In our first presentation, Jannette Berkley-Patton, PhD., of University of Missouri - Kansa City's School of Medicine will describe Our Healthy Kansas City Eastside, a set of projects organized by Dr. Berkley-Patton and UMKC and funded by Jackson County (MO) to improve health status in some of the most challenging neighborhoods in Kansas City. An initial round of funding was dedicated to improving the coverage of vaccinations in these same neighborhoods. Based on the success of that effort, this current round of funding expands into key health screenings, initiatives in maternal health, chronic disease prevention, and digital inclusion. A number of research projects are included in the program. The County grant is for $5 million and is expected to be followed up with another $5 million to expand further.
The success of the program is based on strong sector-led support (health care, education, faith communities, business) directly in the community through networking and events, as well as participation by multiple relevant community entities, like KC Digital Drive. KCDD will be active in both the chronic disease prevention and digital inclusion aspects of the program.
Dr. Berkley-Patton is a professor in the departments of Biomedical and Health Informatics at the School of Medicine. A fuller biography is available here.
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Our Healthy Jackson County Presentation - HIT Jan 2023
1. A Jackson County
COVID-19 Vaccination
and Health Services
Initiative in KC’s
Eastside
JANNETTE BERKLEY-PATTON, PHD
UMKC HEALTH EQUITY INSTITUTE
UMKC COMMUNITY HEALTH RESEARCH GROUP
2. Funded amount: $5 million
Funding period:
6/1/2021-12/31/2021
Primary Goals:
1. Increase reach of COVID-19 vaccinations and
access to health services
2. Build a community-health-academic infrastructure
to address health disparities across 4 sectors in the
Eastside (business, faith, youth, neighborhoods)
6. How?
A Community-Engaged
Infrastructure
UMKC Health
Equity Institute
Community/UMKC
Sector Leads
Neighborhood
Associations
Businesses Faith based Youth Organizations
Health
Services
Vaccinations &
Health Services
Communications &
Marketing
Website,
Scheduling
System,
Dashboard,
Materials, PR,
Local Vendors
Research
Studies
Over 60 community partners across 4 sectors!
7. Neighborhood Sector
Minister Gregg Wilson,
Community Engagement
Outreach Liaison
LaMonica Upton, Center
for Neighborhoods
Dina Newman, Center
for Neighborhoods
Cash Wilson,
Community Engagement
Outreach Liaison
8. Youth Sector
Denise Dean, UMKC School of
Nursing and Health Studies
Amanda Grimes, UMKC School of
Nursing and Health Studies
Monique Johnston, Youth
Ambassadors of KC
10. Faith Sector
Carole Bowe Thompson, UMKC
Community Health Research Group
Rev. Eric Williams, Calvary Temple
Baptist Church
Leah Banks, Calvary Community
Outreach Network
11.
12. 160 Community Health Liaisons!
-Handed out flyers
-Attended community meetings
-Talked to friends and family
-Hung door hangers
-Did call blasts
-Posted on social media
-Coordinated OHKCE events
-Showed up and showed out!
14. Engaged Community Partners and Community Health Liaisons
Completed thousands of entries on their implementation activities in online database system
15. Vaccinations Given
12,942
“A friend told me they were having this event. I’d been
on the fence for 6 months, but I have a new grandbaby. I
care about myself, but this wasn’t all about me. It’s about
keeping my [grandbaby] safe.”
$50 for 1st shot
16. Individuals Vaccinated
by Zip Code
Persons Vaccinated
57% Females
43% Black/African American
13% Hispanic, Latino, Spanish Origin
17. Data presented by the KCMO Health Department at the OHKCE Community Forum, 2/2022
18. Top 3 events
1. KC Daiquiri Shop at Happy Foods: 61 people vaccinated
2. Guadeloupe High School: 59 people vaccinated
3. Morning Star Missionary Baptist Church: 57 vaccinated
19. Health Services Provided
4,152
Blood pressures, blood glucose
screening, mental health
screenings, dental assessments,
linkage to care
“I just need to get my sugar checked. I’m
doing good but glad I can get this done here.”
