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Support Meeting for
Aspergillosis Patients & Carers
LED BY GRAHAM ATHERTON
SUPPORTED BY
NAC CENTRE MANAGER CHRIS HARRIS

CHRISTMAS QUIZ 2013
NATIONAL ASPERGILLOSIS CENTRE
UHSM
MANCHESTER

Fungal Research Trust
Programme
 1.30 Questions
 2.15 Break
 2.45 Answers
 3.30 End
Question 1
Next year the National Aspergillosis Centre will have

been operating for:





4 years
5 years
6 years
More?
Question 2
Who (Other than Prof Denning) has worked for the

aspergillosis clinic longest?




Dr Newton
Graham & Chris
Georgina & Debbie Kennedy
Question 3
When was the Aspergillus Website started?




1996
1997
1998
Question 4
When did we start our first online support group for

patients?





1996
1998
2000
2002
Question 5
When did we start our Yahoo! Aspergillosis Support

group?





1998
2000
2002
2004
Question 6
Who was the first person to run the Aspergillus

Website?


Graham Atherton



Adam Huffman



Emma Prebble
Question 7
How many people are currently in our Facebook

Aspergillus Support group?





200
253
294
315
Question 8
In the last month, how many people have visited the

(new) Aspergillus Support Website for Patients?
nacpatients.org.uk





500
1400
7500
15000
Question 9
Our websites are available all across the world. Our

main users are people in the UK and in the US but
there are many more. Which is the country is our
next most frequent visitor?





Canada
China
Australia
India
Question 10
How many times have the recordings of our patient

support meetings been viewed so far? NB there are
over 50 recordings available





5000
10000
25000
50000
Question 11
How many pages are there in the Aspergillus

Website?





5000
25000
50000
100000
Question 12
Deb Hawker is currently doing a series of runs over 3

months to raise money for Cancer Research and to
‘Mend Maddies Mum’. Is she going to run:





3 miles
13.5 miles
26 miles
46 miles

 www.justgiving.com/Deborah-Hawker2013/
 gogetfunding.com/project/mend-maddie-s-mummy
Question 13
 Prof Denning has been on a tour of the world this year as

we educate many on the importance of identifying and
treating fungal infections. The countries he has visited
include China, Australia, South Africa, USA and much of
Europe including Turkey.
How many countries has he visited in total?




13
21
35
Question 14
October Meeting: What was the name of Danielle

Yuilles project to coordinate the involvement of
patients in several aspects of research & service?




VOICE
CHOICE
VOIP
Question 15
September meeting: New consulant Eavan Muldoon
has come to us from




New York
San Francisco
Boston
Question 16
August meeting: David Denning mentioned that our
research using a particular tool shows that patients
treated with one antifungal (itraconazole) seem to
slowly get worse over time. Which tool?




MRC questionnaire
QOL questionnaire
Sf36 questionnaire
Question 17
July meeting: Julia Hamer (UHSM Directorate
manager) gave us the new name of the organisation
overseeing the NHS here in UHSM. What is it called?




NHS England
NHS UK
NHS Britain
Question 18
June meeting: Steve Webster gave us a talk on ‘Caring
for Carers’. Which organisation does he work for?




Princess Royal Trust
Carers UK
Manchester Carers Centre
Question 19
May meeting: Alison Wearden told us that stress is a
feature of all chronic conditions and has been shown to
inhibit:




Wound healing
Social interaction
Breathlessness
Question 20
April meeting: Mike Bromley showed us that the
development of many new drugs is now being done in
smaller companies. Why?




Cheaper
They are better at it
Less risk for the large drug companies
Question 21
March meeting: Riina Richardson told us that one of
the main causes of damp & mould in our homes is




Living in a colder country
Living in a wet country
Dust & condensation
Question 22
February meeting: Khaled Al-shair told us that those
of us with respiratory infections can help ourselves by
exercising regularly. It is helpful to do at least:




Gentle Walking 5 - 10 min
Walking 20 min
Gentle jogging 5 min
Question 23
January meeting: Debbie Kennedy told us that
common side effects of itraconazole are:




Dizzyness, thirst
Photosensitivity
Gastro-intestinal upset, rash, headache
Question 24
Creative Writing: Caroline Hawkridge. This year we
wrote a poem called ‘Hope is…’ that was read by
Rupert Everett at the launch of the Global Action Fund
for Fungal Infections (GAFFI www.gaffi.org). What
was the initial inspiration for the name?




