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Health and Human
Services
3
Can the Silos Be Connected?
Yes The Silos Can Be Connected…But a New
Training Approach Is Needed to Integrate SDOH
Interoperability
+
Optimization
= InterOptimability
Tuesday’s Open DataFest Agenda
Introduction For the Day
National Perspectives on Open Data
Interactive – Assessing Readiness for Open Data
Break
How Can Open Data Advance Policy Formation And Decision Making
Lunch
Making Data Understandable and Useful Through Visualization and Storytelling
Understanding the Opioid Crisis Through Enhanced Data Sharing and Analytics
Break
Interactive: Assembling the Pieces & Charting the Path Forward
Wrap Up and Close
Join the conversation now: #HHSDataFest
National and Global Perspectives on
Open Data
Damon Davis, Director Health Data Initiatives , US Department of Health and
Human Services
@damonldavis
WHERE IDEAS AND OPPORTUNITIES GENERATE IMPACT
HHS Ignite
Internal accelerator for new ideas
Seed funding
Leadership support
3 months training &
mentorship
HHS Ventures
Up to $10K
Up to 15 months of support
Suite of tools, guidance,
technical support
HHS Buyer’s Club
Modernizing Acquisition
Develop easier, more effective
models
Testing innovative acquisition
methodologies
Incentivize operational & cultural
change
Public Access to
Research Results Digital
Accountability
& Transparency
Act
U.S. Department of Health
and Human Services
0
Transparency
ParticipationCollaboration
Open
Government
Open Data
Rheumatoid Arthritis Challenge
• Explore HealthData.gov - use the data
• Share the stories of how you’re using the data.
• Tell us what data you need.
• Engage with the IDEA Lab through in-Residence programs.
• Connect with @HHSIDEALab & hhs.gov/IDEALab.
Explore, Engage, Connect
@damonldavis
Join the conversation now: #HHSDataFest
Interactive Activity: Enhancing State and Local
Collaboration with Open Data
- Facilitators: Stewards of Change Institute Team
Assessing Readiness for Open Data
Purpose:
To develop an understanding of the factors that affect readiness to move towards a
data driven organization.
Method:
1. Choose a partner and introduce yourselves.
2. One of you will interview the other for 10 minutes using the readiness tool and
record their answers on the worksheet template.
3. Switch roles.
4. After both interviews are finished, use the large template to tally everyone’s
responses. Discuss the items that received the most scores.
5. Whole room debrief.
Join the conversation now: #HHSDataFest
How Open Can Data Revolutionize Policy Formation and
Organizational Decision-Making within Government?
Moderator:
Nirav Shah, MD, MPH, Senior Vice President & Chief Operating Officer, Kaiser Permanente
Panelists:
Oscar Alleyne, MD, Senior Advisor Public Health Programs, National Association of City and
County Health Officials
Joy Bonaguro, Chief Data Officer, City and County of San Francisco
Michael Wilkening, Undersecretary, California Health and Human Services Agency
Open DataFest III, March 15, 2016
Open Data, Policy and
Governmental Decision Making
E. Oscar Alleyne, DrPH, MPH
Senior Advisor for Public Health Programs
oalleyne@naccho.org
NACCHO’S Strengthening Performance Model
Governance of LHDs (by State)
Local = All LHDs in state are units of local government
State = All LHDs in state are units of state government
Shared = All LHDs in state governed by both state and local authorities
Mixed = LHDs in state have more than one governance type
Schools
Community
Centers
Employers
Transit
Elected Officials
Doctors
EMS
Law
Enforcement
Nursing Homes
Fire
Corrections
Mental
Health
Faith Institutions
Civic Groups
Non-Profit
Organizations
Neighborhood
Organizations
Laboratories
Home
Health
CHCs
Hospitals
Tribal Health
Drug
Treatment
Public Health
Agency
Public Health System
Data & health outcomes
• Public health departments use accessible data to improve public health
outcomes
• Communicable Disease Investigation
• Community Health Assessment
• Chronic Diseases
• Environmental Health
• Food Safety
• Built Environment