20. Highlights on Health Screening Services
Dental Services
358 Dental referrals
242 Dental appointments completed
“Holy crap!!! I want to freaking cry!!! You have no
idea how much this means to me!!! I’m so excited to
start over, you have no idea!! Thank you!!!”
-OHKCE dental patient
Sexually Transmitted
Infections Testing
328 Tests completed
375 STI educational talks
So far, 18% of tests are positive
“One of my favorite moments was a real discussion
with a newly divorced 60 something woman about
safe sex practices and ways to reduce her risk. She
expressed she hasn't this talk with her doctor, and
she felt empowered to ask questions and take
charge of her health.”
-Dr. Stefanie Ellison, UMKC School of Medicine
21. How Services Delivered? Many Volunteers!!!
Health Providers Faculty Students
Nearly 300 student volunteers!
23. Survey Participant Characteristics (N=3,496)
-81% African American
-59% Females
-16% Hospitalized due to COVID-19
-77% Would use health services at the
community-based vaccination location
Why Vaccinated?
-78% Wanted to keep family safe
-60% Wanted to keep self safe
-51% Wanted to keep community safe
Health
-24% postponed medical care since
pandemic
-49% Saw dentist in past year
-30% Hypertension
-21% Depression
-13% Diabetes
24. Participants and Social Determinants of
Health
Social Determinants:
-40% Did not have enough food in past year
-32% Lost income since pandemic started
-24% Challenges with transportation
-9% Had challenges getting to vaccination site
-77% Believed people should wear masks as
mandated by government
25. OHKCE Community Forum
121 Attendees (Community health liaisons,
community partners, health, and researchers)
-OHKCE successes, findings, Eastside vaccination
rates
-12 Focus groups
-Health priorities
◦ Diabetes, high blood pressure, and mental health
-Needed strategies and programs
◦ Health education and literacy including support
in finding doctors and resources to cover costs
◦ Nutrition and exercise
◦ Access to/trust with healthcare systems and
reduction of healthcare costs
26. Lessons
Learned
◦ The Community Engagement matters!
◦ Increasing capacity to co-locate health services in
community settings is critical.
◦ Ex. Young man vaccinated after talking to
pharmacist
◦ People will use health services provided in
community-clinics.
◦ Double benefit – uptake of services and data
collection on health behaviors.
◦ Community partners need to get paid – and fed!
◦ Celebrate progress!!
27. What Comes Next?
Preventive Health Services:
-COVID-19 and chronic diseases
◦ Vaccinations and health screenings
-Cancer
◦ Cancer screenings and referrals
-Diabetes
◦ Evidence-based Lifestyle change programs
-Infant mortality
◦ Evidence-based Early reproductive services
28. Vaccinations, Health Screenings, and
Other Healthcare Services
Vaccinations
-COVID-19
-Flu
Health Screenings
-Blood pressure
-Blood glucose
-Mental health
-Dental assessments
and treatment
-STIs/HIV
-Broadband
Internet Services
-Cancer screenings
◦ Colon
◦ Oral
◦ HPV
◦ Mammograms
Goal: 2,000 units of health services
Goal: 5,000 vaccinations
29. Infant Mortality
Reproductive age women:
-Early prevention
-Early decision-making
-Support
-Access to Care
Asking 1 Question:
DO YOU WANT TO BE PREGNANT
IN THE NEXT YEAR?
