1. SPRING 2016
LONG ISLAND CHAPTER
02VOLUNTEER
SPOTLIGHT
03CALENDER OF
EVENTS
08CAN DO
MS
TOGETHER WE ARE STRONGER.
WALK MS
WALK MS: JONES BEACH, FIELD 5
SATURDAY, MAY 21, 2016
REGISTER TODAY AND JOIN THOUSANDS TO END MS FOREVER.
Ending multiple sclerosis for good will take all of us. It is why Walk MS matters so much.
And it is why you matter so much. Walk MS helps us team up with friends, loved ones, and
co-workers to change the world for everyone affected by MS. Together, we are a powerful
force. And with every step we take, every dollar we raise... we are that much closer.
Together we will end MS forever.
Register online at WalkMS.org or call 631-864-8337, option 2.
09SELF HELP
GROUPS
TogeTher We are sTronger
It will take all of our passion and determination to end MS forever. Your fundraising drives
groundbreaking research, provides life-changing programs and guarantees a supportive
community for those who need it most. Your participation in Walk MS will help ensure no
one ever has to be diagnosed again. Register and start raising much-needed funds today!
Register at www.nMSsli.org or call 631-864-8337, option 2
WinTer 2015/2016
Long isLanD ChaPTer
02VoLunTeer
sPoTLighT
03CaLenDer of
eVenTs
04MeeT The
aTTorney
one Day. ThousanDs of PeoPLe.
WaLk To enD Ms.
Join us aT WaLk Ms Jones beaCh, fieLD 5
saTurDay, May 21, 2016
FALL 2014
LONG ISLAND CHAPTER
MS CONNECTIONNEWSLETTER
INSIDE
THIS
ISSUE
04MS SERVICE
DAY
13A DUAL
PERSPECTIVE
18PROMISING MS
TREATMENTS
For more information, page 3
08WALK MS
THANK YOU
NEW FOR 2014:
TAKE A TOUR OF THE WORLD WITHOUT LEAVING THE SOUTHFORK!
2012 Bike MS: East End Ride Participants
BIKE MS: EAST END RIDE » SEPTEMBER 7, 2014 » 1 DAY » 25-100 MILES
09seLf heLP
grouPs
Ms ConneCTion neWsLeTTer
insiDe
This
issue
TogeTher We are sTronger
It will take all of our passion and determination to end MS forever. Your fundraising drives
groundbreaking research, provides life-changing programs and guarantees a supportive
community for those who need it most. Your participation in Walk MS will help ensure no
one ever has to be diagnosed again. Register and start raising much-needed funds today!
Register at www.nMSsli.org or call 631-864-8337, option 2
WinTer 2015/2016
Long isLanD ChaPTer
02VoLunTeer
sPoTLighT
03CaLenDer of
eVenTs
04MeeT The
aTTorney
one Day. ThousanDs of PeoPLe.
WaLk To enD Ms.
Join us aT WaLk Ms Jones beaCh, fieLD 5
saTurDay, May 21, 2016
FALL 2014
LONG ISLAND CHAPTER
MS CONNECTIONNEWSLETTER
INSIDE
THIS
ISSUE
04MS SERVICE
DAY
13A DUAL
PERSPECTIVE
18PROMISING MS
TREATMENTS
For more information, page 3
08WALK MS
THANK YOU
NEW FOR 2014:
TAKE A TOUR OF THE WORLD WITHOUT LEAVING THE SOUTHFORK!
2012 Bike MS: East End Ride Participants
BIKE MS: EAST END RIDE » SEPTEMBER 7, 2014 » 1 DAY » 25-100 MILES
09seLf heLP
grouPs
Ms ConneCTion neWsLeTTer
insiDe
This
issue
TogeTher We are sTronger
It will take all of our passion and determination to end MS forever. Your fundraising drives
groundbreaking research, provides life-changing programs and guarantees a supportive
community for those who need it most. Your participation in Walk MS will help ensure no
one ever has to be diagnosed again. Register and start raising much-needed funds today!
