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Building a portfolio of research
                           findings
for use by healthcare managers and decision-makers using
integrated care as a sample theme

NIHR Health Services and Delivery Research programme


Matt Westmore, Director of NETSCC
Steph Garfield-Birkbeck, Assistant Director
Donna White, Research Fellow
Who are we – what do we do?



    National Institute for                                To have an
 
      Health Research                                      IMPACT
                                                        What research
                                                         do managers
     £1bn (€1.2bn)/year      Health Services and        need to deliver
                              Delivery Research         good services?
       Applied health            programme
      research system
                               C£16m (€19.8m)
           for the            Focus on quality and 
         UK’s NHS               effectiveness of 
                              healthcare systems 




    Therefore we assess research topics for need BEFORE scientific merit
What do we mean by need?

  Ability to benefit – mediated through service organisation and delivery




                                                                                                                  3
Stevens, A. and Raftery, J. (1994) Health Care Needs Assessment: The Epidemiologically Based Needs Assessment Reviews.
Oxford: Radcliffe Medical
Identifying need (the right research questions)

Engaging with the research-using community; meeting its needs
Collect suggestions for research throughout the year from individuals, patients,
public, professionals, literature, societies and groups

Annual stakeholder engagement exercise involving senior managers, service
providers and some academics

Further selection and prioritisation by a standing panel made up of external (to us)
independent NHS managers, clinicians, researchers

Literature and evidence summary written and reviewed by experts

Call for research advertised. Final list of approved topics forms the research agenda for
the HS&DR programme




                                                                                        4
What do we mean by integration?




                                  5
Integrated care portfolio: April 2009 – Sept 2011

Specific calls for research relevant to integrated care
 Call title                                                                                   Funding

 Evaluating Innovations in Integrating Health                                                 £2m (€2.5m)

 Research on Primary Care and Community care and Community Health Services                    £3m (€3.7)

 NHS Care Homes                                                                               £3m (€3.7)

 Patient safety in healthcare organisations                                                   £2m (€2.5m)

 Expedited evidence synthesis to support decision-making by managers and leaders in the NHS   £50k-80k (~€80k)
                                                                                              per project


Total portfolio (specific calls and open calls)                                      Research type

 Projects funded               42
 Funding                       £14.5m (€18m) out of £35m
 committed                     (€43m) across all calls
 Mean cost                     £350k (€430k)
 Mean duration                 31 months
                                                                                      Secondary
                                                                                                                 6
                                                                                      only 9%
Completed research                         In progress

‘Self care and case management in           ‘Assessing outcomes of integrated
                                            care for people with long term
long term conditions’, Professor David      conditions’, Professor Gillian Parker, Uni’ of
Challis, April 2008                         York

•Map current provision                      •How health and social care services
•integrated care initiatives as             have been integrated?
determinants for entry to and exit          •What outcomes do people with long
from case management                        term conditions want?




‘Self management support among              ‘Analysis of virtual wards’, Dr Geraint
older adults’, Ms Suzanne Parsons, April    Lewis, Nuffield Trust
2010
                                            •Do 'Virtual Wards' lead to changes in
•experiences and expectations               use of care?
                                            •What are the costs and savings of
                                            Virtual Wards?


                                                                                             7
    All have project webpages with descriptions, protocol and final reports
Mensajes para llevar a casa
(take home messages)


•    NIHR Health Service and Delivery Programme is focussed on evidence for UK NHS
     healthcare managers and decision-makers.

•    We commission research based on the need of the NHS in addition to scientific merit

•    We have commissioned a significant and balanced portfolio of research relevant to
     integrated care

•    All will publish freely available comprehensive final reports on our website
Further information

             hsdrinfo@southampton.ac.uk
                                                                                 NIHR stand
             www.nihr.ac.uk                                                        in the
             www.netscc.ac.uk/hsdr/
                                                                                 exhibition!
             @officalNIHR - #NIHR

             Paper submitted to Journal of Integrated Care
                                                                                                                         8
This presentation presents independent research funded by the National Institute for Health Research (NIHR). The views
     expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.
ADDITIONAL SLIDES