30. Infant Mortality Program: We CARE-KC
Understand Needs
-Focus groups
-Surveys
-Engage women in program
design
-Interview health providers
-Address health system
barriers
Pilot program
-Pilot test in
University Health ER
-Train medical assistants to
provide counseling
-Get OB/GYN appointments
scheduled
-Address medical needs
Expand to Community
-Expand to community-
clinic settings
-Provide initial contact
onsite with counseling
follow-up
-Get OB/GYN appointments
scheduled
-Address medical needs
Goal: 2,000 women overall
31. Diabetes Prevention Program
Need for Diabetes Prevention Programs
-High rates of prediabetes
-Early screening with at-risk persons
-Access to free diabetes prevention
programs in trusted clinic and
community spaces
-Tailored for special populations
-Support from community health
workers
Screening
in
Community
Settings
Screening
in Health
Centers
Community
Health
Workers
DPP in
Community
and Clinic
Settings
Goal: 1,500 prediabetic persons
32. Expand and Sustain the Project
Geographic and Organization
Expansion
-Go beyond initial zip codes
-Include more community
organizations
◦ Especially youth organizations
-Include more special populations
◦ Spanish speaking
◦ Refugee
Additional Funding and Resource
Expansion
-Grant funding
-Systems changes
-Infrastructure support
What do we mean by taking something to “Scale” in research?
To identify intervention and research design factors perceived to increase the potential for interventions to be implemented on a more widespread basis or 'scaled up‘.
Leverage knowledge, expertise, reach, and resources, benefiting from their combined and varied strengths
Community Settings--Community Partners
Trusted spaces; Community influencers as messengers; Multi-sectoral outlets; Accessible places
SCALABLE AND SUSTAINABLE IMPACT
In using a Community-based Participatory Research Approach the CAB or Community Action Boards play many different roles across the continuum.
There is a growing recognition that “traditional” research approaches have failed to solve complex health disparities.
Community members themselves, weary of being “guinea pigs” are increasingly demanding that research address their locally identified needs. Traditional researchers often complain about challenges in trying to recruit “research subjects.” These challenges are often a result of community members feeling that researchers have used them and taken findings away for the researchers benefit (e.g., scholarly papers) but the community is left with no direct benefit.
Significant community involvement can lead to scientifically sound research. Researchers using participatory methods have found community input invaluable in the design and adaptation of research instruments to make the tools user friendly, applicable and culturally appropriate.
Research findings can be applied directly to develop interventions specific for communities. The specific outcome of CBPR research is not simply to find answers to complex social questions but to have those results provide information that can be used by the community to develop its own solutions.
This approach to research has the potential to build greater trust and respect between researchers and com
munities. Trust and respect are two common reasons why individuals do not participate in research. If the research design and methods actively engage community members in an equitable manner, trust is likely to build.
Agenda Setters: Agreeing on research question. What is it we want to learn?
Built a robust infrastructure to provide systems that will:
Reach our target populations
Provide vaccinations and other health services (Blood Pressure, Dental Referrals, A1C/glucose, Mental Health Screenings)
Promote events
Share data with community members and key UMKC and Community stakeholders
Schedule events
Recruit participants to other research projects
Neighborhoods: n= 13
Business: n= 15
Faith based: n=17
Youth: n= 14
Average: 14.75 (15 per sector was our target number)
Researchers: about
31% White
zip n
64030 179
64106 285
64109 418
64127 732
64128 573
64129 189
64130 786
64137 83
Sex n
Female 6,384
Male 4,786
Unknown 19
Race n
American Indian or Alaska Native 21
Asian 387
Black or African American 4,865
Multiple 245
Native Hawaiian or Pacific Islander 10
Other 1,853
Patient Declined 119
Unavailable 229
White 3,460
Ethnicity n
Hispanic, Latino, or Spanish Origin 1,434
Multiple 127
Not Hispanic, Latino, or Spanish Origin 8,937
Patient Declined 240
Unavailable 451
Neisseria gonorrhea, Chlamydia trachomatis, Mycoplasma genitalium and Trichomonas vaginalis
667 instances of student volunteering
Hundreds of hours of faculty volunteers
In understanding infrastructure – technology is important even for church-based intervention delivery.
Building up of Church liaisons is key to increasing reach – very important role.
Balance Church empowerment/flexible-controlled research: Be prepared for things to take longer, be flexible, will never have control.
More time consuming but better adaptation, buy-in, and sustainability