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Health and wellbeing
seen from the ground
        Elizabeth Bayliss

     Social Action for Health
            March 2013
On the ground in east London
• People are fearful of the changes to
  benefits
• People are fearful that the NHS is going to
  be lost
• People are fearful that they will never work
  again
• People are fearful of a government that
  does not care
NHS seen from the ground
• GPs are now in charge; they are so busy they do not
  listen; they never do an examination;
• GPs only ever give me paracetomol;
• My GP will not refer me to a specialist so I wait til I go
  home (abroad) and pay for examination there;
• Why not go to A&E when I need medical help quickly?
• Out of hours doctors do not have my records so what is
  the point?
• Where are the interpreters now? How can I describe my
  condition when the doctor does not understand me/
• Why are there no ESOL classes anymore?
It takes two to tango!
• NHS behaves as though it can sort out
  health inequalities and rising demand on
  its own or somehow through the mystical
  intervention of the market
• The relationship between the NHS and
  local communities is squeezed through
  the narrow conduit of ‘community
  engagement’ which is a reductionist
  process that leads to an impoverished
  relationship
The relationship matters
• There are no shortcuts
• Relationships between human beings are
  always transactional - what is the nature
  of the transaction;
• There has to be a balance of expectations
• Professionalism can get in the way,
  leading to a manufacturing of dependency
SAfH values
• We start with the people
• People have the right to take control of
  their own lives
• People’s health can be improved by
  tackling isolation, poverty, racism and
  unemployment
• Healthy communities are good for the
  whole society
SAfH Spiral of Participation
• SAfH spiral of participation
SAfH’s role
SAfH sits in the community, encouraging local people to take more
  responsibility, to reduce their dependency, increasing their ability to
  be self determining;

We find that people to want to take responsibility - to be of use in their
  community – no place for paternalism;
We work within social mores , respecting leaders;
We listen to what people say, preferably in mother tongue, drawing out
  meaning from their experiences;
We give local people accurate information about complex issues like
  morbidity and mortality rates so that people can see themselves in
  relation to the wider world;
We teach people how to engage with professionals so that the
  communication both ways is richer and more useful;
We tell people with power and authority what we have heard in words
  the powerful understand.
What this means on the
              ground
Focus on the people:
  √ reach out (on the streets, in community centres, in public
      places);

  √ start conversations (We use the promotion of cancer
      screening to start conversations about self care).

  √     bring people together – cross culturally
  √     teach people new skills – go step by step
  √     encourage these to be shared - Build up mutuality
  √     promote health intelligence – ability to make sensible
        decisions about own health and wellbeing
Who does the work?
• Local people, who are lay, trained, paid, supervised
  and supported, with multiple languages

• We have 100 people at any one time whom we have trained as
  Health Guides, Mental Health Guides, Self Management and Good
  Move tutors, Ambassadors, Community Health Champions,
  Mentors, Representatives.

• We have a staff team of around 25 people who support, record,
  report, manage, coordinate, teach these local people; manage
  networks of community groups providing information and advice;
  evaluate work and aim to influence policy and practice.
Is the work useful?
• Screening take – up increased
• Demand on GPs from people who have been through a
  self management course reduced
• Benefit entitlements secured and appeals won
• People empowered personally, with evidenced
  improvement in health and wellbeing;
• People more confident in communicating with their GP;
• Voices heard by decision makers through platforms eg.
  Open events;
• Health Action groups formed
• Community groups forming networks.
Scale and impact
SAfH works with 11,000 people a year
 directly but this feels like small fry;

Work needs to be rolled out big time;

Funding needed to evaluate work eg. Impact
 on A&E; eg. impact on communities
Tips on policy direction!
• Funding for evaluation on community
  development approach
• Hospitals and primary care to be
  encouraged to collaborate on such
  evaluations
• Funding for community work at a local
  level necessary
• Meta narrative – honour the public arena
Health and well being seen from the ground march 13

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Health and well being seen from the ground march 13

  • 1. Health and wellbeing seen from the ground Elizabeth Bayliss Social Action for Health March 2013
  • 2. On the ground in east London • People are fearful of the changes to benefits • People are fearful that the NHS is going to be lost • People are fearful that they will never work again • People are fearful of a government that does not care
  • 3. NHS seen from the ground • GPs are now in charge; they are so busy they do not listen; they never do an examination; • GPs only ever give me paracetomol; • My GP will not refer me to a specialist so I wait til I go home (abroad) and pay for examination there; • Why not go to A&E when I need medical help quickly? • Out of hours doctors do not have my records so what is the point? • Where are the interpreters now? How can I describe my condition when the doctor does not understand me/ • Why are there no ESOL classes anymore?
  • 4. It takes two to tango! • NHS behaves as though it can sort out health inequalities and rising demand on its own or somehow through the mystical intervention of the market • The relationship between the NHS and local communities is squeezed through the narrow conduit of ‘community engagement’ which is a reductionist process that leads to an impoverished relationship
  • 5. The relationship matters • There are no shortcuts • Relationships between human beings are always transactional - what is the nature of the transaction; • There has to be a balance of expectations • Professionalism can get in the way, leading to a manufacturing of dependency
  • 6. SAfH values • We start with the people • People have the right to take control of their own lives • People’s health can be improved by tackling isolation, poverty, racism and unemployment • Healthy communities are good for the whole society
  • 7. SAfH Spiral of Participation • SAfH spiral of participation
  • 8. SAfH’s role SAfH sits in the community, encouraging local people to take more responsibility, to reduce their dependency, increasing their ability to be self determining; We find that people to want to take responsibility - to be of use in their community – no place for paternalism; We work within social mores , respecting leaders; We listen to what people say, preferably in mother tongue, drawing out meaning from their experiences; We give local people accurate information about complex issues like morbidity and mortality rates so that people can see themselves in relation to the wider world; We teach people how to engage with professionals so that the communication both ways is richer and more useful; We tell people with power and authority what we have heard in words the powerful understand.
  • 9. What this means on the ground Focus on the people: √ reach out (on the streets, in community centres, in public places); √ start conversations (We use the promotion of cancer screening to start conversations about self care). √ bring people together – cross culturally √ teach people new skills – go step by step √ encourage these to be shared - Build up mutuality √ promote health intelligence – ability to make sensible decisions about own health and wellbeing
  • 10. Who does the work? • Local people, who are lay, trained, paid, supervised and supported, with multiple languages • We have 100 people at any one time whom we have trained as Health Guides, Mental Health Guides, Self Management and Good Move tutors, Ambassadors, Community Health Champions, Mentors, Representatives. • We have a staff team of around 25 people who support, record, report, manage, coordinate, teach these local people; manage networks of community groups providing information and advice; evaluate work and aim to influence policy and practice.
  • 11. Is the work useful? • Screening take – up increased • Demand on GPs from people who have been through a self management course reduced • Benefit entitlements secured and appeals won • People empowered personally, with evidenced improvement in health and wellbeing; • People more confident in communicating with their GP; • Voices heard by decision makers through platforms eg. Open events; • Health Action groups formed • Community groups forming networks.
  • 12. Scale and impact SAfH works with 11,000 people a year directly but this feels like small fry; Work needs to be rolled out big time; Funding needed to evaluate work eg. Impact on A&E; eg. impact on communities
  • 13. Tips on policy direction! • Funding for evaluation on community development approach • Hospitals and primary care to be encouraged to collaborate on such evaluations • Funding for community work at a local level necessary • Meta narrative – honour the public arena