                    9
Example completed Research

‘Self care and case management in        ‘Self management support among
long term conditions’,                   older adults’,

                                         Ms Suzanne Parsons, Picker Institute
Professor David Challis, University of   Europe, April 2010
Manchester, April 2008



                        Look at
                        integrated        Investigate the
                                                             Compare these
                        care              self
  Map current                                                experiences
                        initiatives as    management
  provision of                                               and
                        determinants      experiences
  NHS case                                                   expectations
                        for entry to      and
  management                                                 against the
                        and exit from     expectations
  services.                                                  availability of
                        case              of older
                                                             support
                        management        people
                        services



                                                                                10
Example research under way

‘Analysis of virtual wards’,           ‘Assessing outcomes of integrated care
                                       for people with long term conditions’,


Dr Geraint Lewis, Nuffield Trust       Professor Gillian Parker, Uni’ of York



  Do 'Virtual                              How health
  Wards' lead                              and social
                                           care               Work with
  to changes           Develop an
                                           services           services to
  in use of            interactive
                                           have been          introduce the
  care?                cost model
                                           integrated?        outcomes
                       for optimal
                                                              required by
  What are the         configuration
                                           What               people with
  costs and            of Virtual
                                           outcomes do        long term
  savings of           Wards
                                           people with        conditions
  Virtual
  Wards?                                   long term
                                           conditions
                                           want?
                                                                                11
What do we mean by impact?



                     Outputs
                       (e.g.
                                Outcomes
                      papers)     (e.g.
                                guidance)
         Research




                       Need




                                                                         12
  Therefore we assess research topics for need BEFORE scientific merit
Our theory of change
Environment level: The research pathway

                                                                                                                            Impact




System level: Adding value to research – avoidable waste

                                                                                                                             Impact

Based on Chalmers and Glasziou. Avoidable waste in the production and reporting of research evidence. Lancet (2009) vol. 374 (9683) pp. 86-9


                                                                                                                                         13
Our ‘needs-led approach’
Needs-led, science-added evidence production
                                                    = more important, higher quality,
                                                   less waste = higher impact




                               Patients,
                             public and the
                                 NHS
                             at the heart of the
                             funding process
                             and funded
                             projects




                                                                                14
The NIHR Health Research System
                                    Faculty
                  Investigators &
                      Senior         Trainees       Associates
                   Investigators

                                    Universities
Infrastructure                                                     Research
                                    NHS Trusts
 Clinical Research                                               Research Projects
     Networks                         Patients
                                                                  & Programmes
                                         &
                                       Public
Clinical Research
Facilities, Centres                                              Research Schools
      & Units



                        Research                  Research
                       Governance                Information
                        Systems                    Systems
                                                                               15
                                    Systems
NETS (Evaluation, Trials and Studies programmes)


                                                     Systematic Reviews
                                                     programme

                                                     Inc.
                                                     UK Cochrane Centre
                                                     Cochrane Review Groups
 Health Services
                         NETSCC: Established: 2008   CRD
 and Delivery Research
                                                     Public Health
 Established 2012 by                                 Research
 merging HSR and SDO
                                                     Established: 2008

 Health Technology
 Assessment                                          Efficacy and Mechanism
                                                     Evaluation
 Established: 1993                                   Researcher-led
                                                     Funded by the MRC
                                                     Managed by NIHR
                                                     Commissioned
                                                     Funded and managed
                                                     by NIHR
                                                     Established:
                                                     2008 and 2011     16
Research funding context
National Institute for Health Research
•£1bn (€1.2bn)/year applied health research system

•UK Department of Health (with contributions from devolved administrations)

Health Services and Deliver Research:
•One of the NIHR’s funding programmes

•Focussed on service delivery, organisation, knowledge transfer, quality, effectiveness
and accessibility of the UK NHS

•For healthcare managers and decision-makers.