• Clinical Services
• Maternal, Child & Adolescent Health
• Behavioral Health
Addressing the Causes of Death
Sources—NEJM, CDC
Access to data
• Local health departments have a difficult time accessing essential
data that will improve public health outcomes
• Physical Infrastructure
• Timeliness of data analysis
• Workforce needs
• Lack of interoperability
• Left out of the good stuff that academics & researchers enjoy……
• “Towers of Mordor”
Anatomy and Evolution of Data Exchange
Hospitals
Pharmacies
Physicians
Clinics
Labs
$
Payers
Patients
Public
Health
text
text
text
CDA
HL 7 2.4
HL 7 2.3
HL 7 2.5
text
X12
cvs
text
U
P
H
N
Hospitals
Pharmacies
Physicians
ClinicsLabs
$
Payers
Patients
RHIOs
Public
Health
Technology needs
Percent of LHD respondents with SyS and
reported years of SyS use, by population
served*
Results from the BNAS 2014-15 Survey
44%
20%
33%
4%
LHDs that manage their own SyS
system
Direct from hospitals
From data aggregator
or contractor
From state health
department
Direct from
CDC/BioSense
0% 20% 40% 60% 80% 100%
Foodborne illness
ILI
Notifiable disease
GI
Vector-borne diseases
Animal bites
Bioterrorism agents
Natural disaster related Illness/Injury
NCDs/Chronic disease
Poisoning
Injuries
Drug related hospitalizaitons
Suicide and self-inflicted injury
Alcohol related injuries
Mental health
Wild fire effects
Other
Any Surveillance
SyS
Percent of LHDs that use SyS that monitor health issues
with any method compared to monitoring with SyS
Healthcare changes
• ACA changes and movement towards “value-based” care will make opening of
health data essential to measuring population health.
• Local health departments need to access clinical data in order to be partners in
population health management.
Policy issues
• In order to fully realize the benefits of community and population
health management, we need to gain access to the large amounts of
open clinical data consumption
• Equal partner with private-public enterprises
• This will allow for true innovation on the part of local public health
departments.
• Give LHD’s the same access.
• Collection and use of biospecimens
• Collection and use of private data
• Public health surveillance vs. research
• Quality assurance and improvement vs.
research
• Broad consent for use of biospecimens
and private data for research
• Privacy and security requirements
• Will not cover operational issues related to
IRBs
Notice of Proposed Rulemaking Regarding
Federal Protections of Human Research
Subjects (Common Rule)
NPRM selected provisions focus on
Summary
• Local health departments need access to timely, high-quality data
• Health departments use local data to inform program planning and
evaluate program effectiveness, resulting in improved health
outcomes
• Healthcare changes have implications for access and use of data
• Policies must be in place to allow sharing of and access to appropriate
data
Data in San Francisco:
Fueling good decisions
Joy Bonaguro
City and County of San Francisco
Open Data Fest III | March 15, 2016
✓
Start with
problems…move to
opportunities
Knowledge
Ability
Access
© Emw / Wikimedia Commons / CC-BY-SA-3.0
CMIA
SB1386
HIPAA
FERPAHMIS
Rule 603
Child & Welfare
42 CFR 2
Health &
Safety Code
Welfare &
Institutions
Code
AD Ch 20,
16, 12m….
Health Code
Penal Code
Police Code
Business
& Tax
Code
Platforms for
Raw Data Open Protected
Gov, Standards
& Quality
Pop Quiz: Which is more compelling?
Option A Option B
Platforms for
Raw Data
Platforms for
Engagement
Open Protected
Gov, Standards
& Quality
TranStat
Stat Starter Kit – Customer Journey
•Case studies
•Demos
Learning
•Readiness
assessment
•Consulting
Assessing •How to guide
•Consulting
Planning
•Consulting
•Tech guidebooks
•Training
Operating
Data: the fuel for good decisions
Platforms for
Raw Data
Platforms for
Engagement
Platforms for
Decision-Making
Open Protected
Gov, Standards
& Quality
Blog & Resource Library
THANK YOU
@datasf | datasf.org |datasf.org/blog

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ODF III - 3.15.16 - Day Two Morning Sessions

  • 1.