Hope hospital, Manchester
The name of the daughter of one of our doctors
To try give everyone encouragement
Question 25
Awareness. We have hosted a few projects this year that have involved
poetry and been very successful. One (at the Manchester Literature
Festival) was described as a ‘remarkable event’ by professional reviewer
Chris Ogden. What was it called?




Opening the doors
Opening the windows
Opening our lungs
Answers

Ready?
Question 1
Next year the National Aspergillosis Centre will have

been operating for:





4 years
5 years
6 years
More?
Question 2
Who (Other than Prof Denning) has worked for the

aspergillosis clinic longest?




Dr Newton
Graham & Chris
Georgina & Debbie Kennedy
Question 3
When was the Aspergillus Website started?




1996
1997
1998
Question 4
When did we start our first online support group?





1996
1998
2000
2002
Question 5
When did we start our Yahoo! Aspergillosis Support

group?





1998
2000
2002
2004
Question 6
Who was the first person to run the Aspergillus

Website?


Graham Atherton



Adam Huffman



Emma Prebble
Question 7
How many people are currently in our Facebook

Aspergillus Support group?





200
253
294
315
Question 8
In the last month, how many people have visited the

(new) Aspergillus Support Website for Patients?
nacpatients.org.uk





1400
500
7500
15000
Question 9
Our websites are available all across the world. Our

main users are people in the UK and in the US but
there are many more. Which is the country is our
next most frequent visitor?





Canada
Australia
China
India
Question 10
How many times have the recordings of our patient

support meetings been viewed so far? NB there are
over 50 recordings available





5000
10000
25000
50000
Question 11
How many pages are there in the Aspergillus

Website?





5000
25000
50000
100000
Question 12
Deb Hawker is currently doing a series of runs over 3

months to raise money for Cancer Research and to
‘Mend Maddies Mum’. Is she going to run:





3 miles
13.5 miles
26 miles
46 miles

 www.justgiving.com/Deborah-Hawker2013/
 gogetfunding.com/project/mend-maddie-s-mummy
Question 13
 Prof Denning has been on a tour of the world this year as

we educate many on the importance of identifying and
treating fungal infections. The countries he has visited
include China, Australia, South Africa, USA and much of
Europe including Turkey.
How many countries has he visited in total?




13
21
35
Question 14
October Meeting: What was the name of Danielle

Yuilles project to coordinate the involvement of
patients in several aspects of research & service?




VOICE
CHOICE
VOIP
Question 15
September meeting: New consulant Eavan Muldoon
has come to us from




New York
San Francisco
Boston
Question 16
August meeting: David Denning mentioned that our
research using a particular tool shows that patients
treated with one antifungal (itraconazole) seem to
slowly get worse over time. Which tool?




MRC questionnaire
QOL questionnaire
Sf36 questionnaire
Question 17
July meeting: Julia Hamer (UHSM Directorate
manager) gave us the new name of the organisation
overseeing the NHS here in UHSM. What is it called?




NHS England
NHS UK
NHS Britain
Question 18
June meeting: Steve Webster gave us a talk on ‘Caring
for Carers’. Which organisation does he work for?




Princess Royal Trust
Carers UK
Manchester Carers Centre
Question 19
May meeting: Alison Wearden told us that stress is a
feature of all chronic conditions and has been shown to
inhibit:




Wound healing
Social interaction
Breathlessness
Question 20
April meeting: Mike Bromley showed us that the
development of many new drugs is now being done in
smaller companies. Why?




Cheaper
They are better at it
Less risk for the large drug companies
Question 21
March meeting: Riina Richardson told us that one of
the main causes of damp & mould in our homes is




Living in a colder country
Living in a wet country
Dust & condensation
Question 22
February meeting: Khaled Al-shair told us that those
of us with respiratory infections can help ourselves by
exercising regularly. It is helpful to do at least:




Gentle Walking 5 - 10 min
Walking 20 min
Gentle jogging 5 min
Question 23
January meeting: Debbie Kennedy told us that
common side effects of itraconazole are:




Dizzyness, thirst
Photosensitivity
Gastro-intestinal upset, rash, headache
Question 24
Creative Writing: Caroline Hawkridge. This year we
wrote a poem called ‘Hope is…’ that was read by
Rupert Everett at the launch of the Global Action Fund
for Fungal Infections (GAFFI www.gaffi.org). What
was the initial inspiration for the name?




Hope hospital, Manchester
The name of the daughter of one of our doctors
To try give everyone encouragement
Question 24
Creative Writing: Caroline Hawkridge. This year we
wrote a poem called ‘Hope is…’ that was read by
Rupert Everett at the launch of the Global Action Fund
for Fungal Infections (GAFFI www.gaffi.org). What
was the initial inspiration for the name?




