This presentation is by Mr.Rajendra P. Gupta at the Putting Patients First Conference on 20th Oct,10. Topic " Role of patients in the healthcare system". HELP is the world's largest the worlds largest free patient education library - www.healthlibrary.com

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Putting Patients First Conference
Mumbai , India
20th
October 2010
Rajendra Pratap Gupta
Member ,
Board of Directors
The Care Continuum Alliance ,Washington DC, USA
President & Member of the Board
Disease Management Association of India (DMAI)
© Rajendra Pratap Gupta . Email: office@rajendragupta.in

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“Role of Patients in the Healthcare
System”
© Rajendra Pratap Gupta . Email: office@rajendragupta.in

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“ Recently, there was a standoff between providers
and insurance companies. Patients , who are the
actual user of the service & ultimately fund > 80 %
of the healthcare in India, were no where in the
discussion ! It is a call to action for patient
communities in India to get organized and assert
their voice with all the stake holder in the
continuum of care”
© Rajendra Pratap Gupta . Email: office@rajendragupta.in

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“ Currently, the healthcare system revolves around
doctors , hospitals , surgery and pills, and the
focus point is balance sheet or the number of
patients . Until this shifts to the ‘patient’ and
‘outcome driven treatment’, the pain to patients
and the cost to payers is never going to reduce ”
Rajendra Pratap Gupta
© Rajendra Pratap Gupta . Email: office@rajendragupta.in

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“ The reason why industry is heard and the patients are lost
in the entire continuum of care is because the industry is
organized and patients are not . It’s time for patients to
get organized , share experiences , knowledge and
together assert their voice to make a difference to the
healthcare system. We need a Patient Care Collaborative
immediately.”
Rajendra Pratap Gupta
© Rajendra Pratap Gupta . Email: office@rajendragupta.in

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Where do we start ?
• Community level & go upwards
• Condition specific
• Age specific
• Gender specific
Where ever there is a need for a long duration treatment
© Rajendra Pratap Gupta . Email: office@rajendragupta.in

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© Rajendra Pratap Gupta . Email: office@rajendragupta.in

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© Rajendra Pratap Gupta . Email: office@rajendragupta.in
Patients with Co-morbidities – Patient Peer Groups
Patients with co-morbidities can benefit immensely by experience sharing

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© Rajendra Pratap Gupta . Email: office@rajendragupta.in
Role in Policy & Advocacy

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“ The single biggest challenge before the global healthcare
systems which needs immediate attention is the cost and
outcome of not being able to manage chronic diseases ,
and the ultimate way to go is ‘Self care’ . The patient
groups will play the most important role in ensuring
compliance and treatments that lead to better outcomes
& reduce the dependence on clinical resources ”
- Rajendra Pratap Gupta
© Rajendra Pratap Gupta . Email: office@rajendragupta.in

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© Rajendra Pratap Gupta . Email: office@rajendragupta.in
Stanford’s CDSMP – Chronic Disease Self Management Program
• Found to be truly beneficial to targeted populations.
• Demonstrated it does not cause harm.
• Demonstrated it does not waste resources.
Reference: http://www.aoa.gov/evidence/evidence.asp; www.healthyagingprograms.org

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Patient Care Collaborative – Road map
► Form the Group & various chapters @ town level , communities etc.
► Start the advocacy efforts with the government . Convince the
government for including patient groups in policy formulation
► Make recommendations & representations to accreditation bodies for
enhancing their outreach efforts to the users of healthcare
► Start a dialogue with various medical associations for safe guarding
the patients interests
► Encourage routine chapter meetings with patient peer groups for
better care , treatment outcomes & reduce wastage ( or over
dependence ) of clinical resources
© Rajendra Pratap Gupta . Email: office@rajendragupta.in

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“ Currently , the healthcare providers are ‘Eminence based’
and not ‘Evidence based’. Patients must get to rate the
facilities and not just get carried away by the
accreditation certifications that are purely used as a
marketing tools by providers . It is only then that we will
lay a foundation for a stronger evidence and an outcome
driven healthcare ”
- Rajendra Pratap Gupta
© Rajendra Pratap Gupta . Email: office@rajendragupta.in

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What is DMAI doing ?
• Starting a SMS based service to give information on
medicines ( Indications , side effects , substitutes ….. )
• Service will be expanded to the domain of disease based
information
• Will expand the service in local dialects to ensure that
the lay man does not depend on the mercy of untrained
chemist, but has a credible source of information –
Anytime , Anywhere using a mobile phone !
© Rajendra Pratap Gupta . Email: office@rajendragupta.in

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Thanks
Rajendra Pratap Gupta
Email: office@rajendragupta.org
office@rajendragupta.in
Cell:
(India) + 91-9 22 33 44 542
(USA) + 515 450 8036
(UAE ) + 971 55 3 12 18 29
© Rajendra Pratap Gupta . Email: office@rajendragupta.in

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Views presented are personal
Presenter is associated with healthcare organizations across USA,
Europe , U.K. Middle-East & India .
The figures and studies are indicative & for representational purpose only
Utmost care has been taken to quote the data. Any inadvertent error is
regretted
The presentation has used many resources and acknowledges the
contributors with appreciation and thanks . Some of the trade names /
marks used may belong to third parties , and have been quoted just for the
sake of information for the audience with or without the consent of the
respective trademark owners .
Please do not copy or reproduce in whole or part thereof, the contents of
this presentation without the written permission from the presenter .
Website for downloading www.rajendra.groupsite.com
© Rajendra Pratap Gupta . Email: office@rajendragupta.in
Disclosures & Acknowledgements