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Advocacy	
  in	
  the	
  Digital	
  Age:	
  Leveraging	
  the	
  	
  
Mental	
  Health	
  America/Inspire	
  	
  
Support	
  Community	
  	
  
	
  
	
  
June 4, 2015
Brian Loew, CEO, Inspire
This document is confidential
Inspire	
  Overview	
  
2	
  
A	
  social	
  network,	
  organized	
  by	
  health	
  condi7on,	
  that	
  connects	
  
pharmaceu7cal	
  companies	
  with	
  pa7ents	
  and	
  caregivers	
  in	
  a	
  safe,	
  
permission-­‐based	
  manner.	
  
11,000,000	
  unique	
  visits/yr	
  
615,000*	
  members	
  (+12K/mo)	
  
208	
  health	
  communi7es	
  	
  
100+	
  advocacy	
  partners	
  	
  
7	
  Million	
  posts	
  (+4K/day)	
  
	
  
*As	
  of	
  May	
  1,	
  2015	
  
	
  
This document is confidential
Inspire	
  Overview	
  
• For	
  paJents	
  and	
  caregivers	
  
(members),	
  Inspire	
  offers	
  a	
  high	
  
quality,	
  health-­‐focused,	
  social	
  
network,	
  organized	
  by	
  disease	
  area	
  
• For	
  paJent	
  advocacy	
  partners,	
  
Inspire	
  offers	
  a	
  free,	
  branded,	
  
online	
  community	
  plaPorm	
  
• For	
  life	
  science	
  companies,	
  Inspire	
  
offers	
  access	
  to	
  engage	
  with	
  
members	
  for	
  clinical	
  trial,	
  market	
  
research,	
  and/or	
  marke7ng	
  
ini7a7ves	
  
	
  
This document is confidential
Psoriasis	
  =	
  54,000+	
  
Lung	
  Cancer	
  =	
  39,000+	
  	
  
Type	
  2	
  Diabetes	
  =	
  30,000+	
  
Heart	
  Disease	
  =	
  30,000+	
  
InferJlity	
  =	
  25,000+	
  
Osteoporosis	
  =	
  23,000+	
  
Ovarian	
  Cancer	
  =	
  22,000+	
  
COPD	
  =	
  13,000	
  
Skin	
  Cancer	
  =	
  12,000+	
  
Head/Neck	
  Cancer	
  =	
  2,800+	
  
	
  
	
  
	
  
A	
  Few	
  Disease	
  States	
  
*Listed	
  above	
  are	
  10	
  of	
  over	
  200	
  communi7es	
  
(and	
  7,000	
  health	
  interests)	
  as	
  of	
  May	
  1,	
  2015	
  
This document is confidential
Inspire’s	
  Core	
  Values	
  
1.  AuthenJc	
  -­‐-­‐	
  real	
  pa7ents,	
  people	
  who	
  need	
  
support	
  and	
  informa7on,	
  people	
  at	
  a	
  cri7cal	
  
stage	
  in	
  diagnosis	
  or	
  treatment.	
  
2.  Engaged	
  -­‐-­‐	
  ac7ve,	
  vibrant,	
  dynamic	
  
community	
  of	
  people	
  connec7ng	
  with	
  one	
  
another.	
  
3.  Trusted,	
  safe	
  -­‐-­‐	
  going	
  way	
  beyond	
  a	
  basic	
  
privacy	
  policy.	
  
4.  Caring,	
  empatheJc,	
  welcoming	
  -­‐-­‐	
  the	
  place	
  
members	
  turn	
  to	
  in	
  7me	
  of	
  need.	
  
5.  AuthoritaJve	
  -­‐-­‐	
  trusted	
  by	
  partners	
  who	
  
place	
  their	
  confidence	
  in	
  Inspire.	
  
6.  PaJent	
  empowerment	
  -­‐-­‐	
  this	
  is	
  a	
  place	
  for	
  
support	
  and	
  to	
  connect	
  with	
  others	
  who	
  
understand	
  what	
  you’re	
  going	
  through.	
  
	
  
This document is confidential
“I	
  wish	
  that	
  my	
  doctor	
  realized	
  a	
  referral	
  to	
  a	
  mental	
  health	
  
professional	
  familiar	
  with	
  the	
  pa6ent's	
  condi6on	
  would	
  be	
  more	
  
helpful	
  than	
  a	
  prescrip6on.”	
  
	
  
“I	
  wish	
  my	
  doctor	
  knew	
  that	
  I	
  am	
  a	
  person,	
  and	
  not	
  just	
  a	
  pa6ent.”	
  
	
  
“The	
  happy	
  person	
  on	
  the	
  outside	
  they	
  see	
  	
  
is	
  protec6ng	
  the	
  deeply	
  wounded,	
  scarred	
  	
  
and	
  scared	
  person	
  on	
  the	
  inside.”	
  
