WE Patients Foundation - Presentation of the team and activities

www.mypacjenci.orgCopyright © Fundacja MY Pacjenci info@mypacjenci.orgCopyright © Fundacja MY Pacjenci
WE Patients Foundation
Poland
Presentation of the team and activities
Ewa Borek June 2016

www.mypacjenci.orgCopyright © Fundacja MY Pacjenci info@mypacjenci.org
Foundation Goals and Tasks
• WE PATIENTS Foundation was created in 2012 in order to
 support participation of patients in decision-making on healthcare
 provide expert support to patient organizations to help them
communicate their problems and needs more effectively
 implement projects on health education and health promotion
• Foundation runs scientific, analytic, research, counseling and
training activities for Polish patients and their organizations.

Foundation’s Mission
• Building platforms for cooperation between public
administration, patients and their organizations, physicians,
academics and business in healthcare.
• Patients are the biggest unused healthcare resource .
• Patients – you don’t know how much you can!

EWA BOREK, MD, MBA, President of the Management Board
Expert on healthcare system with 20 years of working experience in big international companies, in years 2004-2010
she worked in AstraZeneca Pharma Poland, where she was Member of Board, being responsible for company’s
reputation, corporate PR and CSR as External Affairs Director.
Initiator of educational action within patients’ rights area „Humane Treatment”, run by Gazeta Wyborcza. She also
engaged in strong-run educational projects, notably:
 Breathe Free – implemented in schools throughout Poland led to popularization of knowledge regarding asthma
among 1 million of pupils;
 Breast Cancer from A to Z which, being implemented in cooperation with Institute for Patient Rights, bore fruit
with the increase of patient rights’ awareness among Polish Amazons.
JOANNA TURKIEWICZ, Member of Board
Economist and sociologist, dedicated social activist. Currently student of Ph. D. studies in management at Nicolaus
Copernicus University. Has the experience of volunteer in non-governmental organizations. Long-term practician in
using modern communication tools towards creation of company’s image. Hobbies: social research, marketing
communication, social media.
IZABELLA DESSOULAVY-GŁADYSZ, Head of PR & Public Affairs
Expert with many years of experience in building effective communication strategy in various sectors. Since 2012 has
been dealing with communication issues in health care as well as the impact on the creation of system solutions in
health care in Poland. She is also responsible for developing contacts with the media.
KING WOJTASZCZYK, Expert
MA IN health education and prevention of addictions. In hER practice, She deals with the reporting provided services to
the National Health Fund, as well as carries out audits of medical records. Author of numerous publications on
accounting services with the payer.
Foundation Team

MAGDALENA KOŁODZIEJ, Project Manager,
English Studies MA, a specialist in marketing and project management. Manager with years of experience in
complex management of educational projects in health care, including, among others, Cukrzycowe Centra
Edukacji Lilly (Lilly Diabetes Education Centres) and Wolność Oddechu – Zapobiegaj Astmie (Freedom of Breath
- Prevent Asthma). She has experience in organizing various types of trainings, conferences and meetings at the
national and international level.
ANNA SITEK, Assistant to the Board,
sociology and law MA. Anna was a lecturer at Universidad Nacional Autónoma de México from October 2013 to
June 2014. PhD student at the Institute of Sociology of the Nicolaus Copernicus University. She was a
researcher in international projects such as Euroacademy, E-ruralnet – Network Promoting E-learning for Rural
Areas and Alternative Agro-Food Network and national among others A good start - information and support
centers for non-governmental organisations in rural areas.
ADRIAN JANUS, Lawyer,
trainee attorney, fellow of A. Paga Foundation in the framework of the project "The leaders in the health
sector." During his studies on Faculty of Law and Administration of the Jagiellonian University in Kraków, Mr.
Janus was a president of the Scientific Society of Medical Law and a member of Medical Law Section of the
university legal clinic, providing pro bono legal advice to people facing infringements of patients' rights.
He specializes in the medical and commercial law, both in theory and in practice. He studied Health Law in
Poland and the Netherlands, as part of the international workshop "Health Law and Ethics" organized by the
Erasmus University in Rotterdam.
KINGA MARCINEK, International Cooperation Manager
English Studies MA, specialization translation. She worked as a translator for Education for Democracy
Foundation and as a freelancer. Kinga has also experience in working in international environment in
corporations such as Royal Bank of Scotland and in cooperation with Goodyear Dunlop. She also studied
French for a couple of years in Centre de Linguistique Appliquée de Besançon and Université Sorbonne
Nouvelle.