  • 3. 3
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  • 5. Can the Silos Be Connected?
  • 6. Yes The Silos Can Be Connected…But a New Training Approach Is Needed to Integrate SDOH Interoperability + Optimization = InterOptimability
  • 7. Tuesday’s Open DataFest Agenda Introduction For the Day National Perspectives on Open Data Interactive – Assessing Readiness for Open Data Break How Can Open Data Advance Policy Formation And Decision Making Lunch Making Data Understandable and Useful Through Visualization and Storytelling Understanding the Opioid Crisis Through Enhanced Data Sharing and Analytics Break Interactive: Assembling the Pieces & Charting the Path Forward Wrap Up and Close
  • 8. Join the conversation now: #HHSDataFest National and Global Perspectives on Open Data Damon Davis, Director Health Data Initiatives , US Department of Health and Human Services
  • 10. WHERE IDEAS AND OPPORTUNITIES GENERATE IMPACT
  • 11. HHS Ignite Internal accelerator for new ideas Seed funding Leadership support 3 months training & mentorship
  • 12. HHS Ventures Up to $10K Up to 15 months of support Suite of tools, guidance, technical support
  • 13. HHS Buyer’s Club Modernizing Acquisition Develop easier, more effective models Testing innovative acquisition methodologies Incentivize operational & cultural change
  • 14.
  • 15.
  • 16.
  • 17. Public Access to Research Results Digital Accountability & Transparency Act
  • 18. U.S. Department of Health and Human Services 0
  • 19.
  • 20.
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  • 25.
  • 26.
  • 27. • Explore HealthData.gov - use the data • Share the stories of how you’re using the data. • Tell us what data you need. • Engage with the IDEA Lab through in-Residence programs. • Connect with @HHSIDEALab & hhs.gov/IDEALab. Explore, Engage, Connect
  • 29. Join the conversation now: #HHSDataFest Interactive Activity: Enhancing State and Local Collaboration with Open Data - Facilitators: Stewards of Change Institute Team
  • 30. Assessing Readiness for Open Data Purpose: To develop an understanding of the factors that affect readiness to move towards a data driven organization. Method: 1. Choose a partner and introduce yourselves. 2. One of you will interview the other for 10 minutes using the readiness tool and record their answers on the worksheet template. 3. Switch roles. 4. After both interviews are finished, use the large template to tally everyone’s responses. Discuss the items that received the most scores. 5. Whole room debrief.
  • 31. Join the conversation now: #HHSDataFest How Open Can Data Revolutionize Policy Formation and Organizational Decision-Making within Government? Moderator: Nirav Shah, MD, MPH, Senior Vice President & Chief Operating Officer, Kaiser Permanente Panelists: Oscar Alleyne, MD, Senior Advisor Public Health Programs, National Association of City and County Health Officials Joy Bonaguro, Chief Data Officer, City and County of San Francisco Michael Wilkening, Undersecretary, California Health and Human Services Agency
  • 32. Open DataFest III, March 15, 2016 Open Data, Policy and Governmental Decision Making E. Oscar Alleyne, DrPH, MPH Senior Advisor for Public Health Programs oalleyne@naccho.org
  • 34. Governance of LHDs (by State) Local = All LHDs in state are units of local government State = All LHDs in state are units of state government Shared = All LHDs in state governed by both state and local authorities Mixed = LHDs in state have more than one governance type
  • 35. Schools Community Centers Employers Transit Elected Officials Doctors EMS Law Enforcement Nursing Homes Fire Corrections Mental Health Faith Institutions Civic Groups Non-Profit Organizations Neighborhood Organizations Laboratories Home Health CHCs Hospitals Tribal Health Drug Treatment Public Health Agency Public Health System
  • 36.