	
  
“I	
  wish	
  my	
  doctor	
  knew	
  me.”	
  
	
  
	
  
#IWishMyDoctorKnew	
  	
  
This document is confidential
mentalhealthamerica.inspire.com	
  
MHA/Inspire	
  Support	
  Community	
  at	
  a	
  Glance	
  	
  
•  Launched	
  summer	
  2010	
  
•  4,700	
  members	
  from	
  all	
  50	
  states	
  and	
  78	
  
countries	
  	
  
•  Nearly	
  70,000	
  member	
  posts	
  
This document is confidential
“We	
  try	
  our	
  best	
  to	
  cheer	
  and	
  support	
  each	
  other	
  and	
  help	
  if	
  
we	
  can.”	
  
	
  
“It	
  is	
  so	
  nice	
  to	
  know	
  that	
  I'm	
  not	
  the	
  only	
  one	
  who	
  has	
  
experienced	
  this.”	
  
	
  
“I	
  have	
  learned	
  more	
  from	
  this	
  site	
  than	
  I	
  have	
  in	
  the	
  big	
  old	
  
world	
  out	
  there.”	
  
	
  
“Everyone's	
  problems	
  are	
  important	
  	
  
here,	
  and	
  we	
  will	
  listen	
  and	
  respond.”	
  
	
  
	
  
From	
  the	
  MHA/Inspire	
  Support	
  Community	
  	
  
This document is confidential
•  Bipolar	
  disorder	
   	
  	
  
•  Depression	
  	
  	
  
•  Schizophrenia	
   	
  	
  
•  Anxiety	
  and	
  phobias	
   	
  	
  
•  Obsessive-­‐compulsive	
  disorder	
  	
   	
  	
  
•  Coping	
  with	
  the	
  s7gma	
  of	
  mental	
  illness	
  	
  
•  Post-­‐trauma7c	
  stress	
  disorder	
   	
  	
  
•  Family	
  and	
  caregivers	
  
	
  
Common	
  topics	
  in	
  MHA/Inspire	
  Community	
  
This document is confidential
Bipolar	
  disorder	
   	
  17,000	
  
Depression 	
  	
  	
  	
  	
  	
  	
  	
  	
  59,000	
  
Schizophrenia	
  	
  	
  	
   	
  1,500	
  
	
  
As	
  of	
  May	
  2015	
  
Inspire	
  Members	
  Affected	
  by	
  Mental	
  Health	
  Issues	
  	
  
This document is confidential
•  Inspire	
  offers	
  a	
  house	
  ad	
  placement	
  to	
  help	
  
our	
  partners	
  promote	
  relevant	
  campaigns,	
  
ac7vi7es,	
  and	
  resources	
  to	
  their	
  community	
  
members	
  
	
  
•  In	
  the	
  end	
  of	
  March,	
  Inspire	
  launched	
  the	
  
B4Stage4	
  campaign	
  house	
  ad	
  in	
  the	
  MHA	
  
community	
  
	
  
•  In	
  less	
  than	
  two	
  months,	
  the	
  house	
  ad	
  has	
  
received	
  167,000+	
  impression	
  and	
  47	
  clicks	
  
PromoJng	
  Our	
  Partners	
  Across	
  Inspire	
  	
  
This document is confidential
The	
  new	
  and	
  improved	
  Inspire	
  website	
  will	
  include:	
  
Redesigned	
  Inspire	
  Pla_orm	
  Coming	
  Soon	
  
A	
  mobile-­‐first	
  design	
  with	
  a	
  consolidated	
  and	
  
simplified	
  user	
  naviga7on	
  
	
  
A	
  user-­‐ini7ated	
  experience	
  that	
  will	
  allow	
  members	
  
to	
  customize	
  content	
  to	
  beder	
  meet	
  their	
  needs	
  
	
  
Enhanced	
  partner	
  recogni7on,	
  visibility,	
  and	
  benefits	
  
including	
  the	
  ability	
  to	
  cross-­‐promote	
  the	
  MHA	
  
community	
  to	
  members	
  of	
  other	
  Inspire	
  communi7es	
  
This document is confidential
Brian	
  Loew	
  
CEO	
  	
  
Inspire	
  
brian@inspire.com	
  
Together	
  we’re	
  be`er	
  	
  