WE Patients Foundation Partners
 Urszula Jaworska Foundation
 Institute for Patient Rights and Healthcare Education
 Nutricia Foundation
 National Federation of Polish NGOs OFOP
 Centrum Informacji o Leku
 The Unit for Social Innovation and Research – „Stocznia”
 Polish Society of Health Programs
 The Chamber of Physicians and Dentists
 The Chamber of Nurses and Midwives
 Polish Pharmaceutical Chamber
 ALIVIA
 Medical University of Warsaw
 Lazarski University
 ISLANDIC CANCER SOCIETY
 NORWEGIAN PATIENTS ORGANIZATION
 PTD
 Polish Association of Dietitians
 The Institute of Mother and Child
 The Children’s Memorial Health
Institute
 The Commissioner for Human Rights
 Polish Society of Anti-Discrimination
Law
 The Congress of Women
 The Stefan Batory Foundation

WE Patients Foundation international cooperation
1. Norwegian Patient Organization – partner in Pacients Decide
project
2. Icelandic Cancer Society – project partner with EEA funds
3. The Foundation is a member of EUPATI and ECRAN projects
concerning education of patients’ environments in the field of
independent clinical trials.
4. The Foundation serves on the Advisory Board for Patients Leaders
Academy - an educational initiative of the London School of
Economics and Brain Europe
5. The Foundation is involved in European Cancer Patients Coalition
6. The Foundation is part of the European Network of Gynecological
Cancer Advocacy Group.
7. The Foundation is part of the group for Health at the National
Federation of Polish NGOs, which belongs to a network of national
NGOs in the EU, the World Alliance of Citizens Participation

Organisations and media cooperating with WE Patients Foundation
1. The Chamber of Physicians and Dentists
2. Chief Sanitary Inspectorate
3. Human Rights Defender
4. Medical University of Warsaw
5. Lazarski University
6. EUPATI - European Patients' Academy on Therapeutic Innovation
7. ECPC European Cancer Patients Coalition
8. TNS Poland
9. Branch Media : Medexpress, Medycyna Praktyczna, Rynek Zdrowia
10. Portal www.znanylekarz.pl

Foundation cooperates with experts and partners
in the following areas:
 Participation and social dialog in healthcare
 Research and analysis of patients’ approach and healthcare market
 Organization of healthcare system
 Patients empowerment
 Financing of healthcare benefits
 Evaluation of medical technologies
 Education and healthcare prophylactics
 Using new media in healthcare
Foundation’s Experts

Currently WE Patients Foundation in cooperation
with partners implements the following projects:
1. Parents for Health – action to change the standard of preventive
pediatric care for children aged 0-5 implemented with the
Nutricia Foundation
2. Patients Decide – „Promotion of public consultation in
healthcare” Education of patient organizations in terms of public
consultation and participation in decision-making in healthcare -
Swiss and EEA grants
3. Building an image of a physician on the Internet -webinars for
doctors in cooperation with Physicians Chamber
4. Social Audit of national cancer prevention programmes in
breast and cervical cancer
5. Cancer register in Poland and Iceland - for patients and quality
improvement