  • 37. Data & health outcomes • Public health departments use accessible data to improve public health outcomes • Communicable Disease Investigation • Community Health Assessment • Chronic Diseases • Environmental Health • Food Safety • Built Environment • Clinical Services • Maternal, Child & Adolescent Health • Behavioral Health
  • 38. Addressing the Causes of Death Sources—NEJM, CDC
  • 39. Access to data • Local health departments have a difficult time accessing essential data that will improve public health outcomes • Physical Infrastructure • Timeliness of data analysis • Workforce needs • Lack of interoperability • Left out of the good stuff that academics & researchers enjoy…… • “Towers of Mordor”
  • 40. Anatomy and Evolution of Data Exchange Hospitals Pharmacies Physicians Clinics Labs $ Payers Patients Public Health text text text CDA HL 7 2.4 HL 7 2.3 HL 7 2.5 text X12 cvs text U P H N Hospitals Pharmacies Physicians ClinicsLabs $ Payers Patients RHIOs Public Health
  • 41.
  • 42.
  • 44. Percent of LHD respondents with SyS and reported years of SyS use, by population served*
  • 45. Results from the BNAS 2014-15 Survey 44% 20% 33% 4% LHDs that manage their own SyS system Direct from hospitals From data aggregator or contractor From state health department Direct from CDC/BioSense 0% 20% 40% 60% 80% 100% Foodborne illness ILI Notifiable disease GI Vector-borne diseases Animal bites Bioterrorism agents Natural disaster related Illness/Injury NCDs/Chronic disease Poisoning Injuries Drug related hospitalizaitons Suicide and self-inflicted injury Alcohol related injuries Mental health Wild fire effects Other Any Surveillance SyS Percent of LHDs that use SyS that monitor health issues with any method compared to monitoring with SyS
  • 46. Healthcare changes • ACA changes and movement towards “value-based” care will make opening of health data essential to measuring population health. • Local health departments need to access clinical data in order to be partners in population health management.
  • 47. Policy issues • In order to fully realize the benefits of community and population health management, we need to gain access to the large amounts of open clinical data consumption • Equal partner with private-public enterprises • This will allow for true innovation on the part of local public health departments. • Give LHD’s the same access.
  • 48. • Collection and use of biospecimens • Collection and use of private data • Public health surveillance vs. research • Quality assurance and improvement vs. research • Broad consent for use of biospecimens and private data for research • Privacy and security requirements • Will not cover operational issues related to IRBs Notice of Proposed Rulemaking Regarding Federal Protections of Human Research Subjects (Common Rule) NPRM selected provisions focus on
  • 49. Summary • Local health departments need access to timely, high-quality data • Health departments use local data to inform program planning and evaluate program effectiveness, resulting in improved health outcomes • Healthcare changes have implications for access and use of data • Policies must be in place to allow sharing of and access to appropriate data
  • 50. Data in San Francisco: Fueling good decisions Joy Bonaguro City and County of San Francisco Open Data Fest III | March 15, 2016 ✓
  • 52. Knowledge Ability Access © Emw / Wikimedia Commons / CC-BY-SA-3.0
  • 53.
  • 54. CMIA SB1386 HIPAA FERPAHMIS Rule 603 Child & Welfare 42 CFR 2 Health & Safety Code Welfare & Institutions Code AD Ch 20, 16, 12m…. Health Code Penal Code Police Code Business & Tax Code
  • 55. Platforms for Raw Data Open Protected Gov, Standards & Quality
  • 56. Pop Quiz: Which is more compelling? Option A Option B
  • 57. Platforms for Raw Data Platforms for Engagement Open Protected Gov, Standards & Quality
  • 59. Stat Starter Kit – Customer Journey •Case studies •Demos Learning •Readiness assessment •Consulting Assessing •How to guide •Consulting Planning •Consulting •Tech guidebooks •Training Operating
  • 60. Data: the fuel for good decisions Platforms for Raw Data Platforms for Engagement Platforms for Decision-Making Open Protected Gov, Standards & Quality
  • 61. Blog & Resource Library
  • 62. THANK YOU @datasf | datasf.org |datasf.org/blog