Register at www.nMSsli.org or call 631-864-8337, option 2
WinTer 2015/2016
Long isLanD ChaPTer
02VoLunTeer
sPoTLighT
03CaLenDer of
eVenTs
04MeeT The
aTTorney
one Day. ThousanDs of PeoPLe.
WaLk To enD Ms.
Join us aT WaLk Ms Jones beaCh, fieLD 5
saTurDay, May 21, 2016
FALL 2014
LONG ISLAND CHAPTER
MS CONNECTIONNEWSLETTER
INSIDE
THIS
ISSUE
04MS SERVICE
DAY
13A DUAL
PERSPECTIVE
18PROMISING MS
TREATMENTS
For more information, page 3
08WALK MS
THANK YOU
NEW FOR 2014:
TAKE A TOUR OF THE WORLD WITHOUT LEAVING THE SOUTHFORK!
2012 Bike MS: East End Ride Participants
BIKE MS: EAST END RIDE » SEPTEMBER 7, 2014 » 1 DAY » 25-100 MILES
09seLf heLP
grouPs
Ms ConneCTion neWsLeTTer
insiDe
This
issue
3. 3NATIONALMSSOCIETY.ORG|1-800-344-4867
CALENDEROFEVENTS
WALK MS:
JONES BEACH,
FIELD 5
MAY 21
BIKE MS:
TRAFFIC FREE RIDE
JUNE 5
MS GOLF CLASSIC
JUNE 13
MUCKFEST MS:
NEW JERSEY
JUNE 25 & 26
BIKE MS:
EAST END RIDE
SEPETMEBER 10
For more information and to register, please
visit www.nMSsli.org or call 631-864-8337,
option 2
PROGRAMS
RECREATIONAND
SOCIALIZATION
PROGRAMS2016
BAYSHORE
Southside Hospital, Main Building
301 W. Main Street
Bayshore, NY 11716
Carol Macbride, CTRS
Thursdays, 12 - 3 p.m.
In progress - March 31
April 14, 28 May 5, 26 June 9, 23
FREEPORT
Freeport Recreation Center
130 East Merrick Road
Teresa Sawicki, CTRS
Saturdays, 12 -3 p.m.
In progress - April 2, 16 May 14, 21
June 11, 25
For more informations, please call Nick Bove
at (631) 864-8337 or email
nicholas.bove@nmss.org
4. 4 MS CONNECTION: SPRING 2016
PROGRAMS
COUNSELINGSERIES
ADULT FAMILY MEMBERS
Phone Support Group
Tuesdays, 7 - 8 p.m.
April 26 - May 17
Contact Karen Tuminello, MSW for details
631-589-3901
ADULT FAMILY MEMBERS
Carle Place
1 Old Country Road, Suite 295
Vicki Kulberg, ACSW
Saturdays, 12 - 1:30 p.m.
April 16 - July 9
ADULT FAMILY MEMBERS
Melville, St. Charles Rehabilitation
1895 Walt Whitman Road
Michael Greenberg, ACSW
Thursdays, 6:15 - 7:45 p.m.
April 7 - May 26
BUT YOU LOOK SO GOOD
Syosset Hospital, Doctors Lounge
Michael Greenberg, ACSW
Saturdays, 10 - 11:30 a.m.
April 9 - June 4
EAST END SUPPORT
CONFERENCE CALL
Karen Tuminello, MSW
Mondays, 7 - 8 p.m.
April 18 - June 13
HOMEBOUND
CONFERENCE CALL
Karen Tuminello, MSW
Thursdays, 1 - 2 p.m.
April 21 - May 26
LIVING WITH MS
Mather Memorial Hospital
Conference Rm. #3- front of hospital
Karen Tuminello, MSW
Thursdays, 7 - 8:30 p.m.