Hope hospital, Manchester
The name of the daughter of one of our doctors
To try give everyone encouragement
Question 25
Awareness. We have hosted a few projects this year that have involved
poetry and been very successful. One (at the Manchester Literature
Festival) was described as a ‘remarkable event’ by professional reviewer
Chris Ogden. What was it called?




Open the doors
Open the windows
Open our lungs
Suggest a subject
Can be on any relevant subject you would like to hear
our opinion or get our help with

Send suggestions to admin@aspergillus.org.uk
Pass notes to me at clinic or at the meeting
Phone them in (24 hrs) at 0161 291 5866
Thank You

“The best chance we have of beating this illness is to
work together”
Living with it, Working with it, Treating it
Fungal Research Trust
Question 12
Deb Hawker is currently doing a series of runs over 3

months to raise money for Cancer Research and to
‘Mend Maddies Mum’. Is she going to run:





3 miles
13.5 miles
26 miles
46 miles

 www.justgiving.com/Deborah-Hawker2013/
 gogetfunding.com/project/mend-maddie-s-mummy
Question 16
August meeting: David Denning mentioned that our
research using a particular tool shows that patients
treated with one antifungal (itraconazole) seem to
slowly get worse over time. Which tool?




MRC questionnaire
QOL questionnaire
Sf36 questionnaire
Question 22
February meeting: Khaled Al-shair told us that those
of us with respiratory infections can help ourselves by
exercising regularly. It is helpful to do at least:




Gentle Walking 5 - 10 min
Walking 20 min
Gentle jogging 5 min
Question 24
Creative Writing: Caroline Hawkridge. This year we
wrote a poem called ‘Hope is…’ that was read by
Rupert Everett at the launch of the Global Action Fund
for Fungal Infections (GAFFI www.gaffi.org). What
was the initial inspiration for the name?




Hope hospital, Manchester
The name of the daughter of one of our doctors
To try give everyone encouragement
Low allergen Christmas Trees

Happy low allergen Christmas from us all!!

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Aspergillosis Support Group Christmas Quiz 2013