Our approach: Adding value to research – reducing avoidable waste
Based on Chalmers and Glasziou. Avoidable waste in the production and reporting of research evidence. Lancet (2009) vol. 374 (9683) pp. 86-9



                                                                                                                             Impact

 Ask the right              Answer them
                                                                                                                                         17
 questions                  the right way
Who are we – what do we do?
                                                                 What
      National Institute for                                 research do
                                                              managers
        Health Research
                                                               need to
                                                             deliver good
        £1bn (€1.2bn)/year          Health Services and       services?
                                     Delivery Research
          Applied health                programme
         research system
                                      C£16m (€19.8m)
              for the                Focus on quality and 
            UK’s NHS                   effectiveness of 
                                     healthcare systems 




                                                                              Impact
                                                                            e.g. better
                                                                             services
    Ask the right   Answer them
                                                                                     18
    questions       the right way
Self-care and Case Management
in Long-term Conditions
Professor David Challis, University of Manchester


                                  To identify
                 To classify by
                                  the extent
                 observable
 To map                           and nature
                 features,
 current                          of self-care
                 different
 provision of                     initiatives
                 initiatives of
 NHS case                         and to look
                 integrated
 managemen                        at the role of   Final report
                 care both
 t services in                    these            published in
                 between
 primary care                     initiatives as   April 2008
                 primary and
 for people                       determinants
                 secondary
 with long-                       for entry to
                 care, and
 term                             and exit from
                 between
 conditions                       case
                 health and
                                  managemen
                 social care
                                  t services

                                                                  19
Self Management Support among
Older Adults
Ms Suzanne Parsons, Picker Institute Europe




 To
                To compare
 investigate
                these against
 the self
                the
 managemen                        In four
                availability of                  Final report
 t                                geographical
                support from                     published in
 experiences                      areas of
                locally based                    April 2010
 and                              England
                services and
 expectations
                community
 of older
                resources
 people




                                                                20
Analysis of Virtual Wards
Dr Geraint Lewis, Nuffield Trust

                                                   To develop
 To assess                                         an
                                   To develop
 the extent to                                     interactive
                                   an index for
 which                                             cost model
                                   determining
 integrating                                       where users
                 To establish      the optimal
 health and                                        input local
                 the costs and     case load for
 social care                                       variables
                 savings of        multi-
 services by                                       and the
                 Virtual Wards     disciplinary
 means of                                          model
                 from the          case
 'Virtual                                          advises the
                 perspectives      managemen
 Wards'(VW)                                        user as to
                 of society, the   t that
 leads to                                          the optimal
                 NHS and           accounts for
 changes in                                        configuration
                 Local             the case-
 the use of                                        of Virtual
                 Government        load versus
 emergency                                         Wards
                                   quality of
 hospital care                                     locally,
                                   care trade-
 and social                                        taking into
                                   off
 care                                              account
                                                   case-mix

                                                                   21
Assessing outcomes of integrated
care for people with long term
conditions
Professor Gillian Parker, University of York

                                               To see how
                                               services are
                                               using the
                 To explore
 To explore                                    checklist,
                 with people    To design a
 how health                                    whether
                 with long      checklist
 and social                                    services
                 term           based on the
 care                                          change ways
                 conditions,    outcomes
 services                                      of working
                 what           required by
 have been                                     with people
                 outcomes are   people with
 integrated in                                 with long
                 wanted from    long term
 four                                          term
                 integrated     conditions
 geographical                                  conditions,
                 health and     for services
 areas in                                      whether the
                 social care    to use
 England                                       checklist
                 services
                                               helps people
                                               get what
                                               they need
                                                              22
Identifying the right research questions

Engaging with the research-using community; meeting its needs

Annual stakeholder engagement exercise
•Collect suggestions for research throughout the year

•Present to a wide participatory workshop made up of NHS managers, decision-
makers, organisation representatives, researchers

•Hone down the list of some 50 topics to 20

•Further selection by the prioritisation panel made up of NHS managers,
clinicians, researchers

•Final list of topics forms the research agenda for the HS&DR programme



                                                                          23
What happens in practice: work streams



                              Types of           Who defines      Frequency
                              Research          the question?     Per year


          Commissioned      Primary research      HS&DR         3 calls per year
          Commissioned
                           Evidence synthesis    programme        (6+ topics)


