Erik Jylling's presentation from the Healthcare DENMARK session at HIMSS 2015
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Eric Jylling's presentation on "Health IT in Denmark - heading to the next level" at the Healthcare DENMARK session, HIMSS 2015 in Chicago.
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Erik Jylling's presentation from the Healthcare DENMARK session at HIMSS 2015
- 1. HEALTH IT IN DENMARK - heading to the next level Director of health policy Erik Jylling Danske Regioner Danish Regions
- 2. EMRAM – global average Danish Regions 5.3 2.4 4.3 2.0 3.1 5.7 1.8 0.0 1.0 2.0 3.0 4.0 5.0 6.0 7.0 Denmark (24) Europe1 (1,321) US2 (5,447) Canada2 (640) Middle East (123) Singapore (7) Australia (271) 1) Excl. Denmark; incl. Austria (39), Belgium (2), Finland (3), France (18), Germany (311), Ireland (2), Italy (447), Netherlands (71), Norway (3), Poland (20), Portugal (18), Slovenia (2), Spain (211), Sweden (1), Turkey (143), Switzerland (7), UK (29) 2) The EMRAM algorithm differs from the European countries, United Arab Emirates, Saudi Arabia and Australia Source: HIMSS Europe Database, 07/25/2014 EMRAM Score (Means) Note: In USA and Canada stage 5 and 6 have been swapped
- 4. THE PATIENT IN THE CENTER Danish Regions PATIENT RELATIVES COMMUNEHOSPITALGP
- 6. Danish Regions Figur 2;The current data-loop (simplified) in the healthcare sector is illustrated with red. Coproduction of Health is supported by two data- loops (the green) – ”The personal eco-system (to the right) and ”the professional eco-system” (left side of the figure). In between these two systems there is an ”inductive coupling” of the data exchange. The blue data-loop; ”Coproduction of evidence” carries selected anonymized data from coproduction of health. The anonymization of data is conducted by the data mediator. In time, data about diseases and health in relations to the parameters of the computermodels will come from a common data storeroom: ”Knowledge Commons”.
- 7. 20-04-2015 Danske Regioner Balancing security and trust when sharing data
- 8. 20-04-2015 Danske Regioner Our citizens trust us with their data!
- 9. 20-04-2015 Danske Regioner INFORMATION SECURITY TRANSPARENCY HEALTH CARE DEVELOPMENT USE OF DATA
- 10. Technology doesn’t limit health it… 20-04-2015 Danske Regioner From the first portable phone… to Watson
- 11. 7 February 2014 Danish Regions …organization is the biggest challenge!
- 12. 7 February 2014 Danish Regions
Notas do Editor
- INTRODUCTION [En introduktion til dig selv og din baggrund som kliniker. Meget gerne en historie om, hvordan du kender den virkelighed, som sundheds-it skal virke i – der hvor værdiskabelsen sker]
- HIMSS IN DENMARK In denmark we just completed the HIMSS survey on all the hospitals in Denmark. These are the results – which we are of course very proud of. We have a score of 5,3 on it maturity on a scale from 1-7. That places us clearly at the top of health IT in Europe. In fact, only Singapore has reached a higher score on a global level. The HIMSS survey furthermore shows that the levels of health IT on the hospitals across the country are similar. Even though the hospitals are organised in five regions, with each ist own political and administrative management level, we have suceeded in reaching the same average level of health IT. We are very proud of that as it is our natural goal that the patients and the health care staff in Denmark have the same support and opportunities no matter where in Denmark they live. However, there is still room for improvement. The IT development happens fast and we have to follow. We have to grab the opportunities for developing a still stronger health care system – and health IT is a fundamental pillar in doing this. Today i will tell you about a few elements in our vision for using health IT to develop the Danish healthcare system to be even better and stronger than is is today.
- DATA DRIVEN HEALTH CARE Data provides us with facts. With the right use of these facts, we can develop a healthcare sector that makes the best use of the knowledge we have. The data has to be used to effectively to develop better treatments for patients. Better IT solutions. More effective ways to work. And not least data is a tool to empower patients with knowledge of their own health status. Using data is complex. You need to have the right solutions to do it – the right infrastructure that connects the systems, a consistent use of data terms such as for example diagnostic terms. And we all know how hard it can be to get the doctors to decide on one consistent way to describe a certain kind of symptom or diagnosis. Collecting, structuring and using data across the health care system - across sectors, diagnosises and professional siloes - is a challenge. And we have to realize this to start attacking this challenge at the right starting point.
