Anne Webster, -Clinical Lead Winterbourne Projects, NHS England, Joanne McDonnell - Senior Nurse for Mental Health and Learning Disabilities, NHS England Neil Hoskin - Expert by Experience, NHS England Presentation from the Winterbourne Medicines Programme Launch held in London on 10 September 2014 Ensuring safe, appropriate and optimised use of medication for people with learning disabilities who demonstrate behaviour that can challenge

1. Welcome to the
Winterbourne Medicines Programme
Launch Event
@NHSIQ #winterbourne_meds
Improving health outcomes across England by providing improvement and change expertise

2. Welcome…
• No fire drill planned today – if the alarm sounds, please follow exit
signs. Staff will direct you to the assembly point opposite Parnell
House, corner of Dyott St & Streatham St (side of the building)
• Ladies, Gents & Disabled toilets are all located on this floor
• Please switch mobile phones off or onto silent (if you want to
tweet)
• Free Wi-Fi – Code is: Congress Centre Free Wi-Fi
Password is: 12345abcde
• Lunch is at 12:50 in meeting room 1 & 2 on the 5th floor
Improving health outcomes across England by providing improvement and change expertise

3. Winterbourne Medicines Programme
Launch Event
@NHSIQ #winterbourne_meds
Improving health outcomes across England by providing improvement and change expertise

4. Winterbourne Medicines Launch
Overview of National Learning Disabilities Programme 8th
September 2014
Joanne McDonnell, Senior Nurse, Mental Health &
Learning Disabilities, NHS England
Neil Hoskin- Expert by Experience, NHS England
Anne Webster- Clinical Lead- Winterbourne Projects,
NHS England

5. Aims of the presentation
• To give an overview of the
NHS England Learning
Disability Programme
• To help you understand
where the NHSIQ
medication project fits with
the wider learning disability
programme.

6. Message from Ann Earley, Simon’s mum (
Panorama- Winterbourne View)
" Simon's had many indignities foisted
upon him. He has been deprived of his
liberty, abused, removed from his home
and medicated all without his consent. In
his position would you stand for it? "

7. Message from Dominic Slowie, national clinical director
for learning disability, NHS England
“Far too many people have their behavioural problems
managed with anti-psychotics. The Learning Disability
Census highlighted that there are huge numbers of
people on anti-psychotic medication who haven’t got a
psychiatric diagnosis.
I see this as an infringement, or abuse of people’s
human rights. I am really looking forward to the findings
of the pilot in order to improve the care, and
experiences of care for people with learning disabilities.”

8. Having a learning disability-health
“The Confidential Inquiry
(2013) found that women
with learning disabilities
died 20 years sooner than
the general population.
Men died 13 years
sooner.”

9. Having a learning disability-safety
“Census (HSCIC 2013)-
over half in the census
had been subject to at
least one incident in
last 3 months
Two thirds were given
antipsychotic drugs”

10. Having a learning disability-choice
& control
“CQC reported
(2013) that 38% of
detained and 66% of
informal inpatients
were deemed
incapable of
consenting to
treatment”

11. Transforming Care – delivery model
The work programme has 7 workstreams to ensure that we deliver the best care now, and that we are focused on the design of future
care.
Delivering the best care now Future care design
Operational Delivery
Getting the basics right, ensuring everyone has a
Care Coordinator, has had their care reviewed,
and had a date planned for their discharge.
Care and Treatment Reviews
ensuring all inpatients get a Care and Treatment
Review, reviewing care with the person and their
families/carers in the context of their Human Rights,
the principles of ‘least restrictive practice’ and with
future discharge arrangement s as part of the review.
Data and Information
ensuring we have accurate and accessible data,
and transferring the collection of that data to the
HSCIC to enable it to become part of the Mental
Health/Learning Disability Minimum Data Set.
Planning and Contract work
ensuring the NHS Planning Guidance and
Standards contract support commissioners to
deliver best practice is current and future services
for people with a learning disability.
New Funding Models – working with the
Voluntary and Community Sector to
develop new ways of commissioning and
funding services.
New Care Pathways to support
commissioners to co-commission services
jointly with Local Authorities, people with
learning disabilities and their
families/carers to meet individual and
local needs.
Stakeholder Engagement – working at all times to ensure people with learning disabilities, their families/carers, and all other
stakeholders are involved in designing services.

12. NHS England learning disability programme
• Joint health & social care self assessment
framework (SAF)
• Mortality review group.
• Annual health checks
• Positive & safe programme

13. 6Cs Website Launch