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  • 1. Advocacy  in  the  Digital  Age:  Leveraging  the     Mental  Health  America/Inspire     Support  Community         June 4, 2015 Brian Loew, CEO, Inspire
  • 2. This document is confidential Inspire  Overview   2   A  social  network,  organized  by  health  condi7on,  that  connects   pharmaceu7cal  companies  with  pa7ents  and  caregivers  in  a  safe,   permission-­‐based  manner.   11,000,000  unique  visits/yr   615,000*  members  (+12K/mo)   208  health  communi7es     100+  advocacy  partners     7  Million  posts  (+4K/day)     *As  of  May  1,  2015    
  • 3. This document is confidential Inspire  Overview   • For  paJents  and  caregivers   (members),  Inspire  offers  a  high   quality,  health-­‐focused,  social   network,  organized  by  disease  area   • For  paJent  advocacy  partners,   Inspire  offers  a  free,  branded,   online  community  plaPorm   • For  life  science  companies,  Inspire   offers  access  to  engage  with   members  for  clinical  trial,  market   research,  and/or  marke7ng   ini7a7ves    
  • 4. This document is confidential Psoriasis  =  54,000+   Lung  Cancer  =  39,000+     Type  2  Diabetes  =  30,000+   Heart  Disease  =  30,000+   InferJlity  =  25,000+   Osteoporosis  =  23,000+   Ovarian  Cancer  =  22,000+   COPD  =  13,000   Skin  Cancer  =  12,000+   Head/Neck  Cancer  =  2,800+         A  Few  Disease  States   *Listed  above  are  10  of  over  200  communi7es   (and  7,000  health  interests)  as  of  May  1,  2015  
  • 5. This document is confidential Inspire’s  Core  Values   1.  AuthenJc  -­‐-­‐  real  pa7ents,  people  who  need   support  and  informa7on,  people  at  a  cri7cal   stage  in  diagnosis  or  treatment.   2.  Engaged  -­‐-­‐  ac7ve,  vibrant,  dynamic   community  of  people  connec7ng  with  one   another.   3.  Trusted,  safe  -­‐-­‐  going  way  beyond  a  basic   privacy  policy.   4.  Caring,  empatheJc,  welcoming  -­‐-­‐  the  place   members  turn  to  in  7me  of  need.   5.  AuthoritaJve  -­‐-­‐  trusted  by  partners  who   place  their  confidence  in  Inspire.   6.  PaJent  empowerment  -­‐-­‐  this  is  a  place  for   support  and  to  connect  with  others  who   understand  what  you’re  going  through.    
  • 6. This document is confidential “I  wish  that  my  doctor  realized  a  referral  to  a  mental  health   professional  familiar  with  the  pa6ent's  condi6on  would  be  more   helpful  than  a  prescrip6on.”     “I  wish  my  doctor  knew  that  I  am  a  person,  and  not  just  a  pa6ent.”     “The  happy  person  on  the  outside  they  see     is  protec6ng  the  deeply  wounded,  scarred     and  scared  person  on  the  inside.”     “I  wish  my  doctor  knew  me.”       #IWishMyDoctorKnew    
  • 7. This document is confidential mentalhealthamerica.inspire.com   MHA/Inspire  Support  Community  at  a  Glance     •  Launched  summer  2010   •  4,700  members  from  all  50  states  and  78   countries     •  Nearly  70,000  member  posts  
  • 8. This document is confidential “We  try  our  best  to  cheer  and  support  each  other  and  help  if   we  can.”     “It  is  so  nice  to  know  that  I'm  not  the  only  one  who  has   experienced  this.”     “I  have  learned  more  from  this  site  than  I  have  in  the  big  old   world  out  there.”     “Everyone's  problems  are  important     here,  and  we  will  listen  and  respond.”       From  the  MHA/Inspire  Support  Community    
  • 9. This document is confidential •  Bipolar  disorder       •  Depression       •  Schizophrenia       •  Anxiety  and  phobias       •  Obsessive-­‐compulsive  disorder         •  Coping  with  the  s7gma  of  mental  illness     •  Post-­‐trauma7c  stress  disorder       •  Family  and  caregivers     Common  topics  in  MHA/Inspire  Community  
  • 10. This document is confidential Bipolar  disorder    17,000   Depression                  59,000   Schizophrenia          1,500     As  of  May  2015   Inspire  Members  Affected  by  Mental  Health  Issues    
  • 11. This document is confidential •  Inspire  offers  a  house  ad  placement  to  help   our  partners  promote  relevant  campaigns,   ac7vi7es,  and  resources  to  their  community   members     •  In  the  end  of  March,  Inspire  launched  the   B4Stage4  campaign  house  ad  in  the  MHA   community     •  In  less  than  two  months,  the  house  ad  has   received  167,000+  impression  and  47  clicks   PromoJng  Our  Partners  Across  Inspire    
  • 12. This document is confidential The  new  and  improved  Inspire  website  will  include:   Redesigned  Inspire  Pla_orm  Coming  Soon   A  mobile-­‐first  design  with  a  consolidated  and   simplified  user  naviga7on     A  user-­‐ini7ated  experience  that  will  allow  members   to  customize  content  to  beder  meet  their  needs     Enhanced  partner  recogni7on,  visibility,  and  benefits   including  the  ability  to  cross-­‐promote  the  MHA   community  to  members  of  other  Inspire  communi7es  
  • 13. This document is confidential Brian  Loew   CEO     Inspire   brian@inspire.com   Together  we’re  be`er