          Researcher-led    Primary research     Researcher     3 calls per year
          Researcher-led
                           Evidence synthesis




                                                                                   24
Two stage assessment process
 •   Health need
 •   Expressed need
 •   Sustained interest
 •   Capacity to generate new knowledge
 •   Actionable findings and prospects for change



 Answering them the right way: assessing the Scientific quality and
 appropriateness
 •Quality and scientific merit
 •Links with knowledge users and where appropriate
 •Value for money


 •See Tara Lamont presentation…
                                                                      25

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Building a portfolio of research findings for use by healthcare managers and decisio-makers using integrated care as a sample theme

  • 1. Building a portfolio of research findings for use by healthcare managers and decision-makers using integrated care as a sample theme NIHR Health Services and Delivery Research programme Matt Westmore, Director of NETSCC Steph Garfield-Birkbeck, Assistant Director Donna White, Research Fellow
  • 2. Who are we – what do we do? National Institute for To have an   Health Research IMPACT What research do managers £1bn (€1.2bn)/year Health Services and need to deliver Delivery Research good services? Applied health programme research system C£16m (€19.8m) for the Focus on quality and  UK’s NHS effectiveness of  healthcare systems  Therefore we assess research topics for need BEFORE scientific merit
  • 3. What do we mean by need? Ability to benefit – mediated through service organisation and delivery 3 Stevens, A. and Raftery, J. (1994) Health Care Needs Assessment: The Epidemiologically Based Needs Assessment Reviews. Oxford: Radcliffe Medical
  • 4. Identifying need (the right research questions) Engaging with the research-using community; meeting its needs Collect suggestions for research throughout the year from individuals, patients, public, professionals, literature, societies and groups Annual stakeholder engagement exercise involving senior managers, service providers and some academics Further selection and prioritisation by a standing panel made up of external (to us) independent NHS managers, clinicians, researchers Literature and evidence summary written and reviewed by experts Call for research advertised. Final list of approved topics forms the research agenda for the HS&DR programme 4
  • 5. What do we mean by integration? 5
  • 6. Integrated care portfolio: April 2009 – Sept 2011 Specific calls for research relevant to integrated care Call title Funding Evaluating Innovations in Integrating Health £2m (€2.5m) Research on Primary Care and Community care and Community Health Services £3m (€3.7) NHS Care Homes £3m (€3.7) Patient safety in healthcare organisations £2m (€2.5m) Expedited evidence synthesis to support decision-making by managers and leaders in the NHS £50k-80k (~€80k) per project Total portfolio (specific calls and open calls) Research type Projects funded 42 Funding £14.5m (€18m) out of £35m committed (€43m) across all calls Mean cost £350k (€430k) Mean duration 31 months Secondary 6 only 9%
  • 7. Completed research In progress ‘Self care and case management in ‘Assessing outcomes of integrated care for people with long term long term conditions’, Professor David conditions’, Professor Gillian Parker, Uni’ of Challis, April 2008 York •Map current provision •How health and social care services •integrated care initiatives as have been integrated? determinants for entry to and exit •What outcomes do people with long from case management term conditions want? ‘Self management support among ‘Analysis of virtual wards’, Dr Geraint older adults’, Ms Suzanne Parsons, April Lewis, Nuffield Trust 2010 •Do 'Virtual Wards' lead to changes in •experiences and expectations use of care? •What are the costs and savings of Virtual Wards? 7 All have project webpages with descriptions, protocol and final reports
  • 8. Mensajes para llevar a casa (take home messages) • NIHR Health Service and Delivery Programme is focussed on evidence for UK NHS healthcare managers and decision-makers. • We commission research based on the need of the NHS in addition to scientific merit • We have commissioned a significant and balanced portfolio of research relevant to integrated care • All will publish freely available comprehensive final reports on our website Further information hsdrinfo@southampton.ac.uk NIHR stand www.nihr.ac.uk in the www.netscc.ac.uk/hsdr/ exhibition! @officalNIHR - #NIHR Paper submitted to Journal of Integrated Care 8 This presentation presents independent research funded by the National Institute for Health Research (NIHR). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.
  • 10. Example completed Research ‘Self care and case management in ‘Self management support among long term conditions’, older adults’, Ms Suzanne Parsons, Picker Institute Professor David Challis, University of Europe, April 2010 Manchester, April 2008 Look at integrated Investigate the Compare these care self Map current experiences initiatives as management provision of and determinants experiences NHS case expectations for entry to and management against the and exit from expectations services. availability of case of older support management people services 10
  • 11. Example research under way ‘Analysis of virtual wards’, ‘Assessing outcomes of integrated care for people with long term conditions’, Dr Geraint Lewis, Nuffield Trust Professor Gillian Parker, Uni’ of York Do 'Virtual How health Wards' lead and social care Work with to changes Develop an services services to in use of interactive have been introduce the care? cost model integrated? outcomes for optimal required by What are the configuration What people with costs and of Virtual outcomes do long term savings of Wards people with conditions Virtual Wards? long term conditions want? 11
