Mel Smith to All Participants:
WOW
from melissa to All Participants:
Beautiful
from Helen Lee to All Participants:
compassion for ourselves and each other - a really powerful story. Thank you
Natasha for sharing this
from Kate Pound to Paul Woodley:
Wow this is so powerful
from Mel Smith to All Participants:
open and non-hierarchical - key components
from Kate Pound to All Participants:
Wow this is so powerful
from Heulwen to All Participants:
I am interested in the mindful compassion in the workplace. Are there are models of
this that can be shared?
from Naomi to All Participants:
how can we take part in a digitised workshop?
from Pip to All Participants:
Naomi, do get in touch with me - pip@pilgrimprojects.co.uk
from Naomi to All Participants:
:-)
from Heulwen to All Participants:
YES! I agree - the more we model vulnerability, the easier it is for others to feel that it
isn't weak. Can be hard in process driven NHS at the moment....
from Naomi to All Participants:
I find going for a walk and talk to start a story can work well...
from Naomi to All Participants:
just anything you're not emotionally ready to tell, i would say
from Naomi to All Participants:
i think perhaps I tried talking about my friends death too soon...
from Heulwen to All Participants:
Any tips on how we help the 'senior' levels in the NHS and provider Trusts recognise
that stories (patients and staff) have equal (if not more) value to highlighting impact
and outcome - rather than always prioritising process and waiting list targets in
commissioning? Big question I know.....
from Heulwen to All Participants:
Naomi.....sorry to hear this... hope you are OK?
from Naomi to All Participants:
i think if you can have some freedom to test out gathering stories to then use them
for positive change, then senior managers might engage
from Naomi to All Participants:

4. aw thanks Heulwen. I'm fine, it was just over a year ago now. I was trying to
encourage more people to cycle so felt it was relevant because my friend died in a
cycling accident, and I know it will only be safer if more people get on their bikes
from Mel Smith to All Participants:
we have had some success with this in Coventry - and now have a story to tell about
this ...
from Louis Warner to All Participants:
Video link for Touch slide: http://patientvoices.org.uk/flv/1006pv384.htm
from Heulwen to All Participants:
Naomi - It's so important to grieve openly - but safely isn't it. I suppose this where
compassion is so important again....
from Naomi to All Participants:
yeh definitely
from Pip to All Participants:
@Heulwen - it is a big question. I think that we can just keep trying. The more people
are prepared to make themselves vulnerable, the more likely we are to succeed!
from Mel Smith to All Participants:
...this is incredibly powerful - allowing us to engage with the real person behind the
job title
from Heulwen to All Participants:
I have a lump in my throat... Thank you Damon
from melissa to All Participants:
Thank you for sharing your story Damon
from Helen Lee to All Participants:
what a powerful story - thank you Damon
from Naomi to All Participants:
thanks so much Damon
from Heulwen to All Participants:
Pip - I agree. I think we have to hope that the tipping point is not far off...but it can be
a lonely road...
from Helen Lee to All Participants:
your story demonstrates beautifully that we are all people
from melissa to All Participants:
The best appointments I have had are where professionals have shared an
understanding of my anxiety. Unfortunately I haven’t had any personal stories told to
me...yet!
from Heulwen to All Participants:
I am planning my Twitter flurry AFTER this! It's too enthralling....!!
from Mel Smith to All Participants:
Damon - can you give us an eg about how this has helped
from Paul Woodley to All Attendees:
Vulnerability as a strength, needs courage to access
from Naomi to All Participants:
mm Melissa it would be interesting to see how you might tease this out of them...

5. from @SallyPezaro to All Participants:
I find these stories so authentic - Authenticity in how we experience our work is great
to role model
from Mel Smith to All Participants:
I agree!
from Mel Smith to All Participants:
The tracking would be where we'd find the most value!
from Naomi to All Participants:
yes, authenticity we were told was the best part about our social movement training
:-)
from melissa to All Participants:
Agreed that medical students need to hear professional & patient stories... are there
any ways patients can get involved with this?
from Heulwen to All Participants:
I agree - Stories are always the things that stay with people and are re-told - not
necessarily data.... These stories should be part of yearly mandatory training to
encourage re-connection. We know compassion fatigue is prevalent - and this would
help people to remember our purpose again....
from Mel Smith to All Participants:
I guess what I'm thinking is ... how are we building the capacity for this
from Pip to All Participants:
Melissa, we have lots and lots of patient stories....
from Mel Smith to All Participants:
Thanks Damon
from Heulwen to All Participants:
Thanks again Damon
from melissa to All Participants:
yes I follow you on twitter, love what you are doing... I was wondering how stories
can get into training modules, universities, etc?
from Mel Smith to All Participants:
Sorry not tweeting but I'm deep in concentration!
from @SallyPezaro to All Participants:
Hey Rachael *waves* :) - The midwives following my Facebook page (The academic
midwife) loved your story when I shared it - Inspirational midwife :)
from Pip to All Participants:
@ Melissa, Lots of Patient Voices stories do appear in University modules.... there
are well over 1 million hits each year on the website and many of those go into
schools of medicine and healthcare....
from @SallyPezaro to All Participants:
Sounds like there is a lot of research to be done on how far reaching these stories
are...who they effect, how.. and why...
from Pip to All Participants:
Yes, @Sally!
from @SallyPezaro to All Participants:

