This publication represents some of the learning and the excellent work from the teams and sites participating in the National Cancer Survivorship Initiative (NCSI). (Published January 2012)

1. NHS
NHS Improvement
Cancer
National Cancer Survivorship Initiative -
Children and Young People Workstream
CANCER
Collection of posters from the
children and young people test
DIAGNOSTICS
and prototype teams
January 2012
HEART
LUNG
STROKE

2. Collection of posters from the children and young people test and prototype teams
Introduction
The National Cancer Survivorship Initiative (NCSI) evolved 3. Developing a safe risk stratification framework and
from the Cancer Reform Strategy (2007). The NCSI was identifying those patients at low, medium and high risk
launched in September 2008 and is a partnership as a consequence of late effects following surgery,
between the Department of Health, Macmillan Cancer chemotherapy and radioactive treatment
Support and NHS Improvement.
4. Non-clinical support issues have been identified and
The Children and Young People (CYP) workstream is one aftercare models to support these issues have been
of seven work streams conducting improvement work as tested. These include psychosocial support and
part of the NCSI. The aim of the national initiative is to support for returning to education and employment
improve models of aftercare provided for those patients through a variety of practical issues; websites,
surviving cancer, many of whom will need a range of survivorship education programmes, fertility education
clinical and non-clinical services to enable each of them and the importance of exercise.
to live a happy, healthy normal life after their initial
treatment for cancer. This publication represents only some of the learning and
the excellent work from the teams and sites participating
The follow up of aftercare services for CYP cancer in the NCSI.
survivors varies nationally but it is predominantly clinician
led at a Principal Treatment Centre (PTC). With the Without the hard work, commitment and expertise from
exponential increase in the number of young adult cancer our clinical leads and advisors, our cancer network service
survivors – strategies and a change in the philosophy of a improvement colleagues and most importantly our cancer
single model of care to a more holistic model is needed. patient survivors who have worked with us during this
initiative this publication would not have been possible!
The CYP workstream over the past three years has tested
and prototyped models of care within both clinical and We thank them for their contribution and we hope
non-clinical services. readers find the content interesting and informative.
Ten national test sites have been involved in the CYP For further information you can access the NCSI website
workstream and these are shown below: www.ncsi.org.uk and the NHS Improvement website
www.improvement.nhs.uk/cancer
• The Leeds Teaching Hospitals NHS Trust
• The Christie NHS Foundation Trust
• Birmingham Children's Hospital NHS
Foundation Trust Patricia Morris
• Sheffield Teaching Hospitals NHS Foundation Trust Director - Cancer
• University Hospitals Bristol NHS Foundation Trust patricia.morris@improvement.nhs.uk
• The Royal Marsden NHS Foundation Trust (RMH)
• Great Ormond Street Hospital for Children Judi Tapp
NHS Trust (GOSH) National Improvement Lead
• Cambridge University Hospitals NHS judi.tapp@improvement.nhs.uk
Foundation Trust
• Royal Alexandra Children's
Hospital (Brighton) January 2012
• CLIC Sargent
The progress so far has resulted in the following:
1. Defined CYP interactive patient pathways
2. Four defined models of care:
• Clinician led
• Professionally led shared care including secondary and
primary care
• Nurse led, including telephone and postal follow up
• Supported self-management
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17. NHS
CANCER
NHS Improvement
DIAGNOSTICS
HEART
LUNG
STROKE
NHS Improvement
NHS Improvement’s strength and expertise lies in practical service improvement. It has over a
decade of experience in clinical patient pathway redesign in cancer, diagnostics, heart, lung and
stroke and demonstrates some of the most leading edge improvement work in England which
supports improved patient experience and outcomes.
Working closely with the Department of Health, trusts, clinical networks, other health sector
partners, professional bodies and charities, over the past year it has tested, implemented, sustained
and spread quantifiable improvements with over 250 sites across the country as well as providing
an improvement tool to over 1,000 GP practices.
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Publication Ref: IMP/comms031 - January 2012
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improvement agenda
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