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Maintaining Healthy Lives for
  People with Disabilities

       Jane Maxwell
Hesperian Health Guides
  Hesperian’s mission is to publish books and
 other educational materials that enable poor
communities to take greater control over their
health and their lives. Our resources are used
  by millions of people worldwide who have
      little or no access to medical care.
Hesperian’s Community
                       Health Guides
                                       •   Helping Children Who Are Blind
•   Where There Is No Doctor
•   Where Women Have No Doctor         •   Helping Children Who are Deaf
•   A Book for Midwives                •   Helping Health Workers Learn
•   Disabled Village Children          •   Where There Is No Dentist
•   A Health Handbook for Women with   •   A Community Guide to Environmental
    Disabilities                           Health
•   Afghanistan          •   Laos
•   Argentina            •   Lebanon
•   Australia            •   Lesotho
•   Bermuda              •   Malawi
•   Cambodia             •   Malaysia
•   Canada               •   Mauritius
•   China                •   Mexico
•   Colombia             •   Nigeria
•   DR Congo             •   Palau
•   Dominican Republic   •   Philippines
•   Egypt                •   Russia
•   El Salvador          •   South Korea
•   England              •   Tanzania
•   Fiji Islands         •   Thailand
•   Finland              •   Tobago
•   Rep.of Georgia       •   Uganda
•   Ghana                •   United States
•   Hong Kong            •   Vietnam
•   India                •   Yemen
•   Jamaica              •   Zambia
•   Kenya                •   Zimbabwe
I wonder if those chapters (family planning, sexuality) have already
been adapted to the Afghan context. Because I am concerned that
 those chapters are going a bit too far in what Afghanistan can cope
with. Many things can be discussed openly with women nowadays in
Afghanistan, but printing and disseminating this material is another
huge step that I see as potentially being too ambitious at the moment. It
might create unwanted side effects, such as shuras, elders, or husbands
reacting strongly to such details – especially birth control techniques.
I think we have to be cautious with the pictures too.


      -- Firoz Alizada,
      -- National Association of Women with Disabilities of Afghanistan
Nagarathna and Shobha expressed that they could not
participate this time due to their prior commitments. I
managed to get Madhu (who is visually impaired), Jaya
(who has bilateral polio), and Dorothy (who is in a
wheelchair) to come to Mobility India and discuss the
chapters. This process took half a day, but in the end
they were satisfied, happy and are eagerly looking
forward to the book.


I must mention that there were some typing errors,
which I am sure you will attend to.
What the book does NOT cover:
• Disease-related disabilities, such as diabetes and

  lupus.

• Physical therapy

• Medical management of individual disabilities
What the book DOES cover:
• organizing for disability-friendly health care.
• how to care for daily needs with limited access to
  equipment..
• having healthy and safe sexual relationships.
• which family planning methods work best for which
  disabilities.
• pregnancy and childbirth.
• how to defend against violence or abuse.
• how families and caregivers can assist women with
  disabilities in a way that is helpful and not demeaning.
Translations   In Progress
   Spanish     Vietnamese
    Nepali       Bengali
     Lao          Azeri
   Chinese         Igbo
   Khmer        Armenian
     Urdu      Mongolian
    Telugu        Tamil
    Arabic
Jane Maxwell

janem@hesperian.org

 www.hesperian.org

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Maintaining Healthy Lives for People with Disabilities

  • 1. Maintaining Healthy Lives for People with Disabilities Jane Maxwell
  • 2. Hesperian Health Guides Hesperian’s mission is to publish books and other educational materials that enable poor communities to take greater control over their health and their lives. Our resources are used by millions of people worldwide who have little or no access to medical care.
  • 3. Hesperian’s Community Health Guides • Helping Children Who Are Blind • Where There Is No Doctor • Where Women Have No Doctor • Helping Children Who are Deaf • A Book for Midwives • Helping Health Workers Learn • Disabled Village Children • Where There Is No Dentist • A Health Handbook for Women with • A Community Guide to Environmental Disabilities Health
  • 4.
  • 5. Afghanistan • Laos • Argentina • Lebanon • Australia • Lesotho • Bermuda • Malawi • Cambodia • Malaysia • Canada • Mauritius • China • Mexico • Colombia • Nigeria • DR Congo • Palau • Dominican Republic • Philippines • Egypt • Russia • El Salvador • South Korea • England • Tanzania • Fiji Islands • Thailand • Finland • Tobago • Rep.of Georgia • Uganda • Ghana • United States • Hong Kong • Vietnam • India • Yemen • Jamaica • Zambia • Kenya • Zimbabwe
  • 6.
  • 7. I wonder if those chapters (family planning, sexuality) have already been adapted to the Afghan context. Because I am concerned that those chapters are going a bit too far in what Afghanistan can cope with. Many things can be discussed openly with women nowadays in Afghanistan, but printing and disseminating this material is another huge step that I see as potentially being too ambitious at the moment. It might create unwanted side effects, such as shuras, elders, or husbands reacting strongly to such details – especially birth control techniques. I think we have to be cautious with the pictures too. -- Firoz Alizada, -- National Association of Women with Disabilities of Afghanistan
  • 8.
  • 9. Nagarathna and Shobha expressed that they could not participate this time due to their prior commitments. I managed to get Madhu (who is visually impaired), Jaya (who has bilateral polio), and Dorothy (who is in a wheelchair) to come to Mobility India and discuss the chapters. This process took half a day, but in the end they were satisfied, happy and are eagerly looking forward to the book. I must mention that there were some typing errors, which I am sure you will attend to.
  • 10.
  • 11.
  • 12. What the book does NOT cover: • Disease-related disabilities, such as diabetes and lupus. • Physical therapy • Medical management of individual disabilities
  • 13. What the book DOES cover: • organizing for disability-friendly health care. • how to care for daily needs with limited access to equipment.. • having healthy and safe sexual relationships. • which family planning methods work best for which disabilities. • pregnancy and childbirth. • how to defend against violence or abuse. • how families and caregivers can assist women with disabilities in a way that is helpful and not demeaning.
  • 14.
  • 15.
  • 16.
  • 17.
  • 18.
  • 19.
  • 20.
  • 21.
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  • 29.
  • 30. Translations In Progress Spanish Vietnamese Nepali Bengali Lao Azeri Chinese Igbo Khmer Armenian Urdu Mongolian Telugu Tamil Arabic