April 21 - June 9
Lake Ronkonkoma Senior Center
Karen Tuminello, MSW
Wednesdays, 7 - 8:30 p.m.
April 20 - June 8
MEDITATE YOUR WAY TO BETTER HEALTH
Roman Catholic Church of St. Matthew
Contact Ruth Geller at 631-439-2913
35 N. Service Road, Dix Hills, NY
Thursdays, 7 - 8:15 p.m. Ongoing
Southside Hospital, Main Building
301 W. Main Street
Thursdays, 11 - 12 p.m.
In Progress - March 31 April 14, 28 May 5, 26
June 9, 23
MOMS WITH MS
Conference Call, Karen Tuminello, MSW
Tuesdays, 1 - 2 p.m.
April 19 - May 24
To register for these programs, please
contact Nick Bove at 631-864-8337, option 2
5. 5NATIONALMSSOCIETY.ORG | 1-800-344-4867
PROGRAMS
WELLNESS
AQUATICS – OCEANSIDE
Barry and Florence Friedberg JCC
15 Neil Court
516-766-4341
Instructors, Helene Hines and Barbara Vitale
Mondays, 7 - 8 p.m. - ongoing
Thursdays, 10 - 11 a.m. - ongoing
AQUATICS- MID-ISLAND Y
Plainview
45 Manetto Hill Road
516-822-3535
Mondays, 10:35 - 11:35 a.m.
Ongoing
Wednesdays, 10:05 – 11:05 a.m.
Ongoing
YOGA
East Meadow Jewish Center
1400 Prospect Avenue, East Meadow
516-483-4205
Instructor, Shelley Sidelman 516-802-3876
Wednesdays, 12 – 1 p.m.
In Progress - June 15
Millennium Diner
156 East Main Street, Smithtown
631-724-5556
Instructor, Shelley Sidelman 516-802-3876
Fridays, 10 - 11 a.m.
In Progress - June 17
Connectquot Public Library
760 Ocean Avenue, Bohemia
tentative time is 12 - 1 p.m.
Tuesdays, In Progress - May 24
*Please check the website for session information.
www.connetquotlibrary.org or contact the
instructor at karen@freeyourmindyoga.com
PHYSICAL THERAPY
Progressive Therapy
266 East Pulaski Road, Suite 3
Greenlawn, Mike Rosati, PT- 631-673-4600
Tuesdays, 1 - 2 p.m.
In Progress - May 3
St. Charles Rehab Network
240 Middle Country Road, Suite 208
Smithtown, NY
Brian Quinn, PTA- 631-382-4550
Wednesdays, 12 - 1 p.m.
May 4 - June 8
TENNIS- OCEANSIDE
Pointset Tennis
3065 New Street
516-536-2323
Instructor, Tonny Van de Pieterman
Tuesdays, ongoing, please call for session time
GO GREEN!
If you prefer to receive the MS Connection via
e-mail, please contact Nick Bove at
(631) 864-8337, option 2 or
nicholas.bove@nmss.org.
6. 6
WELLNESS
YOGA PROGRAMS
No prior experience necessary. Participants must
be ambulatory. Please arrive 10-15 minutes prior
for the class to begin on time.
WOODBURY
Absolute Yoga Studio
1 Guilles Lane
516-682-YOGA
Tuesdays, 12:30 - 1:45 p.m.
April 19 - June 7
Owner/Instructor, Leslie Luft
Thursdays, 11 - 12:15 p.m.
April 21 - June 9
Instructor, Lisa Bachrach-Zeankowski*
There will be a small fee during the summer
months. Please contact Absolute Yoga Studio for
more information.
*Lisa is a 200 hour certified yoga instructor and
Reiki practitioner, who is also living with multiple
sclerosis. Please contact Lisa with any questions at
516-287-9747 or lbloveslife@optonline.net.
MS CONNECTION: SPRING 2016
KINGS PARK
Simplicity Yoga Studio
84 Main Street
631-546-8894
Thursdays, 12:30 - 1:30 p.m.