  • 12. What do we mean by impact? Outputs (e.g. Outcomes papers) (e.g. guidance) Research Need 12 Therefore we assess research topics for need BEFORE scientific merit
  • 13. Our theory of change Environment level: The research pathway Impact System level: Adding value to research – avoidable waste Impact Based on Chalmers and Glasziou. Avoidable waste in the production and reporting of research evidence. Lancet (2009) vol. 374 (9683) pp. 86-9 13
  • 14. Our ‘needs-led approach’ Needs-led, science-added evidence production = more important, higher quality, less waste = higher impact Patients, public and the NHS at the heart of the funding process and funded projects 14
  • 15. The NIHR Health Research System Faculty Investigators & Senior Trainees Associates Investigators Universities Infrastructure Research NHS Trusts Clinical Research Research Projects Networks Patients & Programmes & Public Clinical Research Facilities, Centres Research Schools & Units Research Research Governance Information Systems Systems 15 Systems
  • 16. NETS (Evaluation, Trials and Studies programmes) Systematic Reviews programme Inc. UK Cochrane Centre Cochrane Review Groups Health Services NETSCC: Established: 2008 CRD and Delivery Research Public Health Established 2012 by Research merging HSR and SDO Established: 2008 Health Technology Assessment Efficacy and Mechanism Evaluation Established: 1993 Researcher-led Funded by the MRC Managed by NIHR Commissioned Funded and managed by NIHR Established: 2008 and 2011 16
  • 17. Research funding context National Institute for Health Research •£1bn (€1.2bn)/year applied health research system •UK Department of Health (with contributions from devolved administrations) Health Services and Deliver Research: •One of the NIHR’s funding programmes •Focussed on service delivery, organisation, knowledge transfer, quality, effectiveness and accessibility of the UK NHS •For healthcare managers and decision-makers. Our approach: Adding value to research – reducing avoidable waste Based on Chalmers and Glasziou. Avoidable waste in the production and reporting of research evidence. Lancet (2009) vol. 374 (9683) pp. 86-9 Impact Ask the right Answer them 17 questions the right way
  • 18. Who are we – what do we do? What National Institute for research do   managers Health Research need to deliver good £1bn (€1.2bn)/year Health Services and services? Delivery Research Applied health programme research system C£16m (€19.8m) for the Focus on quality and  UK’s NHS effectiveness of  healthcare systems  Impact e.g. better services Ask the right Answer them 18 questions the right way
  • 19. Self-care and Case Management in Long-term Conditions Professor David Challis, University of Manchester To identify To classify by the extent observable To map and nature features, current of self-care different provision of initiatives initiatives of NHS case and to look integrated managemen at the role of Final report care both t services in these published in between primary care initiatives as April 2008 primary and for people determinants secondary with long- for entry to care, and term and exit from between conditions case health and managemen social care t services 19
  • 20. Self Management Support among Older Adults Ms Suzanne Parsons, Picker Institute Europe To To compare investigate these against the self the managemen In four availability of Final report t geographical support from published in experiences areas of locally based April 2010 and England services and expectations community of older resources people 20
  • 21. Analysis of Virtual Wards Dr Geraint Lewis, Nuffield Trust To develop To assess an To develop the extent to interactive an index for which cost model determining integrating where users To establish the optimal health and input local the costs and case load for social care variables savings of multi- services by and the Virtual Wards disciplinary means of model from the case 'Virtual advises the perspectives managemen Wards'(VW) user as to of society, the t that leads to the optimal NHS and accounts for changes in configuration Local the case- the use of of Virtual Government load versus emergency Wards quality of hospital care locally, care trade- and social taking into off care account case-mix 21
  • 22. Assessing outcomes of integrated care for people with long term conditions Professor Gillian Parker, University of York To see how services are using the To explore To explore checklist, with people To design a how health whether with long checklist and social services term based on the care change ways conditions, outcomes services of working what required by have been with people outcomes are people with integrated in with long wanted from long term four term integrated conditions geographical conditions, health and for services areas in whether the social care to use England checklist services helps people get what they need 22
  • 23. Identifying the right research questions Engaging with the research-using community; meeting its needs Annual stakeholder engagement exercise •Collect suggestions for research throughout the year •Present to a wide participatory workshop made up of NHS managers, decision- makers, organisation representatives, researchers •Hone down the list of some 50 topics to 20 •Further selection by the prioritisation panel made up of NHS managers, clinicians, researchers •Final list of topics forms the research agenda for the HS&DR programme 23
  • 24. What happens in practice: work streams Types of Who defines Frequency Research the question? Per year Commissioned Primary research HS&DR 3 calls per year Commissioned Evidence synthesis programme (6+ topics) Researcher-led Primary research Researcher 3 calls per year Researcher-led Evidence synthesis 24
  • 25. Two stage assessment process • Health need • Expressed need • Sustained interest • Capacity to generate new knowledge • Actionable findings and prospects for change Answering them the right way: assessing the Scientific quality and appropriateness •Quality and scientific merit •Links with knowledge users and where appropriate •Value for money •See Tara Lamont presentation… 25