  • 1. Support Meeting for Aspergillosis Patients & Carers LED BY GRAHAM ATHERTON SUPPORTED BY NAC CENTRE MANAGER CHRIS HARRIS CHRISTMAS QUIZ 2013 NATIONAL ASPERGILLOSIS CENTRE UHSM MANCHESTER Fungal Research Trust
  • 2. Programme  1.30 Questions  2.15 Break  2.45 Answers  3.30 End
  • 3. Question 1 Next year the National Aspergillosis Centre will have been operating for:     4 years 5 years 6 years More?
  • 4. Question 2 Who (Other than Prof Denning) has worked for the aspergillosis clinic longest?    Dr Newton Graham & Chris Georgina & Debbie Kennedy
  • 5. Question 3 When was the Aspergillus Website started?    1996 1997 1998
  • 6. Question 4 When did we start our first online support group for patients?     1996 1998 2000 2002
  • 7. Question 5 When did we start our Yahoo! Aspergillosis Support group?     1998 2000 2002 2004
  • 8. Question 6 Who was the first person to run the Aspergillus Website?  Graham Atherton  Adam Huffman  Emma Prebble
  • 9. Question 7 How many people are currently in our Facebook Aspergillus Support group?     200 253 294 315
  • 10. Question 8 In the last month, how many people have visited the (new) Aspergillus Support Website for Patients? nacpatients.org.uk     500 1400 7500 15000
  • 11. Question 9 Our websites are available all across the world. Our main users are people in the UK and in the US but there are many more. Which is the country is our next most frequent visitor?     Canada China Australia India
  • 12. Question 10 How many times have the recordings of our patient support meetings been viewed so far? NB there are over 50 recordings available     5000 10000 25000 50000
  • 13. Question 11 How many pages are there in the Aspergillus Website?     5000 25000 50000 100000
  • 14. Question 12 Deb Hawker is currently doing a series of runs over 3 months to raise money for Cancer Research and to ‘Mend Maddies Mum’. Is she going to run:     3 miles 13.5 miles 26 miles 46 miles  www.justgiving.com/Deborah-Hawker2013/  gogetfunding.com/project/mend-maddie-s-mummy
  • 15. Question 13  Prof Denning has been on a tour of the world this year as we educate many on the importance of identifying and treating fungal infections. The countries he has visited include China, Australia, South Africa, USA and much of Europe including Turkey. How many countries has he visited in total?    13 21 35
  • 16. Question 14 October Meeting: What was the name of Danielle Yuilles project to coordinate the involvement of patients in several aspects of research & service?    VOICE CHOICE VOIP
  • 17. Question 15 September meeting: New consulant Eavan Muldoon has come to us from    New York San Francisco Boston
  • 18. Question 16 August meeting: David Denning mentioned that our research using a particular tool shows that patients treated with one antifungal (itraconazole) seem to slowly get worse over time. Which tool?    MRC questionnaire QOL questionnaire Sf36 questionnaire
  • 19. Question 17 July meeting: Julia Hamer (UHSM Directorate manager) gave us the new name of the organisation overseeing the NHS here in UHSM. What is it called?    NHS England NHS UK NHS Britain
  • 20. Question 18 June meeting: Steve Webster gave us a talk on ‘Caring for Carers’. Which organisation does he work for?    Princess Royal Trust Carers UK Manchester Carers Centre
  • 21. Question 19 May meeting: Alison Wearden told us that stress is a feature of all chronic conditions and has been shown to inhibit:    Wound healing Social interaction Breathlessness
  • 22. Question 20 April meeting: Mike Bromley showed us that the development of many new drugs is now being done in smaller companies. Why?    Cheaper They are better at it Less risk for the large drug companies
  • 23. Question 21 March meeting: Riina Richardson told us that one of the main causes of damp & mould in our homes is    Living in a colder country Living in a wet country Dust & condensation
  • 24. Question 22 February meeting: Khaled Al-shair told us that those of us with respiratory infections can help ourselves by exercising regularly. It is helpful to do at least:    Gentle Walking 5 - 10 min Walking 20 min Gentle jogging 5 min
  • 25. Question 23 January meeting: Debbie Kennedy told us that common side effects of itraconazole are:    Dizzyness, thirst Photosensitivity Gastro-intestinal upset, rash, headache
  • 26. Question 24 Creative Writing: Caroline Hawkridge. This year we wrote a poem called ‘Hope is…’ that was read by Rupert Everett at the launch of the Global Action Fund for Fungal Infections (GAFFI www.gaffi.org). What was the initial inspiration for the name?    Hope hospital, Manchester The name of the daughter of one of our doctors To try give everyone encouragement
  • 27. Question 25 Awareness. We have hosted a few projects this year that have involved poetry and been very successful. One (at the Manchester Literature Festival) was described as a ‘remarkable event’ by professional reviewer Chris Ogden. What was it called?    Opening the doors Opening the windows Opening our lungs
  • 29. Question 1 Next year the National Aspergillosis Centre will have been operating for:     4 years 5 years 6 years More?
  • 30. Question 2 Who (Other than Prof Denning) has worked for the aspergillosis clinic longest?    Dr Newton Graham & Chris Georgina & Debbie Kennedy
  • 31. Question 3 When was the Aspergillus Website started?    1996 1997 1998
  • 32. Question 4 When did we start our first online support group?     1996 1998 2000 2002
  • 33. Question 5 When did we start our Yahoo! Aspergillosis Support group?     1998 2000 2002 2004
  • 34. Question 6 Who was the first person to run the Aspergillus Website?  Graham Atherton  Adam Huffman  Emma Prebble
  • 35. Question 7 How many people are currently in our Facebook Aspergillus Support group?     200 253 294 315
  • 36. Question 8 In the last month, how many people have visited the (new) Aspergillus Support Website for Patients? nacpatients.org.uk     1400 500 7500 15000