April 21 - June 9
Owner/Instructor, Roseanne Sihler
HOPEFITNESS
HOPEFitness combines exercising with fun
and socialization to create a truly unique
program. HOPEFitness believes that every in-
dividual has the right to a healthy lifestyle. Our
facilities are designed to maximize participation
and encourage members for ultimate success.
NASSAU LOCATION
2750 N. Jersusalem Road, North Bellmore
Fridays, 11 - 12 p.m.
In Progress- May 13
SUFFOLK LOCATION
3140 Veterans Highway, Bohemia
Mondays, 10:45 - 12 p.m.
In Progress- May 23
Advanced registration is required. To register,
please contact Nick Bove at 631-864-8337,
Option 2
7. 7NATIONALMSSOCIETY.ORG | 1-800-344-4867
MS ON THE JOB WEB AND
TELE-DISCUSSION SERIES
Trying to manage MS on the job can be challenging for many. Join us for an open discussion where other members can
ask questions and share what has worked for them. Prior to each group you will be asked to view a brief 5-6 minute
video on the topic to be discussed for that week. This program is only for individuals working with MS. Participation is
limited so register early.
BEING PROACTIVE DISCLOSURE
Wednesday, April 6 Wednesday, April 20
7 - 8 p.m. 7 - 8 p.m.
LEGAL PROTECTIONS COGNITION AND FATIGUE
AND ASSISTIVE TECHNOLOGY
Wednesday, April 13 Wednesday, April 27
7 - 8 p.m. 7 - 8 p.m.
7naTionaLMssoCieTy.org | 1-800-344-4867
Once in a while, a challenge calls that you simply must answer.
Challenge Walk MS is the perfect way to embrace a personal challenge of spirit and strength, while making an
important difference in the lives of people living with MS.
RegisteR today & get a head staRt on fundRaising
As soon as you register, you’ll have access to our online fundraising tools that make fundraising easier and more
convenient than ever! A minimum fundraising goal of $1,500 is required, but we’ll be with you every step of
the way.
3 days. 50 miles.
ConneCt to end
multiple sCleRosis
RegisteR now: challengewalkmscapecod.org or 800.344.4867
40 Marcus Drive
Suite 100
Melville, NY 11747
NON-PROFIT
ORGANIZATION
U.S. POSTAGE
PAID
New York, NY
Permit No. 7131National
Multiple Sclerosis
Society
Long Island
Chapter
Once in a while, a challenge calls that you simply must answer.
Challenge Walk MS is the perfect way to embrace a personal challenge of
spirit and strength, while making an important difference in the lives of
people living with MS.
REGISTER TODAY & BEGIN FUNDRAISING
As soon as you register, you’ll have access to our online fundraising
tools, making fundraising easier and more convenient than ever! A
minimum fundraising goal of $1,500 is required, but we’ll be with you
every step of the way.
Cape Cod, Mass.
Sept. 5-7, 2014
CAPE COD, MASS.: SEPTEMBER 5-7, 2014
3 DAYS. 50 MILES.
CONNECT TO END
MULTIPLE SCLEROSIS
REGISTER NOW: MSchallengewalkcapecod.org or 1.800.344.4867
CAPE COD, MASS.: SEPTEMBER 5-7, 2014
saVe The DaTes
Challenge
walk
Cape Cod, mass.
septembeR 9-11, 2016
8. 8 MS CONNECTION: SPRING 2016
AVAILABLE RESOURCES
TELEPHONE
SUPPORT
MS FRIENDS
1-866-MS FRIENDS (673-7436)
The MS Friends program connects you with
volunteers living with MS.
HAVE MS FOR MORE THAN
10 YEARS?
Sal, 516-752-1116
If you have been diagnosed with MS for more
than 10 years and are having difficulty coping,
please call.
NEWLY DIAGNOSED?
Karleen, RN 516-873-9220
Call any time- leave your name, number, and
a message, and Karleen will return your call.