6. I have also added these stories to my lecturers
from Louis Warner to All Participants:
Video link for stay slide: http://patientvoices.org.uk/flv/1019pv384.htm
from Heulwen to All Participants:
Thanks Rachel - interesting to hear about your work
from melissa to All Participants:
that is good to hear that stories are being shared so widely!
from Naomi to All Participants:
this imagery is really powerful
from @domcushnan to All Participants:
oh this is has hit me hard
from Mel Smith to All Participants:
appreciate the silence towards the end - a welcome chance for reflection
from Naomi to All Participants:
lovely
from @SallyPezaro to All Participants:
So powerful Rachel
from Helen Lee to All Participants:
Thank you Rachel for sharing your very emotional story - so powerful
from Heulwen to All Participants:
No words... We rarely share the legacy that things leave and that permeate in every
experience we have... thank you...
from Naomi to All Participants:
i guess with lots of these - what's the call to action?
from melissa to All Participants:
yes this is so important to make time and space to find out more about the people
you work with
from Mel Smith to All Participants:
Thank you Rachel ...
from Naomi to All Participants:
ooh would love to hear more about this 'evidence'!
from Tony Sumner to All Participants:
THe Patient Voices website gets about 1.2million hits per year, about a third from
within NHS, another third fro within universities - many stories are staff stories, so
the stories they have shared are connecting to other staff, and future staff, going out
as what I call 'activist memes'
from Heulwen to All Participants:
Trying to raise my hand...not sure I'm pressing the right button! Another big
question...... We are trying to do this from the 'edge'....but I am interested in how
NHSE. NHSI and the Pt Experience workstreams are doing CENTRALLY to help
change the mindset and the value these bring?
from Naomi to All Participants:
yes please Kate!
from Pip to All Participants:

7. Heulwen we'll unmute you in a minute!
from Mel Smith to All Participants:
yes please!
from melissa to All Participants:
I did volunteer with Warwick Uni and trainee doctors came out to interview me about
my journey to diagnosis. It was an amazing liberating experience that I would like to
do again! They told me they got so much from this way of doing things and as it was
a rare diagnosis when they reported back to their class there was a lot of discussion
provoked. Lovely to hear you have had universities contact you
from @SallyPezaro to All Participants:
This movement is growing :)
from Mel Smith to All Participants:
yes it is Sally!
from melissa to All Participants:
love 'activist memes'
from Naomi to All Participants:
definitely Damon
from Naomi to All Participants:
so powerful
from @SallyPezaro to All Participants:
Is there a way we can all connect and stay in touch? - Hoping we are all linked on
Twitter
from Naomi to All Participants:
that would be lovely sally. I'm @healthynemo
from melissa to All Participants:
@talk2mels is my twitter handle
from Mel Smith to All Participants:
@GrapevineYP
from @domcushnan to All Participants:
@domcushnan
from Heulwen to All Participants:
I'm @HLSheldrick
from Paul Woodley to All Attendees:
We can put our twitter handles in chat and will be shared after the session on the
webpage
from @SallyPezaro to All Participants:
gr8
from Paul Woodley to All Attendees:
@paulwoodley4
from Naomi to All Participants:
can someone tweet a photo with us all tagged in?
from Tony Sumner to All Participants:
@PatientVoicesUK
from Mel Smith to All Participants:

8. Totally agree Kate
from Helen Lee to All Participants:
@helenlee321_lee
from Mel Smith to All Participants:
Thanks so much everyone - feel right at home here
from Helen Lee to All Participants:
A fantastic session - thank you everyone. Lots of ideas to take forward. Will be in
touch for advice and support :)
from melissa to All Participants:
Loved this session!
from Janet to All Participants:
Thank you everyone. Do stay in touch and let us know about your experience on this
WebEx: janet.wildman@nhs.net
from Pip to All Participants:
If you are happy to connect on Twitter, please do put your Twitter handle in the chat
box - @pilgrimpip
from melissa to All Participants:
is there a website for #expofcare?
from Amanda Johnson to All Participants:
Missed the first half of the session so will catch up with that from the recording.
However thank you so much for a thought provoking webex� have a great weekend
everyone!
from Tony Sumner to All Participants:
also many, many other staff stories on www.patientvoices.org.uk !!
from @domcushnan to All Participants:
brilliant guys
from Heulwen to All Participants:
Thanks you so much for this session! This network is (as someone said) a great way
to share and spread the movement.... I remain optimistic about the power of human
connection! Great stuff. Thank you everyone! H
from @SallyPezaro to All Participants:
Thanks everyone!
from melissa to All Participants:
thank you!
from @domcushnan to All Participants:
got a list on twitter for this session https://twitter.com/DomCushnan/lists/dna-of-care-
edge-talk?lang=en
from Pip to All Participants:
Thanks to all of you too!
from Kate Pound to All Participants:
thanks all for joining today