Slide presentations delivered during morning sessions of Day Two of the California Statewide Health and Human Services Open DataFest - March 14 - 15, 2016, Sacramento, CA
6. Yes The Silos Can Be Connected…But a New
Training Approach Is Needed to Integrate SDOH
Interoperability
+
Optimization
= InterOptimability
7. Tuesday’s Open DataFest Agenda
Introduction For the Day
National Perspectives on Open Data
Interactive – Assessing Readiness for Open Data
Break
How Can Open Data Advance Policy Formation And Decision Making
Lunch
Making Data Understandable and Useful Through Visualization and Storytelling
Understanding the Opioid Crisis Through Enhanced Data Sharing and Analytics
Break
Interactive: Assembling the Pieces & Charting the Path Forward
Wrap Up and Close
8. Join the conversation now: #HHSDataFest
National and Global Perspectives on
Open Data
Damon Davis, Director Health Data Initiatives , US Department of Health and
Human Services
27. • Explore HealthData.gov - use the data
• Share the stories of how you’re using the data.
• Tell us what data you need.
• Engage with the IDEA Lab through in-Residence programs.
• Connect with @HHSIDEALab & hhs.gov/IDEALab.
Explore, Engage, Connect
29. Join the conversation now: #HHSDataFest
Interactive Activity: Enhancing State and Local
Collaboration with Open Data
- Facilitators: Stewards of Change Institute Team
30. Assessing Readiness for Open Data
Purpose:
To develop an understanding of the factors that affect readiness to move towards a
data driven organization.
Method:
1. Choose a partner and introduce yourselves.
2. One of you will interview the other for 10 minutes using the readiness tool and
record their answers on the worksheet template.
3. Switch roles.
4. After both interviews are finished, use the large template to tally everyone’s
responses. Discuss the items that received the most scores.
5. Whole room debrief.
31. Join the conversation now: #HHSDataFest
How Open Can Data Revolutionize Policy Formation and
Organizational Decision-Making within Government?
Moderator:
Nirav Shah, MD, MPH, Senior Vice President & Chief Operating Officer, Kaiser Permanente
Panelists:
Oscar Alleyne, MD, Senior Advisor Public Health Programs, National Association of City and
County Health Officials
Joy Bonaguro, Chief Data Officer, City and County of San Francisco
Michael Wilkening, Undersecretary, California Health and Human Services Agency
32. Open DataFest III, March 15, 2016
Open Data, Policy and
Governmental Decision Making
E. Oscar Alleyne, DrPH, MPH
Senior Advisor for Public Health Programs
oalleyne@naccho.org
34. Governance of LHDs (by State)
Local = All LHDs in state are units of local government
State = All LHDs in state are units of state government
Shared = All LHDs in state governed by both state and local authorities
Mixed = LHDs in state have more than one governance type
37. Data & health outcomes
• Public health departments use accessible data to improve public health
outcomes
• Communicable Disease Investigation
• Community Health Assessment
• Chronic Diseases
• Environmental Health
• Food Safety
• Built Environment
• Clinical Services
• Maternal, Child & Adolescent Health
• Behavioral Health
39. Access to data
• Local health departments have a difficult time accessing essential
data that will improve public health outcomes
• Physical Infrastructure
• Timeliness of data analysis
• Workforce needs
• Lack of interoperability
• Left out of the good stuff that academics & researchers enjoy……
• “Towers of Mordor”
40. Anatomy and Evolution of Data Exchange
Hospitals
Pharmacies
Physicians
Clinics
Labs
$
Payers
Patients
Public
Health
text
text
text
CDA
HL 7 2.4
HL 7 2.3
HL 7 2.5
text
X12
cvs
text
U
P
H
N
Hospitals
Pharmacies
Physicians
ClinicsLabs
$
Payers
Patients
RHIOs
Public
Health
44. Percent of LHD respondents with SyS and
reported years of SyS use, by population
served*
45. Results from the BNAS 2014-15 Survey
44%
20%
33%
4%
LHDs that manage their own SyS
system
Direct from hospitals
From data aggregator
or contractor
From state health
department
Direct from
CDC/BioSense
0% 20% 40% 60% 80% 100%
Foodborne illness
ILI
Notifiable disease
GI
Vector-borne diseases
Animal bites
Bioterrorism agents
Natural disaster related Illness/Injury
NCDs/Chronic disease
Poisoning
Injuries
Drug related hospitalizaitons
Suicide and self-inflicted injury
Alcohol related injuries
Mental health
Wild fire effects
Other
Any Surveillance
SyS
Percent of LHDs that use SyS that monitor health issues
with any method compared to monitoring with SyS
46. Healthcare changes
• ACA changes and movement towards “value-based” care will make opening of
health data essential to measuring population health.
• Local health departments need to access clinical data in order to be partners in
population health management.
47. Policy issues
• In order to fully realize the benefits of community and population
health management, we need to gain access to the large amounts of
open clinical data consumption
• Equal partner with private-public enterprises
• This will allow for true innovation on the part of local public health
departments.
• Give LHD’s the same access.
48. • Collection and use of biospecimens
• Collection and use of private data
• Public health surveillance vs. research
• Quality assurance and improvement vs.
research
• Broad consent for use of biospecimens
and private data for research
• Privacy and security requirements
• Will not cover operational issues related to
IRBs
Notice of Proposed Rulemaking Regarding
Federal Protections of Human Research
Subjects (Common Rule)
NPRM selected provisions focus on
49. Summary
• Local health departments need access to timely, high-quality data
• Health departments use local data to inform program planning and
evaluate program effectiveness, resulting in improved health
outcomes
• Healthcare changes have implications for access and use of data
• Policies must be in place to allow sharing of and access to appropriate
data
50. Data in San Francisco:
Fueling good decisions
Joy Bonaguro
City and County of San Francisco
Open Data Fest III | March 15, 2016
✓
60. Data: the fuel for good decisions
Platforms for
Raw Data
Platforms for
Engagement
Platforms for
Decision-Making
Open Protected
Gov, Standards
& Quality