Foundation’s Strategic Projects
„Patients Decide” I and II Edition 2013-2015
„Promotion of public consultation in healthcare”
 The project’s aim is preparing a group of selected patient
organizations to participation in the process of public
consultations in healthcare
 The Project is co-financed by Switzerland within the framework
of Swiss cooperation with new EU member counties
programme and co-created with Urszula Jaworska Foundation.
 The Project included a series of trainings and workshops
providing substantive and legal support in the field of public
consultation and was implemented from 1.10.2013 till
31.07.2014.
 New, II edition of the project Patients Decide started in
September 2014 and will continue till August 2015 thanks to a
grant received from Batory Foundation from Financial
Mechanism of the European Economic Area

The tasks of the second edition of the project "Patients
Decide" 2014/2015
 The aim of the second edition of the project is to prepare
patient organizations to effectively act in the field of
influencing changes in the healthcare environment.
 The Project implemented in partnership with Urszula Jaworska
Foundation, Active Patient Foundation ARGUS, Innopharm
Drug Information Centre, and Factory of Social Communication
 The project’s aim is substantive and organizational preparation
of a selected group of patient organization to participate in the
process of public consultation in terms of healthcare.
 The Project shows how by involving in public consultation it is
possible to build position and reputation of an organization and
shape the surroundings in healthcare.
 The project activities are to educate and increase competence
of patients and patient organization leaders
 After the project’s conclusion in 2015 the leaders of patient
organization will know how to plan and implement the desired
systemic change in healthcare on the basis of social dialogue.

Foundation’s Strategic Projects
„Parents for Health”
„An action to change the standard of preventive pediatric
care for children aged 0-5 implemented with
the Nutricia Foundation
 The Project of WE Patients Foundation is being implemented in
partnership with Nutricia Foundation
 The project’s aim is improving the standard of preventive pediatric
care for children aged 0-5.
 WE Patients Foundation invited a group of blogging mothers to learn
their opinion on the quality of preventive pediatric care and to let
them share their experiences and needs
WHY ENGAGING PARENTS, ESPECIALLY THOSE WHO ARE ACTIVE IN NEW
MEDIA IS SO IMPORTANT?
 Nowadays the doctor is not the main and only source of information
when it comes to health and childcare for parents.
 Parent Bloggers are becoming an increasingly influential group and
are a source of information on childcare for others.

The activities undertaken within the project
„Parents for Health” in 2014
 Conducting three meetings for parent bloggers in the field of
patient rights, health and child nutrition.
 Creating an Internet portal with a database of basic medical
and nutritional advice www.rodzicedlazdrowia.pl and
www.glodnizmian.pl
 Opinion analysis of parents. We produced a report and
recommendations for changes in the preventive pediatric care
system based on the feedback from over 1,600 respondents
in the survey questionnaire.
 We organized a debates among doctors, nurses, parents,
nutritionists and public administration and prepared the
proposal of primary, secondary prevention and screeining for
childhood obesity
 Parents collected over 10.000 signatures supporting dietary
advice for pregnant women and parents of small children
 Experts prepared the appliction to include the dietary advice
to health care services basket

Social Audit of National Cancer
Prevention Programme

Scientific and popular science publications of Foundation
 Participation of patients and social dialog
 Total costs of illnesses – integration of databases
 Access to new technologies
 Reform of healthcare system in Poland
 Medical tourism in Poland and in the world
 Export of patients – cross-border directive
 Open innovativeness in pharmacy
 Social innovativeness in healthcare

New media in Foundation
 Expert blog containing database on healthcare, publications, expert comments, texts of
patients; one of the best positioned portals addressed to patients and patients’
organizations in Poland http://pacjenci.blogspot.com/
 Personalized channel on social network Youtube.com
 Presentations and elaborations of Foundation placed on social network Slideshare.net
http://www.slideshare.net/Pacjenci
 Page on social network Facebook https://www.facebook.com/myPACJENCI.org

WE Patients Foundation in media
News media, radio, on-line, TV

We invite you to cooperate!
WE Patients Foundation
Ewa Borek, President of Board
ewa.borek@mypacjenci.org
+ 48 602 23 64 73
Kinga Marcinek
kinga.marcinek@mypacjenci.org
+ 48 668 340 358
61 Łabędzia St.
Warsaw 04-806
www.mypacjenci.org

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