LIVING COPING AND
UNDERSTANDING MS
Rosemarie, 516-937-9069 or 917-294-2182
Call anytime.
CAN DO MS
WELLNESS WEBINAR & TELELEARNING
SERIES
Webinars/ Telelearnings will be held on
the second Tuesday of each month from
8 - 9:15 p.m.
3/29 - Home Based Employment:
What Employers Want
4/12 - Research Updates
5/10 - Traveling with MS
6/14 - Stress Management and Relaxation
7/12 - Managing Symptoms: Spasticity
8/9 - Mood in MS
9/13 - Health Insurance
10/11 - Support Partners and Families
12/13 - Importance of Sleep
Please register at
nationalMSsociety.org/telelearning or at
1-800-344-4867.
6
WeLLness
yoga PrograMs
No prior experience necessary. Participants must
be ambulatory. Please arrive 10-15 minutes prior
for the class to begin on time.
WooDbury
Absolute Yoga Studio
1 Guilles Lane
516-682-YOGA
Tuesdays, 12:30- 1:45 p.m.
Owner/Instructor, Leslie Luft
Thursdays, 11 a.m.- 12:15 p.m
Instructor, Lisa Bachrach-Zeankowski*
There will be a small fee during the winter
months. Please contact Absolute Yoga Studio for
more information.
*Lisa is a 200 hour certified yoga instructor and
Reiki practitioner, who is also living with multiple
sclerosis. Please contact Lisa with any questions at
516-287-9747 or lbloveslife@optonline.net.
CLiMb To The ToP
200 CLarenDon- bosTon
MarCh 5, 2016. regisTer aT CLiMbMsgne.
org
New England’s tallest building- 61 stories
Race for time, climb for pride, celebrate your
victory. Open to elite climbers and casual striders.
Chip-timed. Fundraising prizes.
Ms ConneCTion: WinTer 2015/2016
aVaiLabLe resourCes
TeLePhone
suPPorT
Ms frienDs
1-866-MS FRIENDS (673-7436)
The MS Friends program connects you with
volunteers living with MS.
haVe Ms for More Than
10 years?
Sal, 516-752-1116
If you have been diagnosed with MS for more
than 10 years and are having difficulty coping,
please call.
neWLy DiagnoseD?
Karleen, RN 516-873-9220
Call any time- leave your name, number, and
a message, and Karleen will return your call.
LiVing CoPing anD
unDersTanDing Ms
Rosemarie, 516-937-9069 or 917-294-2182
Call anytime.
9. 9NATIONALMSSOCIETY.ORG|1-800-344-4867
GREENLAWN/
REACHING FOR THAT SILVER LINING
Dennis, 631-495-0512
1 - 3 p.m., 1st Wednesday of the month
Harborfields Public Library
31 Broadway (small meeting room)
ISLIP/ A NEW
GENERATION OF MS
Wendy, 631-236-2955
7 - 9 p.m., 3rd Thursday of the month
Islip Public Library
71 Monell Ave
This group is focused on facing the everyday
concerns and challenges of maturing young
adults (ranging from ages 18 to early 30’s) liv-
ing with MS.
MASTIC BEACH/
BALANCING YOUR CHANGES
Melissa, 516-991-3653
12 - 2 p.m., 2nd Thursday of the month
Grace Lutheran Church- 240 Mastic Road
Please call Melissa prior to meeting for more
info.
SELF-HELP GROUP
MEETINGSPlease contact the peer facilitator before attending.
*NEW GROUP*
OCEANSIDE/
SUPPORT GROUP
Mel, 516-582-6270
1:00 p.m. last Thursday of each month
Oceanside JCC, 15 Neil Court
This is a new informal conversation group.
Group members are either living with MS or
caregivers of people living with MS. The focus
of the group will be to discuss coping with
MS and how involvement in a common
community can be both positive and
supportive.