- THE PATIENT IN THE CENTER In Denmark we are working on getting the best use of data. We want to use data proactively. The patient is at the center. Data about patients have to be available across for the health care staff that need them. Across professional silos, across hospitals and across geographical regions. We have to supply integrated care across sectors and place the patient in the center.
- TARGETED MEDICINE IS THE FUTURE Targeted medicine provides us with a personalized effective way of targeting diseases. The fundamental basis for this is data – acquiring, treating and interpreting data. We have to use data to optimize the treatment and plan the best possible course for each patient.
- WORKING TOGETHER WITH THE PATIENT In our vision for data driven healthcare – the more data the better! We need to collect more data in a structured war and use them actively in the healthcare treatment. One of the next steps for us in Denmark is increasing use of patient collected data. With the right tools, the patients can register data about themselves that not only safe time for the health personnel – but also add valuable knowledge. We have developed a method for patients to do online surveys, where the register how they feel on a large variety of parametres. [PROM] The registries provide a factual view of the patients experienced symptoms and the development of these. We use these fact to decide, when a doctors checkup is actually needed, and when the – until now obligatory – checkups within certain time intervals are in fact not needed. As such these surveys help us to prioritize the time of health care staff and to provide a more fact-driven treatment. These data registered by the patients draw a picture that has until now not been registered because it is based on the individual patients health experience. But with simple tools as a questionnaire we can validate the cause and consequences to a much higher degree than we have been able to until now. We can use these data on a large scale to develop better and to a higher degree customized treatment. We need to expand these methods and use them pro-actively and cleverly! Telemedication is another tool for better treatment and empowered patients. We have an ambitious agenda regarding telemedication in Denmark with a series of pilot projects treating issues such af light depression or Chronical obstructive lung distorder (KOL). These treatments rely on the patients taking an active part in their own monitoring of their health status. They are supplied with equipment to conduct home monitoring. The data is transferred directly from the home device to the relevant health personnel, who monitor the development. This is an effective way of activating the patient and supplying fact-based monitoring with effective use of health care staff. The patients are very satisfied with this solution and so are the relatives. They feel empowered and well taken care of with the regular monitoring, which they can do in their own home. We need more of these initiatives that provide fact driven treatment and include and empower the patients.
- BALANCING DATA SECURITY AND TRUST It is impossible to talk about use of data without talking of data security. In Denmark the public is increasingly aware of some of the risks that are a natural part of using personal data actively in health care. The fear of the patients is that their personal and very private information can be leaked. It is a risk we have to take serious. But it must not stop us from using data to develop better treatments and a better health care system alltogether. We have the responsibility to use all the tool available to save lives and ensure healthy citizens to the best of our ability.
- THE PATIENTS TRUST US WITH THEIR LIVES – AND THEIR DATA The surveys we have concluded in Denmark send us a clear message – the patients in Denmark are ready! They trust us with their lives – and they trust us with their data. Now we have to help them to take the place in center of their own health treatment. It is our duty.
- TRANSPARENCY IS OUR STRATEGY Transparency is our strategy in Denmark. We have a responsibility to be clear in our communication to the citizens about how we use these data to ensure that they get the best health care possible. The citizens have a right to access data about themselves. We have to live up to the principle of ‘Nothing about me, without me’ That information empowers them to be proactive and increase their knowledge about their own health. This knowledge empowers the patients to make better and more clear-sighted decisions about their health. And then we have to make sure that we treat these data responsible. Technical solutions as for example user role management and other security measurements have to be integrated into the systems.
- THECHNOLOGY IS NOT THE LIMITATION OF HEALTH IT DEVELOPMENT I have one last point to make today. When we talk about health-IT – we tend to talk mainly about technology. Technology is important – and of course we have to keep up with the technological solutions. But as I see it – technology is not the challenge of health it.
- ORGANIZATION IS THE CHALLENGE Organization is the challenge! To reep the benefits of health it, we have to make the people work together with IT solutions. And IT challenges people and organizations in many ways. We are used to doing things in a certain way. And it is not easy to change those ways – especially with people, who know that their actions can mean the difference between life and death. In Denmark we are at the stage now, where we have to be better at using health it more pro-actively in changing organizations. That demands senior management commitment and engagement. The senior managers have to take the front seat and show the way. We are already well on the way. And we keep moving.