Notas do Editor

  1. Well recognised problems of silos of care which leave patients suffering fragmented, duplicated, sub-standard care. Micro – Locality based integrated health and social care teams Call for more integration and various things tried – from specialist nurses, integrated care pathways, multidisciplinary teams, personalised care and bundled payment. Let’s take a step back and just consider conceptually the model for different approaches. Macro – Health Maintenance Organisations in US with fully integrated primary and secondary providers and payments to incentivise hospital avoidance Meso – structural and service level integration, with joint planning and budgeting – for instance, diabetes or epilepsy managed networks and pathways or locality-based health and social care teams in Torbay for older people. Micro-level : coordination driven by single assessment of the patient (may be linked to personalised budgets) and with care or case manager.
  2. c.f. average…
  3. Research produces outputs which drives outcomes that can lead to impact – how do you make sure that impact is maximised – by driving the whole system based on need Need – research – outputs = relatively mechanistic and attributable Outputs – outcomes – straining it Outcomes – impact – complicated, technically complex, many dependencies non-attributable in many cases You can turn any handle and it will affect all cogs Outputs (e.g. papers) contribute to outcomes (e.g. guidance) contributes to impact (e.g. improved health). The outputs -> outcomes link can be supported by quantitative analysis, the outcomes to impact is probably more qualitative.
  4. Translational pathway looks very linear – we know it is not but it shows how we see ourselves broadly in relative position to other parts of the wider system. In reality
  5. In keeping with NIHR’s mission the starting point for us the ultimate recipients of benefit (impact) at the centre…
  6. UK Cochrane Centre, Cochrane Review Groups, Centre for Reviews and Dissemination, Diagnostics Evaluation Unit Improved Monitoring in Long Term Disease Programme Health Technology Assessment Reviews
  7. Normally there will be a two-stage assessment process of outline progressing to full proposals Outline applications will be assessed first on the importance of the research question to be addressed to the research user All applications will then be rigorously assessed for scientific merit and viability. This includes peer review at full proposal stage