DINNER MEETUP
Tracy, 516-668-7585
6:30 p.m. 2nd Wednesday of the month
Contact facilitator for location
GARDEN CITY/
MS SUPPORT GROUP
Lucia DiSpirito, LMSW, 516-663-4593
Neuroscience Social Worker
3rd Wednesday of the month
3:30 - 4:30 p.m. In Progress- Dec. 16
Winthrop Wellness Pavillion,
1300 Franklin Ave. Suite ML-5
10. 10 MS CONNECTION: SPRING 2016
MELVILLE/ BUT YOU LOOK SO GOOD
Vic, 631-501-2178
6:30 p.m. 3rd Tuesday of the month
Janney Montgomery Scott Office
324 South Service Road, Suite 100
PLAINVIEW/
PHOENIX GROUP
Justin, 516-857-7427
7-8:30 p.m. 1st Tuesday of each month
Island Neurological, 824 Old Country Road
This group is focused on all people living with
MS seeking a positive, supportive, and energetic
environment.
SEAFORD/
THE CHALLENGERS
Nancy, 516-489-9163
11:30 a.m. - 2 p.m., 1st Wednesday of each month
St. William the Abbot, R.C. Church- meet in the
lower church abbey. Please call for details.
SMITHTOWN/FREE SPIRITS
Tom, 516-220-4869
Don, 516-448-2005
1st Tuesday or Thursday each month
Different restaurant each month
Call ahead for date, time and location.
WANTAGH/ MS SUPPORT GROUP
Donna, 516-279-8864
Teresa, 516-312-6171
11 - 1 p.m., 3rd Tuesday of the month
St. Frances de Chantal School.
Go to the back parking lot and enter school
Looking to attend a new social group
on the North Shore, in Western
Nassau County? Interested? Please Contact
Anthony at 516-609-9708, or Nick at
631-864-8337, option 2
THANK YOU...
Self-help group leaders are people living with
MS or caregivers of a person with MS. Our
volunteer leaders participate at Walk MS as
team captains and are active members of our
wellness programs and support counseling
services.
If you are interested in becoming a self-
help group leader, please contact Jane
Reilly at 631-864-8337, option 2 or
jane.reilly@nmss.org.
11. 11NATIONALMSSOCIETY.ORG | 1-800-344-4867
CLASSIFIEDS
MARKETPLACE
MOTOMED (EXERCISE)
Good Condition
8 Years Old
Contact Maria at 718-496-5069
FREE- GOOD CONDITION
- 3 rollator walkers with seat (wheels)
- 4 rollator walkers (wheels)
- 3 standard walkers (no wheels)
- 1 standard wheelchair/ with leg rests
- 1 quad cane (4 little feet)
- 1 straight cane
Contact Nick at 631-864-8337 option 2
1999 MODIFIED VAN
Chrysler Town & Country
- Wheelchair ramp, Van lowers- kneeling
- 63,000 miles, good condition, dark blue
- AS IS, Contact Dennis at 631-422-2036
HOYER LIFT- JOERNS
Very Good Condition
1 Year Old
Contact Navanib at 516-305-4921
ELECTRIC COMMODE
Very Good Condition
2 Years Old
Needs Battery
Contact Navanib at 516-305-4921
SLING FOR HOYER LIFT
Best Care Deluxe Padded Toileting Sani-Sling
Size: Medium, Never Used
For Sale: $75.00
Contact Lauren at 631-681-3666
HOSPITAL BED
Good Condition
Rises up and down
Contact Dennis at 646-245-2790
NATIONAL
MULTIPLE
SCLEROSIS
SOCIETY
MISSION
STATEMENT
People affected by MS can live their best lives as
we stop MS in its tracks, restore what has been lost
and end MS forever
12. 40 Marcus Drive
Suite 100
Melville, NY 11747
NON-PROFIT
ORGANIZATION
U.S. POSTAGE
PAID
New York, NY
Permit No. 7131National
Multiple Sclerosis
Society
Long Island
Chapter