  • 37. Question 9 Our websites are available all across the world. Our main users are people in the UK and in the US but there are many more. Which is the country is our next most frequent visitor?     Canada Australia China India
  • 38. Question 10 How many times have the recordings of our patient support meetings been viewed so far? NB there are over 50 recordings available     5000 10000 25000 50000
  • 39. Question 11 How many pages are there in the Aspergillus Website?     5000 25000 50000 100000
  • 40. Question 12 Deb Hawker is currently doing a series of runs over 3 months to raise money for Cancer Research and to ‘Mend Maddies Mum’. Is she going to run:     3 miles 13.5 miles 26 miles 46 miles  www.justgiving.com/Deborah-Hawker2013/  gogetfunding.com/project/mend-maddie-s-mummy
  • 41. Question 13  Prof Denning has been on a tour of the world this year as we educate many on the importance of identifying and treating fungal infections. The countries he has visited include China, Australia, South Africa, USA and much of Europe including Turkey. How many countries has he visited in total?    13 21 35
  • 42. Question 14 October Meeting: What was the name of Danielle Yuilles project to coordinate the involvement of patients in several aspects of research & service?    VOICE CHOICE VOIP
  • 43. Question 15 September meeting: New consulant Eavan Muldoon has come to us from    New York San Francisco Boston
  • 44. Question 16 August meeting: David Denning mentioned that our research using a particular tool shows that patients treated with one antifungal (itraconazole) seem to slowly get worse over time. Which tool?    MRC questionnaire QOL questionnaire Sf36 questionnaire
  • 45. Question 17 July meeting: Julia Hamer (UHSM Directorate manager) gave us the new name of the organisation overseeing the NHS here in UHSM. What is it called?    NHS England NHS UK NHS Britain
  • 46. Question 18 June meeting: Steve Webster gave us a talk on ‘Caring for Carers’. Which organisation does he work for?    Princess Royal Trust Carers UK Manchester Carers Centre
  • 47. Question 19 May meeting: Alison Wearden told us that stress is a feature of all chronic conditions and has been shown to inhibit:    Wound healing Social interaction Breathlessness
  • 48. Question 20 April meeting: Mike Bromley showed us that the development of many new drugs is now being done in smaller companies. Why?    Cheaper They are better at it Less risk for the large drug companies
  • 49. Question 21 March meeting: Riina Richardson told us that one of the main causes of damp & mould in our homes is    Living in a colder country Living in a wet country Dust & condensation
  • 50. Question 22 February meeting: Khaled Al-shair told us that those of us with respiratory infections can help ourselves by exercising regularly. It is helpful to do at least:    Gentle Walking 5 - 10 min Walking 20 min Gentle jogging 5 min
  • 51. Question 23 January meeting: Debbie Kennedy told us that common side effects of itraconazole are:    Dizzyness, thirst Photosensitivity Gastro-intestinal upset, rash, headache
  • 52. Question 24 Creative Writing: Caroline Hawkridge. This year we wrote a poem called ‘Hope is…’ that was read by Rupert Everett at the launch of the Global Action Fund for Fungal Infections (GAFFI www.gaffi.org). What was the initial inspiration for the name?    Hope hospital, Manchester The name of the daughter of one of our doctors To try give everyone encouragement
  • 53. Question 24 Creative Writing: Caroline Hawkridge. This year we wrote a poem called ‘Hope is…’ that was read by Rupert Everett at the launch of the Global Action Fund for Fungal Infections (GAFFI www.gaffi.org). What was the initial inspiration for the name?    Hope hospital, Manchester The name of the daughter of one of our doctors To try give everyone encouragement
  • 54. Question 25 Awareness. We have hosted a few projects this year that have involved poetry and been very successful. One (at the Manchester Literature Festival) was described as a ‘remarkable event’ by professional reviewer Chris Ogden. What was it called?    Open the doors Open the windows Open our lungs
  • 55. Suggest a subject Can be on any relevant subject you would like to hear our opinion or get our help with Send suggestions to admin@aspergillus.org.uk Pass notes to me at clinic or at the meeting Phone them in (24 hrs) at 0161 291 5866
  • 56. Thank You “The best chance we have of beating this illness is to work together” Living with it, Working with it, Treating it Fungal Research Trust
  • 57. Question 12 Deb Hawker is currently doing a series of runs over 3 months to raise money for Cancer Research and to ‘Mend Maddies Mum’. Is she going to run:     3 miles 13.5 miles 26 miles 46 miles  www.justgiving.com/Deborah-Hawker2013/  gogetfunding.com/project/mend-maddie-s-mummy
  • 58. Question 16 August meeting: David Denning mentioned that our research using a particular tool shows that patients treated with one antifungal (itraconazole) seem to slowly get worse over time. Which tool?    MRC questionnaire QOL questionnaire Sf36 questionnaire
  • 59. Question 22 February meeting: Khaled Al-shair told us that those of us with respiratory infections can help ourselves by exercising regularly. It is helpful to do at least:    Gentle Walking 5 - 10 min Walking 20 min Gentle jogging 5 min
  • 60. Question 24 Creative Writing: Caroline Hawkridge. This year we wrote a poem called ‘Hope is…’ that was read by Rupert Everett at the launch of the Global Action Fund for Fungal Infections (GAFFI www.gaffi.org). What was the initial inspiration for the name?    Hope hospital, Manchester The name of the daughter of one of our doctors To try give everyone encouragement
  • 61. Low allergen Christmas Trees Happy low allergen Christmas from us all!!